Guest guest Posted January 29, 2006 Report Share Posted January 29, 2006 In a message dated 1/30/2006 7:40:23 AM Eastern Standard Time, angel_lts@... writes: , It is very possible that your child is loosing alot of sleep in the night from seizures. And boys are more prone to have behavior problems than girls when dealing with epilepsy. Depokote also causes loss of bone when taking for an extended amount of time. Please be careful. My neice is only 18 and has osteopenia already in her life. She was on Depokote for five years. Depakote can deplete vitamin D and also selenmium and a couple of other things. Not my favorite AED. mjh " The Basil Book " http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 In a message dated 1/30/2006 9:22:39 AM Eastern Standard Time, amheartfield@... writes: Mjh, I'm really glad you answered because you always have such great suggestions. My son wasn't ever really on Depakote as it didn't stop the seizures in the hospital. He was then on Trileptol which caused a bad rash, then Zonegran which caused mania. He's been successfully on Carbatrol for about 6-8 months now I think. Could he be depleted of something that he needs.like the vitamin D and selenium that you mentioned? Yes, . Do a web search on the drug and really drill down to find the deficiencies. Also, make sure the diet has no processed or preserved foods, little junk carbs and a good amount of healthy brain fats. mjh " The Basil Book " http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 Mjh, do you follow any specific diet, ie, Atkins, or just use common sense? Also, did you ever try carosine (or the product carnaware) to help prevent seizures? thanks, Carolyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 Hi , My son began having seizures at 3.5 years old (he is now 7.5) and we have just begun to learn about the potential correlation between the origin of seizures in the brain and potential challenges with behavior (which we have always had). Our son's seizures for example are left frontal in origin and the frontal lobe controls things like impulsiveness, behavior regulation, strategic thinking/planning etc. (what is called executive order functioning). Are your son's seizures frontal lobe focus? Just a thought? ~ [ ] Seizures and behavior Hi there. I posted here a while back you were all very helpful. I read your posts daily and am amazed at your level of knowledge and experience. I'm hoping someone might have a suggestion for us. Here's a little background and I can provide more if needed. My son (5) began having seizures in July of last year and was in the hospital for about 2 weeks getting them under control. Then again in August. He was free of seizures for 3 months and then had 2 complex partials in one day, both less than a minute. Now, over the past week he has been having complex partials at night and the only way I know (other than the 2 that I actually saw on Friday) is that he wets the bed. Also, his behavior has gotten atrocious. He's whiny, has a very low tolerance level, etc. There haven't been any real med changes (he's on Carbatrol). There are a couple of things that are new, though. He started sensory integration therapy on January 18th and has been twice. And, his 18 month old sister had a 24-hour bug a few days ago. The other note I wanted to make was that back in July, before this whole seizure thing began, his behavior had begun to escalate. When we went to see his psychiatrist his med was changed from Tenex to Depakote and then had his first (known) seizure that next morning in the early hours. Now, I don't think it was the Depakote causing the seizure, I believe it was the med change. Regardless, it's just the behavior thing that is so similar. I guess my question is can these seizures cause their behavior to go haywire like this? And if so, what can I do to help it? Thanks! In raising my children I have lost my mind but found my soul. - Shepherd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 Why was he on meds before he started any seizures? >>> amheartfield@... 1/30/2006 12:04:16 AM >>> Hi there. I posted here a while back you were all very helpful. I read your posts daily and am amazed at your level of knowledge and experience. I'm hoping someone might have a suggestion for us. Here's a little background and I can provide more if needed. My son (5) began having seizures in July of last year and was in the hospital for about 2 weeks getting them under control. Then again in August. He was free of seizures for 3 months and then had 2 complex partials in one day, both less than a minute. Now, over the past week he has been having complex partials at night and the only way I know (other than the 2 that I actually saw on Friday) is that he wets the bed. Also, his behavior has gotten atrocious. He's whiny, has a very low tolerance level, etc. There haven't been any real med changes (he's on Carbatrol). There are a couple of things that are new, though. He started sensory integration therapy on January 18th and has been twice. And, his 18 month old sister had a 24-hour bug a few days ago. The other note I wanted to make was that back in