Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 Yes, I certainly have heard of the Auto urine therapy.. It's about as simple as can be..just carry a jar in your car with you. But seriously folks, drinking one's own urine is an ancient and still practiced method of building up the immune system. I have had it done by a holistic MD to help with allergy problems. They take the urine, put it in a centrifuge then inject it . It worked for me. A person's urine is perfectly sterile to him. Taking another's urine is another thing altogether (unless you're some kind of pervert or something). Drinking the stuff originated among eastern europeans at least 200 years ago and is more common than one might think. My grandfather from Russia told me about this method to cure a cold and I thought he was nuts. That was 60 years ago. So now " taking a good pee " may have a totally different meaning. Maybe if you took it with a little gin. Best, JR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 Yes, I certainly have heard of the Auto urine therapy.. It's about as simple as can be..just carry a jar in your car with you. But seriously folks, drinking one's own urine is an ancient and still practiced method of building up the immune system. I have had it done by a holistic MD to help with allergy problems. They take the urine, put it in a centrifuge then inject it . It worked for me. A person's urine is perfectly sterile to him. Taking another's urine is another thing altogether (unless you're some kind of pervert or something). Drinking the stuff originated among eastern europeans at least 200 years ago and is more common than one might think. My grandfather from Russia told me about this method to cure a cold and I thought he was nuts. That was 60 years ago. So now " taking a good pee " may have a totally different meaning. Maybe if you took it with a little gin. Best, JR Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 Hi, See THE BURZYNSKI BREAKTHROUGH and the Government's campaign to squelch it by D. Elias published in 1997 by RR Donelly another effective cure for cancer Herbert Savage Hi AgainI bumped quite accidentally into something quite unusual whenlooking for cures.Have any of you ever heard of " auto urine therapy " .I ended up in :1. www.hps-online.comand 2. people.a2000.nl/mmarza/urifun/howtouk.htmlandusers.erols.com/martinlara/They claim the methods cure even AIDS. What next? Any comments? I found this July 1999, so I don'tknow if URL's are still good.Bye for now, Marie P.S. You may want to look up URINET orurine therapy in a search engine. Get HUGE info at http://www.cures for cancer.ws, and post your own links there. Unsubscribe by sending email to cures for cancer-unsubscribeegroups or by visiting http://www.bobhurt.com/subunsub.mv Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 This might be of interest Marie.. In a health update report that was handed to us from a friend..started out as a gag, but when we read it, it actually begin to make sense. This researcher started out seeking a cure for themselves. They had a serious chronic illness, which had begun very early in life. They had developed degenerative disorders that couldn't be helped by conventional medicines. And thus there ill became threatened to permanently destroy their ability to work, and the other things in life they enjoyed doing. ( The article was written by Martha M. Christy ) She goes on to say the food and chemical allergies also became a huge problem, and interfered with the ability to eat. And the immune system weakened. From the article she was unable to find cure, but the had been on many drugs and medicines, and none were working. She became worse. She even came down with endometriosis, which caused bleeding internal tumors, and had gone under major surgeries. Nothing worked. Then she was introduced to a book about Nature Therapy. What is her mystery miracle medicine, ( It is Human Urine ) Now she says, " before you scream " I don't believe it." she wants us to consider this. That we by nature believe that urine is undesirable waste. But by the medical community it's 'Liquid Gold' Urine is known to contain minute amounts of proteins made by the body, including medical important once such as growth hormone and insulin. By this article this summer, a company plans to market its first major urine products called Urokinase, an enzyme that dissolves blood clots and is used to treat victims of heart attacks. There is indeed going to be a market for this ingredient. Even in Switzerland has earned a report, in a million dollar sale. using this body fluid. Pergonal, which is made from human urine hormones. Another urine derivative is Premarin, used for hormone replacement of menopausal, ( which by the way Marie I'm on now ), given to me by my doctor over two years ago. And another the companies will be pushing is the one made of urine called Murine Ear Drops. They're made with urea, synthesized primary solid in urine. ( and when I was a child when any body in the family got an ear-ache, Guess what..We got Urine put back into the ear. If I'm not mistaken I believe she had it taken from ourself. For I remember having to sit-on the potty and urinate into this little cup. Then with an eye-dropper, the warm fluid was placed inside the ear. Now I have no idea if it was harmful or not. But at the time of an thumping ear ache you'd do anything imaginable to stop the pain. ( she might have also heated it with