Guest guest Posted October 16, 2004 Report Share Posted October 16, 2004 Hi- She sure is a cutie! Of course her eyes are awesome! Thanks for posting, always love seeing heterochromia pictures. > > Hey I posted a pic, its number 14 in the album, check it out, she's a > cutie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 Hi Jainnie, Welcome to our list. You'll absolutely love Life Lift. It's wonderful!!! Love, Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2005 Report Share Posted March 30, 2005 Welcome Jainnie Sorry I didn't post originally but the " mean monster " had me and so I just hid LOL You will love the tapes, Rashelle and this group. If you want support you just got yourself the very best support system I have seen anywhere. We even have our very own LL Angel! LOL Again, welcome! with love, Jenni Proud Air Force Mom! May God guide and protect our troops! hi again Thanks to those who provided me some feedback about the differences between Oxycise and LifeLift. I never felt I had a problem with the Oxycise breathing, it was just sticking with it and trying to eat healthily that has been the problem. In fact, I have been staying up late, finishing up work for this last semester of grad school (going into teaching). I am currently doing an " internship " with kindergartners, so basically I am full- time teaching while having to meet university requirements. Ugh! Talk about stress! No wonder my eating habits are out of whack. I realize that eating better and making wise choices would be good for me, and probably give me the energy I need to keep up with everything....but it's the initial " sticking-with-it " that is proving difficult. Late at night, when I should be sleeping, I am up, trying to write this dratted paper and scrounging for anything to satisfy the stress monster. To let everyone know, I took the plunge and ordered the 5-video set yesterday! In fact, I asked for DVDs for whatever is available, and to have both the medium and heavy resistance " 8 " bands, instead of the other band. It should be here soon!! I have at least 40lbs I'd like to lose to be able to be where I was years ago. This extra weight is bogging me down! I realize that weight numbers are not what I should be focused on, but that gives you a rough idea of where I'm at. I also would like to whittle down those " lumps " around my knees, which make me self-conscious to wear shorts and the like. Will let you know when the dvds/video get here! Meantime, it's nice to meet all of you and to read all of your wonderful messages!! A support group is what I NEED!! Rashelle is so great, just in the few email messages we've had (regarding my order). If anyone wants to message me, please do. I've been up late in the evenings and could always use a short break!! Aloha, Jainnie What can changing the way you breathe do for you? Everything! See why tens of thousands agree, Life Lift is the best! http://www.oxygenzoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2007 Report Share Posted February 23, 2007 Feel free to participate as you choose. As a member, you may come and go as you please and be welcomed whenever you return. Although we do love good conversations with active involvement. Tom Administrator hi again Thanks for all the welcomes. I don't read my email every day, just so you all know. Sometimes it's hard for me to keep up on lists. I'll respond as much as I can. -- the Dreamer http://www.visi.com/~unique Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2007 Report Share Posted March 18, 2007 In a message dated 3/17/2007 9:58:23 PM Eastern Daylight Time, GundulaME@... writes: I don't know if anyone is around who still knows me. I have been off the list now for almost 2 years. I remember you Gundula and I am sure there are many others who still do. Glad you are back. I hope you are doing well now and we look forward to hearing what is going on in your life. Loree ************************************** AOL now offers free email to everyone. Find out more about what's free from AOL at http://www.aol.com. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2007 Report Share Posted March 18, 2007 how wonderful that so many people are still here from 2 years ago (or more) and that you remember my name! thanks ever so much! it makes the day so much brighter. we are having another granddaddy storm at the moment, couldn't sleep all night because of the howling winds, getting up this morning was no fun but Fiona was insistent ( thanks for the welcome! since i wrote here last my big boys have all left the house, one is going to university in holland, one is leaving here in 2 weeks time to go to university for a year in canada and will be staying at my familys place, and the oldest is working and living with his girlfriend. my son in holland comes home for 2-3 days a week to work in my OT pracitice here, he finished his OT schooling and had 3 years of working elsewhere (not for mom, getting experience elsewhere) and had just started going back to university to get a music degree as well when i got sick. so now he is doing both, university and my practice. things where pretty chaotic here for a while. slowly everything is getting back to " normal " , whatever that is. the after effects of the chemotherapy still have me exhausted, but its a whole lot better than it was last year at this time. how are all of your kids doing? looking forward to hearing your stories. Gundula Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 4, 2007 Report Share Posted July 4, 2007 " thanks for the two welcoming messages to my introduction. " The activity in this forum ought to pick up soon. There are a lot of people out on summer vacation. " I e-mailed this lady who is a mother of an autistic son of why i am nervous about meeting her again. And me too i believe that it is best to be friends first. " After the infatuation wears off, if there is nothing left, there is no way a relationship can happen unless you become friends. But if you've got friendship as a foundation, everything ought to turn out alright. " The comment about same sex attraction being frequent with aspies of both gender helped me a lot. I had suspicious about that but would not trust my first impression after going to an autistic disco. " Another aspect of Aspies sexuality is asexuality. Some Aspies simply do not have an interest in sex. See below. Tom Administrator Health features December 05, 2004 The Sunday Times, Style magazine No sex, please! I'm asexual by Leah Hardy They're out and proud: they don't want to have sex but insist that they're normal. Now more and more people are coming out as asexual. Is this the new era of A-pride? As a society, we used to be hung up on sex. Sex was a mark of how successful we were as human beings; it defined the way we dressed and how we were portrayed (think of the alpha-female, sexual- predator type of woman in car adverts). But as if to confirm that this chapter is coming to an end, a growing number of people have completely opted out of the sexual arena. There is a small but increasingly vocal minority of men and women who have never wanted to have sex with anyone. Researchers have only recently noticed a previously overlooked nugget in a 1994 survey of Britain's