Re: Neurofeedback-Grand Mal

[Guest guest]

Hi:

I am considering Neurofeedback. Could you tell me about your experience and

what you know about it.

I have seizures in the morning when I wake up. I am having lots of memory

problems. I am taking minerals and b complex and watching my diet exercize and

trying to stay away from stress. It helpes the seizures but the memory is

getting worse.

Please send me info>

thanks,

linda

<angel_lts@...> wrote:

I started to do feedback for about five to six times now. I was having

some auras in the last couple of days. My hand would go to sleep for

every so many seconds. But I had no seizures.

My auras are not usually like that. If they are it is from low sodium

which I am not having now. but I got blood work this morning just in

case.

Last night I finally had a seizure. They think it was a side effect

from the feedback. For my left side of the brain had brain surgery in

the past. They feel it is a very sensitive area. And I only have

complex partial seizures.

They want to just do the right side only now to get the anxiety level

down to help the seizures.

It is very frustrating because I am afraid that the seizures will

change now to grand mals from now on, I just dont know?????????

[Guest guest]

Are you getting enough omega-3 fatty acids? My son took 3 grams of fish oil

three times a day and this helped a lot to significantly reduce seizure

activity. He also took Magnesium, vitamin B6 and other nutrients in

therapeutic

doses and had an excellent diet and lifestyle.

FOr some people, flaxseed oil is also a good source of omega-3 fatty acids,

but in order to be most effective, it needs to be fully mixed into yoghurt or

cottage cheese. Flaxseed oil spoils easily and rancid oil is not healthy to

consume. It should be stored in a cold place.

Neurofeedback brain training has about a twenty five year track record of

being helpful with seizures. Sue Othmer's son used it to cure his seizures as

a young teen, this is the person spoke with a couple of weeks ago. Also

see the book, A Symphony in the Brain.

By the way, when we tracked down why my son had seizures at the same time in

the morning, we found that the three drugs he was taking all hit their lowest

peak at the same time every few days. We simply changed the time we gave

him one of his meds and that early morning seizure pattern stopped.

Hope this helps

mjh

From: <lindae321@...>

Subject: Re: Neurofeedback-Grand Mal

Hi:

I am considering Neurofeedback. Could you tell me about your experience and

what you know about it.

I have seizures in the morning when I wake up. I am having lots of memory

problems. I am taking minerals and b complex and watching my diet exercize

and trying to stay away from stress. It helpes the seizures but the memory is

getting worse.

Please send me info>

thanks,

linda

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

, I am still working with the neurofeedback. I will be starting

it again next week.

I am working with someone that was trained by Sue Othmer. The

neurofeedback has worked for me. I just didnt have enough training

yet to stop the seizures all the way. It has been a very busy

summer. So I have been too tired and the neuro can be tiring if you

are doing it too often. I was doing it twice a week.

It will be done just once a week next week. We will only do the

right side of the brain for now to give the left side a brake.

But it will help memory, some of the math, spelling that I lost

because of seizures. But have not had enough training yet to notice

that change.

I have had several surgeries and we were very concerned if it would

work for me. ANd it did. I just need more for training than five

sessions of course.

I take omega three and got rid of 234 auras a month and 9 seizures a

month. Depending on how much you take.

check out my support group. In links I have info on omega three and

neurofeedback. ANd the story of Sue othmers son. And my personal

story of what I have accomplished with my seizures.

take care

EpilepsyApproach/

> I started to do feedback for about five to six times now. I was

having

> some auras in the last couple of days. My hand would go to sleep

for

> every so many seconds. But I had no seizures.

>

> My auras are not usually like that. If they are it is from low

sodium

> which I am not having now. but I got blood work this morning just

in

> case.

>

> Last night I finally had a seizure. They think it was a side

effect

> from the feedback. For my left side of the brain had brain surgery

in

> the past. They feel it is a very sensitive area. And I only have

> complex partial seizures.

> They want to just do the right side only now to get the anxiety

level

> down to help the seizures.

>

> It is very frustrating because I am afraid that the seizures will

> change now to grand mals from now on, I just dont know?????????

