Re: (504 information)

[Guest guest]

Hi,

I am a kindergarten teacher. Sometimes it is not a good idea to leave it

up to the teacher to come up with a 504 plan. I do not know the specific

modifications or needs of a child. I have learned the needs of my daughter and

fight for them. The parent knows what will work best.

To make a 504 plan it is a good idea to get the school counselor and the

nurse together and think of all your child's needs. Talk and brainstorm. Do

address the high number of absences that may have to happen. There may be many

due to lab work visits, rheumatologist appointments, eye doctor appointments,

flare days, etc. Do address how makeup work will be done. This month I had

to talk to my daughter's teacher because she told my wife that she would give a

zero for some work. She had to give my daughter incompletes. The teacher

was stressing because she had to turn in grades and was taking it out on my

daughter.

Address the number of work that can be done. Last year my daughter had

this teacher that made her do many multiplication problems each night. Her

hands

were hurting. I would do the writing for her. It is ridiculous all the

repetitive work they do that really hurts a child with jra.

Address the possibility of physical or occupational therapy. Sometimes a

child cannot do the exercise that is asked and needs other types of help to

keep flexible and maintain good muscle development.

Before the school year begins, I make it a point to talk to the nurse

because she will have lots of contact with my daughter. We go over the list and

see the needs for that year. My daughter is now in 4th grade and we discussed

PE, books at home, absences, nurse visits, quantity of work. Do talk with the

nurse to make you aware of any contagious diseases that may be going around

because with the Enbrel it is easier to catch them.

Once you have a list get the teacher involved and make her aware of the

seriousness. Some teachers may not be helpful but by law they have to comply

with the modifications stated in the 504. This year's teacher would not let her

go see the nurse or told my wife if she could wait longer so she could do a

writing assignment. When I talked to her I told her I made her aware her

responsibility and that my daughter's health will not be compromised just

because of

a writing assignment or a state test.

Hope this helps.

o Salas

[Guest guest]

In a message dated 12/31/04 1:02:58 PM Central Standard Time,

h.skidmore@... writes:

> o.. coming from the view of a kindergarten teacher..I have a few

> questions for you. Does it make your job harder to have a child with JRA and

> that needs special accomodations? I am going to talk to the nurse, her

teacher

> and the principal on monday. She needs the fat crayons to color with and they

> don't have any. I am trying to decided wether I should get some for her or

> if I should make the school supply them. If you could give me some insight on

> how to go at this from the teachers angle I would appreciate it..

> thanks.

> Emilie ( 5 Poly)

Hi,

Everything that I have learned about jra is through what my daughter is going

through.

I have not had a child with jra in my class. I do know that I have to do

some modifications for some of my students either because they are selective

mutes, have a speech problem, lack listening skills, etc...

The school is responsible for providing for her education but that may not

cover crayons. The school has to provide for the educational goods which may be

books, machines, or assistive devices that will help. I would buy the

crayons.

The thing with those jumbo crayons is that they are difficult to grasp for

children so not many teachers ask for them. We did an experiment and the

children prefer regular crayons because they say they don't hurt. I understand

with

your child with jra is a totally different scenario.

Have you tried any of the following? Have your child play with clay. Have

her use a tortilla rolling pin. Have her pick up beans one by one using the

thumb and each finger individually.

I hope I have answered your question. If you have any others, ask away.

o Salas

[Guest guest]

o.. coming from the view of a kindergarten teacher..I have a few questions

for you. Does it make your job harder to have a child with JRA and that needs

special accomodations? I am going to talk to the nurse, her teacher and the

principal on monday. She needs the fat crayons to color with and they don't have

any. I am trying to decided wether I should get some for her or if I should make

the school supply them. If you could give me some insight on how to go at this

from the teachers angle I would appreciate it..

thanks.

Emilie ( 5 Poly)

Re: (504 information)

Hi,

I am a kindergarten teacher. Sometimes it is not a good idea to leave it

up to the teacher to come up with a 504 plan. I do not know the specific

modifications or needs of a child. I have learned the needs of my daughter

and

fight for them. The parent knows what will work best.

To make a 504 plan it is a good idea to get the school counselor and the

nurse together and think of all your child's needs. Talk and brainstorm. Do

address the high number of absences that may have to happen. There may be

many

due to lab work visits, rheumatologist appointments, eye doctor appointments,

flare days, etc. Do address how makeup work will be done. This month I had

to talk to my daughter's teacher because she told my wife that she would give

a

zero for some work. She had to give my daughter incompletes. The teacher

was stressing because she had to turn in grades and was taking it out on my

daughter.

Address the number of work that can be done. Last year my daughter had

this teacher that made her do many multiplication problems each night. Her

hands

were hurting. I would do the writing for her. It is ridiculous all the

repetitive work they do that really hurts a child with jra.

Address the possibility of physical or occupational therapy. Sometimes a

child cannot do the exercise that is asked and needs other types of help to

keep flexible and maintain good muscle development.

Before the school year begins, I make it a point to talk to the nurse

because she will have lots of contact with my daughter. We go over the list

and

see the needs for that year. My daughter is now in 4th grade and we discussed

PE, books at home, absences, nurse visits, quantity of work. Do talk with the

nurse to make you aware of any contagious diseases that may be going around

because with the Enbrel it is easier to catch them.

Once you have a list get the teacher involved and make her aware of the

seriousness. Some teachers may not be helpful but by law they have to comply

with the modifications stated in the 504. This year's teacher would not let

her

go see the nurse or told my wife if she could wait longer so she could do a

writing assignment. When I talked to her I told her I made her aware her

responsibility and that my daughter's health will not be compromised just

because of

a writing assignment or a state test.

Hope this helps.

o Salas