Withdrawal from extended release AEDs

[Guest guest]

Hi

Your postings have been a daily source of encouragement and

information for us. Thank you! My daughter had her first grand mal

seizure when she turned 10 years old. After her second seizure, she

was placed on Phenobarbital. However, when that proved to be too

sedating, she was put on Tegretol, then Tegretol XR. She has complex

partial seizures, which occur without an aura, approximately 4 times

a year. Whenever she would have a seizure, the neurologist would up

her dose of Tegretol XR until he " maxed out " on that drug and

added Keppra to her regimine. Until I began reading your postings,

it had not occurred to me to question his judgment.

We changed neurologists recently. Although he asked what it was we

were hoping to achieve, he completely ignored my daughter's

statement that were hoping to reduce the amount of medicine so that

she could be on a monotherapy once again. The only thing he would

hear of was changing her dose of Tegretol XR to an equivalent dose of

Carbatrol. S0, she is now taking 600 MG Carbatrol [(1) 300 mg.

tablet twice a day] and 3000 mg Keppra [(3) 500 mg tablets twice a

day].

She has taken to heart your suggestions on diet and vitamins, and now

wants to take the next step of at least reducing her medications.

But how is it possible to do this safely with these " extended

release " medications? The tablets are prescribed in high

dosages, so it's not as if we have the option of reducing her meds by

1 tablet a day, or of splitting the tablets. It's a " Catch-22 "

– the more meds you take, the more you become dependent upon them,

the harder and more dangerous it is to withdraw. What a mess!

Any suggestions? We value all of your postings. Thank you all

again.

Judy Z

[Guest guest]

I would suggest Perscription for nutriyional healing byphylis a Balch. I

found this gem in a health food store Flannigans on 103rd in palos hills anyway

I cant stress enough about fish oil Carlsons a few hours before bed and also

look into magnesium and taurine these can actually supress that firing that

takes place within so maybe later you can also look into a doctor by the name

ofph Mercola he is in shaumberg also at joseph mercola.com use these

vitamins to lower her threshold the suseptability and do it slowly but also

with a proffesional more trusted who understands and really cares about the

individual not their quota on selling a particular poison Good luck Berta