Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 I'm so jealouse that we don't have something like that here in the Bay Area.. I would love to be able to see all the green shirts.. heck having a green shirt is like having that medal that says I'm a survivor.. Nick should feel amazingly proud.. he's a fighter! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 I would love to do that seriously. Not sure how doable it would be but it has crossed my mind. When is the JAM any way? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 I need to tell you our fun and story! Last October I asked our daughter Allie to participate in the calendar contest for the Arthritis Walk Calendar. She was to draw a picture to using the phrase of Communities coming together to find a cure. She drew the olympic rings. Anyway last week I called Atlanta to find out the " results " of the contest and was told that she didn't win the cover, but her picture was published in the month of November. We were thrilled and purchased 25 of them to distribute as gifts for Christmas. Well all the relatives got one, her teachers, and her hand therapist...that cried when we gave it to her,... and our last delivery was her hockey coach. (the only man on the list) Her hockey coach was so touched by this calendar that he sent her an e-mail thanking us for the calendar.... and how much it meant to him...and how he was going to spread the word about this disease. Well, by last night he had a team formed for the JAM walk in March, with a goal of $500. " The Hockey Nuts " He said he would send it to his friends and get some money raised towards this cause. (The unfortunate part is we are going to be on Vacation in Florida during the walk.) He knew that and went ahead anyway with the effort. He has raised 250.00 already... and it has been public for just a couple of hours. I am so touched by this man's enthusiasm, and generosity...and people we know...that I have cried more than once today. People that don't even know my daughter are helping this cause. Makes me feel good! and Allie (8 poly) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 -leslie.. this is just awesome...good for you guys. I was sorry toread though that you will not be at the JAM.. I was looking forward to meeting you. I am in the process of putting together a flyer about the JAM and asking for sponsership for . I intend to send this to as many people as I know, here and in the UK. I will post it at work, have my husband do the same and try and see if his school will get involved. The JAM was such a good event for Nichoals last year.. he was feeling rather overwelmed by everything and being involved in something with other kids " just like him " helped him a great deal to realize that hes not alone. He was amazed at the number of green shirts (JRA kids) there were. We hope to raise a LOT more than we did last year. Hugs Helen and (7,systemic) -- In , " lesliekray " <leslie@b...> wrote: > > I need to tell you our fun and story! > > Last October I asked our daughter Allie to participate in the > calendar contest for the Arthritis Walk Calendar. She was to draw > a picture to using the phrase of Communities coming together to find > a cure. She drew the olympic rings. Anyway last week I called > Atlanta to find out the " results " of the contest and was told that > she didn't win the cover, but her picture was published in the month > of November. We were thrilled and purchased 25 of them to > distribute as gifts for Christmas. Well all the relatives got one, > her teachers, and her hand therapist...that cried when we gave it to > her,... and our last delivery was her hockey coach. (the only man on > the list) > > Her hockey coach was so touched by this calendar that he sent her an > e-mail thanking us for the calendar.... and how much it meant to > him...and how he was going to spread the word about this disease. > Well, by last night he had a team formed for the JAM walk in March, > with a goal of $500. " The Hockey Nuts " He said he would send it to > his friends and get some money raised towards this cause. (The > unfortunate part is we are going to be on Vacation in Florida during > the walk.) He knew that and went ahead anyway with the effort. He > has raised 250.00 already... and it has been public for just a > couple of hours. I am so touched by this man's enthusiasm, and > generosity...and people we know...that I have cried more than once > today. People that don't even know my daughter are helping this > cause. Makes me feel good! > > and Allie (8 poly) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 Nick is proud of his green shirt and does still wear it often.. Im looking forward to seeing this years shirt...he needs a new one LOL Hey how about flying to MSP and joining us on the walk!!!????? we would LOVE to have you and you can meet Caroline and Alia too!!! Hugs Helen and (7,systemic) > I'm so jealouse that we don't have something like that here in the Bay > Area.. I would love to be able to see all the green shirts.. heck having a green > shirt is like having that medal that says I'm a survivor.. Nick should feel > amazingly proud.. he's a fighter! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 , Wow, that really is great news!! I would be bursting at the seams with joy. Go Allie!!! I never heard of the Arthritis Walk Calendar. It doesn't seem like it was local, because you called National to get the results. Where do we get the calendars? Is it a fundraiser for the AF? I'm always filled with questions when I hear about AF things here on the list, but I never hear about them from our local AF Chapter. Things that make you go hmmmmm. Stacia and Hunter 8 systemic, iritis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 --. Its saturday march 6th... at the Mall of America.. im serious, if you can get your airfare together.. theres a room at our house for you. YOu are more than welcome!!!! Nick would love it, me too!! hugs Helen and (7,systemic) - In , bncknwurnumber@a... wrote: > I would love to do that seriously. Not sure how doable it would be but it > has crossed my mind. When is the JAM any way? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 27, 2004 Report Share Posted December 27, 2004 The JAM is on Saturday, March 5,2005 from 730am-930am. It is at the Mall of America. I don't know exactly where you are at, but I am sure there is some type of walk in your area. and Allie (8 poly) ________________________________ From: bncknwurnumber@... [mailto:bncknwurnumber@...] Sent: Monday, December 27, 2004 4:23 PM Subject: Re: Re: Good news story! I would love to do that seriously. Not sure how doable it would be but it has crossed my mind. When is the JAM any way? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 What a great article! Thanks for posting this. How wonderful that Allie is able to play. My brothers used to play and I loved watching their games – back then there were no girls teams I knew of. Keep up the great work Allie! Michele ( 20, spondy) From: [mailto: ] On Behalf Of lesliekray Sent: Friday, November 02, 2007 11:33 AM Subject: Good news story! My daughter Allie was featured in an aritcle today in the Minneapolis Star and Tribune. For those of you that are not from the North Country, hockey is life up here! Lots of people play the game. The Gophers are the University of Minnesota team. I suppose it would be like Kentucy Basketball. The world sometimes stops when there is a game. There is a great picture of her and Mike if you go right to the web page. Otherwise the article is duplicated below. This article from StarTribune.com has been sent to you by leslie Ray. *Please note, the sender's identity has not been verified. The full article, with any associated images and links can be viewed here. Men's hockey: An affliction leads to support between Gopher, young fan Roman Augustoviz, Star Tribune Mike Howe was halfway into his freshman season three years ago when his college hockey career reached a crossroads. The Gophers forward was diagnosed with rheumatoid arthritis, forcing him to miss almost two months. At first, Howe did not know why he was so fatigued, or why he needed to stretch for 20 to 30 minutes in the morning to loosen up. " My joints, my knees, my toes and my fingers were always so tight, " he said. Blood tests provided an answer, and he resumed playing. Fast forward to last week. Howe, now an assistant Gophers captain, was the best player on the ice at times at Mariucci Arena. The senior had five shots on goal in the secon! d period and scored once as the Gophers beat Ohio State 3-1 on Thursday. He had an assist against the Buckeyes the next night. Howe is one of the Gophers' top penalty killers and leads the team in shorthanded shots with four going into a rare Friday-Sunday WCHA series with Denver starting at 7:07 tonight at Mariucci. " I bounced back from it, " Howe said of his struggle with rheumatoid arthritis. " I had very good doctors, and I had very good medication. And I have not even been able to notice it since I started treatment. " Howe also has had the support of friends such as Allie Ray, a defenseman on the South St. under-12 girls' hockey B team. Allie, who has had juvenile rheumatoid arthritis for five years, wrote Howe a letter in the spring of 2005 after she read about his diagnosis. She advised him to keep working and skating hard so he would be able to play hockey as well as she could. After being diagnosed, Howe rece! ived numerous e-mails and calls. Allie did not hear back from ! him unti l the next holiday season, when he sent her a Christmas ornament, a Gophers men's hockey jersey signed by the players and a letter. He also asked Allie to stop by and meet him if she ever attended a Gophers game. Allie and her mother accepted the offer. They met Howe's parents, Dave and , at the same game. " You are Mike's hero, " Howe told Allie. Since then, Allie makes signs whenever she goes to Gophers games -- the Rays, a family of six, share two season tickets. " Go Mike #24 " or " Go Gophers, " Allie's signs read. Howe's parents have reciprocated, going to one of Allie's games. And Mike and Allie talk on the telephone, or at Gophers games. " He asks me how my hockey team is doing, " Allie said. " And he always asks how the arthritis is. I tell him if it's hurting a lot or I am OK. " Allie, a former youth ambassador for the state's Arthritis Foundation, dreams of playing for the Gophers women's hockey team. Besides ! playing hockey, she also figure skates, plays soccer and dances. Pills and the drug injections she gives herself help her control the pain most of the time. " We have our moments, " said Ray, her mother. " Fortunately she has a high pain tolerance. " Howe gets motivation and inspiration from Allie. " When I think what I have been through is bad, " Howe