sexual habits. Of the 8,000 people surveyed, 1% claimed they had never felt sexually attracted to anyone — in the UK as a whole, that amounts to about half a million people. These people are now so open about what they describe as their asexuality, that there is even a website (www.asexuality.org) devoted to them, with a forum in which they cheerfully discuss their lack of desire and their irritation at the view that they must all be sick, lonely or desperate. They include women such as a Kripps, who is fit, healthy and in her thirties. " I have a nonexistent sex drive, " she says. " I have no physical or mental illness. I've just never been interested in sex. But that doesn't mean I need a cure or a treatment — as far as I'm concerned, I'm normal. " But can a nonexistent sex drive be described as totally normal? After all, isn't sex a biological imperative, like eating? " Sex drive is a very variable thing, " says the psychologist Hodson. " There are a few utterly normal folk who never want much — if any — sex, and also a few utterly normal folk who want sex 15 times a day. Most of the rest fall somewhere between the two. " However, asexuality doesn't necessarily mean having no sex drive. The Asexual Visibility and Education Network (Aven) defines asexuals as those who never feel the desire to commit to having sex with others. While some never experience sexual desire at all, others feel aroused from time to time — sometimes to their irritation — but simply don't want to have sex with other people. This does not mean that they are lifelong loners or virgins. Plenty of asexuals lead " normal " lives, and have relationships, happy marriages and even children. Anne Hooper, an author and sex and marital therapist, describes one such asexual woman she encountered: " She was happily married and was a wonderful mother to her children, but she simply did not have any sexual desire. Even vibrators and sex therapy had no effect. " So what makes someone asexual? The researcher who first noticed the existence of this group of people is Professor F Bogaert, who specialises in research into sexual behaviour. He discovered factors that make asexuality more likely. He found that the biggest single factor was gender — women are more than twice as likely to be asexual as men. Poor health was another. Asexual women also started puberty later and were more likely to be religious than sexual women. If you're confused, don't worry. Even Bogaert could only conclude: " The results suggest that a number of pathways, both biological and psychosocial, contribute to the development of asexuality. " Of course, some asexuals do have a physical or mental illness. There is evidence that schizophrenia and depression can wipe out desire, and sex phobias can also affect libido. One contributor to the website says just hearing people talk about sex makes her physically sick. Sexual-aversion disorder (an intense dislike of sex) is another problem, which can affect people who suffer from panic attacks. Louise Fenton is one of them. " I was asked by a healthcare professional earlier in the year if I had had any sexual experiences or relationships, " she says. " When I answered `No', he looked at me in disbelief and said, `What, not even kissing?' I replied I couldn't see the attraction of having someone else's slobber all over my face. " Several members of Aven describe themselves as having Asperger's syndrome, a mild form of autism. Asperger's can be associated with sensory problems that make being touched seem intrusive or intolerable. There are various physical causes of asexuality, including illnesses such as multiple sclerosis. According to Hooper, naturally low testosterone levels can also be a cause, particularly in men. In women, however, the picture is more complicated. Hooper says that, even among those with a normal hormone profile, between 8% and 12% find it very difficult, if not impossible, to feel aroused. " Even if they do feel slightly sexual, " she says, " they can't reach orgasm, so they aren't very motivated to seek out a sexual relationship. For some of these women, testosterone therapy seems to increase desire, arousal and orgasm, but in others, it has no effect. " Hooper points to research by the Kinsey Institute in America, which suggests that there are specific brain centres that control sex drive: an exciter centre, which permits arousal, and an inhibitor, which keeps it under control. " It may be that for some women, there is more than one inhibitor, or that it may be overactive, " she says. So what can these women do? " There are drugs that seem to work on suppressing the inhibitor centres, allowing the brain to process sexual sensation, " says Hooper. However, few women are ever diagnosed with an overactive inhibitor, let alone given treatment. And as Fiona Henley, a 40-year-old married mother of three, admits, asexuals don't necessarily want treatment anyway. " I could quite happily live the rest of my life without sex, " she says. " I think there have been millions of marriages like mine through history, but it's only recently that women have been expected to be wives, mothers, have a great job and be sex goddesses, too. " For now, Henley feels her lack of sex drive is something to keep quiet about. But that could all be changing. What is different about the new breed of asexuals is that they are proud to say they are indifferent to sex. And by defining asexuality not as a disorder but simply another form of sexuality — alongside heterosexuality and homosexuality — they are stating they are positively glad to be A. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2007 Report Share Posted September 17, 2007 Hi , Hope you got the name of the person who said all she needed was the Dr. to vouch for the fact that you can't hear with hearing aids. And her phone number as well! You can scuba dive to " recreational depths " which are generally defined as 100 ft. Check with your Dr. for when you can do this. MRIs can be done AFTER THE MAGNET IS REMOVED " . Magnet on the Freedom is designed for easy removal. But there are other tests that can be done without having to have the magnet removed that usually show as much or similar information as the MRI. If the surgeon does a closure with staples, it looks nasty. Mine was done with invisible, plastic surgery stitches that dissolved. So no need to go back and have anything removed. Ask your surgeon if he staples or sutures. I go for the suture guy every time. Shows a wee bit more concern for the patient. If you get hit on the head hard enough to damage the CI, it's going to be a real serious hit on the head. The housing for the Freedom is titanium, and that is what is used to build hip replacements and so forth. How often have you been hit on the head before now? If you're not seriously falling down and hitting your head with frequency, it's little to worry about. Kids falling out of trees, or getting smashed about in football, etc. have more to worry about than an adult. Wear a helmet when you ride your bicycle or motorcycle. We call people who ride motorcycle without helmets " organ donors " around here. Although it looks like brain surgery, in fact it is not. The implant is seated in the mastoid