a match under the tin utensil.to make it free of germs )..if there was any. Today the medical findings on urine are overwhelming. One article states the the blood moves through the kidneys at a rate of 1200ml of blood per minute. Inside the kidneys the blood is continually filtered through a system of minute tubules called 'Nephron which absorbs and sorts out the various constituents of the blood including water, minerals, vitamins, enzymes, salt, antibodies, hormones and hundreds of other elements. The kidney goes through this filtering process in order to maintain the correct balance of every constituent in the blood. A large portion of these elements are reabsorbed back into the bloodstream when needed. But a certain amount of critical blood elements are pooled in the kidney into a liquid which doctors call ( " plasma ultra-filtrate" ) ( that we call urine. This sterile ultra-filtrate, or urine is reabsorbed into the blood and some is emptied from the kidney into the bladder where it is exerted from the body..not because it is toxic, but simply because these element are not needed by the body at the moment. Urine is essentially filtered blood, contains an almost endless list of critical physiological substances including antibodies, hormones, brain chemicals such as DHEA and Melatonin, proteins of all kinds, enzymes, every vitamin and mineral you can name and hundreds of other compounds. Doctors have found that when these urine things above mentioned and are reintroduced back into the body through drug compounds, injections, extracts, or sublingual the results are dramatic. 8 Cancer patients were treated with HUD ( human urine ) and immediately after operation. In five cases in this group the cancer had invaded the stomach wall and involved the lymph nodes. the postoperative prognosis for this group was very poor, and their were 3-year survival rate was considered to less than 40%., However following HUD treatments, 3 years passed and 7 out of the 8 patients treated are completely cured and participating in almost their full activities, with no signs of cancer recurrence. ( Treatment of Gastric Cancer HUD, an Anti-genic substance, Obtained from Patients Urine, 1968, Dr. Momoe Soeda, Tokyo,Japan..In 1965, Hanson and Tan Journal of Clinical Investigation reported, has been that urine used as an antibody activity, against several microorganisms including cholera, salmonella, diphtheria, tetanus and polio. From reports in this article, it is used to be effective for Allergies, Disorders, Smoking cures, Edema, ( water weight gone ), Constipation, has Vitamin Therapy, Conjunctivitis, Fungus,Eczema, Preventive medicine, Prozac Alternative ( wean them from ), Prostate problems,( Fasted on four days taking Urine,) Anti-aging, Poison Ivy, Yeast, ( Sun burn, ( we use Urine when the children & Mel, got a terrible sunburn).. It was recommended by a doctor while we had been on vacation out on an Island. And there was nowhere late at night to buy vinegar to put on. Urine Is used for weight loss, ( I haven;t given this thought until now, but I'm not sure I'd drink it, unless it was pill form ) And this articles says urine is used for those with sinus problems. ( Dr.T.s.DC. Dr J. Plesch, M.D..,PhD, Dr Momoe Soeda M.D. Technical Research and Development Tokyo, HS, New Oreleans LA, WS, Wisconsin, BE, Massachusetts, KL Massachusetts, Dr.JK,New york, TR,Taipe, Twaiwan, SW,California, BMS,California,Dr.CW,North Carolina, DC,New Jersey,UH,Florida, DB,Minnesota, DR.RB,California, LK,Texas,JF,Arison,AQ,Washington Doctors.. DR.S Burzynski, Ohysiology, Chemistry I Physics Journal, Says most cancer patients show remarkable improvement after only one week of treatment. And another says that it is killing virus, destryoing them, Phone number to order is toll free 1-800-559-2873..Fax: 602-443-3386..Address: P>O>Box 13927 sdale AZ 85267.. Email: homecure@... Web site: www.homecure.com Sincerely, One of Your Best Friends, Judy ***********************************************************I bumped quite accidentally into something quite unusual whenlooking for cures.Have any of you ever heard of "auto urine therapy".I ended up in :1. www.hps-online.comand 2. people.a2000.nl/mmarza/urifun/howtouk.htmlandusers.erols.com/martinlara/They claim the methods cure even AIDS. What next? Any comments? I found this July 1999, so I don'tknow if URL's are still good.Bye for now, Marie P.S. You may want to look up URINET orurine therapy in a search engine. Get HUGE info at http://www.cures for cancer.ws, and post your own links there. Unsubscribe by sending email to cures for cancer-unsubscribeegroups or by visiting http://www.bobhurt.com/subunsub.mv Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 14, 2000 Report Share Posted June 14, 2000 This might be of interest Marie.. In a health update report that was handed to us from a friend..started out as a gag, but when we read it, it actually begin to make sense. This researcher started out seeking a cure for themselves. They had a serious chronic illness, which had begun very early in life. They had developed degenerative disorders that couldn't be helped by conventional medicines. And thus there ill became threatened to permanently destroy their ability to work, and the other things in life they enjoyed doing. ( The article was written by Martha M. Christy ) She goes on to say the food and chemical allergies also became a huge problem, and interfered with the ability to eat. And