said, " I see her and know she is doing well. And there are a lot of people out there that are diagnosed with the disease that are doing good things. " At the U, Howe has killed penalties for four seasons and filled in on power plays and on regular forward lines. So far his best season statistically was his sophomore year, when he had 13 goals and six assists. " It's been a lot of fun, " Howe said, " every day coming to the rink and playing for the University of Minnesota. It's an awesome feeling. And, although my numbers don't reflect it, I feel I have been a very successful player. " Gophers coach Don Lucia certainly appreciates him. " He is a great student and a great young man, " Lucia said, " the kind of guy in the locker room that other players need to emulate. " Allie already knew that. She will be there Sunday to watch Howe and the Gophers play. " I always get there beforehand to watch warmups; it's fun watching [the Gophers] skate around, " she said. " I stand against the boards so I don't get hit. " Her good friend Mike might give her a little wave, too. Roman Augustoviz • raugustovizstartribune Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 , What a wonderful, uplifting story!!! I have tears in my eyes. No big surprise that Allie would inspire and be someone's hero - the story is really touching. How nice that his parents went to one of Allie's games. Thank you so much for sharing that with us. Val Rob's Mom (10,systemic) Good news story! My daughter Allie was featured in an aritcle today in the Minneapolis Star and Tribune. For those of you that are not from the North Country, hockey is life up here! Lots of people play the game. The Gophers are the University of Minnesota team. I suppose it would be like Kentucy Basketball. The world sometimes stops when there is a game. There is a great picture of her and Mike if you go right to the web page. Otherwise the article is duplicated below. This article from StarTribune.com has been sent to you by leslie Ray. *Please note, the sender's identity has not been verified. The full article, with any associated images and links can be viewed here. Men's hockey: An affliction leads to support between Gopher, young fan Roman Augustoviz, Star Tribune Mike Howe was halfway into his freshman season three years ago when his college hockey career reached a crossroads. The Gophers forward was diagnosed with rheumatoid arthritis, forcing him to miss almost two months. At first, Howe did not know why he was so fatigued, or why he needed to stretch for 20 to 30 minutes in the morning to loosen up. "My joints, my knees, my toes and my fingers were always so tight," he said. Blood tests provided an answer, and he resumed playing. Fast forward to last week. Howe, now an assistant Gophers captain, was the best player on the ice at times at Mariucci Arena. The senior had five shots on goal in the secon! d period and scored once as the Gophers beat Ohio State 3-1 on Thursday. He had an assist against the Buckeyes the next night. Howe is one of the Gophers' top penalty killers and leads the team in shorthanded shots with four going into a rare Friday-Sunday WCHA series with Denver starting at 7:07 tonight at Mariucci. "I bounced back from it," Howe said of his struggle with rheumatoid arthritis. "I had very good doctors, and I had very good medication. And I have not even been able to notice it since I started treatment." Howe also has had the support of friends such as Allie Ray, a defenseman on the South St. under-12 girls' hockey B team. Allie, who has had juvenile rheumatoid arthritis for five years, wrote Howe a letter in the spring of 2005 after she read about his diagnosis. She advised him to keep working and skating hard so he would be able to play hockey as well as she could. After being diagnosed, Howe rece! ived numerous e-mails and calls. Allie did not hear back from ! him unti l the next holiday season, when he sent her a Christmas ornament, a Gophers men's hockey jersey signed by the players and a letter. He also asked Allie to stop by and meet him if she ever attended a Gophers game. Allie and her mother accepted the offer. They met Howe's parents, Dave and , at the same game. "You are Mike's hero," Howe told Allie. Since then, Allie makes signs whenever she goes to Gophers games -- the Rays, a family of six, share two season tickets. "Go Mike #24" or "Go Gophers," Allie's signs read. Howe's parents have reciprocated, going to one of Allie's games. And Mike and Allie talk on the telephone, or at Gophers games. "He asks me how my hockey team is doing," Allie said. "And he always asks how the arthritis is. I tell him if it's hurting a lot or I am OK." Allie, a former youth ambassador for the state's Arthritis Foundation, dreams of playing for the Gophers women's hockey team. Besides ! playing hockey, she also figure skates, plays soccer and dances. Pills and the drug injections she gives herself help her control the pain most of the time. "We have our moments," said Ray, her mother. "Fortunately she has a high pain tolerance." Howe gets motivation and inspiration from Allie. "When I think what I have been through is bad," Howe said, "I see her and know she is doing well. And there are a lot of people out there that are diagnosed with the disease that are doing good things." At the U, Howe has killed penalties for four seasons and filled in on power plays and on regular forward lines. So