Guest guest Posted March 16, 2001 Report Share Posted March 16, 2001 > My dear friends and fellow adoptive parents. In Rome, that would translate as " Friends Romans and Countrymen, lend me your ears. " Which is precisely what 's relatives are NOT doing! > I really think we need to be easy on 's family. I think we are giving the so called 'considerate' members of 's family, a far more charitable consideration, than they have ever, throughout this whole sorry business, given to her friends. >We may not agree with their method of keeping everything quiet, but we never know how we would care for our loved ones for long term care either. But Marge, Marge, Marge, 'WE' are her loved ones too! I would sincerely hope that I would care for MY loved ones far better, and with a greater degree of compassion and consideration, than has happened in this instance. She has a family out there! A family of families if you like! Children who will be for ever grateful to her for giving them parents. Parents who will be equally grateful for finding them children. People whom she touched with her own inimitable magic of friendship. All are being denied even a morsel of information about her welfare. All are being denied the chance to show their love in return for all she has done for them. > Suffice to say , many of us know that is being cared for . Marge, how can you make a plural out of one? YOU, seem to be lucky. You seem to have been graced with the privilege of information and, presumably, visitation rights, denied even her closest friend! Yet even you do not, cannot, share with us anything more than you have here. It is this silence, this alienation, which so many of us find so hurtful and incomprehensible. The latest two sets of parents writing to the list, seeking only the chance to express gratitude, share their adoptive children's successes with the one person who made all this happiness possible, just serves to show the overwhelming degree of hurt and betrayal, we all feel in this very, very, sorry affair. Bless you Marge, and as you say, let us all prayer for , in her loneliness and wilderness existence she is apparently being made to endure. Fred Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 Thank you becki for your advice,is wbc white blood count? If so Im not sure but when her next appt is here Ill ask.Yes has had preschoolbut it was private preschool,she only had 5 altogether,and it she didnt get colds she does have 30 students in kindergarten. It seems we all have to cancel almost every plan or party,one of her grandmas thinks im not pushing her enough to eat because she isnt very hungry,but I always do my best to make sure she eats healty but also what she wants I somtimes make breakfast meals for dinner anyway I can only do my best but somtimes I think to some people that isnt enough.'s eye appt comes up the 30th Ihope she never gets anything wrong with her eyes that really worries me.sorry if I have been rattleing on. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 , Thanks for the update! Since I didn't see post anything to the list, I thought I may have confused her surgery and activation dates. I'm glad surgery went well and look forward to reading about her activation! Implanted: 12/22/04 Activated: 1/18/05 Deafblind/Postlingual BTE hearing aid user 20 years Severe-profound hearing loss 10 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 Well look who overheard and I gossiping about!! Good to see you up and about and excited about Thursday. , you need a braille watch. LOL (I need a new one as well, sigh.) Who is buying that steak dinner? Can and I join yuh? That would be some party, with 3 gorgeous guide dogs. LOL *---* *---* *---* *---* *---* Why don't they just make mouse-flavored cat food? & Gimlet (Guide Dawggie) Newport, Oregon N24C 3G 8/2000 Hookup rclark0276@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 Hi ! Welcome back! <smile> I'm glad everything turned out okay and that you didn't miss your surgery! I remember experiencing the same feeling of panic the night before surgery (which is why I chose to stay up all night). In my case, I had to be at the hospital by 6:00 a.m. with surgery scheduled for 8:30 a.m. At my pre-op appointment I requested that I be put to sleep before they wheeled me to the operating room. Like you, I have an intense fear of anything being placed over my face. When I was 3 and 5 years old I had eye surgery and remember an oxygen mask being held over my face in both cases without warning or explanation. I freaked out calling for mommy, but all the nurses did in response was to hold me down. Anyways, before my CI surgery I was given anesthesia and was out before they wheeled me to the OR. Thank goodness! Several nurses also asked me questions about the type of surgery, which ear to implant, etc. Did you have an interpreter available at all times to help you communicate with your nurses? I only had a terp before my CI surgery as the hospital staff was unsure of when I would wake up. I also had my Teletouch on my bed, so could use that for communication. Wow ! You're on your way to becoming bilateral! I know that's going to make a world of difference for you -- especially when it comes to outdoor travel. Each one of us is different, but I will be curious to know how your second CI increases your ability to hear environmental sounds like traffic and speech in noise. As for myself and going bilateral, I plan to discuss this further with my surgeon when I see him in September. If he agrees, I may have the surgery sooner rather than later. Otherwise I'm going to try the Oticon SUMO early next year to see if that helps. Right now I'm using my analog hearing aid and am doing well. I look forward to reading all about your activation and am so glad you made it through surgery okay! I'm glad posted an update because I was wondering if I confused your surgery and activation dates. LOL! Implanted: 12/22/04 Activated: 1/18/05 Deafblind/Postlingual BTE hearing aid user 20 years Severe-profound hearing loss 10 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2005 Report Share Posted July 24, 2005 , It's good to hear from you. I had been wondering how you did with your surgery. Sorry to hear you had such a rough 24 hours after, but sounds like you are on the road to recovery now. Hope all continues to go well for you and we'll be waiting news of your activation.. which will still occur much earlier than most! <smiles> Hugs, Silly MI In , " " <wdywms@m...> wrote: > and ! Here I am! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2005 Report Share Posted July 25, 2005 , and Silly , I like to eavesdrop when people wonder about me! I do have a braille watch, but old habits die hard as I rely on the talking clock; will need to remember to use the braille watch. My interpreter was available the time I was outpatient, and again the next day as in inpatient, but not the previous late afternoon, evening and night. Life is different going from CI with HA to just one CI, and being blind too. One flip of the switch and I practically only have tactile contact with the world. I had been trying the BTE while off this summer, but since the surgery I have used the BWP because I need all the hearing I can get. Once I am activated, I will return to the BTE. The surgeon said he would try to preserve my residual hearing in my newly implanted ear, and with the tiny shred of hearing left, I believe he has done so, and the plan will be for me to wear an in-the-ear hearing aid plus the CI. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2005 Report Share Posted July 25, 2005 , I'm really fascinated by the idea of you wearing an in the ear hearing aid with your CI -- and how your surgeon tried to preserve your residual hearing. From what I understand, people who have the Hybrid CI do the same. The Hybrid CI is supposed to preserve one's low frequency hearing. As for residual hearing in the implanted ear, I don't believe I have any. I can't hear the dial tone on my Dialogue XL-50 phone at full volume/amplification nor can I hear anything when I wear my hearing aid. (I only feel vibration.) However, in my nonimplanted ear I can hear loud environmental sounds and the dial tone with my hearing aid. How would an in the ear hearing aid help you hear more than you would with a CI? Would it enhance the frequencies you already hear with your CI or would it help bring in more low frequencies? I assume you were implanted with the Freedom? Implanted: 12/22/04 Activated: 1/18/05 Deafblind/Postlingual BTE hearing aid user 20 years Severe-profound hearing loss 10 years Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2005 Report Share Posted July 26, 2005 , thanks for your kind wishes. I believe the HA will bring in low frequencies, but this is my guess at this point. I lost the residual hearing with my first implanted ear and hear nothing without CI, so technology is moving along. Quote Link to comment Share on other sites More sharing options...
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