the immune system weakened. From the article she was unable to find cure, but the had been on many drugs and medicines, and none were working. She became worse. She even came down with endometriosis, which caused bleeding internal tumors, and had gone under major surgeries. Nothing worked. Then she was introduced to a book about Nature Therapy. What is her mystery miracle medicine, ( It is Human Urine ) Now she says, " before you scream " I don't believe it." she wants us to consider this. That we by nature believe that urine is undesirable waste. But by the medical community it's 'Liquid Gold' Urine is known to contain minute amounts of proteins made by the body, including medical important once such as growth hormone and insulin. By this article this summer, a company plans to market its first major urine products called Urokinase, an enzyme that dissolves blood clots and is used to treat victims of heart attacks. There is indeed going to be a market for this ingredient. Even in Switzerland has earned a report, in a million dollar sale. using this body fluid. Pergonal, which is made from human urine hormones. Another urine derivative is Premarin, used for hormone replacement of menopausal, ( which by the way Marie I'm on now ), given to me by my doctor over two years ago. And another the companies will be pushing is the one made of urine called Murine Ear Drops. They're made with urea, synthesized primary solid in urine. ( and when I was a child when any body in the family got an ear-ache, Guess what..We got Urine put back into the ear. If I'm not mistaken I believe she had it taken from ourself. For I remember having to sit-on the potty and urinate into this little cup. Then with an eye-dropper, the warm fluid was placed inside the ear. Now I have no idea if it was harmful or not. But at the time of an thumping ear ache you'd do anything imaginable to stop the pain. ( she might have also heated it with a match under the tin utensil.to make it free of germs )..if there was any. Today the medical findings on urine are overwhelming. One article states the the blood moves through the kidneys at a rate of 1200ml of blood per minute. Inside the kidneys the blood is continually filtered through a system of minute tubules called 'Nephron which absorbs and sorts out the various constituents of the blood including water, minerals, vitamins, enzymes, salt, antibodies, hormones and hundreds of other elements. The kidney goes through this filtering process in order to maintain the correct balance of every constituent in the blood. A large portion of these elements are reabsorbed back into the bloodstream when needed. But a certain amount of critical blood elements are pooled in the kidney into a liquid which doctors call ( " plasma ultra-filtrate" ) ( that we call urine. This sterile ultra-filtrate, or urine is reabsorbed into the blood and some is emptied from the kidney into the bladder where it is exerted from the body..not because it is toxic, but simply because these element are not needed by the body at the moment. Urine is essentially filtered blood, contains an almost endless list of critical physiological substances including antibodies, hormones, brain chemicals such as DHEA and Melatonin, proteins of all kinds, enzymes, every vitamin and mineral you can name and hundreds of other compounds. Doctors have found that when these urine things above mentioned and are reintroduced back into the body through drug compounds, injections, extracts, or sublingual the results are dramatic. 8 Cancer patients were treated with HUD ( human urine ) and immediately after operation. In five cases in this group the cancer had invaded the stomach wall and involved the lymph nodes. the postoperative prognosis for this group was very poor, and their were 3-year survival rate was considered to less than 40%., However following HUD treatments, 3 years passed and 7 out of the 8 patients treated are completely cured and participating in almost their full activities, with no signs of cancer recurrence. ( Treatment of Gastric Cancer HUD, an Anti-genic substance, Obtained from Patients Urine, 1968, Dr. Momoe Soeda, Tokyo,Japan..In 1965, Hanson and Tan Journal of Clinical Investigation reported, has been that urine used as an antibody activity, against several microorganisms including cholera, salmonella, diphtheria, tetanus and polio. From reports in this article, it is used to be effective for Allergies, Disorders, Smoking cures, Edema, ( water weight gone ), Constipation, has Vitamin Therapy, Conjunctivitis, Fungus,Eczema, Preventive medicine, Prozac Alternative ( wean them from ), Prostate problems,( Fasted on four days taking Urine,) Anti-aging, Poison Ivy, Yeast, ( Sun burn, ( we use Urine when the children & Mel, got a terrible sunburn).. It was recommended by a doctor while we had been on vacation out on an Island. And there was nowhere late at night to buy vinegar to put on. Urine Is used for weight loss, ( I haven;t given this thought until now, but I'm not sure I'd drink it, unless it was pill form ) And this articles says urine is used for those with sinus problems. ( Dr.T.s.DC. Dr J. Plesch, M.D..,PhD, Dr Momoe Soeda M.D. Technical Research and Development Tokyo, HS, New Oreleans LA, WS, Wisconsin, BE, Massachusetts, KL Massachusetts, Dr.JK,New york, TR,Taipe, Twaiwan, SW,California, BMS,California,Dr.CW,North Carolina, DC,New Jersey,UH,Florida, DB,Minnesota, DR.RB,California, LK,Texas,JF,Arison,AQ,Washington