>

>

>

>

>

>

[Guest guest]

:

thanks for responding!

I have not started neurofeedback yet. We are trying on my son who has add. It

is expensive but I have a lot of hope. I wanted some testimonials before I get

started. My seizures are in the morning when I get up. I recently started

having twitches all over my head and body and forgeting what I am talking about.

this scares me greatly. I am doing diet, vitamins, flax seed aloe vera juice

and urine therapy. it all has helped with controling the seizures to a certain

extent but now am experiencing what I described. I am also going through

menopause. That makes it worst. My condition is full of other sympthoms that

seem like other organs like liver or metabolic may be involved. Many allergies

and sensitivities to food and chemicals plus the typical insomnia, depression

etc.

If you have any other suggestions or insight, please let me know. I will check

out your support group.

thanks,

<angel_lts@...> wrote:

, I am still working with the neurofeedback. I will be starting

it again next week.

I am working with someone that was trained by Sue Othmer. The

neurofeedback has worked for me. I just didnt have enough training

yet to stop the seizures all the way. It has been a very busy

summer. So I have been too tired and the neuro can be tiring if you

are doing it too often. I was doing it twice a week.

It will be done just once a week next week. We will only do the

right side of the brain for now to give the left side a brake.

But it will help memory, some of the math, spelling that I lost

because of seizures. But have not had enough training yet to notice

that change.

I have had several surgeries and we were very concerned if it would

work for me. ANd it did. I just need more for training than five

sessions of course.

I take omega three and got rid of 234 auras a month and 9 seizures a

month. Depending on how much you take.

check out my support group. In links I have info on omega three and

neurofeedback. ANd the story of Sue othmers son. And my personal

story of what I have accomplished with my seizures.

take care

EpilepsyApproach/

> I started to do feedback for about five to six times now. I was

having

> some auras in the last couple of days. My hand would go to sleep

for

> every so many seconds. But I had no seizures.

>

> My auras are not usually like that. If they are it is from low

sodium

> which I am not having now. but I got blood work this morning just

in

> case.

>

> Last night I finally had a seizure. They think it was a side

effect

> from the feedback. For my left side of the brain had brain surgery

in

> the past. They feel it is a very sensitive area. And I only have

> complex partial seizures.

> They want to just do the right side only now to get the anxiety

level

> down to help the seizures.

>

> It is very frustrating because I am afraid that the seizures will

> change now to grand mals from now on, I just dont know?????????

>

>

>

>

>

>

[Guest guest]

Hi foxhillers:

Could you be more specific about the type of fish oil, I tried omega 3 country

something.. and did not feel good. But what did your son take?

and how much magnesium and other supplements. I don't take medication. so the

morning thing seems to go away when I get up or drink water. weird?

thank you,

linda

foxhillers@... wrote:

Are you getting enough omega-3 fatty acids? My son took 3 grams of fish oil

three times a day and this helped a lot to significantly reduce seizure

activity. He also took Magnesium, vitamin B6 and other nutrients in

therapeutic

doses and had an excellent diet and lifestyle.

FOr some people, flaxseed oil is also a good source of omega-3 fatty acids,

but in order to be most effective, it needs to be fully mixed into yoghurt or

cottage cheese. Flaxseed oil spoils easily and rancid oil is not healthy to

consume. It should be stored in a cold place.

Neurofeedback brain training has about a twenty five year track record of

being helpful with seizures. Sue Othmer's son used it to cure his seizures as

a young teen, this is the person spoke with a couple of weeks ago. Also

see the book, A Symphony in the Brain.

By the way, when we tracked down why my son had seizures at the same time in

the morning, we found that the three drugs he was taking all hit their lowest

peak at the same time every few days. We simply changed the time we gave

him one of his meds and that early morning seizure pattern stopped.

Hope this helps

mjh

From: <lindae321@...>

Subject: Re: Neurofeedback-Grand Mal

Hi:

I am considering Neurofeedback. Could you tell me about your experience and

what you know about it.

I have seizures in the morning when I wake up. I am having lots of memory

problems. I am taking minerals and b complex and watching my diet exercize

and trying to stay away from stress. It helpes the seizures but the memory is

getting worse.

