Re: Neurofeedback-Grand Mal

[Guest guest]

,

our initial visit lasted for 3 hours, out of which my daughter was hooked to the

QEEG machine for 1.5 hours.

None of our neurologists (we have our our main neuro and consult once in a while

with Dr. Menkes and Dr. on, both very well known) belive NF does not do

anything. They say it's a waste of money.

Hugs, Mickey

<angel_lts@...> wrote:

Mickey, I also was hooked up in advanced. I looked at a computer for

a short time. Then I had to close my eyes, no math. THat went on for

about a half hour.

I like the idea with the neurologist getting involved. My doctor

dont believe in it. But I think I should of done that better that

way. When I go again, if I go again, I will do it that way. I think

I would go to a new doctor for the neurofeedback, this guy got too

nervous about it now.

I went to the neurologist today. ANd she was saying way do you

want to go back to that, dont go back. I told her I want her to see

the results for the neurofeedback. SHe believes it cant do anything

to the brain. She believes it can only help ADD patients not

epilepsy ones.

best of luck Let us know how it work out.

> > > I started to do feedback for about five to six times now. I

was

> > having

> > > some auras in the last couple of days. My hand would go to

sleep

> > for

> > > every so many seconds. But I had no seizures.

> > >

> > > My auras are not usually like that. If they are it is from low

> > sodium

> > > which I am not having now. but I got blood work this morning

> just

> > in

> > > case.

> > >

> > > Last night I finally had a seizure. They think it was a side

> > effect

> > > from the feedback. For my left side of the brain had brain

> surgery

> > in

> > > the past. They feel it is a very sensitive area. And I only

have

> > > complex partial seizures.

> > > They want to just do the right side only now to get the

anxiety

> > level

> > > down to help the seizures.

> > >

> > > It is very frustrating because I am afraid that the seizures

> will

> > > change now to grand mals from now on, I just dont know?????????

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Wow that is a long time. He talked to me for an hour. And then

hooked up for a half hour.

lisa

> > > > I started to do feedback for about five to six times now. I

> was

> > > having

> > > > some auras in the last couple of days. My hand would go to

> sleep

> > > for

> > > > every so many seconds. But I had no seizures.

> > > >

> > > > My auras are not usually like that. If they are it is from

low

> > > sodium

> > > > which I am not having now. but I got blood work this morning

> > just

> > > in

> > > > case.

> > > >

> > > > Last night I finally had a seizure. They think it was a side

> > > effect

> > > > from the feedback. For my left side of the brain had brain

> > surgery

> > > in

> > > > the past. They feel it is a very sensitive area. And I only

> have

> > > > complex partial seizures.

> > > > They want to just do the right side only now to get the

> anxiety

> > > level

> > > > down to help the seizures.

> > > >

> > > > It is very frustrating because I am afraid that the seizures

> > will

> > > > change now to grand mals from now on, I just dont

know?????????

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

, if you stop having seizures your neurologist won't be making money off of

you and he won't have you under her thumb! Find one that has had success with

Nf knows what they are doing!

<angel_lts@...> wrote:Wow that is a long time. He talked to me for an

hour. And then

hooked up for a half hour.

lisa

> > > > I started to do feedback for about five to six times now. I

> was

> > > having

> > > > some auras in the last couple of days. My hand would go to

> sleep

> > > for

> > > > every so many seconds. But I had no seizures.

> > > >

> > > > My auras are not usually like that. If they are it is from

low

> > > sodium

> > > > which I am not having now. but I got blood work this morning

> > just

> > > in

> > > > case.

> > > >

> > > > Last night I finally had a seizure. They think it was a side

> > > effect

> > > > from the feedback. For my left side of the brain had brain

> > surgery

> > > in

> > > > the past. They feel it is a very sensitive area. And I only

> have

> > > > complex partial seizures.

> > > > They want to just do the right side only now to get the

> anxiety

> > > level

> > > > down to help the seizures.

> > > >

> > > > It is very frustrating because I am afraid that the seizures

> > will

> > > > change now to grand mals from now on, I just dont

know?????????

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Hi :

I am reading your notes and hope with all my heart that something works for you.

I think NF has the potential to help a lot. But I am no an expert and still

searching. I say look for other people who have tried this and hear their

stories. http://home.iprimus.com.au/rboon/Epilepsy.htm

The section at the bottom talks about NF

foxhillers@... wrote:

In a message dated 10/21/2005 7:47:11 PM Eastern Daylight Time,

angel_lts@... writes:

I went to the neurologist today. ANd she was saying way do you

want to go back to that, dont go back. I told her I want her to see

the results for the neurofeedback. SHe believes it cant do anything

to the brain. She believes it can only help ADD patients not

epilepsy ones.

..

..

>>> Send this doc stuff by both Sterman who first did the work on seizures

using cats and then Othmers who used it successfully on their late son, for

starters.

It is effective for many disorders including urinary incontinence.

It helps people to re-train their brains to work better. It adds NOTHING to

the brain.

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

, thanks I have heard of alot of success, and I am not done

yet. I just want to get my meds straightened out once again. SO it

wont be till next you for NF.

thanks

lisa

>

>

> In a message dated 10/21/2005 7:47:11 PM Eastern Daylight Time,

> angel_lts@y... writes:

>

> I went to the neurologist today. ANd she was saying way do you

> want to go back to that, dont go back. I told her I want her to

see

> the results for the neurofeedback. SHe believes it cant do

anything

> to the brain. She believes it can only help ADD patients not

> epilepsy ones.

>

>

>

>

> .

> .

> >>> Send this doc stuff by both Sterman who first did the work on

seizures

> using cats and then Othmers who used it successfully on their late

son, for

> starters.

>

> It is effective for many disorders including urinary incontinence.

>

> It helps people to re-train their brains to work better. It adds

NOTHING to

> the brain.

>

> mjh

> " The Basil Book "

> http://foxhillfarm.us/FireBasil/

>

>

>