July, before this whole seizure thing began, his behavior had begun to escalate. When we went to see his psychiatrist his med was changed from Tenex to Depakote and then had his first (known) seizure that next morning in the early hours. Now, I don't think it was the Depakote causing the seizure, I believe it was the med change. Regardless, it's just the behavior thing that is so similar. I guess my question is can these seizures cause their behavior to go haywire like this? And if so, what can I do to help it? Thanks! In raising my children I have lost my mind but found my soul. - Shepherd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 , It is very possible that your child is loosing alot of sleep in the night from seizures. And boys are more prone to have behavior problems than girls when dealing with epilepsy. Depokote also causes loss of bone when taking for an extended amount of time. Please be careful. My neice is only 18 and has osteopenia already in her life. She was on Depokote for five years. here is a site you can check out. http://www.epilepsy.com/articles/ar_1064604275.html Take care epilepsyapproach/ > > Hi there. I posted here a while back you were all very helpful. I read > your posts daily and am amazed at your level of knowledge and experience. > I'm hoping someone might have a suggestion for us. > > Here's a little background and I can provide more if needed. My son (5) > began having seizures in July of last year and was in the hospital for about > 2 weeks getting them under control. Then again in August. He was free of > seizures for 3 months and then had 2 complex partials in one day, both less > than a minute. Now, over the past week he has been having complex partials > at night and the only way I know (other than the 2 that I actually saw on > Friday) is that he wets the bed. Also, his behavior has gotten atrocious. > He's whiny, has a very low tolerance level, etc. There haven't been any > real med changes (he's on Carbatrol). > > There are a couple of things that are new, though. He started sensory > integration therapy on January 18th and has been twice. And, his 18 month > old sister had a 24-hour bug a few days ago. > > The other note I wanted to make was that back in July, before this whole > seizure thing began, his behavior had begun to escalate. When we went to > see his psychiatrist his med was changed from Tenex to Depakote and then had > his first (known) seizure that next morning in the early hours. Now, I > don't think it was the Depakote causing the seizure, I believe it was the > med change. Regardless, it's just the behavior thing that is so similar. > > I guess my question is can these seizures cause their behavior to go haywire > like this? And if so, what can I do to help it? > > > > Thanks! > > > > In raising my children I have lost my mind but found my soul. - > Shepherd > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 Mjh, I'm really glad you answered because you always have such great suggestions. My son wasn't ever really on Depakote as it didn't stop the seizures in the hospital. He was then on Trileptol which caused a bad rash, then Zonegran which caused mania. He's been successfully on Carbatrol for about 6-8 months now I think. Could he be depleted of something that he needs.like the vitamin D and selenium that you mentioned? _____ From: [mailto: ] On Behalf Of foxhillers@... Sent: Monday, January 30, 2006 6:51 AM Subject: Re: [ ] Re: Seizures and behavior In a message dated 1/30/2006 7:40:23 AM Eastern Standard Time, angel_lts@... writes: , It is very possible that your child is loosing alot of sleep in the night from seizures. And boys are more prone to have behavior problems than girls when dealing with epilepsy. Depokote also causes loss of bone when taking for an extended amount of time. Please be careful. My neice is only 18 and has osteopenia already in her life. She was on Depokote for five years. Depakote can deplete vitamin D and also selenmium and a couple of other things. Not my favorite AED. mjh " The Basil Book " http://foxhillfarm.us/FireBasil/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 Hi , Sorry you're going thru this. Yes, seizures can cause behavior problems. I don't actually think it's the seizures themselves that cause behavior problems, but the stress that having seizures causes. The first indication of my son having seizures (age 3) was he started banging his head on the floor and screaming like a possessed child--it was awful. He's autistic, nonverbal and also had a new sister so all the docs wrote it off as " autistic behavior " (previous to this he was a whiny child, but never really had a temper tantrum). Then we started seeing the seizures. Things would calm down then we'd see the same behavior again and within a couple weeks, he'd either develop a new type of seizure or the seizures would worsen. My guess is that the changes happening in his brain caused horrible anxiety. After a year or so when his seizures stopped changing, the behaviors disappeared. His seizures are not well controlled, but he's once again our sweet child. Also he's not whiny any more either! has