process of your skull - which is fairly thick, and nothing goes into the brain itself. The array goes into the oval window, and most doctors have a monitor on your facial nerve to make sure they don't damage it. Worrying about what might happen is a lot like sitting in a rocking chair. Gives you something to do, but doesn't get you anywhere. Taste disturbance is usually due to swelling, which is due to surgery. It goes away when the swelling diminishes. Same with tinnitus in most cases. It is well worth it to hear again. I had mine done 10 years ago, and haven't regretted my decision for a moment. Hang in there. Can you scuba dive now days? How about MRIs? I was never really sure if they were able to fix the MRI thing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 Hello again Sue Does it feel like you could have some fluid trapped in your Eustachian tube? Have you had a recent infection and got thoroughly "stuffed up". The Eustachian tube connects the ear, nose & throat and infection in any can cause all 3 to become affected. There must be a balance of pressure on both sides of the tube & outside. When the tube is inflamed, that makes a real imbalance of the pressure inside & out & causes problems. Do you have any pain at all? I would definitely ask your GP for a referral to an ENT specialist if this doesn't go away. I don't think this could be caused by your L-thyroxine. Luv - Sheila For a few weeks now I've been getting a whooshing sound in my headwhenever I stand up. It goes away after a short time, but sometimes itis so bad that I have to put my head down. I also get it when I liedown at night. .. No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.6.0/1601 - Release Date: 08/08/2008 09:02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 Hi Sue, Well, did the GP test your BP standing and sitting- looking for Raglan's sign, when BP drops on standing rather than rising - classic low adrenal symptom, or did he ignore? Could be trapped fluid because of myxodema or an infection. Did he look into your ear? If myxodema a diuretic may help. Subject: Hi again Hi again I've started getting 'odd' problems again. I was chatting to my mum just now (who is also on Levothyroxine) and she suggested it may be the 'thyroxine', so I thought I'd ask you all here. For a few weeks now I've been getting a whooshing sound in my head whenever I stand up. It goes away after a short time, but sometimes it is so bad that I have to put my head down. I also get it when I lie down at night. Does anyone else get this? My GP suggested low BP (postural hypotension) and then TMJ dysfunction. Sometimes it's so bad that it affects my vision. Can anyone help? Many thanks Sue ------------------------------------ TPA is not medically qualified. Consult with a qualified medical practitioner before changing medication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 That whooshing sound is familiar. I had a heavy cold in February which took a very long time to go but left me with a lot of mucous in the left lung, for two months or more, and loss of hearing in the right ear. I can hear my blood pulsing all the time, though the hearing is coming back a bit. I've an appointment to see an ENT specialist. My guess is that there's some fluid behind the ear drum. My doctor asked how I felt about a hearing-aid. I thought that a bit premature! My wife had the same cold in Feb (but without the ear problem) and has only recently begun to feel right again. It seems to have been an especially tenacious infection. Rgds Hans For a few weeks now I've been getting a whooshing sound in my head whenever I stand up. It goes away after a short time, but sometimes it is so bad that I have to put my head down. I also get it when I lie down at night. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 Hi Sue, postural hypotension is a sign of adrenal problems, have you thought about your adrenals? Ruth x > > Hi again > > I've started getting 'odd' problems again. I was chatting to my mum > just now (who is also on Levothyroxine) and she suggested it may be > the 'thyroxine', so I thought I'd ask you all here. > > For a few weeks now I've been getting a whooshing sound in my head > whenever I stand up. It goes away after a short time, but sometimes it > is so bad that I have to put my head down. I also get it when I lie > down at night. > > Does anyone else get this? My GP suggested low BP (postural > hypotension) and then TMJ dysfunction. Sometimes it's so bad that it > affects my vision. Can anyone help? > > Many thanks > > Sue > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2008 Report Share Posted August 23, 2008 Hi I do remember your last post, and was impressed by how much giving you are doing and how hard it must be for you. I am sad that I didn't 'get around to' responding. So often I just don't feel like I have the energy -- or perhaps can't really come up with something helpful, when it clearly NEEDS to be helpful. So I just wait and hope somebody else will do it. At this point I am more than a bit 'outta it'. My sis helped me gather books that need to go out to be sold. I dunno whether the ragweed or the dust or the fatigue or what, but my brainfag is high and I am low! Again, sorry for the silence, but please know that even when silent, I am wishing best for you -- and for all the others for whom I haven't responded. Jean From: Sent: Saturday, August 23, 2008 9:48 PM Subject: Hi again Hello all,First of all I'd like to welcome all the new members since the last time I posted. I tend to do this in a general way rather than welcome you individually because I post so infrequently. Since I'm taking care of my grandma, I tend to be rather busy, and don't always have time to post as often as I'd like. Secondly, for those that are interested in what's going on in my life, I am getting more adjusted and settled in here at my grandma's house. I've got everything moved in here that I intend to move in, and the few little things that are left in the trailer will be moved to my parents' home or sent to Goodwill within the next few weeks, depending on when they have the time to get them. Emotionally, this is still somewhat hard for me...I can no longer really "get away" from my work as a caregiver; even now, as I'm sitting here in my room, relaxing, she's in her room across the hall, and I know that at any moment something could come up and she'd need me. Since I've moved in, I feel as though my workload has doubled. There are things I do for her now that she would have never bothered calling me for before, and it's just because I'm here. She still does a fair amount for herself, but there are days when I feel like she doesn't try as hard as she could. I'm not expecting her to do everything, but it gets tiring having to remind her to eat ( 4 or 5 times a day, more on that later), remind her to take her medicines, convince her to take a nap, assure her that it's okay to take pain medicine if she needs it, and still manage to do most of the housework, almost all of the cooking, all of the meal planning, all of the shopping, and handling all her bills. I'm sorry, I'm complaining, but lately I'm more tired than I even thought it was possible to be without actually being ill. My