Doctors.. DR.S Burzynski, Ohysiology, Chemistry I Physics Journal, Says most cancer patients show remarkable improvement after only one week of treatment. And another says that it is killing virus, destryoing them, Phone number to order is toll free 1-800-559-2873..Fax: 602-443-3386..Address: P>O>Box 13927 sdale AZ 85267.. Email: homecure@... Web site: www.homecure.com Sincerely, One of Your Best Friends, Judy ***********************************************************I bumped quite accidentally into something quite unusual whenlooking for cures.Have any of you ever heard of "auto urine therapy".I ended up in :1. www.hps-online.comand 2. people.a2000.nl/mmarza/urifun/howtouk.htmlandusers.erols.com/martinlara/They claim the methods cure even AIDS. What next? Any comments? I found this July 1999, so I don'tknow if URL's are still good.Bye for now, Marie P.S. You may want to look up URINET orurine therapy in a search engine. Get HUGE info at http://www.cures for cancer.ws, and post your own links there. Unsubscribe by sending email to cures for cancer-unsubscribeegroups or by visiting http://www.bobhurt.com/subunsub.mv Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 5, 2000 Report Share Posted July 5, 2000 Urine therapy is something I never heard of before. Somehow, it doesn't sound good to do though if one has bladder cancer. The tumor sheds cancer cells and blood. Am I right? I don't understand how that could be good to drink. It's no longer sterile. ne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2000 Report Share Posted July 26, 2000 janalise wrote: I am still here - I am having so much trouble functioning and NOBODY is waking up to help. Do any of you reach the point when you say ok - ENOUGH! Yes, entirely too often, especially lately!!! And I swear between my allergies, stress, and life in general... someone is trying to kill me off slowly, and ever so painfully too! One of those long slow torturous deaths! ?? I did about an hour ago and God just gives me more challenges..... whatta guy! eerrrrrrrg! I know this is not what you want to hear, but God must think you can handle it, because otherwise he wouldn't spend so much time on you!!! That is kind of how I look at things, because I have survived so much, and still seem to have more things going wrong in my life, than is going good! But I am still here, and stubborn as ever!!! Love Always, Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 Sherry, Did you get my reply to this e-mail of yours? a www.studioreflections.com Hi again This is the first time that i have discussed my hep C with anyone outside my family & doc. I can tell that from the warm response that I recieved, you made me feel at ease. Thank you. I am 44 married 2 years to my 3rd hubby (and the last) have 3 grown children and 3 stepdaughters only 1 lives with us, and 2 lovely grandchildren. I live in Phoenix and spend most of my time being a p.c potato (ha ha) I crochet blankets and beddolls and pillow dolls for my family. I was diagnosed Sept.7, 2000 (nice birthday present huh?) with chronic active hep C-stage one. After the initial shock, I thank him and asked him how long I have had it...he told me over 20 years. I told him that for years I kept getting a high ALT back when I had blood work done and there wasn't 1 blasted doc that ever took more tests to find out why it was so high..I asked if that was what made me so fatigued all these years to where I couldn't hardly get out of bed and why I had sharp, almost constant pains on my right side? He said yes, and then i asked what to do next? I already had osteo and rhumatoid arthritis, asthma, migraines and then he told me I had hep C.. He made me an appointment with a gastro-intentinologist for the 1st of Jan. 2001..he wanted me to enjoy the holidays before getting started on anything.. Had my biopsy in Oct. 2000. Talk about scared. That was me!! All went well till Jan. 2001 when I went back to see the gastro doc., that's when he told me about all the side effects of the interferon 2alpha-b with ribiviran..I didn't think I could give myself the shots 3x's a week, but I did..got most of the side effects, but tried to sleep through most of them. Well I was on SSI and got a letter 6 months into the treatments they was cutting me off. I cried cause I couldn't afford the meds. so I had to stop taking them..2 months, I got a letter saying I was still covered so I call my gastro doc, and now he wants to put me on the new meds. with 1 shot a week..The catch? I have to see a shrink while on it, so they can see that I am " NOT " suicidal!!! I tried to tell him that why would i do that when all I want to do is try to live the best I can? Oh well, enough of the book and sorry for boring every one out there..ha ha!! Thank you for you support, and God willing, we will ALL beat this nasty bug... Bless all of you out there... If I put anyone to sleep, Please forgive me, I like to ramble on and on...SORRY Sherry Lynn When you feel a breeze across your cheeks, that's your angel kissing you!