far his best season statistically was his sophomore year, when he had 13 goals and six assists. "It's been a lot of fun," Howe said, "every day coming to the rink and playing for the University of Minnesota. It's an awesome feeling. And, although my numbers don't reflect it, I feel I have been a very successful player." Gophers coach Don Lucia certainly appreciates him. " He is a great student and a great young man," Lucia said, "the kind of guy in the locker room that other players need to emulate." Allie already knew that. She will be there Sunday to watch Howe and the Gophers play. "I always get there beforehand to watch warmups; it's fun watching [the Gophers] skate around," she said. "I stand against the boards so I don't get hit." Her good friend Mike might give her a little wave, too. Roman Augustoviz • raugustovizstartribune Email and AIM finally together. You've gotta check out free AOL Mail! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 : I can't wait to show this to Hannah. Hannah used to play hockey for an under 10 team, but it affected her asthma too much and she had to give it up. Thanks so much for sharing this! Sending prayers & happy thoughts, Beth :-) Good news story! My daughter Allie was featured in an aritcle today in the Minneapolis Star and Tribune. For those of you that are not from the North Country, hockey is life up here! Lots of people play the game. The Gophers are the University of Minnesota team. I suppose it would be like Kentucy Basketball. The world sometimes stops when there is a game. There is a great picture of her and Mike if you go right to the web page. Otherwise the article is duplicated below. This article from StarTribune. com has been sent to you by leslie Ray.*Please note, the sender's identity has not been verified.The full article, with any associated images and links can be viewed here.Men's hockey: An affliction leads to support between Gopher, young fanRoman Augustoviz, Star TribuneMike Howe was halfway into his freshman season three years ago when his college hockey career reached a crossroads. The Gophers forward was diagnosed with rheumatoid arthritis, forcing him to miss almost two months.At first, Howe did not know why he was so fatigued, or why he needed to stretch for 20 to 30 minutes in the morning to loosen up. "My joints, my knees, my toes and my fingers were always so tight," he said.Blood tests provided an answer, and he resumed playing.Fast forward to last week. Howe, now an assistant Gophers captain, was the best player on the ice at times at Mariucci Arena. The senior had five shots on goal in the secon! d period and scored once as the Gophers beat Ohio State 3-1 on Thursday. He had an assist against the Buckeyes the next night.Howe is one of the Gophers' top penalty killers and leads the team in shorthanded shots with four going into a rare Friday-Sunday WCHA series with Denver starting at 7:07 tonight at Mariucci."I bounced back from it," Howe said of his struggle with rheumatoid arthritis. "I had very good doctors, and I had very good medication. And I have not even been able to notice it since I started treatment."Howe also has had the support of friends such as Allie Ray, a defenseman on the South St. under-12 girls' hockey B team.Allie, who has had juvenile rheumatoid arthritis for five years, wrote Howe a letter in the spring of 2005 after she read about his diagnosis.She advised him to keep working and skating hard so he would be able to play hockey as well as she could.After being diagnosed, Howe rece! ived numerous e-mails and calls. Allie did not hear back from ! him unti l the next holiday season, when he sent her a Christmas ornament, a Gophers men's hockey jersey signed by the players and a letter. He also asked Allie to stop by and meet him if she ever attended a Gophers game.Allie and her mother accepted the offer. They met Howe's parents, Dave and , at the same game."You are Mike's hero," Howe told Allie.Since then, Allie makes signs whenever she goes to Gophers games -- the Rays, a family of six, share two season tickets. "Go Mike #24" or "Go Gophers," Allie's signs read.Howe's parents have reciprocated, going to one of Allie's games. And Mike and Allie talk on the telephone, or at Gophers games."He asks me how my hockey team is doing," Allie said. "And he always asks how the arthritis is. I tell him if it's hurting a lot or I am OK."Allie, a former youth ambassador for the state's Arthritis Foundation, dreams of playing for the Gophers women's hockey team. Besides ! playing hockey, she also figure skates, plays soccer and dances.Pills and the drug injections she gives herself help her control the pain most of the time. "We have our moments," said Ray, her mother. "Fortunately she has a high pain tolerance."Howe gets motivation and inspiration from Allie."When I think what I have been through is bad," Howe said, "I see her and know she is doing well. And there are a lot of people out there that are diagnosed with the disease that are doing good things."At the U, Howe has killed penalties for four seasons and filled in on power plays and on regular forward lines. So far his best season statistically was his sophomore year, when he had 13 goals and six assists."It's been a lot of fun," Howe said, "every day coming to the rink and playing for the University of Minnesota. It's an awesome feeling. And, although my numbers don't reflect it, I feel I have