parents help some, especially my mom, but my dad has to be told exactly what to do...which is only slightly better than doing it myself. Her other kids don't do much, and neither do any of the grandkids, so I get little relief. For a while I was going to my parents' home every couple of weeks, but gas is way too high for that, and I've noticed every time I'm gone for more than a couple of hours, when I come home, she's in bad shape...she doesn't eat right (if at all) when I'm gone, and she frequently won't take her Carafate (she hates it)...so she ends up really nauseated, and I spend the rest of my evening working harder than I would have if I'd just stayed home. So, I haven't been anywhere except to do the shopping in about 3 weeks. I went to a cousin's wedding the first part of the month to do a photography job...they needed someone at the last minute, and since I'd done this before, they asked me. But I haven't been anywhere purely for fun since the early part of July. As for her health, she's doing okay, but not as good as I'd like. She was just diagnosed with hypoglycemia,(that's why the frequent meals) and I'm still trying to learn as much as I can about what she should eat, that she actually can eat with the stomach trouble she has. I understand that the diet should pretty much be a decent amount of protein with few carbohydrates and as little sugar as possible. I checked out a couple of books that look helpful, but I haven't finished reading them yet. Otherwise, her pain is mostly okay...she has trouble some days, but not as often as she did. The doctor put her on Ultram a few months ago and it really seems to be working. However, she does have peripheral neuropathy, and frequently has trouble with what she describes as her veins burning, knotting, or hurting. The doctor didn't really have any suggestions for this...when they feel like they're burning, she said cool compresses would help, but didn't mention anything for the other symptoms. If anybody's got any suggestions on any of this I'd appreciate hearing from you. Oh, and I noticed no one responded to my last post..I hope I didn't offend anyone. If I did, I'm sorry; I was just venting, as I am now, and was looking for a bit of emotional support. The last couple of months have been hard on me. Bye, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 23, 2008 Report Share Posted August 23, 2008 Hi I do remember your last post, and was impressed by how much giving you are doing and how hard it must be for you. I am sad that I didn't 'get around to' responding. So often I just don't feel like I have the energy -- or perhaps can't really come up with something helpful, when it clearly NEEDS to be helpful. So I just wait and hope somebody else will do it. At this point I am more than a bit 'outta it'. My sis helped me gather books that need to go out to be sold. I dunno whether the ragweed or the dust or the fatigue or what, but my brainfag is high and I am low! Again, sorry for the silence, but please know that even when silent, I am wishing best for you -- and for all the others for whom I haven't responded. Jean From: Sent: Saturday, August 23, 2008 9:48 PM Subject: Hi again Hello all,First of all I'd like to welcome all the new members since the last time I posted. I tend to do this in a general way rather than welcome you individually because I post so infrequently. Since I'm taking care of my grandma, I tend to be rather busy, and don't always have time to post as often as I'd like. Secondly, for those that are interested in what's going on in my life, I am getting more adjusted and settled in here at my grandma's house. I've got everything moved in here that I intend to move in, and the few little things that are left in the trailer will be moved to my parents' home or sent to Goodwill within the next few weeks, depending on when they have the time to get them. Emotionally, this is still somewhat hard for me...I can no longer really "get away" from my work as a caregiver; even now, as I'm sitting here in my room, relaxing, she's in her room across the hall, and I know that at any moment something could come up and she'd need me. Since I've moved in, I feel as though my workload has doubled. There are things I do for her now that she would have never bothered calling me for before, and it's just because I'm here. She still does a fair amount for herself, but there are days when I feel like she doesn't try as hard as she could. I'm not expecting her to do everything, but it gets tiring having to remind her to eat ( 4 or 5 times a day, more on that later), remind her to take her medicines, convince her to take a nap, assure her that it's okay to take pain medicine if she needs it, and still manage to do most of the housework, almost all of the cooking, all of the meal planning, all of the shopping, and handling all her bills. I'm sorry, I'm complaining, but lately I'm more tired than I even thought it was possible to be without actually being ill. My parents help some, especially my mom, but my dad has to be told exactly what to do...which is only slightly better than doing it myself. Her other kids don't do much, and neither do any of the grandkids, so I get little relief. For a while I was going to my parents' home every couple of weeks, but gas is way too high for that, and I've noticed every time I'm gone for more than a couple of hours, when I come home, she's in bad shape...she doesn't eat right (if at all) when I'm gone, and she frequently won't take her Carafate (she hates it)...so she ends up really nauseated, and I spend the rest of my evening working harder than I would have if I'd just stayed home. So, I haven't been anywhere except to do the shopping in about 3 weeks. I went to a cousin's wedding the first part of the month to do a photography job...they needed someone at the last minute, and since I'd done this before, they asked me. But I haven't been anywhere purely for fun since the early part of July. As for her health, she's doing okay, but not as good as I'd like. She was just diagnosed with hypoglycemia,(that's why the frequent meals) and I'm still trying to learn as much as I can about what she should eat, that she actually can eat with the stomach trouble she has. I understand that the diet should pretty much be a decent amount of protein with few carbohydrates and as little sugar as possible. I checked out a couple of books that look helpful, but I haven't finished reading them yet. Otherwise, her pain is mostly okay...she has trouble some days, but not as often as she did. The doctor put her on Ultram a few months ago and it really seems to be working. However, she does have peripheral neuropathy, and frequently has trouble with what she describes as her veins burning, knotting, or hurting. The doctor didn't really have any suggestions for this...when they feel like they're burning, she said cool compresses would help, but didn't mention anything for the other symptoms. If anybody's got any suggestions on any of this I'd appreciate hearing from you. Oh, and I noticed no one responded to my last post..I hope I didn't offend anyone. If I did, I'm sorry; I was just venting, as I am now, and was looking for a bit of emotional support. The last couple of