Re: seizures with monthly menses

[Guest guest]

Yes, that's when I normally have mine! Is during my time of the month! Other

then that I " m good and strong! I stick to a 80% - 100% raw diet (which is raw

fruits, raw vegetables, raw nuts & seeds and little bit of cooked vegetables).

-When I get up I take 2- St. s wort,

-then do my urine therapy,

-then I exercise,

-daily activities (work),

-then before bed I take 1 valerian root (this really relaxes the mind which

really makes my mind feel at ease with my epilepsy)!

-I don't take any meds! This natural stuff I do helps me more then anything

ever has done! Meds only made me worse!

The Grubb Family <dbgrubb@...> wrote:

I am now certain my current battle with seizures is triggered by

hormones. The day my menses starts is the same day I have seizures trying to

start.

I took my normal 850mg dose of scullcap at 9:00pm and had to take another full

dose at midnight. Then, at 7:00 (when I had the seizure last month) I felt

another 'rush' so I took my 9:00am dose a little early. I haven't had any

seizures so far. I slept really well!

I'm going to take it very easy for the next few days until this situation

settles down. I think something to 'balance' the hormones is in order.

I'm not sure if extra Progesterone (wild yam) is a good idea for me. Since the

seizures hit when it decreases naturally and I would have to stop taking the

wild yam at the same time - it seems like it could actually make the whole

hormonal roller coaster ride worse at that time. Has anyone else had a similar

situation of seisures and monthly exactly the same time every month? I'd love to

hear your experiences.

I'd also love to read a good website about this issue.

Blessings, moni

[Guest guest]

my daughter has the same problem her seizures are on the same day each cycle and

are very difficult to control but the progesterone helps

[ ] seizures with monthly menses

I am now certain my current battle with seizures is triggered by hormones. The

day my menses starts is the same day I have seizures trying to start.

I took my normal 850mg dose of scullcap at 9:00pm and had to take another full

dose at midnight. Then, at 7:00 (when I had the seizure last month) I felt

another 'rush' so I took my 9:00am dose a little early. I haven't had any

seizures so far. I slept really well!

I'm going to take it very easy for the next few days until this situation

settles down. I think something to 'balance' the hormones is in order.

I'm not sure if extra Progesterone (wild yam) is a good idea for me. Since the

seizures hit when it decreases naturally and I would have to stop taking the

wild yam at the same time - it seems like it could actually make the whole

hormonal roller coaster ride worse at that time. Has anyone else had a similar

situation of seisures and monthly exactly the same time every month? I'd love to

hear your experiences.

I'd also love to read a good website about this issue.

Blessings, moni

[Guest guest]

<<What is scullcap?

>>

(excerpt from

http://www.viable-herbal.com/singles/herbs/s525.htm )

Scullcap relaxes states of nervous tension while simultaneously renewing &

reviving the central nervous system. Scullcap has traditionally been used in

combination with Valerian as a mild sedative for anxiety. It has also been

used in patented medicines for " female problems " . It has a specific use in

the treatment of seizure and hysterical states, as well as epilepsy. This

herb may also be used in all exhausted or depressed conditions, and can be

used in the easing of pre-menstrual tension.

[Guest guest]

Hi Melinda:

Have you tried magnesium and Vitamin B-50 plus B-complex. It has been a life

saver for me.

What type of urine therapy do you do? You can email me directly if you want.

e321@...

I feel much better when I go vegetarian like you. except I do eat fish. and

also cooked vegies and beans.

thanks,

Melinda Pruitt <melindaxl@...> wrote:

Yes, that's when I normally have mine! Is during my time of the month!

Other then that I " m good and strong! I stick to a 80% - 100% raw diet (which is

raw fruits, raw vegetables, raw nuts & seeds and little bit of cooked

vegetables).

-When I get up I take 2- St. s wort,

-then do my urine therapy,

-then I exercise,

-daily activities (work),

-then before bed I take 1 valerian root (this really relaxes the mind which

really makes my mind feel at ease with my epilepsy)!

-I don't take any meds! This natural stuff I do helps me more then anything ever

has done! Meds only made me worse!

The Grubb Family <dbgrubb@...> wrote:

I am now certain my current battle with seizures is triggered by hormones. The

day my menses starts is the same day I have seizures trying to start.

I took my normal 850mg dose of scullcap at 9:00pm and had to take another full

dose at midnight. Then, at 7:00 (when I had the seizure last month) I felt

another 'rush' so I took my 9:00am dose a little early. I haven't had any

seizures so far. I slept really well!

I'm going to take it very easy for the next few days until this situation

settles down. I think something to 'balance' the hormones is in order.

I'm not sure if extra Progesterone (wild yam) is a good idea for me. Since the

seizures hit when it decreases naturally and I would have to stop taking the

wild yam at the same time - it seems like it could actually make the whole

hormonal roller coaster ride worse at that time. Has anyone else had a similar

situation of seisures and monthly exactly the same time every month? I'd love to

hear your experiences.

I'd also love to read a good website about this issue.

Blessings, moni

[Guest guest]

How/when do you use the progesterone. This has been suggested for

my daughter, as well. She hasn't statred menses yet, but she's

getting close. I think the " cycles " start before it officially

arrives. So, I wouldn't know how to target date of cycle -- but I

do know that she's had an intense cycle of seizures the end of each

month (just coming down off it -- I hope -- now). Thanks!--D

>

> my daughter has the same problem her seizures are on the same day

each cycle and are very difficult to control but the progesterone

helps

> [ ] seizures with monthly menses

>

>

> I am now certain my current battle with seizures is triggered by

hormones. The day my menses starts is the same day I have seizures

trying to start.