taken a low dose of Celexa (SSRI, anti-depressant) for a couple years now and I think that helps with anxiety when he's in a bad seizure cycle. Medication can cause behavioral problems as well. had a bad reaction to Depakote. My passive kid actually bit one of his therapists! Also, Depakote worked for some of his seizures, but caused him to start atonic drop seizures. They stopped when we stopped the Depakote. A sz medication might work great for one kid, but worsen seizures in another--so watch out for that. And for some reason neuros don't always mention that. Also if they don't taper the medication down slowly enough (even if it doesn't seem to be working), it can cause withdrawal sz. And a last thought... Could your son's poor behavior and low tolerance be caused by lack of good sleep? If his seizures are disrupting his sleep, he could have chronic sleep deprivation. We've all seen what our kids act like when they haven't gotten enough sleep (or us!)--whiny, intolerant, poorly behaved... Something to consider anyway. Good luck! On Jan 30, 2006, at 12:04 AM, H. wrote: > Hi there. I posted here a while back you were all very helpful. I > read > your posts daily and am amazed at your level of knowledge and > experience. > I'm hoping someone might have a suggestion for us. > > Here's a little background and I can provide more if needed. My son > (5) > began having seizures in July of last year and was in the hospital > for about > 2 weeks getting them under control. Then again in August. He was > free of > seizures for 3 months and then had 2 complex partials in one day, > both less > than a minute. Now, over the past week he has been having complex > partials > at night and the only way I know (other than the 2 that I actually > saw on > Friday) is that he wets the bed. Also, his behavior has gotten > atrocious. > He's whiny, has a very low tolerance level, etc. There haven't been > any > real med changes (he's on Carbatrol). > > There are a couple of things that are new, though. He started sensory > integration therapy on January 18th and has been twice. And, his 18 > month > old sister had a 24-hour bug a few days ago. > > The other note I wanted to make was that back in July, before this > whole > seizure thing began, his behavior had begun to escalate. When we > went to > see his psychiatrist his med was changed from Tenex to Depakote and > then had > his first (known) seizure that next morning in the early hours. Now, > I > don't think it was the Depakote causing the seizure, I believe it was > the > med change. Regardless, it's just the behavior thing that is so > similar. > > I guess my question is can these seizures cause their behavior to go > haywire > like this? And if so, what can I do to help it? > > > > Thanks! > > > > In raising my children I have lost my mind but found my soul. - > Shepherd > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 30, 2006 Report Share Posted January 30, 2006 MARY,HI MY NAME IS MARK AND I'D LIKE TO TELL YOU SOMETHING YOU SHOULD NEVER DO,NEVER STRAP YOUR SON DOWN,IT WILL MAKE HIM MEANER/ANGRY MY BROTHER HAD THOSE KIND OF SEIZURES.MY SEIZURES THAT I HAVE,ARE GRANDMAL SEIZURES SOME HAVE LASTED OVER 45 MINUTES IN 2003 IN HAD 755 SEIZURES IN LESS THAN 6 MONTHS I WAS READY TO GIVE UP ON EVERYTHING,BUT GOD HEARD ME EACH YEAR GET BETTER,MY LAST ONE WAS NOVEMBER 26TH 2005 AND HOPFULLY IT'S THE LAST ONE.WHAT IS YOUR SON'S NAME, AND I WILL PRAY FOR HIM? SINCERELY, MARK HOGUE Gill <ashleygill@...> wrote: Hi , Sorry you're going thru this. Yes, seizures can cause behavior problems. I don't actually think it's the seizures themselves that cause behavior problems, but the stress that having seizures causes. The first indication of my son having seizures (age 3) was he started banging his head on the floor and screaming like a possessed child--it was awful. He's autistic, nonverbal and also had a new sister so all the docs wrote it off as " autistic behavior " (previous to this he was a whiny child, but never really had a temper tantrum). Then we started seeing the seizures. Things would calm down then we'd see the same behavior again and within a couple weeks, he'd either develop a new type of seizure or the seizures would worsen. My guess is that the changes happening in his brain caused horrible anxiety. After a year or so when his seizures stopped changing, the behaviors disappeared. His seizures are not well controlled, but he's once again our sweet child. Also he's not whiny any more either! has taken a low dose of Celexa (SSRI, anti-depressant) for a couple years now and I think that helps with anxiety when he's in a bad seizure cycle. Medication can cause behavioral problems as well. had a bad reaction to Depakote. My passive kid actually bit one of his therapists! Also, Depakote worked for some of his seizures, but caused him to start atonic drop seizures. They stopped when we stopped the Depakote. A sz medication might work great for one kid, but worsen seizures in another--so watch out for that. And for some reason neuros don't always mention that. Also if they don't taper the medication down slowly enough (even if it doesn't seem to be working), it can cause withdrawal sz. And a last thought... Could your son's poor behavior and low tolerance be caused by lack of good sleep? If his seizures are disrupting his sleep, he could have chronic sleep deprivation. We've all seen what our kids act like when they haven't gotten enough sleep (or us!)