Please send me info>

thanks,

linda

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

, I have taken omega three I got rid of nine seizures and 234

auras a month. I used fish oil or flax oil capsules they both

worked. I also grind flax seeds up in a smoothie.

I also use a natural progesterone cream for my perimenopause or

menopause. It will help with your seizure too. I got better with my

perimenopause just because of the change of life not the cream. But

the cream helped in other ways. Most people get worse during this

time.

I use a compound pharmacist to make up the cream. Make sure the

ingredience says USP wild yam or it is not natural.

If you are not interested in the compound pharmacist check out this

site www.organicexcellence.com

I did the compound to be on the safe side and because of the

meds....

I also have info in my group in files and links on hormone and

epilepsy.

take care

epilepsy approach support group

> > I started to do feedback for about five to six times now. I was

> having

> > some auras in the last couple of days. My hand would go to sleep

> for

> > every so many seconds. But I had no seizures.

> >

> > My auras are not usually like that. If they are it is from low

> sodium

> > which I am not having now. but I got blood work this morning

just

> in

> > case.

> >

> > Last night I finally had a seizure. They think it was a side

> effect

> > from the feedback. For my left side of the brain had brain

surgery

> in

> > the past. They feel it is a very sensitive area. And I only have

> > complex partial seizures.

> > They want to just do the right side only now to get the anxiety

> level

> > down to help the seizures.

> >

> > It is very frustrating because I am afraid that the seizures

will

> > change now to grand mals from now on, I just dont know?????????

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi my name is a if you would like to it would be easier to talk

by phone theres so much i could teell you and i could learn more detail with

your seizures I myself seem to have mine Grand malls around my menses or

period I also do experience the mind and the great memory loss it seems like its

a longer post ictal period after the seizure maybe due to oxygen deprivation

durin gyour episode get out and get exercise walking and exercise for your

brain reading memory games whatever it takes for you to regain your memory

track back I wish you the best of luck E mail me and i will send you my number

thanks a

[Guest guest]

While taking lamictal and clonazepam ($1200 worth per month) my 7 year old son

would have seizures only in the wee hours of the morning, usually 1 evry 2nd or

3rd morning while still in bed. This was much better than having them during

the day.

Then all of a sudden he started having them during the day, the 5 second to 20

seconds at a time type. I had him drink just a half ounce of a live, liquid,

wholefood derived (filled full of phytonutrients), all natural, bioavailable,

ionic in format, (electrically charged and readily assimilated to the cellular

level) ORGANIC combination of 9 different vegetables from the ocean's unfarmed

sea floor, in a base of 99.9% pure certified kosher aloe vera, and he has NOT

had a seizure yet!!!

It's been two and a half weeks! No seizures!! PTL! Just had to share. They

know that if you try it you'll buy it, so they give away a free quart, or sell

it with a 100% full money back guarantee! Just go to www.healthgotit.com

Sometimes people tell the truth about their experiences, and do care about other

peoples problem's, above and beyond trying to trick people to " make a

buck " !!!!!!!!!!!!

Pray on it, then make a decision.

Don Vance

Re: [ ] Re: Neurofeedback-Grand Mal

Hi my name is a if you would like to it would be easier to talk

by phone theres so much i could teell you and i could learn more detail with

your seizures I myself seem to have mine Grand malls around my menses or

period I also do experience the mind and the great memory loss it seems like

its

a longer post ictal period after the seizure maybe due to oxygen deprivation

durin gyour episode get out and get exercise walking and exercise for your

brain reading memory games whatever it takes for you to regain your memory

track back I wish you the best of luck E mail me and i will send you my

number

thanks a

[Guest guest]

Don

Every time you write about your son's seizure activity I can't help but

wondering if he is on a processed food diet, drinks lots of soda pop, has a

malabsorption problem or is gluten intolerant.

All of the above can trigger seizure activity in those vulnerable and other

brain/mood/health problems in other people.

What's happened with him over the past few months since you last posted

since he's only been seizure free again for only two and a half weeks. You'e

been giving him the product you mention for at least a year as I recall.