been a very successful player."Gophers coach Don Lucia certainly appreciates him." He is a great student and a great young man," Lucia said, "the kind of guy in the locker room that other players need to emulate."Allie already knew that. She will be there Sunday to watch Howe and the Gophers play."I always get there beforehand to watch warmups; it's fun watching [the Gophers] skate around," she said. "I stand against the boards so I don't get hit."Her good friend Mike might give her a little wave, too.Roman Augustoviz • raugustoviz@ startribune. com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 Thanks Val, Mike is a great guy. I told his parents he will go places in life. Maybe not the NHL like her dreamed, but he has made a difference in someone's life. From: [mailto: ] On Behalf Of carneyval@...Sent: Friday, November 02, 2007 11:44 AM Subject: Re: Good news story! , What a wonderful, uplifting story!!! I have tears in my eyes. No big surprise that Allie would inspire and be someone's hero - the story is really touching. How nice that his parents went to one of Allie's games. Thank you so much for sharing that with us. Val Rob's Mom (10,systemic) Good news story! My daughter Allie was featured in an aritcle today in the Minneapolis Star and Tribune. For those of you that are not from the North Country, hockey is life up here! Lots of people play the game. The Gophers are the University of Minnesota team. I suppose it would be like Kentucy Basketball. The world sometimes stops when there is a game. There is a great picture of her and Mike if you go right to the web page. Otherwise the article is duplicated below. This article from StarTribune.com has been sent to you by leslie Ray.*Please note, the sender's identity has not been verified.The full article, with any associated images and links can be viewed here.Men's hockey: An affliction leads to support between Gopher, young fanRoman Augustoviz, Star TribuneMike Howe was halfway into his freshman season three years ago when his college hockey career reached a crossroads. The Gophers forward was diagnosed with rheumatoid arthritis, forcing him to miss almost two months.At first, Howe did not know why he was so fatigued, or why he needed to stretch for 20 to 30 minutes in the morning to loosen up. "My joints, my knees, my toes and my fingers were always so tight," he said.Blood tests provided an answer, and he resumed playing.Fast forward to last week. Howe, now an assistant Gophers captain, was the best player on the ice at times at Mariucci Arena. The senior had five shots on goal in the secon! d period and scored once as the Gophers beat Ohio State 3-1 on Thursday. He had an assist against the Buckeyes the next night.Howe is one of the Gophers' top penalty killers and leads the team in shorthanded shots with four going into a rare Friday-Sunday WCHA series with Denver starting at 7:07 tonight at Mariucci."I bounced back from it," Howe said of his struggle with rheumatoid arthritis. "I had very good doctors, and I had very good medication. And I have not even been able to notice it since I started treatment."Howe also has had the support of friends such as Allie Ray, a defenseman on the South St. under-12 girls' hockey B team.Allie, who has had juvenile rheumatoid arthritis for five years, wrote Howe a letter in the spring of 2005 after she read about his diagnosis.She advised him to keep working and skating hard so he would be able to play hockey as well as she could.After being diagnosed, Howe rece! ived numerous e-mails and calls. Allie did not hear back from ! him unti l the next holiday season, when he sent her a Christmas ornament, a Gophers men's hockey jersey signed by the players and a letter. He also asked Allie to stop by and meet him if she ever attended a Gophers game.Allie and her mother accepted the offer. They met Howe's parents, Dave and , at the same game."You are Mike's hero," Howe told Allie.Since then, Allie makes signs whenever she goes to Gophers games -- the Rays, a family of six, share two season tickets. "Go Mike #24" or "Go Gophers," Allie's signs read.Howe's parents have reciprocated, going to one of Allie's games. And Mike and Allie talk on the telephone, or at Gophers games."He asks me how my hockey team is doing," Allie said. "And he always asks how the arthritis is. I tell him if it's hurting a lot or I am OK."Allie, a former youth ambassador for the state's Arthritis Foundation, dreams of playing for the Gophers women's hockey team. Besides ! playing hockey, she also figure skates, plays soccer and dances.Pills and the drug injections she gives herself help her control the pain most of the time. "We have our moments," said Ray, her mother. "Fortunately she has a high pain tolerance."Howe gets motivation and inspiration from Allie."When I think what I have been through is bad," Howe said, "I see her and know she is doing well. And there are a lot of people out there that are diagnosed with the disease that are doing good things."At the U, Howe has killed penalties for four seasons and filled in on power plays and on regular forward lines. So far his best season statistically was his sophomore year, when he had 13 goals and six assists."It's been a lot of fun," Howe said, "every day coming to the rink and playing for the University of Minnesota. It's an awesome feeling. And, although my numbers don't reflect it, I feel I have been a very successful player."Gophers coach Don Lucia certainly appreciates him." He is a great student and a great young man," Lucia said, "the kind of guy in the locker room that other players need to emulate."Allie already knew that. She will be there Sunday to watch Howe and the Gophers play."I always get there beforehand to watch warmups; it's fun watching [the Gophers] skate around," she said. "I stand against the boards so I don't get hit."Her good friend Mike might give her a little wave, too.Roman Augustoviz • raugustovizstartribune Email and AIM finally together. You've gotta check out free AOL Mail! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 That is an incredible story and I know you are too proud for words!!!! Your daughter gives me so much hope for our future ----- I see that NOTHING has stopped Allie from doing all she was meant to do in life . These are amazing people....-Hadley (Isabelle, 3 yrs.)lesliekray <leslie@...> wrote: My daughter Allie was featured in an aritcle today in the Minneapolis Star and Tribune. For those of you that are not from the North Country, hockey is life up here! Lots of people play the game. The Gophers are the University of Minnesota team. I suppose it would be like Kentucy Basketball. The world sometimes stops when there is a game. There is a great picture of her and Mike if you go right to the web page. Otherwise the article is duplicated below. This article from StarTribune.com has been sent to you by leslie Ray.*Please note, the sender's identity has not been verified.The full article, with any associated images and links can be viewed here.Men's hockey: An affliction leads to support between Gopher, young fanRoman Augustoviz, Star TribuneMike Howe was halfway into his freshman season three years ago when his college hockey career reached a crossroads. The Gophers forward was diagnosed with rheumatoid arthritis, forcing him to miss almost two months.At first, Howe did not know why he was so fatigued, or why he needed to stretch for 20 to 30 minutes in the morning to loosen up. "My joints, my knees, my toes and my fingers were always so tight," he said.Blood tests provided an answer, and he resumed playing.Fast forward to last week. Howe, now an assistant Gophers captain, was the best player on the ice at times at Mariucci Arena. The senior had five shots on goal in the secon! d period and scored once as the Gophers beat Ohio State 3-1 on Thursday. He had an assist against the Buckeyes the next night.Howe is one of the Gophers' top penalty killers and leads the team in shorthanded shots with four going into a rare Friday-Sunday WCHA series with Denver starting at 7:07 tonight at Mariucci."I bounced back from it," Howe said of his struggle with rheumatoid arthritis. "I had very good doctors, and I had very good medication. And I have not even been able to notice it since I started treatment."Howe also has had the support of friends such as Allie Ray, a defenseman on the South St. under-12 girls' hockey B team.Allie, who has had juvenile rheumatoid arthritis for five years, wrote Howe a letter in the spring of 2005 after she read about his diagnosis.She advised him to keep working and skating hard so he would be able to play hockey as well as she could.After being diagnosed, Howe rece! ived numerous e-mails and calls. Allie did not hear back from ! him unti l the next holiday season, when he sent her a Christmas ornament, a Gophers men's hockey jersey signed by the players and a letter. He also asked Allie to stop by and meet him if she ever attended a Gophers game.Allie and her mother accepted the offer. They met Howe's parents, Dave and , at the same game."You are Mike's hero," Howe told Allie.Since then, Allie makes signs whenever she goes to Gophers games -- the Rays, a family of six, share two season tickets. "Go Mike #24" or "Go Gophers," Allie's signs read.Howe's parents have reciprocated, going to one of Allie's games. And Mike and Allie talk on the telephone, or at Gophers games."He asks me how my hockey team is doing," Allie said. "And he always asks how the arthritis is. I tell him if it's hurting a lot or I am OK."Allie, a former youth ambassador for the state's Arthritis Foundation, dreams of playing for the Gophers women's hockey team. Besides ! playing hockey, she also figure skates, plays soccer and dances.Pills and the drug injections she gives herself help her control the pain most of the time. "We have our moments," said Ray, her mother. "Fortunately she has a high pain tolerance."Howe gets motivation and inspiration from Allie."When I think what I have been through is bad," Howe said, "I see her and know she is doing well. And there are a lot of people out there that are diagnosed with the disease that are doing good things."At the U, Howe has killed penalties for four seasons and filled in on power plays and on regular forward lines. So far his best season statistically was his sophomore year, when he had 13 goals and six assists."It's been a lot of fun," Howe said, "every day coming to the rink and playing for the University of Minnesota. It's an awesome feeling. And, although my numbers don't reflect it, I feel I have been a very successful player."Gophers coach Don Lucia certainly appreciates him." He is a great student and a great young man," Lucia said, "the kind of guy in the locker room that other players need to emulate."Allie already knew that. She will be there Sunday to