--whiny, intolerant, poorly behaved... Something to consider anyway. Good luck! On Jan 30, 2006, at 12:04 AM, H. wrote: > Hi there. I posted here a while back you were all very helpful. I > read > your posts daily and am amazed at your level of knowledge and > experience. > I'm hoping someone might have a suggestion for us. > > Here's a little background and I can provide more if needed. My son > (5) > began having seizures in July of last year and was in the hospital > for about > 2 weeks getting them under control. Then again in August. He was > free of > seizures for 3 months and then had 2 complex partials in one day, > both less > than a minute. Now, over the past week he has been having complex > partials > at night and the only way I know (other than the 2 that I actually > saw on > Friday) is that he wets the bed. Also, his behavior has gotten > atrocious. > He's whiny, has a very low tolerance level, etc. There haven't been > any > real med changes (he's on Carbatrol). > > There are a couple of things that are new, though. He started sensory > integration therapy on January 18th and has been twice. And, his 18 > month > old sister had a 24-hour bug a few days ago. > > The other note I wanted to make was that back in July, before this > whole > seizure thing began, his behavior had begun to escalate. When we > went to > see his psychiatrist his med was changed from Tenex to Depakote and > then had > his first (known) seizure that next morning in the early hours. Now, > I > don't think it was the Depakote causing the seizure, I believe it was > the > med change. Regardless, it's just the behavior thing that is so > similar. > > I guess my question is can these seizures cause their behavior to go > haywire > like this? And if so, what can I do to help it? > > > > Thanks! > > > > In raising my children I have lost my mind but found my soul. - > Shepherd > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 He needs mood stabilization, adhd, etc. I wish he weren't on ANY meds and am looking into neurofeedback therapy. _____ From: [mailto: ] On Behalf Of Diane Sent: Monday, January 30, 2006 6:21 AM Subject: Re: [ ] Seizures and behavior Why was he on meds before he started any seizures? >>> amheartfield@... 1/30/2006 12:04:16 AM >>> Hi there. I posted here a while back you were all very helpful. I read your posts daily and am amazed at your level of knowledge and experience. I'm hoping someone might have a suggestion for us. Here's a little background and I can provide more if needed. My son (5) began having seizures in July of last year and was in the hospital for about 2 weeks getting them under control. Then again in August. He was free of seizures for 3 months and then had 2 complex partials in one day, both less than a minute. Now, over the past week he has been having complex partials at night and the only way I know (other than the 2 that I actually saw on Friday) is that he wets the bed. Also, his behavior has gotten atrocious. He's whiny, has a very low tolerance level, etc. There haven't been any real med changes (he's on Carbatrol). There are a couple of things that are new, though. He started sensory integration therapy on January 18th and has been twice. And, his 18 month old sister had a 24-hour bug a few days ago. The other note I wanted to make was that back in July, before this whole seizure thing began, his behavior had begun to escalate. When we went to see his psychiatrist his med was changed from Tenex to Depakote and then had his first (known) seizure that next morning in the early hours. Now, I don't think it was the Depakote causing the seizure, I believe it was the med change. Regardless, it's just the behavior thing that is so similar. I guess my question is can these seizures cause their behavior to go haywire like this? And if so, what can I do to help it? Thanks! In raising my children I have lost my mind but found my soul. - Shepherd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 7, 2006 Report Share Posted February 7, 2006 Below are some links you may find useful. If your son's seizures began while on drugs, you may want to look into whether the drugs could have triggered them, which many can do. The depakote can have some very serious side effects, including some that may lower the seizure threshold and affect behavior. Have you checked for vitamin D and carnitine deficiencies or looked into their symptoms? Your pharmacist may have more in depth information on side effects of depakote and information about carnitine. If you haven't already done so, you may want to check out Von Hilsheimer's web page. He's been in the field of biofeedback since its beginning decades ago. You will find lots of useful nutritional and other information there as well. [http://www.hyperactivekids.com/]. Zoe p.s. You might also try a google