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2002 Report Share Posted April 5, 2002 Sherry, Did you get my reply to this e-mail of yours? a www.studioreflections.com Hi again This is the first time that i have discussed my hep C with anyone outside my family & doc. I can tell that from the warm response that I recieved, you made me feel at ease. Thank you. I am 44 married 2 years to my 3rd hubby (and the last) have 3 grown children and 3 stepdaughters only 1 lives with us, and 2 lovely grandchildren. I live in Phoenix and spend most of my time being a p.c potato (ha ha) I crochet blankets and beddolls and pillow dolls for my family. I was diagnosed Sept.7, 2000 (nice birthday present huh?) with chronic active hep C-stage one. After the initial shock, I thank him and asked him how long I have had it...he told me over 20 years. I told him that for years I kept getting a high ALT back when I had blood work done and there wasn't 1 blasted doc that ever took more tests to find out why it was so high..I asked if that was what made me so fatigued all these years to where I couldn't hardly get out of bed and why I had sharp, almost constant pains on my right side? He said yes, and then i asked what to do next? I already had osteo and rhumatoid arthritis, asthma, migraines and then he told me I had hep C.. He made me an appointment with a gastro-intentinologist for the 1st of Jan. 2001..he wanted me to enjoy the holidays before getting started on anything.. Had my biopsy in Oct. 2000. Talk about scared. That was me!! All went well till Jan. 2001 when I went back to see the gastro doc., that's when he told me about all the side effects of the interferon 2alpha-b with ribiviran..I didn't think I could give myself the shots 3x's a week, but I did..got most of the side effects, but tried to sleep through most of them. Well I was on SSI and got a letter 6 months into the treatments they was cutting me off. I cried cause I couldn't afford the meds. so I had to stop taking them..2 months, I got a letter saying I was still covered so I call my gastro doc, and now he wants to put me on the new meds. with 1 shot a week..The catch? I have to see a shrink while on it, so they can see that I am " NOT " suicidal!!! I tried to tell him that why would i do that when all I want to do is try to live the best I can? Oh well, enough of the book and sorry for boring every one out there..ha ha!! Thank you for you support, and God willing, we will ALL beat this nasty bug... Bless all of you out there... If I put anyone to sleep, Please forgive me, I like to ramble on and on...SORRY Sherry Lynn When you feel a breeze across your cheeks, that's your angel kissing you!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2002 Report Share Posted June 29, 2002 Welcome to Stilligans Island and Brent. You will learn a lot here at this site. I learned more and received more support than I did from any professionals! Take care, Louise. Pucillo wrote: > > HI! > Ok, so after 8 months of trying I finally figured out > how to get here! I have been reciveing your messages > for eight months but have not been able to write. I > wanted to say thank you to TOM and Connie for all > their help. I know so much about all of you so it is > about time you all met me. > I live in Massachusetts and am a college stident. > I will be attending Bridgewater state college in the > fall as long as all goes well. Before the onset I was > a four season athlete. Tennis and horseback-riding > were my passions but i also enjoyed just about evert > other sport out there. I was diagnosed in September of > 2001. My onset was particullarly bad and I landed in > Intensive care for two weeks. I am learning to adjust > to my new life. My family has been wonderful and very > supportive through everything. I have the most amazing > boyfriend. We used to go hiking, kayaking,and riding > together and now he has no problem just staying in and > watching a movie. I must say being able to read your > E-Mails has been my life line to staying sane. I can't > tell you how much I appreciate all everyone here is > going through. > I was put on Plackquinil (sp?). It made me > insanly sick and caused all my hair to fall out. I > was then put on Tolmetin Sulfate and I was allergic. > I am now on Methotrexate and prednisone and waiting > for Enbrel to become available. I wanted to say thank > you again and I hope to speak to you all soon! Here's > wishing you all pain free futures! > warm wishes > Pucillo > npucillo00@... > 508-376-9952 > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 30, 2002 Report Share Posted June 30, 2002 Welcome ! Glad you finally made it into the group. If you have to have this disease, this is the place to be. Just wanted to make a suggestion - since the wait for enbrel is indefinite and I'm sure you want to return some normalcy to your life as soon as possible, ask your doctor about Kineret. It is the newest biologic that has been released; it works on a different cytokine than Enbrel, but none of us know which will bring us relief. I was on enbrel from the time it came out until the shortages made my supply erratic. I switched to Kineret about six weeks ago and am doing better on it than I did on Enbrel. We do have choices now and alternatives. If you have to have this disease (and I certainly wish you didn't),now is the time to have it. Good luck! Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 Elly!! How wonderful to hear from you!! I have been meaning to call you for weeks now, but it seems something is always going on and when I think of calling again..it's not a good time. I always say " when I feel good, I feel like I'm 19, so here we are " over that hill " so many talk about, but sometimes feeling like teenagers. Do you feel 18 now, or is the " dragon " pulling his tricks and making you suffer?? So, welcome back dear friend!!! There are many new ones, and they are all sweethearts. (as far as I know from what I read) I'm not sure you were with us when the dancing under the full moon started....or have you been to one of the " pity parties?? " There has been a lot of parties going on since you have been away. Also there is now a " gift giveaway " for all members. This is the first month for that. Love & hugs, Your forever friend, ~~tricia~~ Wisconsin p.s. we like to have people put where they are from..it's just nice to know. new e-mail addy... 2aliens@... (we went wireless) ************************************************************************ Subject: Hi again Hello to my old friends and some new I hope!I have been gone a long time,but I try to scan the site every now and then.I have missed everyone so much,and I'm going to try once again to do my part to support and encourage everyone.For those of you who are new,I welcome you. I have had stills for about 11 years and I am 56 now yuk!!!!Of course I still feel 18 in my head,but 98 in my body lol.I hope I can catch up with everyone and make it to chat again.I will need the addy for chat though,so if someone could send it to me I'd be grateful.ThanksI hope my old friends will forgive me for not contributing for such a long time and hope they are doing well. Love Elly .. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 Hi Elly, big smiles. Our new chat address is: http://www.stillsdisease.org/chat/chat.html Monday day is UK chat & Wed during the day and Thursday eves same times. It is so good to have you back around. Smiles dear friend, love Melt ----- Original Message ----- From: <eandbc@...> > Hello to my old friends and some new I hope!I have been gone a long > time, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2003 Report Share Posted February 25, 2003 Elly, it's good to hear from you, Louise. Elly Cudney wrote: > Hello to my old friends and some new I hope!I have been gone a long > time,but I try to scan the site every now and then.I have missed > everyone so much,and I'm going to try once again to do my part to > support and encourage everyone.For those of you who are new,I welcome > you. I have had stills for about 11 years and I am 56 now yuk!!!!Of > course I still feel 18 in my head,but 98 in my body lol.I hope I can > catch up with everyone and make it to chat again.I will need the addy > for chat though,so if someone could send it to me I'd be > grateful.ThanksI hope my old friends will forgive me for not > contributing for such a long time and hope they are doing well. > Love Elly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2003 Report Share Posted May 25, 2003 You didn't give the address to " your " group. I think that's what folks are asking. I e-mailed you this morning to your mmslilmama2 address and it bounced back. Says you are over quota. m...... > this is Pam with the group DwarfLove if you have a problem getting > into my group just e-mail me at DwarfLove@y... or > mmslilmama2@y... and I will be more than happy to help you out > Thanks. Pam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2003 Report Share Posted September 28, 2003 Many congrats, I'm so happy for you!!! I'm afraid that I wouldn't personally take the risk of having my own kids, but I have nothing but respect and admiration for those of you who do. You're amazing. Glad that you and baby are both doing so well! I don't care how cliche it sounds, babies really are miracles. And I'm glad yours is such a joy! ~e Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 I'm so happy for you and Will. Olivia is just absolutely gorgeous! I'm glad she's letting you get the rest you need and that you're feeling better daily. You are such an inspiration to those of us planning for our own future as a wife and hopeful mother. I wish you two the best!! ~Kendra > I'm feeling better and stronger every day and cannot explain the joy this > beautiful baby has brought to our lives. She is an absolute angel- she lets > momma and daddy sleep 5 hours at night already! She's eating 3oz every 4 hours > during the day and is just so content to be in my arms. For those of you who > supported us during this terrifying yet wonderful journey, I can't thank you > enough. And to you (I'm sure you know who you are) who said you couldn't care > less if myself or my innocent daughter died during my pregnancy, I thank you > too. You've helped me to realize what an amazing, strong and lucky woman I am to > have been given such a precious gift that someone like yourself will never > have. I truly pity you for your judgmental and bitter personality and hope > someday you will learn to make the best of your life despite your disability. > > > ~Amy~ > Mom to Caitlyn Mae born to heaven 3/26/98 > Olivia Isabelle born on 9/18/03 9:50am~`5lbs 1.6oz~`18 " long and very strong! > <A HREF= " http://www.babiesonline.com/babies/o/oliviathegreat/ " >Olivia, born 9/18/2003</A> > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 Congratulations Amy! Wonderful to hear that you are all doing so well. Taya Hi again I'm feeling better and stronger every day and cannot explain the joy this beautiful baby has brought to our lives. She is an absolute angel- she lets momma and daddy sleep 5 hours at night already! She's eating 3oz every 4 hours during the day and is just so content to be in my arms. For those of you who supported us during this terrifying yet wonderful journey, I can't thank you enough. And to you (I'm sure you know who you are) who said you couldn't care less if myself or my innocent daughter died during my pregnancy, I thank you too. You've helped me to realize what an amazing, strong and lucky woman I am to have been given such a precious gift that someone like yourself will never have. I truly pity you for your judgmental and bitter personality and hope someday you will learn to make the best of your life despite your disability. ~Amy~ Mom to Caitlyn Mae born to heaven 3/26/98 Olivia Isabelle born on 9/18/03 9:50am~`5lbs 1.6oz~`18 " long and very strong! <A HREF= " http://www.babiesonline.com/babies/o/oliviathegreat/ " >Olivia, born 9/18/2003</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2003 Report Share Posted September 29, 2003 Congratulations Amy!! Glad to hear everyone is well! Later, Mike Briggs Photo Gallery: http://www.pbase.com/photogrif/ " Fish Gotta Swim, I Gotta Dive " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2003 Report Share Posted October 1, 2003 In a message dated 10/1/2003 7:11:40 PM Eastern Daylight Time, buttrfly@... writes: Diane, I did a little reading on Di Syndrome- thanks for the link to the fact sheet. There are things there that made me sit up and take note, but isnt an absent thymus part of what Di is all about I always thought that too, but, from new research that is done, it says absent or nonfunctioning thymus is " common " but not absolute. Just like you can have Di or 22q11 deletion without heart problems. Those criteria are based on percentages, I believe it is 26% of kids with Di have tetrology of falot heart problem for example, but then that means that 74% of kids with Di do not. Same thing with the thymus. Actually they say now what differentiates Di from velacardio facial syndrome is the immune component. Di Syndrome has an immune deficiency component, some times from the thymus but also IgG's and IgA' deficiencies too, CVID or hypogammaglobulinemia is part of it. Absent thymus or TOF is a red flag for Di, but certainly not the main criteria. And they now know that 10% of kids with Di Syndrome actually have negative FISH tests for it because they have a micro deletion that is too small to calculate with current testing. Of the 180 " anomalies " listed on the fact sheet for 22q11 deletion/Di Kody has 39, that is considered a significant amount. Plus, you add in the fact that some of them may not have emerged yet and some of them he simply hasn't been tested for becasue they aren't life threatening he probably has more than 39. And yet his FISH was inconclusive. His docs think that it is a micro deletion or a transverse deletion or possible a displaced deletion (sort of like 22q10, 22q12, 22q11 not in the right order). You see how much I'm learning in my recent research mode??? LOLOLOL!!! Any questions, just ask me!!! LOL! Diane, Mom to Kody, age 7, precious and precocious who has Di Syndrome, Hypogammaglobulinemia, epilepsy, asthma, chronic encopresis, and severe cognitive regression. Also Mom to Arika age 16, Kaila, age 12, and Sami age 9 (she happens to also be Dyslexic), and wife/soulmate to for 10 years. check out my website: www.geocities.com/schmidtzoo/SNAK Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 3, 2003 Report Share Posted October 3, 2003 In a message dated 9/28/2003 6:31:22 PM Pacific Standard Time, blueyedaze@... writes: And to you (I'm sure you know who you are) who said you couldn't care less if myself or my innocent daughter died during my pregnancy, I thank you too. You've helped me to realize what an amazing, strong and lucky woman I am to have been given such a precious gift that someone like yourself will never have. I truly pity you for your judgmental and bitter personality and hope someday you will learn to make the best of your life despite your disability. I was going to address this off the list but since people might have e-mailed you privately to ask who this person is, I'll do it here. First off, before you go around spreading stuff, you might want to make sure your little source is trustworthy. She lied to me and she has apparently lied to you too. She kept giving me daily updates about you and your pregnancy in IM's (which she denies ever doing... another one of her lies. After speaking to her last night, there just seems like too many to even list) even after I told her to stop. And yes, it got to the point where I told her I don't care about your private life. Quite frankly, I've got more important things to worry about than you. She's making it sound like I told her that I didn't care if you or your baby died. That's not true. There's a difference between not caring what you do day in and day out and wanting you dead. Yes, we have our differences but God forbid, if something did happen to you, I genuinely would have been upset. You know, I recently took up crocheting and while looking at some patterns sites online, I saw a cute pair of baby booties that looked easy to make. In all honesty, I actually thought of making them for Olivia. Thinking you probably wouldn't accept a gift from me, I scratched the idea. After talking to her last night, it became pretty apparent she has nothing better to do than sit around trying to start stuff. She told me stuff you said about me too. Considering all the lies she's told so far, who knows what of that was true. She knows we aren't the best of friends and seems to want to pin us against each other even more. Whatever. I won't give her that satisfaction. I'm sick of fighting with you. Anyways, best of luck to you and your baby. Deena Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2003 Report Share Posted October 4, 2003 Since I'm not sure what part of your message I care to respond to, I won't c & p everything you said. I don't ever recall talking to you off the list or outside the mda chat, so I'm not quite sure where we've fought before. I know of one incident where I indirectly offended you when I stated that ebonics made people sound dumb, but that's all. If you didn't say you couldn't care less if we died, so be it. If you did, so be it too. I talked to my " little source " 3 times during my pregnancy and I'm not even sure who informed her. Thanks for the well wishes, anyway. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 Dear Elly, hi, it's sue #2, I just happened to click on again. i am waiting for mail. I am here at work. let me say friend, that you are NEVER forgotten. We love you most dearly!! You were one of the first people who ever talked to me when I joined several years ago. You made me feel so welcomed. You are a wonderful and beautiful person. We miss you very much too, and I am really hoping that we get to meet next year in person too. It's so wonderful, but I want you to know that how you feel is most important than worrying about typing. The pain sounds very bad, and i would not want you to suffer, just to post. You health and how you feel is most important. You are such a valuable member here and just know how much we truly care and love you. I truly understand how you feel and what you are going through. Know that I love you and I am sending you a huge hug from here at work. Wish that it was in person though. Be good to yourself friend. Love, Sue #2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2003 Report Share Posted October 9, 2003 Dear Elly, You are in my thoughts so often, and I was so hoping to meet you in Vegas. So sorry it didn't work out. I'm happy to hear that you and Cat get to talk sometimes. How is she doing? You did just fine typing left handed. I'm also using my left hand, am I doing okay? (Actually I *am* left handed..lol!) Have you tried a wrist and hand brace? Years ago I had to wear one especially on the left hand, sometimes on both. These things do get better with time. Usually. That cortisone shot sure didn't last long did it? I used to get a cortisone shot in the right knee about twice a year for 10 years, and then had to have it totally replaced. I *love* the " new " knee! It was replaced in 1998, and I was only " sorry " for the first six weeks. After that the pain went away, and I feel it is one of the best things I have ever had done for myself. We are on our way out...a friend of ours is dying from Cancer, and we want to go visit with her awhile today. It's about 5 or 6 hours round trip. Dennis has been looking on the map, and he says he thinks he can find the hospital. If you never hear from me again, you will know that we are lost somewhere South of Waupaca, Wisconsin. How is Bear doing? We have sort of inherited & 's dog since their divorce. So we have 3 to care for. Yenta, the little one that is 11.. that someone dumped in the ditch when she was a wee babe, and then Harley & Jupiter. They are all sweethearts though, and I'd miss them terribly if they weren't here. Never forget, I love you dearly Elly, Tricia " I Hope You Dance! " & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & & -- Hi again Dear fellow stilligans, Once again I have been gone a long time! I sure wanted to go to Vegas, there are so many people I need to hug and thank.Next year I hope to do just that.The donation from Joe's group was wonderful and Connie would be so proud.Kathleen, it is so wonderful to have you back,in any capacity you are able.I have missed you and think of you often.Cat and I talk about you too.I hope coping with all the pain both mental and physical,gets easier.Can I call you? Tricia,Melt,Bob,Sue Carmen,Louise,and everyone else ,I have missed being a part of your lives.I have been reading some of the messages,but my right wrist is terrible and I have to type with my left,so I hope I don't screw up too much.I still have fluid on both knees and I got a cortizone shot in one,which worked all of 4 hours,my shoulders are as always,painful,but my numbers are getting better,so whats up? Ok I've complained enough for one e-mail,so I'll just end by saying I love and miss everyone in this group and again,welcome back Kathleen. Love Elly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Hi Thea ~ ~ I was never on " moderated status " , or at least I didn't know if I was. Sometimes it takes awhile to post your messages. I elected to post my messages at this web site and my posts go immediately in and I can view what I wrote with a minute or so. You might want to go to the website and on the left side of the page you will find a list of highlighted topics, just click on " post " and away you go. Let us know if, after this approach, you still are having any more difficulty. Oh..... and welcome to our group *smiles* Dana Rose > Hellow this is Thea. > I just wondered if I was on moderated status for a while? > I wrote an intro to the group and haven't received it yet in my inbox, nor any other messages from the Lexapro group. > Just curious, > Thea > > Quote Link to comment Share on other sites More sharing options...
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