I am glad to know that he is better again in using the expensive multi level

marketed product. Many companies give free samples to induce people to try

their product, this is nothing unusual.

For those who cannot afford it, there are less costly options to achieve

results while making dietary changes..

Hope this helps

mjh

Date: Mon, 12 Sep 2005 10:34:03 -0600

From: " Don Vance " <dvance@...>

Subject: Re: Re: Neurofeedback-Grand Mal

While taking lamictal and clonazepam ($1200 worth per month) my 7 year old

son would have seizures only in the wee hours of the morning, usually 1 evry

2nd or 3rd morning while still in bed. This was much better than having them

during the day.

Then all of a sudden he started having them during the day, the 5 second to

20 seconds at a time type. I had him drink just a half ounce of a live,

liquid, wholefood derived (filled full of phytonutrients), all natural,

bioavailable, ionic in format, (electrically charged and readily assimilated to

the

cellular level) ORGANIC combination of 9 different vegetables from the ocean's

unfarmed sea floor, in a base of 99.9% pure certified kosher aloe vera, and

he has NOT had a seizure yet!!!

It's been two and a half weeks! No seizures!! PTL! Just had to share. They

know that if you try it you'll buy it, so they give away a free quart, or

sell it with a 100% full money back guarantee! Just go to www.healthgotit.com

Sometimes people tell the truth about their experiences, and do care about

other peoples problem's, above and beyond trying to trick people to " make a

buck " !!!!!!!!!!!!

Pray on it, then make a decision.

Don Vance

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

Thanks for yea butting, at least I know one person read the valuable inexpensive

solution!

Re: Re: Neurofeedback-Grand Mal

While taking lamictal and clonazepam ($1200 worth per month) my 7 year old

son would have seizures only in the wee hours of the morning, usually 1 evry

2nd or 3rd morning while still in bed. This was much better than having them

during the day.

Then all of a sudden he started having them during the day, the 5 second to

20 seconds at a time type. I had him drink just a half ounce of a live,

liquid, wholefood derived (filled full of phytonutrients), all natural,

bioavailable, ionic in format, (electrically charged and readily assimilated

to the

cellular level) ORGANIC combination of 9 different vegetables from the

ocean's

unfarmed sea floor, in a base of 99.9% pure certified kosher aloe vera, and

he has NOT had a seizure yet!!!

It's been two and a half weeks! No seizures!! PTL! Just had to share. They

know that if you try it you'll buy it, so they give away a free quart, or

sell it with a 100% full money back guarantee! Just go to

www.healthgotit.com

Sometimes people tell the truth about their experiences, and do care about

other peoples problem's, above and beyond trying to trick people to " make a

buck " !!!!!!!!!!!!

Pray on it, then make a decision.

Don Vance

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

Hi a:

I have been out of town. That is why it took me so

long to answere. I aM TRYING HOMEOPATHY it seems to

be working. But I don't know how far it will work.

yes, send me your phone and I will call you. tell me

the best time to call.

thanks!

--- health87@... wrote:

> Hi my name is a if you would like to it

> would be easier to talk

> by phone theres so much i could teell you and i

> could learn more detail with

> your seizures I myself seem to have mine Grand malls

> around my menses or

> period I also do experience the mind and the great

> memory loss it seems like its

> a longer post ictal period after the seizure maybe

> due to oxygen deprivation

> durin gyour episode get out and get exercise walking

> and exercise for your

> brain reading memory games whatever it takes for you

> to regain your memory

> track back I wish you the best of luck E mail me

> and i will send you my number

> thanks a

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

,

I've been looking for a homepathic practicioner in my area; are you using a

practioner or doing this on your own? I'm really interested in learning more

about this ever since I read the book entitled " Treating Epilepsy Naturally " .

Maybe we could email aside from the group?

let me know - thanks!

Trish

Re: [ ] Re: Neurofeedback-Grand Mal

Hi a:

I have been out of town. That is why it took me so

long to answere. I aM TRYING HOMEOPATHY it seems to

be working. But I don't know how far it will work.

yes, send me your phone and I will call you. tell me

the best time to call.

thanks!