watch Howe and the Gophers play."I always get there beforehand to watch warmups; it's fun watching [the Gophers] skate around," she said. "I stand against the boards so I don't get hit."Her good friend Mike might give her a little wave, too.Roman Augustoviz • raugustovizstartribune Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 Michele, Thanks for the support. Hockey is a huge part of our life. At one time our 4 girls were on 4 different traveling teams. We have fun with it and it is our winter entertainment. From: [mailto: ] On Behalf Of Tepper, MicheleSent: Friday, November 02, 2007 11:45 AM Subject: RE: Good news story! What a great article! Thanks for posting this. How wonderful that Allie is able to play. My brothers used to play and I loved watching their games – back then there were no girls teams I knew of. Keep up the great work Allie! Michele ( 20, spondy) From: [mailto: ] On Behalf Of lesliekraySent: Friday, November 02, 2007 11:33 AM Subject: Good news story! My daughter Allie was featured in an aritcle today in the Minneapolis Star and Tribune. For those of you that are not from the North Country, hockey is life up here! Lots of people play the game. The Gophers are the University of Minnesota team. I suppose it would be like Kentucy Basketball. The world sometimes stops when there is a game. There is a great picture of her and Mike if you go right to the web page. Otherwise the article is duplicated below. This article from StarTribune.com has been sent to you by leslie Ray.*Please note, the sender's identity has not been verified.The full article, with any associated images and links can be viewed here.Men's hockey: An affliction leads to support between Gopher, young fanRoman Augustoviz, Star TribuneMike Howe was halfway into his freshman season three years ago when his college hockey career reached a crossroads. The Gophers forward was diagnosed with rheumatoid arthritis, forcing him to miss almost two months.At first, Howe did not know why he was so fatigued, or why he needed to stretch for 20 to 30 minutes in the morning to loosen up. "My joints, my knees, my toes and my fingers were always so tight," he said.Blood tests provided an answer, and he resumed playing.Fast forward to last week. Howe, now an assistant Gophers captain, was the best player on the ice at times at Mariucci Arena. The senior had five shots on goal in the secon! d period and scored once as the Gophers beat Ohio State 3-1 on Thursday. He had an assist against the Buckeyes the next night.Howe is one of the Gophers' top penalty killers and leads the team in shorthanded shots with four going into a rare Friday-Sunday WCHA series with Denver starting at 7:07 tonight at Mariucci."I bounced back from it," Howe said of his struggle with rheumatoid arthritis. "I had very good doctors, and I had very good medication. And I have not even been able to notice it since I started treatment."Howe also has had the support of friends such as Allie Ray, a defenseman on the South St. under-12 girls' hockey B team.Allie, who has had juvenile rheumatoid arthritis for five years, wrote Howe a letter in the spring of 2005 after she read about his diagnosis.She advised him to keep working and skating hard so he would be able to play hockey as well as she could.After being diagnosed, Howe rece! ived numerous e-mails and calls. Allie did not hear back from ! him unti l the next holiday season, when he sent her a Christmas ornament, a Gophers men's hockey jersey signed by the players and a letter. He also asked Allie to stop by and meet him if she ever attended a Gophers game.Allie and her mother accepted the offer. They met Howe's parents, Dave and , at the same game."You are Mike's hero," Howe told Allie.Since then, Allie makes signs whenever she goes to Gophers games -- the Rays, a family of six, share two season tickets. "Go Mike #24" or "Go Gophers," Allie's signs read.Howe's parents have reciprocated, going to one of Allie's games. And Mike and Allie talk on the telephone, or at Gophers games."He asks me how my hockey team is doing," Allie said. "And he always asks how the arthritis is. I tell him if it's hurting a lot or I am OK."Allie, a former youth ambassador for the state's Arthritis Foundation, dreams of playing for the Gophers women's hockey team. Besides ! playing hockey, she also figure skates, plays soccer and dances.Pills and the drug injections she gives herself help her control the pain most of the time. "We have our moments," said Ray, her mother. "Fortunately she has a high pain tolerance."Howe gets motivation and inspiration from Allie."When I think what I have been through is bad," Howe said, "I see her and know she is doing well. And there are a lot of people out there that are diagnosed with the disease that are doing good things."At the U, Howe has killed penalties for four seasons and filled in on power plays and on regular forward lines. So far his best season statistically was his sophomore year, when he had 13 goals and six assists."It's been a lot of fun," Howe said, "every day coming to the rink and playing for the University of Minnesota. It's an awesome feeling. And, although my numbers don't reflect it, I feel I have been a very successful player."Gophers coach Don Lucia certainly appreciates him." He is a great student and a great young man," Lucia said, "the kind of guy in the locker room that other players need to emulate."Allie