RE: Fetal Dilantin Syndrome

September 27, 2006

I had never heard it called any particular syndrome before but I learned of

the problems when I had my second child (breast fed her for six months after

being on Dilantin through the pregnancy). She's 25 now and I would have

thought that the medical profession would have gotten better about telling

women about the problems by now. I was lucky - my daughter was smaller than

my first child and she didn't walk or talk until she was almost 2 1/2. I

took her to Columbia in NYC when she was 2 to try to find out what was going

on and they had no idea. She was also a very cranky baby and would barely

let me touch her - no one else could touch her at all without her screaming

and that included her father. Before I got pregnant with her, I had talked

to my neuro and my ob/gyn about any complications from Dilantin and both

assured me that there were none. I even wrote to the drug company

(Parke- in 1980) and asked them. They said that there were none. The

first time I learned that my daughter's delays and Dilantin were connected

was when she was 2 and Parke- lost a $6 mil lawsuit to a couple whose

child had been born without eyeballs from Dilantin. I had my tubes tied two

weeks later. Anyway, now you would have no idea that anything had been

wrong or delayed about my daughter. The only permanent effect seems to be

her oddly shaped toes. Why aren't more women like us warned about the

problems that Dilantin can cause a developing fetus? It seems like we both

tried to make educated decisions and the medical esablishment was either too

ignorant or lazy to find out and to let us know.

>From: " " <baumeister1976@...>

>Reply-

>

>Subject: [ ] Fetal Dilantin Syndrome

>Date: Fri, 22 Sep 2006 15:42:11 -0000

>

>Hi everyone!!! I just joined your group today. I'm an epileptic mother

>of three children. I just found out about fetal dilantin syndrome a

>few days ago. I'm curious for more info on this syndrome and your

>experiences. My children are ages 10, 9, and 2. I was on dilantin with

>all three of them while pregnant. Even nursed my oldest for 10 months.

>My oldest is autistic. I'm just so furious at the medical personnel!!!

>I've done tons and tons of research for pregnancy and dilantin. Never

>found out to much. Have asked doctors repeatedly the effects on my

>children from dilantin. Now I'm just finding out about this

>syndrome!!!! Please help with info and support. Thank you and God

>Bless you all.

>

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