months have been hard on me. Bye, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2008 Report Share Posted August 24, 2008 Hi , just wanted to say how proud of you I am. Their are so many familys that can not handle being around the family members that are sick. It takes a loving kind heart to do it. I know for my brother lived with and took care of our mom for 20 years until the day she passed on. When he first moved in my dad was to sick for mom to take care of and we had to put him in a nursing home somebody would go to see him at the least every other day even tho he did not know us. And it fell to my younger brother and sister to go most of the time. I was to ill to even take care of myself much less help them and we lived in Colorado so that I could get better health care. But when we new time was getting short I quit my health care and my husband quit his job and we moved back home. Then when my mom started going down hill my brother called and we moved back again. But my brother has done so much for my mom. He took her on vacation twice once to see the Royal Gouge Bridge and then to see Crazy Horse Mountain that was a 2 week trip. As moms health got worse he took over the cooking, cleaning, most of the shopping and would try to do anything he could to make her life better. He quit going places and doing anything that would upset her or leave her alone for more than 2 hours. And I say what he done for her and how hard it got but he never quit. So be proud and stand tall that you have the strength to hang in when the going gets rough and that is what my brother said when I told him about your message. LMay From: <lenette32@...>Subject: Hi again Date: Saturday, August 23, 2008, 8:48 PM Hello all,First of all I'd like to welcome all the new members since the last time I posted. I tend to do this in a general way rather than welcome you individually because I post so infrequently. Since I'm taking care of my grandma, I tend to be rather busy, and don't always have time to post as often as I'd like. Secondly, for those that are interested in what's going on in my life, I am getting more adjusted and settled in here at my grandma's house. I've got everything moved in here that I intend to move in, and the few little things that are left in the trailer will be moved to my parents' home or sent to Goodwill within the next few weeks, depending on when they have the time to get them. Emotionally, this is still somewhat hard for me...I can no longer really "get away" from my work as a caregiver; even now, as I'm sitting here in my room, relaxing, she's in her room across the hall, and I know that at any moment something could come up and she'd need me. Since I've moved in, I feel as though my workload has doubled. There are things I do for her now that she would have never bothered calling me for before, and it's just because I'm here. She still does a fair amount for herself, but there are days when I feel like she doesn't try as hard as she could. I'm not expecting her to do everything, but it gets tiring having to remind her to eat ( 4 or 5 times a day, more on that later), remind her to take her medicines, convince her to take a nap, assure her that it's okay to take pain medicine if she needs it, and still manage to do most of the housework, almost all of the cooking, all of the meal planning, all of the shopping, and handling all her bills. I'm sorry, I'm complaining, but lately I'm more tired than I even thought it was possible to be without actually being ill. My parents help some, especially my mom, but my dad has to be told exactly what to do...which is only slightly better than doing it myself. Her other kids don't do much, and neither do any of the grandkids, so I get little relief. For a while I was going to my parents' home every couple of weeks, but gas is way too high for that, and I've noticed every time I'm gone for more than a couple of hours, when I come home, she's in bad shape...she doesn't eat right (if at all) when I'm gone, and she frequently won't take her Carafate (she hates it)...so she ends up really nauseated, and I spend the rest of my evening working harder than I would have if I'd just stayed home. So, I haven't been anywhere except to do the shopping in about 3 weeks. I went to a cousin's wedding the first part of the month to do a photography job...they needed someone at the last minute, and since I'd done this before, they asked me. But I haven't been anywhere purely for fun since the early part of July. As for her health, she's doing okay, but not as good as I'd like. She was just diagnosed with hypoglycemia, (that's why the frequent meals) and I'm still trying to learn as much as I can about what she should eat, that she actually can eat with the stomach trouble she has. I understand that the diet should pretty much be a decent amount of protein with few carbohydrates and as little sugar as possible. I checked out a couple of books that look helpful, but I haven't finished reading them yet. Otherwise, her pain is mostly okay...she has trouble some days, but not as often as she did. The doctor put her on Ultram a few months ago and it really seems to be working. However, she does have peripheral neuropathy, and frequently has trouble with what she describes as her veins burning, knotting, or hurting. The doctor didn't really have any suggestions for this...when they feel like they're burning, she said cool compresses would help, but didn't mention anything for the other symptoms. If anybody's got any suggestions on any of this I'd appreciate hearing from you. Oh, and I noticed no one responded to my last post..I hope I didn't offend anyone. If I did, I'm sorry; I was just venting, as I am now, and was looking for a bit of emotional support. The last couple of months have been hard on me. Bye, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2008 Report Share Posted August 24, 2008 Hi , just wanted to say how proud of you I am. Their are so many familys that can not handle being around the family members that are sick. It takes a loving kind heart to do it. I know for my brother lived with and took care of our mom for 20 years until the day she passed on. When he first moved in my dad was to sick for mom to take care of and we had to put him in a nursing home somebody would go to see him at the least every other day even tho he did not know us. And it fell to my younger brother and sister to go most of the time. I was to ill to even take care of myself much less help them and we lived in Colorado so that I could get better health care. But when we new time was getting short I quit my health care and my husband quit his job and we moved back home. Then when my mom started going down hill my brother called and we moved back again. But my brother has done so much for my mom. He took her on vacation twice once to see the Royal Gouge Bridge and then to see Crazy Horse Mountain that was a 2 week trip. As moms health got worse he took over the cooking, cleaning, most of the shopping and would try to do anything he could to make her life better. He quit going places and doing anything that would upset her or leave her alone for more than 2 hours. And I say what he done for her and how hard it got but he never quit. So be proud and stand tall that you have the strength to hang in when the going gets rough and that is what my brother said when I told him about your message. LMay From: <lenette32@...