--- health87@... wrote:

> Hi my name is a if you would like to it

> would be easier to talk

> by phone theres so much i could teell you and i

> could learn more detail with

> your seizures I myself seem to have mine Grand malls

> around my menses or

> period I also do experience the mind and the great

> memory loss it seems like its

> a longer post ictal period after the seizure maybe

> due to oxygen deprivation

> durin gyour episode get out and get exercise walking

> and exercise for your

> brain reading memory games whatever it takes for you

> to regain your memory

> track back I wish you the best of luck E mail me

> and i will send you my number

> thanks a

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

Hi hope your doing well I myself have been busy but this morning I seen your

e mail you can reach me anytime I am a stay at home mom hopefully not for

long well talk reach me at 773 373 4899 thanks have a great day a

[Guest guest]

Hi:

I am working with a homeopathic doctor. It is working pretty well.

Look for someone in your area. It is worth a try!

good Luck

Trisha <trazaghzadeh@...> wrote:

,

I've been looking for a homepathic practicioner in my area; are you using a

practioner or doing this on your own? I'm really interested in learning more

about this ever since I read the book entitled " Treating Epilepsy Naturally " .

Maybe we could email aside from the group?

let me know - thanks!

Trish

Re: [ ] Re: Neurofeedback-Grand Mal

Hi a:

I have been out of town. That is why it took me so

long to answere. I aM TRYING HOMEOPATHY it seems to

be working. But I don't know how far it will work.

yes, send me your phone and I will call you. tell me

the best time to call.

thanks!

--- health87@... wrote:

> Hi my name is a if you would like to it

> would be easier to talk

> by phone theres so much i could teell you and i

> could learn more detail with

> your seizures I myself seem to have mine Grand malls

> around my menses or

> period I also do experience the mind and the great

> memory loss it seems like its

> a longer post ictal period after the seizure maybe

> due to oxygen deprivation

> durin gyour episode get out and get exercise walking

> and exercise for your

> brain reading memory games whatever it takes for you

> to regain your memory

> track back I wish you the best of luck E mail me

> and i will send you my number

> thanks a

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________

- PC Magazine Editors' Choice 2005

http://mail.

[Guest guest]

and ,

I had my daughter evaluated by Dr. Sterman, who is the man who has been

researching neurofeedback as a treatment for seizures since the 60's. He is the

guru of neurofeedback, and many of the other people that are doing NF branched

from him. He would not consider treating someone without first mapping the

brain. This is how you diagnose the problem and choose the treatment. And i

agree with what said about people working in the field with very little

training, just to guessing around.

We are going to start the training in a week or two, and I'll keep you posted.

Mickey

<lindae321@...> wrote:

Hi :

when you were doing neurofeedback did your neurologist do a brain mapping before

he started treatment?

I talked to the person who is doing neurofeedback on my son for Edd and she says

that many people are doing this without first having a map of brain activity and

that the treatment is like shooting in the dark. This field is not regulated at

the moment and the people who are making the machines are just selling them to

people with very little training and the machine that does the mapping is

expensive and many people don't want to invest in it. I am very interested in

your story because I am considering neurofeed back next for me if homeopathy

doesn't work completely for me.

I hope to hear from you soon!

<angel_lts@...> wrote:

, I am still working with the neurofeedback. I will be starting

it again next week.

I am working with someone that was trained by Sue Othmer. The

neurofeedback has worked for me. I just didnt have enough training

yet to stop the seizures all the way. It has been a very busy

summer. So I have been too tired and the neuro can be tiring if you

are doing it too often. I was doing it twice a week.

It will be done just once a week next week. We will only do the

right side of the brain for now to give the left side a brake.

But it will help memory, some of the math, spelling that I lost

because of seizures. But have not had enough training yet to notice

that change.

I have had several surgeries and we were very concerned if it would

work for me. ANd it did. I just need more for training than five

sessions of course.