> I took my normal 850mg dose of scullcap at 9:00pm and had to

take another full dose at midnight. Then, at 7:00 (when I had the

seizure last month) I felt another 'rush' so I took my 9:00am dose a

little early. I haven't had any seizures so far. I slept really

well!

> I'm going to take it very easy for the next few days until this

situation settles down. I think something to 'balance' the hormones

is in order.

> I'm not sure if extra Progesterone (wild yam) is a good idea for

me. Since the seizures hit when it decreases naturally and I would

have to stop taking the wild yam at the same time - it seems like it

could actually make the whole hormonal roller coaster ride worse at

that time. Has anyone else had a similar situation of seisures and

monthly exactly the same time every month? I'd love to hear your

experiences.

> I'd also love to read a good website about this issue.

> Blessings, moni

>

>

[Guest guest]

Hi Moni and group,

Below is an abstract and some links on seizures related to the

menstrual cycle, catamenial seizures. The number of women with

seizure disorders who experience a change in their seizure patterns

at around the time of this cycle may be common. Sometimes the change

is for the better, sometimes worse. Progesterone has been used

successfully to treat these type seizures. There's a lot of info on

the web about this. I found it difficult to wade through the stuff on

a 'drugs only' approach. The information is out there, just takes

some poking around. Also, check out Lee's writing on

progesterone if you haven't done so already.

Zoe

1: Nervenarzt. 1995 Oct;66(10):760-9.

[Catamenial seizures--an analysis]

[Article in German]

Bauer J, Hocke A, Elger CE.

Klinik fur Epileptologie, Rheinische Friedrich-Wilhelms- Universitat

Bonn.

Catamenial seizures are defined as epileptic seizures occurring

during distinct

phases of the menstrual cycle (i.e., periovulatory, premenstrually

and during

menstruation). The cyclic changes of the gonadotropic hormones are

thought to be

the main cause of the seizures. This hypothesis is supported by

results of

animal experiments, which have shown oestrogens to increase neuronal

excitability whereas progesterone lowered it. We investigated 21

women with

epilepsy who reported a catamenial increase in seizure frequency.

Only 24% of

these women actually exhibited a catamenial manifestation in more

than 75% of

seizures. The incidence of catamenial seizures is reported in the

literature to

be between 10% and 72%. Catamenial seizures are treated with

anticonvulsant

drugs. However, when anticonvulsants have failed to suppress seizures,

progesterone or progesterone-derivates have been administered with

success. We

treated 16 patients with a synthetic GnRH-analogue to suppress the

hormonal

release of gonadotropins. Four of the six patients with only

catamenial seizure

manifestations and no other seizures became seizure free. Ten

patients had

catamenial seizures as well as seizures not related to the menstrual

cycle. A

decrease in seizure frequency by more than 50% was achieved in 7 of

these 10

patients.

PMID: 7501092 [PubMed - indexed for MEDLINE]

-------------

Study Confirms Link Between Seizure Frequency and Menstruation

in ...Anovulatory cycles feature estrogen without progesterone, and

estrogen is epileptogenic. If hormones play a role in a woman's

seizures, they may be more ...

http://www.epilepsy.com/articles/ar_1147959540.html

Women and Epilepsy, Part 1: Hormone Levels Can Influence Seizures " The

brain also has receptors for estrogen and progesterone, ... that

their seizures are influenced by ovulation, by menstruation and even

by menopause, ...

http://healthlink.mcw.edu/article/1031002294.html

EP Ask the Experts - Women and Epilepsy: Breakthrough Seizures...

know that her seizures are more frequent during her times of

ovulation and menstruation. We have heard of progesterone therapy for

women such as she. ...

http://www.eparent.com/resources/asktheexperts/askthedoctor_epilepsy.h

tm

Weill Cornell Department of Neurology and NeuroscienceNew Treatments

for Seizures Affected by Menstruation ... effect of a new treatment,

progesterone, on improving seizures which are related to

menstruation. ...

http://www.med.cornell.edu/neuro/patient_care/epilepsy_center/ne-

menstruation.html

Intermittent progesterone therapy and frequency of complex

partial ...We studied eight women who had complex partial seizures

and anovulatory ... Menstruation Disturbances/drug therapy*

Progesterone/administration & dosage ...

http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?

cmd=Retrieve & db=PubMed & list_uids=3785677 & dopt=Abstract

>

> I am now certain my current battle with seizures is triggered

by hormones. The day my menses starts is the same day I have

seizures trying to start.

> I took my normal 850mg dose of scullcap at 9:00pm and had to

take another full dose at midnight. Then, at 7:00 (when I had the

seizure last month) I felt another 'rush' so I took my 9:00am dose a

little early. I haven't had any seizures so far. I slept really

well!

> I'm going to take it very easy for the next few days until this

situation settles down. I think something to 'balance' the hormones

is in order.

> I'm not sure if extra Progesterone (wild yam) is a good idea

for me. Since the seizures hit when it decreases naturally and I

would have to stop taking the wild yam at the same time - it seems

like it could actually make the whole hormonal roller coaster ride

worse at that time. Has anyone else had a similar situation of

seisures and monthly exactly the same time every month? I'd love to

hear your experiences.

> I'd also love to read a good website about this issue.

> Blessings, moni

>

>

>