>Subject: Hi again Date: Saturday, August 23, 2008, 8:48 PM Hello all,First of all I'd like to welcome all the new members since the last time I posted. I tend to do this in a general way rather than welcome you individually because I post so infrequently. Since I'm taking care of my grandma, I tend to be rather busy, and don't always have time to post as often as I'd like. Secondly, for those that are interested in what's going on in my life, I am getting more adjusted and settled in here at my grandma's house. I've got everything moved in here that I intend to move in, and the few little things that are left in the trailer will be moved to my parents' home or sent to Goodwill within the next few weeks, depending on when they have the time to get them. Emotionally, this is still somewhat hard for me...I can no longer really "get away" from my work as a caregiver; even now, as I'm sitting here in my room, relaxing, she's in her room across the hall, and I know that at any moment something could come up and she'd need me. Since I've moved in, I feel as though my workload has doubled. There are things I do for her now that she would have never bothered calling me for before, and it's just because I'm here. She still does a fair amount for herself, but there are days when I feel like she doesn't try as hard as she could. I'm not expecting her to do everything, but it gets tiring having to remind her to eat ( 4 or 5 times a day, more on that later), remind her to take her medicines, convince her to take a nap, assure her that it's okay to take pain medicine if she needs it, and still manage to do most of the housework, almost all of the cooking, all of the meal planning, all of the shopping, and handling all her bills. I'm sorry, I'm complaining, but lately I'm more tired than I even thought it was possible to be without actually being ill. My parents help some, especially my mom, but my dad has to be told exactly what to do...which is only slightly better than doing it myself. Her other kids don't do much, and neither do any of the grandkids, so I get little relief. For a while I was going to my parents' home every couple of weeks, but gas is way too high for that, and I've noticed every time I'm gone for more than a couple of hours, when I come home, she's in bad shape...she doesn't eat right (if at all) when I'm gone, and she frequently won't take her Carafate (she hates it)...so she ends up really nauseated, and I spend the rest of my evening working harder than I would have if I'd just stayed home. So, I haven't been anywhere except to do the shopping in about 3 weeks. I went to a cousin's wedding the first part of the month to do a photography job...they needed someone at the last minute, and since I'd done this before, they asked me. But I haven't been anywhere purely for fun since the early part of July. As for her health, she's doing okay, but not as good as I'd like. She was just diagnosed with hypoglycemia, (that's why the frequent meals) and I'm still trying to learn as much as I can about what she should eat, that she actually can eat with the stomach trouble she has. I understand that the diet should pretty much be a decent amount of protein with few carbohydrates and as little sugar as possible. I checked out a couple of books that look helpful, but I haven't finished reading them yet. Otherwise, her pain is mostly okay...she has trouble some days, but not as often as she did. The doctor put her on Ultram a few months ago and it really seems to be working. However, she does have peripheral neuropathy, and frequently has trouble with what she describes as her veins burning, knotting, or hurting. The doctor didn't really have any suggestions for this...when they feel like they're burning, she said cool compresses would help, but didn't mention anything for the other symptoms. If anybody's got any suggestions on any of this I'd appreciate hearing from you. Oh, and I noticed no one responded to my last post..I hope I didn't offend anyone. If I did, I'm sorry; I was just venting, as I am now, and was looking for a bit of emotional support. The last couple of months have been hard on me. Bye, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2008 Report Share Posted August 25, 2008 Thanks, to both of you who posted in response to my venting session. I appreciate your kind words and encouragement. It is difficult to do the job I do, and I have to say that I don't think I could do this for anyone other than someone I really care about... the fact that this is my grandmother is the only reason I can do it. I try to do what I think is best for her, but the amount of learning and especially trying to remember so many things every day has really surprised me; at times it feels like this is harder than college was. But, then in college, I had someone I could go to for help if I needed it (without paying extra for it), and it was mostly stuff I picked up easily. Trying to learn what she can eat, for example, changes frequently because some things that bother her stomach one day won't cause problem at another time...depending on if she's gotten enough medicines. So, I'm struggling, and because I can't seem to get a good grip on it, it makes me feel like a failure. And when it comes to learning, that's not a feeling I'm used to; I always have managed to learn quickly and got decent grades. But I realize this is different, and it's not really failure if she has a bad day, it just means we haven't quite got the balance of food, medicine, and rest right for the day...or that there's some other factor causing a problem, like the weather or not getting a good night's sleep. As for my comments about my family, that frustrates me because they all live within less than an hours drive of here...most within a few minutes' drive, so it's not a matter of inconvenience. I think as far as the younger ones are concerned, it could be a matter of not knowing how to deal with someone so sick, because they haven't been exposed to it as much...our grandpa died when we were young, and it was sudden (a heart attack), and though their other grandparents are both gone too, from complications of Alzheimer's , they didn't deal directly with them much either. They were all teenagers or young adults and just too busy with their own lives to spend much time with them. Now, it's pretty much the same...they all work, are married and have small children...and they know that the kids get on our grandma's nerves if they get too loud. But, my thoughts are that it wouldn't be a problem for one or the other of them to come one day of a weekend and spend a couple of hours or maybe even as much as 4 hours so that their little ones will get to know their great grandma a bit, and I could get a bit of rest. It shouldn't be that difficult to get the kids to behave for a while. But wishing won't make it come true, and since this family is rather resistant to changing anything, it likely wouldn't do much good to bring it up. So, for now, I'm content to just gripe about it a bit and move on. If I see the opportunity later to try to do something about it, I will. Well, that's enough complaining for now. Thanks to you all for listening. I am still interested in any suggestions anyone has as far as a diet for my grandma, however. Bye, > > From: <lenette32@...