I take omega three and got rid of 234 auras a month and 9 seizures a

month. Depending on how much you take.

check out my support group. In links I have info on omega three and

neurofeedback. ANd the story of Sue othmers son. And my personal

story of what I have accomplished with my seizures.

take care

EpilepsyApproach/

> I started to do feedback for about five to six times now. I was

having

> some auras in the last couple of days. My hand would go to sleep

for

> every so many seconds. But I had no seizures.

>

> My auras are not usually like that. If they are it is from low

sodium

> which I am not having now. but I got blood work this morning just

in

> case.

>

> Last night I finally had a seizure. They think it was a side

effect

> from the feedback. For my left side of the brain had brain surgery

in

> the past. They feel it is a very sensitive area. And I only have

> complex partial seizures.

> They want to just do the right side only now to get the anxiety

level

> down to help the seizures.

>

> It is very frustrating because I am afraid that the seizures will

> change now to grand mals from now on, I just dont know?????????

>

>

>

>

>

>

[Guest guest]

Mickey, I am curious. When you do say brain mapping what exactly is

it?

My doctor ask for about an hour questions to pin point where the

problem was located. In my case is anxiety.

Then he hooked me up to see where the locations to go and that took

about a half hour.

Is this what you mean by brain mapping? This was only one time.

lisa

epilepsyapproach

T

> > I started to do feedback for about five to six times now. I was

> having

> > some auras in the last couple of days. My hand would go to sleep

> for

> > every so many seconds. But I had no seizures.

> >

> > My auras are not usually like that. If they are it is from low

> sodium

> > which I am not having now. but I got blood work this morning

just

> in

> > case.

> >

> > Last night I finally had a seizure. They think it was a side

> effect

> > from the feedback. For my left side of the brain had brain

surgery

> in

> > the past. They feel it is a very sensitive area. And I only have

> > complex partial seizures.

> > They want to just do the right side only now to get the anxiety

> level

> > down to help the seizures.

> >

> > It is very frustrating because I am afraid that the seizures

will

> > change now to grand mals from now on, I just dont know?????????

> >

> >

> >

> >

> >

> >

[Guest guest]

Mickey It is true, they have the machines you can buy and do it at

home, scary.

One day I will go back as soon as I get my meds adjusted again. I

have to get my meds switched to Lyrica on Friday. I have to see my

Neuro then too. I had a seizure on tuesday. I have been having

seizure the last several weeks. It has been the pits. But I think I

need to change. That Trileptal, I have been battling it since I got

on it.

Best of luck to you and your daughter that it all goes well.

epilepsy approach

> > I started to do feedback for about five to six times now. I was

> having

> > some auras in the last couple of days. My hand would go to sleep

> for

> > every so many seconds. But I had no seizures.

> >

> > My auras are not usually like that. If they are it is from low

> sodium

> > which I am not having now. but I got blood work this morning

just

> in

> > case.

> >

> > Last night I finally had a seizure. They think it was a side

> effect

> > from the feedback. For my left side of the brain had brain

surgery

> in

> > the past. They feel it is a very sensitive area. And I only have

> > complex partial seizures.

> > They want to just do the right side only now to get the anxiety

> level

> > down to help the seizures.

> >

> > It is very frustrating because I am afraid that the seizures

will

> > change now to grand mals from now on, I just dont know?????????

> >

> >

> >

> >

> >

> >

[Guest guest]

I think it can be a powerful tool, and it can mess up things if in the wrong

hands. It needs to be regulated asap.

Mickey

foxhillers@... wrote:

In a message dated 10/19/2005 1:50:12 PM Eastern Daylight Time,

angel_lts@... writes:

Mickey It is true, they have the machines you can buy and do it at

home, scary.

..

..

>>> and Mickey

Why do you find this scary? Retraining your own brain to behave better.

Logon to either Orthomolecular or ADD_ADHD group and ask Dr. Bate and Dr von

H about home training.

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

Why in the world do you want neurofeedback regulated?

Then, do you feel that same about computer games and playstations, x-box,

nintendo and the like? After all, they can aggravate the brain and provoke

seizure activity in some. Teach about violence, etc.

We got my late son, Charlie, his first computer in 1981 to help him develop

eye/hand gross and fine motor control. Amazing what that did for him.

