Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 YES!!!!! My was coming up with something new every day and would announce that he needed to go to the doctor, etc, etc..... He goes through phases now.... I think it will always be there given he has two brothers with chronic illness, he feels like the *different* one. It does get better as he is getting older, but you know what I mean when I say it will always be there.... ><>Pattie My 6yo dd (who is low in IgA, but otherwise healthy) and suddenly stopped eating solid foods. We think she might be reacting to family stress about Rebekah (the doctor told me that as parents we can't let our kids see our stress--HA!) or seeking attention. This kid has not eaten a regular meal in over a week now. Has anyone else had siblings develop " illnesses " to get attention?? Pam wife to (15 years) mother to , 8, Hannah, 6, Rebekah, 2, and Leah, 1 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2005 Report Share Posted January 28, 2005 , For us it has been fairly good. My son is 27 and is 17 so being 10 years apart there was a difference. My son did help alot with . But there was times that he felt helpless also. I was very honest with them both. He didn't like seeing in pain. Today he will come get me and tell me. He knew she couldn't do alot and when she would try to he was hollering for me to come there. Theres going to be sibling rivery with kids. To me it has brought them closer together. You know the special bond. My mom was good about having Joe at her place for the weekends IF he did good at school all week so he wasn't there but out having some fun. had problems before she was disgnosed at 12. The doctor called it growing pains so this was the start but he did well with being 's big brither. He was 22 and out of college when she was disgnosed. This was when he really got scared being with her. Due to the muscle tremors. But he was there anytime she needed him. I do count on him at times even though she is 17. I don't allow her to stay at home alone much. At my kids ages. They have adjusted well. Kids do well. You just take time out for each one. My hubby and I would do boys day out and girls days out. Every family with kids have the sibling rivery of Why does she get to stay out of school or why do i have to go to the doctor with her. This is where you lean on someone to take the sibling out. Then they will want to go just to see what it is like at the doctor with the sibling. At times I was caught in the middle and thats where I said ok now. What ever it is please go to your room and settle it yourself. This one would get them everytime lololol they knew if i had to settle it someone was going to get it lolol. Alot depends on the age difference I think. Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2005 Report Share Posted January 28, 2005 COOL name aint it lolol. If you need any advice I am here for you darling. You should have been in my house as we grew up. lolol. I have a brother named we nicked named him Robbie. so Mom would holler and we always wondered who she meant. I married a Bobby lolol. and my daughter in law is Ronni. If mom was with us today she would say probably please someone come in here. I am the oldest of 12 kids so Mom always messed up with who she really wanted. You might know the routine call everyones name but the right one lolol. Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2005 Report Share Posted January 28, 2005 For some of my siblings it was easier for others not so much. The big problem was the fact that my mom would let me go out even if I didn't go to school, which wasn't allowed before. In my mom's mind though it was well finally feels well enough to do something and for once its not a trip to the hospital let her go. My sister Brittany is the same age as me (adopted) and of course she was a little miffed about it but she actually wasn't to mad, she went to a lot of the appointments with me and realized how bad what I had was. My older sister Nicolle on the other hand still has a lot of issues around this, she always felt I got more attention and that my parents were nicer to me. She was mad that I got a laptop (I needed it for my arthritic hands) and my parents bought me a new car (still not sure how I got that.. ) and I still dont have to work because I at this point I really can't, and all of this bothers my sister. It bothers me too I'm 20 and wish I had a normal 20 year old life.. but we can't get what we want. As for my oldest sisters they are 11years and 15 years older then me so they dont really have any issues other then sometimes not really knowing what's going on and being confused about this disease. I think jealousy is a huge problem with siblings in this kind of a situation.. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2005 Report Share Posted January 28, 2005 how does having one child with JRA effect other children in the home?? my oldest ( age 6) seems to deal with everything great. at times she has questions... and i am honest with her and explain the best i can to her what is going on... tell her why there is bad days and good days... why Tiff does not understand things she should be at her age ect.. ect.. and just like tiff shannon has her good days and bad days... she does get frusterated trying to figure everything out. i think that is good... her letting her emotions out. and we have shannon and mommy time where we talk about what is bugging her and about other things too. it really seems to help. i also let her help with donations to the hospital (we do toy/ stuffed animal/ cloths drive to Childrens hospital to help the families) and she LOVES being appart of that. of course my question is about long term.... i know that no one here can tell me how shannon will react in the long term... but i was wondering for thoes of your with more then one child how your kids have reacted to haveing a sibling with a cronic condition?? has it gotten easier over time?? thought it would be kinda cool to hear the siblings side:) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2005 Report Share Posted January 28, 2005 robbin- first i just wanted to say that tiffanies middle name is " robbin " as well... same spelling... infact her dad and i were arguing about the spelling after she was just born, my midwife told wes " she just gave natural water birth... she gets to spell it the way she wants " LOL LOL!! so " robbin " it was!!! LOL! i appreciate alot of what you said... and i will always keep it in mind. i really hope that they do indeed become closer as well. i have not allowed shannon to go to the dr's apts yet because it has been really hard getting her to let the rheumy's look at her. but after reading what you had to say; i just might take her to this next one. thankx again!! > , > For us it has been fairly good. My son is 27 and is 17 so being 10 > years apart there was a difference. My son did help alot with . But > there was times that he felt helpless also. I was very honest with them both. > He didn't like seeing in pain. Today he will come get me and tell me. > He knew she couldn't do alot and when she would try to he was hollering for me > to come there. > Theres going to be sibling rivery with kids. To me it has brought them > closer together. You know the special bond. My mom was good about having Joe at > her place for the weekends IF