> > Subject: Hi again > > Date: Saturday, August 23, 2008, 8:48 PM > > > > > > > Hello all, > > First of all I'd like to welcome all the new members since the last > time I posted. I tend to do this in a general way rather than welcome > you individually because I post so infrequently. Since I'm taking > care of my grandma, I tend to be rather busy, and don't always have > time to post as often as I'd like. > > Secondly, for those that are interested in what's going on in my > life, I am getting more adjusted and settled in here at my grandma's > house. I've got everything moved in here that I intend to move in, > and the few little things that are left in the trailer will be moved > to my parents' home or sent to Goodwill within the next few weeks, > depending on when they have the time to get them. > > Emotionally, this is still somewhat hard for me...I can no longer > really " get away " from my work as a caregiver; even now, as I'm > sitting here in my room, relaxing, she's in her room across the hall, > and I know that at any moment something could come up and she'd need > me. Since I've moved in, I feel as though my workload has doubled. > There are things I do for her now that she would have never bothered > calling me for before, and it's just because I'm here. She still does > a fair amount for herself, but there are days when I feel like she > doesn't try as hard as she could. I'm not expecting her to do > everything, but it gets tiring having to remind her to eat ( 4 or 5 > times a day, more on that later), remind her to take her medicines, > convince her to take a nap, assure her that it's okay to take pain > medicine if she needs it, and still manage to do most of the > housework, almost all of the cooking, all of the meal planning, all > of the shopping, and handling all her bills. > > I'm sorry, I'm complaining, but lately I'm more tired than I even > thought it was possible to be without actually being ill. My parents > help some, especially my mom, but my dad has to be told exactly what > to do...which is only slightly better than doing it myself. Her other > kids don't do much, and neither do any of the grandkids, so I get > little relief. For a while I was going to my parents' home every > couple of weeks, but gas is way too high for that, and I've noticed > every time I'm gone for more than a couple of hours, when I come > home, she's in bad shape...she doesn't eat right (if at all) when I'm > gone, and she frequently won't take her Carafate (she hates it)...so > she ends up really nauseated, and I spend the rest of my evening > working harder than I would have if I'd just stayed home. So, I > haven't been anywhere except to do the shopping in about 3 weeks. I > went to a cousin's wedding the first part of the month to do a > photography job...they needed someone at the last minute, and since > I'd done this before, they asked me. But I haven't been anywhere > purely for fun since the early part of July. > > As for her health, she's doing okay, but not as good as I'd like. She > was just diagnosed with hypoglycemia, (that's why the frequent meals) > and I'm still trying to learn as much as I can about what she should > eat, that she actually can eat with the stomach trouble she has. I > understand that the diet should pretty much be a decent amount of > protein with few carbohydrates and as little sugar as possible. I > checked out a couple of books that look helpful, but I haven't > finished reading them yet. > > Otherwise, her pain is mostly okay...she has trouble some days, but > not as often as she did. The doctor put her on Ultram a few months > ago and it really seems to be working. However, she does have > peripheral neuropathy, and frequently has trouble with what she > describes as her veins burning, knotting, or hurting. The doctor > didn't really have any suggestions for this...when they feel like > they're burning, she said cool compresses would help, but didn't > mention anything for the other symptoms. > > If anybody's got any suggestions on any of this I'd appreciate > hearing from you. > > Oh, and I noticed no one responded to my last post..I hope I didn't > offend anyone. If I did, I'm sorry; I was just venting, as I am now, > and was looking for a bit of emotional support. The last couple of > months have been hard on me. > > Bye, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2008 Report Share Posted August 25, 2008 Hi alot of people that have problems with their blood sugars have problems with sorbatiol or any of the sugar alcohols so read and read every label. Also make certain that there isn't a food and medicine reaction Double check all of her medicines and talk to her pharmacist about what food to avoid with what medicines. Like grapefruit and blood pressure med's. Also some med's should not be combined. And one thing you might get for her is a vegetable drink. We made a soup with beans, lentils, and different vegetables then ran it thru the blender it made a nice drink and it made the correct vit's and min's for I meal. LMay From: <lenette32@...>Subject: Re: Hi again Date: Monday, August 25, 2008, 3:44 PM Thanks, to both of you who posted in response to my venting session. I appreciate your kind words and encouragement. It is difficult to do the job I do, and I have to say that I don't think I could do this for anyone other than someone I really care about... the fact that this is my grandmother is the only reason I can do it. I try to do what I think is best for her, but the amount of learning and especially trying to remember so many things every day has really surprised me; at times it feels like this is harder than college was. But, then in college, I had someone I could go to for help if I needed it (without paying extra for it), and it was mostly stuff I picked up easily. Trying to learn what she can eat, for example, changes frequently because some things that bother her stomach one day won't cause problem at another time...depending on if she's gotten enough medicines. So, I'm struggling, and because I can't seem to get a good grip on it, it makes me feel like a failure. And when it comes to learning, that's not a feeling I'm used to; I always have managed to learn quickly and got decent grades. But I realize this is different, and it's not really failure if she has a bad day, it just means we haven't quite got the balance of food, medicine, and rest right for the day...or that there's some other factor causing a problem, like the weather or not getting a good night's sleep. As for my comments about my family, that frustrates me because they all live within less than an hours drive of here...most within a few minutes' drive, so it's not a matter of inconvenience. I think as far as the younger ones are concerned, it could be a matter of not knowing how to deal with someone so sick, because they haven't been exposed to it as much...our grandpa died when we were young, and it was sudden (a heart attack), and though their