Have you looked at _www.wilddivine.com_ (http://www.wilddivine.com)

mjh

In a message dated 10/20/2005 1:35:36 AM Eastern Daylight Time,

mi42779@... writes:

I think it can be a powerful tool, and it can mess up things if in the wrong

hands. It needs to be regulated asap.

Mickey

foxhillers@... wrote:

In a message dated 10/19/2005 1:50:12 PM Eastern Daylight Time,

angel_lts@... writes:

Mickey It is true, they have the machines you can buy and do it at

home, scary.

..

..

>>> and Mickey

Why do you find this scary? Retraining your own brain to behave better.

Logon to either Orthomolecular or ADD_ADHD group and ask Dr. Bate and Dr

von

H about home training.

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

In a message dated 10/20/2005 9:48:42 AM Eastern Daylight Time,

angel_lts@... writes:

I just feel this Machine is not for my hands. It will be working on

my brain, and I would be afraid of the outcome.

..

..

THe machine does not work on the brain. YOU DO,

neurofeedback is brain training, teaching you how to influence your brain to

work better. Neurofeeback puts nothing into your brain.

Do you play computer games?

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

I just feel this Machine is not for my hands. It will be working on

my brain, and I would be afraid of the outcome.

In , foxhillers@a... wrote:

>

>

>

> In a message dated 10/19/2005 1:50:12 PM Eastern Daylight Time,

> angel_lts@y... writes:

>

> Mickey It is true, they have the machines you can buy and do it

at

> home, scary.

>

>

> .

> .

> >>> and Mickey

>

> Why do you find this scary? Retraining your own brain to behave

better.

>

> Logon to either Orthomolecular or ADD_ADHD group and ask Dr. Bate

and Dr von

> H about home training.

>

> mjh

> " The Basil Book "

> http://foxhillfarm.us/FireBasil/

>

>

>

[Guest guest]

Yes I know how it works, for I did it for a month in the office. But

there are certain setings, higher or lower, strength... I dont know

according to my brain and how much it can take each time. God my

doctor did it several times a week, and now he feels it should be

one time.

And talking in that one support group which those guys tell you so

many different ways, they scare the crap out of you.

So thats why I dont do it on my own. I would like to, but I dont

want to take the chance.

epilepsy approach

In , foxhillers@a... wrote:

>

>

>

> In a message dated 10/20/2005 9:48:42 AM Eastern Daylight Time,

> angel_lts@y... writes:

>

> I just feel this Machine is not for my hands. It will be working

on

> my brain, and I would be afraid of the outcome.

>

>

>

>

> .

> .

>

>

> THe machine does not work on the brain. YOU DO,

>

> neurofeedback is brain training, teaching you how to influence

your brain to

> work better. Neurofeeback puts nothing into your brain.

>

> Do you play computer games?

>

> mjh

> " The Basil Book "

> http://foxhillfarm.us/FireBasil/

>

>

>

[Guest guest]

Hi ,

sorry it took me so long to get back to your question. described the

quantitative EEG very well. They hook you up to electrodes, a lot like for a

regular eeg. Then you have to relax with eyes open,eyes closed, talking,

reading, doing math, etc.

I strongly believe that an amateur can cause more harm than good, and that your

practitioner has intense training, is a psychologist with some knowledge of

neurology. We are working with dr. Sterman, who is the man who put the basis of

NF. He is very good, but the disadvantage is that he is gone a lot to

conferences. So we have not started the actual treatment yet. I'll keep you

posted on how things go for us. I am in contact with another mom whose son is

seizure free with neurofeedback, after not having good control with meds.

Hugs,

Mickey

<lindae321@...> wrote:

Hi lisa:

I talked to the psychologist who is doing neurofeedback on my son. I told her

that you had started having grand mal seizures as a result of the neurofeedback.

