hello Liz, was Moving on to Enbrel~~ to Helen

[Guest guest]

Hi Liz,

I had tears in my eyes reading about 's " sparkle and energy " - I hope she

continues to show improvement. I hope your Christmas was great and that the new

year brings over flowing sparkle and energy to your household (which never seems

to lack it from my perspective!)

Love,

Val

Rob's Mom (7,systemic)

In a message dated 12/15/2004 3:42:07 PM Eastern Standard Time, " liz smith "

<liz_smith@...> writes:

>

>Hi Helen

>

>

>

> seems to be doing well on the Remicade, but has only had one infusion.

>The next one is on Monday. It has been interesting since the first infusion

>on the 6th~~ She's had such sparkle and energy again. My husband even wanted

>to know what kind of " happy drug " was mixed in with the Remicade! We had

>thought she was doing pretty well on the Enbrel (the biggest reason for the

>switch was to see if it would make a difference with her hair). Anyway, my

>dad and I were talking the other day and I told him, when he asked, what I

>told you about the sparkle and the energy. With great relief he told me how

>worried he and my mother were at Thanksgiving. He said they just didn't

>think she looked well at all. I guess seeing her every day we just didn't

>see what others were seeing.

>

>

>

>Okay, long answer to an easy question!

>

>

>

>How's Nick today? I so hope that the Enbrel will work wonders for him.

>

>

>

>Liz

>

>

>

> RE: Moving on to Enbrel.

>> > >

>> > >

>> > > I have been so busy lately, I haven't had a chance to write to

>> > anyone here

>> > > or read much.  I am very interested in how will

>respond

>> > to Enbrel.

>> > > Sami may need to add it or another biologic (Remicade or

>> something

>> > else) in

>> > > January.  

>> > >

>> > > So far she is on Pred, MTX (pill form), folic acid, naprosyn,

>> and

>> > zantac.

>> > > We have been holding off on injectibles.  But alas -- we may

>> have

>> > to succumb

>> > > because the MTX is not working.  Are injections hard to give?  

>> > What is

>> > > ' reaction to them?  If we don't do Enbrel, then we

>have

>> > to go to

>> > > infusions.  Sami is only 10.23 kg.  It's very hard to find a

>> vein

>> > just for

>> > > the testing aspect (every 6 weeks).  She will also start

>> physical

>> > therapy in

>> > > January as a few of her muscles are atrophying.

>> > >

>> > > Please let me know how it goes.  I hope feels better

>> for

>> > the

>> > > holidays.

>> > >

>> > > Gramma Deb (Sami, 2.5 yrs, poly)

>> > > California

>> > >

>> > >