other grandparents are both gone too, from complications of Alzheimer's , they didn't deal directly with them much either. They were all teenagers or young adults and just too busy with their own lives to spend much time with them. Now, it's pretty much the same...they all work, are married and have small children...and they know that the kids get on our grandma's nerves if they get too loud. But, my thoughts are that it wouldn't be a problem for one or the other of them to come one day of a weekend and spend a couple of hours or maybe even as much as 4 hours so that their little ones will get to know their great grandma a bit, and I could get a bit of rest. It shouldn't be that difficult to get the kids to behave for a while. But wishing won't make it come true, and since this family is rather resistant to changing anything, it likely wouldn't do much good to bring it up. So, for now, I'm content to just gripe about it a bit and move on. If I see the opportunity later to try to do something about it, I will. Well, that's enough complaining for now. Thanks to you all for listening. I am still interested in any suggestions anyone has as far as a diet for my grandma, however.Bye, > > From: <lenette32@. ..>> Subject: Hi again> @grou ps.com> Date: Saturday, August 23, 2008, 8:48 PM> > > > > > > Hello all,> > First of all I'd like to welcome all the new members since the last > time I posted. I tend to do this in a general way rather than welcome > you individually because I post so infrequently. Since I'm taking > care of my grandma, I tend to be rather busy, and don't always have > time to post as often as I'd like. > > Secondly, for those that are interested in what's going on in my > life, I am getting more adjusted and settled in here at my grandma's > house. I've got everything moved in here that I intend to move in, > and the few little things that are left in the trailer will be moved > to my parents' home or sent to Goodwill within the next few weeks, > depending on when they have the time to get them. > > Emotionally, this is still somewhat hard for me...I can no longer > really "get away" from my work as a caregiver; even now, as I'm > sitting here in my room, relaxing, she's in her room across the hall, > and I know that at any moment something could come up and she'd need > me. Since I've moved in, I feel as though my workload has doubled. > There are things I do for her now that she would have never bothered > calling me for before, and it's just because I'm here. She still does > a fair amount for herself, but there are days when I feel like she > doesn't try as hard as she could. I'm not expecting her to do > everything, but it gets tiring having to remind her to eat ( 4 or 5 > times a day, more on that later), remind her to take her medicines, > convince her to take a nap, assure her that it's okay to take pain > medicine if she needs it, and still manage to do most of the > housework, almost all of the cooking, all of the meal planning, all > of the shopping, and handling all her bills. > > I'm sorry, I'm complaining, but lately I'm more tired than I even > thought it was possible to be without actually being ill. My parents > help some, especially my mom, but my dad has to be told exactly what > to do...which is only slightly better than doing it myself. Her other > kids don't do much, and neither do any of the grandkids, so I get > little relief. For a while I was going to my parents' home every > couple of weeks, but gas is way too high for that, and I've noticed > every time I'm gone for more than a couple of hours, when I come > home, she's in bad shape...she doesn't eat right (if at all) when I'm > gone, and she frequently won't take her Carafate (she hates it)...so > she ends up really nauseated, and I spend the rest of my evening > working harder than I would have if I'd just stayed home. So, I > haven't been anywhere except to do the shopping in about 3 weeks. I > went to a cousin's wedding the first part of the month to do a > photography job...they needed someone at the last minute, and since > I'd done this before, they asked me. But I haven't been anywhere > purely for fun since the early part of July. > > As for her health, she's doing okay, but not as good as I'd like. She > was just diagnosed with hypoglycemia, (that's why the frequent meals) > and I'm still trying to learn as much as I can about what she should > eat, that she actually can eat with the stomach trouble she has. I > understand that the diet should pretty much be a decent amount of > protein with few carbohydrates and as little sugar as possible. I > checked out a couple of books that look helpful, but I haven't > finished reading them yet. > > Otherwise, her pain is mostly okay...she has trouble some days, but > not as often as she did. The doctor put her on Ultram a few months > ago and it really seems to be working. However, she does have > peripheral neuropathy, and frequently has trouble with what she > describes as her veins burning, knotting, or hurting. The doctor > didn't really have any suggestions for this...when they feel like > they're burning, she said cool compresses would help, but didn't > mention anything for the other symptoms. > > If anybody's got any suggestions on any of this I'd appreciate > hearing from you. > > Oh, and I noticed no one responded to my last post..I hope I didn't > offend anyone. If I did, I'm sorry; I was just venting, as I am now, > and was looking for a bit of emotional support. The last couple of > months have been hard on me. > > Bye,> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2010 Report Share Posted December 23, 2010 Hi bee there is still a issue with my debit card but i wanted to make a donation as a thankyou is i dont think you take cheques? if you remember my family have allowed me to go on the diet for 2yrs sept 2011... ill have to cook my meals at a mates..but i my parents need looking after so i wont be living independtly(its our culture) my question is if i can only remain on the diet for two years then go off how fast will my health deteriorate i mean eating health with butter eggs and veg but no meat. and what would happen to somebody who went back to eating a westernized diet would there health deteriorate overnight or would it happen over a few month period.. sorry my mum wants to know she thinks i can go on it and go back to eating wat they eat also my friend wants to try this diet to get rid of some ear infection... she asks after healed is it possible to have starbucks one a week or have pizza or cheesecake one a week as in eat bad things for a few hours once a week when her friends come around?? same for me actuallly after well is it okay to endulge once every few weeks on bad foods.. do you ever enjoy these things every while?? also i have candida i guess iv eaten alot healther than my siblings they eat so bad why dont they have it they have tons of energy, no cold or coughs,no acne etc, their in there 30's and look 18! they tell me im mad not eating dairy,sugar,gluten and this is causing my health problems what do i say to this? thanks Merry Xmas niki Quote Link to comment Share on other sites More sharing options...
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