he did good at school all week so he wasn't there > but out having some fun. had problems before she was disgnosed at 12. > The doctor called it growing pains so this was the start but he did well with > being 's big brither. He was 22 and out of college when she was > disgnosed. This was when he really got scared being with her. Due to the muscle > tremors. But he was there anytime she needed him. I do count on him at times even > though she is 17. I don't allow her to stay at home alone much. > At my kids ages. They have adjusted well. Kids do well. You just take time > out for each one. My hubby and I would do boys day out and girls days out. > Every family with kids have the sibling rivery of Why does she get to stay out > of school or why do i have to go to the doctor with her. This is where you > lean on someone to take the sibling out. Then they will want to go just to see > what it is like at the doctor with the sibling. At times I was caught in the > middle and thats where I said ok now. What ever it is please go to your room > and settle it yourself. This one would get them everytime lololol they knew if i > had to settle it someone was going to get it lolol. > Alot depends on the age difference I think. > Robbin > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2005 Report Share Posted January 28, 2005 Jealousy can play a big part between sibling's. had to get braces to wear those went up to her knees. told my son to try them on. He told her his foot was too big. lolol But he tried them on to let her know. She told him now try walking in those things. lololol He told me he didn't know how she did it. With the car we told we would get her one but we also gave our son the same option. He never took us up on it. So at 27 he still don't drive. He said it's to dangerous to drive in Atlanta. He has told us about his concerns of when start's really driving everywhere. This is big brother telling me about his sister. Mom I don't think you should ever let be alone and for driving she shouldn't drive by herself. lolol I told him look she has to learn and do for herself. What am I going to do be y'all's taxi all the time lolol. He smiled and said welllllll lolol. Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2005 Report Share Posted January 29, 2005 I know that is having problems lately with the extra attention that is getting. I've been trying to help even things out. He's started whining alot. Does anyone have any ideas on how to ste the flow of the jealousy? I will gladly take all advice ont his.. Thanks, Emilie and ( 5 Poly) Re: siblings? Jealousy can play a big part between sibling's. had to get braces to wear those went up to her knees. told my son to try them on. He told her his foot was too big. lolol But he tried them on to let her know. She told him now try walking in those things. lololol He told me he didn't know how she did it. With the car we told we would get her one but we also gave our son the same option. He never took us up on it. So at 27 he still don't drive. He said it's to dangerous to drive in Atlanta. He has told us about his concerns of when start's really driving everywhere. This is big brother telling me about his sister. Mom I don't think you should ever let be alone and for driving she shouldn't drive by herself. lolol I told him look she has to learn and do for herself. What am I going to do be y'all's taxi all the time lolol. He smiled and said welllllll lolol. Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2005 Report Share Posted January 29, 2005 Ok group. Kid's don't come with instruction's or manual's. So we have to really play it by ear and ask question's. What may work for one might not for another. Each child has a different personality. Alot to do is listen and watch the child. My mother in law told me . You never have 2 kid's alike. She was so right when she said that. Between my 2 it's like night and day. Being the oldest of a big family I see that also in my sibling's. You about have to make your own judgement. Make sure you always hug your child. Say I love you. You will see what Mom meant when she said I hope you have a kid just like you. lololol. Mom knows. Did you know that asking a child to help you does alot also. This makes them feel like they are being part of the family. Children want to feel needed and wanted and loved. In return they want to make you proud of them. We are their teacher. Time out is good also. With my 2 I had one do dishes one night and the other cooked. Even though I didn't know what they were cooking. They enjoyed it. lololol. Today they will still cook if they see me too busy to take time to cook. is into trying different foods ( She's a good cook) butttttttttttt lordy she likes spices. Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2005 Report Share Posted January 29, 2005 Emilie, It is written in the books that there is the rivalry, but until you can actually see it happen...that is when it really hurts. My kids are 10,8,6. Of course it is my middle daughter that has JRA. One day...rotten day...our daughter finally broke down and told us how we gave all of our attention to Allie and not to her...and we missed DR. Apt's with her, and didn't pay the attention to her that she deserved. It was a heart breaker. She and I both cried. Her grandma stepped in and took her to her house for the week. Just the two (well my dad was there too) and it seemed to help the situation. We have brought her to DR. apts, so she could see Allie getting her shots and blood drawn to demonstrate how " un-fun " this disease is. I don't know how old your kids are, but trying to show them how special they really are...each one of them separately may help. Our 6 year old has not shown the signs that the older one has...and maybe because she has always known Allie to have JRA. It is a very fine line to walk with your kids. I wish there was a magic answer to this one Good Luck! and Allie (8poly) ________________________________ From: HARRY SKIDMORE [mailto:h.skidmore@...] Sent: Saturday, January 29, 2005 8:51 AM Subject: Re: siblings? I know that is having problems lately with the extra attention that is getting. I've been trying to help even things out. He's started whining alot. Does anyone have any ideas on how to ste the flow of the jealousy? I will gladly take all advice ont his.. Thanks, Emilie and ( 5 Poly) Re: siblings? Jealousy can play a big part between sibling's. had to get braces to wear those went up to her knees. told my son to try them on. He told her his foot was too big. lolol But he tried them on to let her know. She told him now try walking in those things. lololol He told me he didn't know how she did it. With the car we told we would get her one but we also gave our son the same option. He never took us up on it. So at 27 he still don't drive. He said it's to dangerous to drive in Atlanta. He has told us about his concerns of when start's really driving everywhere. This is big brother telling me about his sister. Mom I don't think you should ever let be alone and for driving she shouldn't drive by herself. lolol I told him look she has to learn and do for herself. What am I going to do be y'all's taxi all the time lolol. He smiled and said welllllll lolol. Robbin Quote Link to comment Share on other sites More sharing options...
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