search on " depakote " " epilepsy " " liver function " Depakote.com - EpilepsyDEPAKOTE ER - #1 Branded Treatment in Epilepsy ... Liver function tests should be performed prior to therapy and at frequent intervals thereafter, ... http://www.depakote.com/pro/epilepsy/safety.cfm and one on " metabolic disorders " " behavior " " adhd " 50 Conditions that Mimic ADHDADHD is diagnosed by health professionals who form their opinion by observing a child's behavior. There are no brain scans, blood tests, or anything else ... adhdparentssupportgroup.homestead.com/ 50conditionsmimicingADHD~ns4.html Valproic Acid, Depakene Syrup, Depakene, Depakote, Divalproex ...Also indexed as: Depakene Syrup®, Depakene®, Depakote®, ... One study showed that blood levels of vitamin D in males taking anticonvulsants were lower than ... http://www.truestarhealth.com/Notes/1535009.html Rett Syndrome Information and ResourcesThe use of valproate (Depakote) may be associated with carnitine deficiency. What are the symptoms of carnitine deficiency? Clinical symptoms include muscle ... http://www.rettsyndrome.org/main/carnitine.htm Epilepsy Drugs: Nutrients Depleted, Brand Names, Usage, Warnings ...Depacon®; Depakene®; Depakote®; Corticotropin (ACTH). Sources: Research References/Bibliography ... Biotin, Folic Acid, Vitamin D. US Brand Names: ... http://www.healingwithnutrition.com/ edisease/epilepsy/epilepsydrugs.html Valproic Acid, Depakene Syrup, Depakene, Depakote, Divalproex ...Also indexed as: Depakene Syrup®, Depakene®, Depakote®, ... which may be related to drug-induced vitamin D deficiency.6 Two infants born to women taking ... http://www.truestarhealth.com/Notes/1535009.html ***Please note that it is very important to get the test described here to get an accurate sense of the vitamin D levels.******** Test Values and Treatment for Vitamin D Deficiency 2/23/02 Recent changes in commercial testing of vitamin D allow us to easily adjust vitamin D levels to optimal ranges without any fear of toxicity. http://www.mercola.com/2002/feb/23/vitamin_d_deficiency.htm What are the most common side effects of Depakote ER? (Basic ...Most people who take Depakote ER don't have too much trouble with side effects. ... Taking both calcium and vitamin D may help to prevent this kind of ... http://www.epilepsy.com/medications/b_depakoteer_side.html The Great Plains Laboratory, your center of testing and analysis ... Some reference labs only test for 5 or 6 diseases or don't even list what ... of carnitine deficiency and in medium chain acyl dehydrogenase deficiency. ... http://www.greatplainslaboratory.com/test1comp.html There Is Hope He knew of carnitine deficiency but had no idea how to test for it. He seemed very skeptical. He told me to accept her condition and stop grasping for ... http://www.tell-us-your-story.com/_disc280/00000019.htm -- In , " H. " <amheartfield@...> wrote: > > He needs mood stabilization, adhd, etc. I wish he weren't on ANY meds and > am looking into neurofeedback therapy. > > > > _____ > > From: [mailto: ] > On Behalf Of Diane > Sent: Monday, January 30, 2006 6:21 AM > > Subject: Re: [ ] Seizures and behavior > > > > Why was he on meds before he started any seizures? > > >>> amheartfield@... 1/30/2006 12:04:16 AM >>> > Hi there. I posted here a while back you were all very helpful. I > read > your posts daily and am amazed at your level of knowledge and > experience. > I'm hoping someone might have a suggestion for us. > > Here's a little background and I can provide more if needed. My son > (5) > began having seizures in July of last year and was in the hospital for > about > 2 weeks getting them under control. Then again in August. He was free > of > seizures for 3 months and then had 2 complex partials in one day, both > less > than a minute. Now, over the past week he has been having complex > partials > at night and the only way I know (other than the 2 that I actually saw > on > Friday) is that he wets the bed. Also, his behavior has gotten > atrocious. > He's whiny, has a very low tolerance level, etc. There haven't been > any > real med changes (he's on Carbatrol). > > There are a couple of things that are new, though. He started sensory > integration therapy on January 18th and has been twice. And, his 18 > month > old sister had a 24-hour bug a few days ago. > > The other note I wanted to make was that back in July, before this > whole > seizure thing began, his behavior had begun to escalate. When we went > to > see his psychiatrist his med was changed from Tenex to Depakote and > then had > his first (known) seizure that next morning in the early hours. Now, > I > don't think it was the Depakote causing the seizure, I believe it was > the > med change. Regardless, it's just the behavior thing that is so > similar. > > I guess my question is can these seizures cause their behavior to go > haywire > like this? And if so, what can I do to help it? > > > > Thanks! > > > > In raising my children I have lost my mind but found my soul. - > Shepherd > > > > > > Quote Link to comment Share on other sites More sharing options...
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