She told me that when a person gets hooked up to the machines without knowing

exactly what is going on in your brain, seizures occur. That is what I wanted

to know what they did to you. Here it goes:

Brain Mapping is a first session where they hook up a bunch of prongs to the

different parts of your brain to determine how each part is functioning and how

it talks to the other parts of the brain. She makes you relax during the

session but you cannot go to sleep. This is recorded on the computer and then

she sends it to a neurologist who is a specialist. She is also working with the

doctor in beverly hills who invented this technique. The results will tell

which parts of your brain are functioning right and producing the correct

frecuencies. she gets back a series of colored pictures that show this

activity. Then the neurologist sends back a diagnosisi and a plan so she can

work with you. It is not a random, do it yourself thing. \Because it can be

dangerous if you don't know what you are doing.. You are shooting in the dark

with your brain. If you want names let me know and I will get them for you.

I think it is better to work with someone who is a specialist not any joe blow

I hope this helps

<angel_lts@...> wrote:

Mickey, I am curious. When you do say brain mapping what exactly is

it?

My doctor ask for about an hour questions to pin point where the

problem was located. In my case is anxiety.

Then he hooked me up to see where the locations to go and that took

about a half hour.

Is this what you mean by brain mapping? This was only one time.

lisa

epilepsyapproach

T

> > I started to do feedback for about five to six times now. I was

> having

> > some auras in the last couple of days. My hand would go to sleep

> for

> > every so many seconds. But I had no seizures.

> >

> > My auras are not usually like that. If they are it is from low

> sodium

> > which I am not having now. but I got blood work this morning

just

> in

> > case.

> >

> > Last night I finally had a seizure. They think it was a side

> effect

> > from the feedback. For my left side of the brain had brain

surgery

> in

> > the past. They feel it is a very sensitive area. And I only have

> > complex partial seizures.

> > They want to just do the right side only now to get the anxiety

> level

> > down to help the seizures.

> >

> > It is very frustrating because I am afraid that the seizures

will

> > change now to grand mals from now on, I just dont know?????????

> >

> >

> >

> >

> >

> >

[Guest guest]

In a message dated 10/21/2005 7:47:11 PM Eastern Daylight Time,

angel_lts@... writes:

I went to the neurologist today. ANd she was saying way do you

want to go back to that, dont go back. I told her I want her to see

the results for the neurofeedback. SHe believes it cant do anything

to the brain. She believes it can only help ADD patients not

epilepsy ones.

..

..

>>> Send this doc stuff by both Sterman who first did the work on seizures

using cats and then Othmers who used it successfully on their late son, for

starters.

It is effective for many disorders including urinary incontinence.

It helps people to re-train their brains to work better. It adds NOTHING to

the brain.

mjh

" The Basil Book "

http://foxhillfarm.us/FireBasil/

[Guest guest]

Mickey, I also was hooked up in advanced. I looked at a computer for

a short time. Then I had to close my eyes, no math. THat went on for

about a half hour.

I like the idea with the neurologist getting involved. My doctor

dont believe in it. But I think I should of done that better that

way. When I go again, if I go again, I will do it that way. I think

I would go to a new doctor for the neurofeedback, this guy got too

nervous about it now.

I went to the neurologist today. ANd she was saying way do you

want to go back to that, dont go back. I told her I want her to see

the results for the neurofeedback. SHe believes it cant do anything

to the brain. She believes it can only help ADD patients not

epilepsy ones.

best of luck Let us know how it work out.

> > > I started to do feedback for about five to six times now. I

was

> > having

> > > some auras in the last couple of days. My hand would go to

sleep

> > for

> > > every so many seconds. But I had no seizures.

> > >

> > > My auras are not usually like that. If they are it is from low

> > sodium

> > > which I am not having now. but I got blood work this morning

> just

> > in

> > > case.

> > >

> > > Last night I finally had a seizure. They think it was a side

> > effect

> > > from the feedback. For my left side of the brain had brain

> surgery

> > in

> > > the past. They feel it is a very sensitive area. And I only

have

> > > complex partial seizures.

> > > They want to just do the right side only now to get the

anxiety

> > level

> > > down to help the seizures.

> > >

> > > It is very frustrating because I am afraid that the seizures

> will

> > > change now to grand mals from now on, I just dont know?????????

> > >

> > >

> > >

> > >

> > >

> > >