already knew that. She will be there Sunday to watch Howe and the Gophers play."I always get there beforehand to watch warmups; it's fun watching [the Gophers] skate around," she said. "I stand against the boards so I don't get hit."Her good friend Mike might give her a little wave, too.Roman Augustoviz • raugustovizstartribune Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 Beth, I think that hockey has kept Allie limber and moving. It is amazing but you would think that with the cold and such. Her soccer is harder on her joints than the hockey tends to be. We shall see however this winter. Mike Howe the man featured in this article is a very nice young man. He had aspirations of the NHL until his diagnosis. Now I think his plans are to graduate and get married. He has made a difference in Allie's life. From: [mailto: ] On Behalf Of Beth YohnkSent: Friday, November 02, 2007 12:09 PM Subject: Re: Good news story! : I can't wait to show this to Hannah. Hannah used to play hockey for an under 10 team, but it affected her asthma too much and she had to give it up. Thanks so much for sharing this! Sending prayers & happy thoughts, Beth :-) Good news story! My daughter Allie was featured in an aritcle today in the Minneapolis Star and Tribune. For those of you that are not from the North Country, hockey is life up here! Lots of people play the game. The Gophers are the University of Minnesota team. I suppose it would be like Kentucy Basketball. The world sometimes stops when there is a game. There is a great picture of her and Mike if you go right to the web page. Otherwise the article is duplicated below. This article from StarTribune. com has been sent to you by leslie Ray.*Please note, the sender's identity has not been verified.The full article, with any associated images and links can be viewed here.Men's hockey: An affliction leads to support between Gopher, young fanRoman Augustoviz, Star TribuneMike Howe was halfway into his freshman season three years ago when his college hockey career reached a crossroads. The Gophers forward was diagnosed with rheumatoid arthritis, forcing him to miss almost two months.At first, Howe did not know why he was so fatigued, or why he needed to stretch for 20 to 30 minutes in the morning to loosen up. "My joints, my knees, my toes and my fingers were always so tight," he said.Blood tests provided an answer, and he resumed playing.Fast forward to last week. Howe, now an assistant Gophers captain, was the best player on the ice at times at Mariucci Arena. The senior had five shots on goal in the secon! d period and scored once as the Gophers beat Ohio State 3-1 on Thursday. He had an assist against the Buckeyes the next night.Howe is one of the Gophers' top penalty killers and leads the team in shorthanded shots with four going into a rare Friday-Sunday WCHA series with Denver starting at 7:07 tonight at Mariucci."I bounced back from it," Howe said of his struggle with rheumatoid arthritis. "I had very good doctors, and I had very good medication. And I have not even been able to notice it since I started treatment."Howe also has had the support of friends such as Allie Ray, a defenseman on the South St. under-12 girls' hockey B team.Allie, who has had juvenile rheumatoid arthritis for five years, wrote Howe a letter in the spring of 2005 after she read about his diagnosis.She advised him to keep working and skating hard so he would be able to play hockey as well as she could.After being diagnosed, Howe rece! ived numerous e-mails and calls. Allie did not hear back from ! him unti l the next holiday season, when he sent her a Christmas ornament, a Gophers men's hockey jersey signed by the players and a letter. He also asked Allie to stop by and meet him if she ever attended a Gophers game.Allie and her mother accepted the offer. They met Howe's parents, Dave and , at the same game."You are Mike's hero," Howe told Allie.Since then, Allie makes signs whenever she goes to Gophers games -- the Rays, a family of six, share two season tickets. "Go Mike #24" or "Go Gophers," Allie's signs read.Howe's parents have reciprocated, going to one of Allie's games. And Mike and Allie talk on the telephone, or at Gophers games."He asks me how my hockey team is doing," Allie said. "And he always asks how the arthritis is. I tell him if it's hurting a lot or I am OK."Allie, a former youth ambassador for the state's Arthritis Foundation, dreams of playing for the Gophers women's hockey team. Besides ! playing hockey, she also figure skates, plays soccer and dances.Pills and the drug injections she gives herself help her control the pain most of the time. "We have our moments," said Ray, her mother. "Fortunately she has a high pain tolerance."Howe gets motivation and inspiration from Allie."When I think what I have been through is bad," Howe said, "I see her and know she is doing well. And there are a lot of people out there that are diagnosed with the disease that are doing good things."At the U, Howe has killed penalties for four seasons and filled in on power plays and on regular forward lines. So far his best season statistically was his sophomore year, when he had 13 goals and six assists."It's been a lot of fun," Howe said, "every day coming to the rink and playing for the University of Minnesota. It's an awesome feeling. And, although my numbers don't reflect it, I feel I have been a very successful player."Gophers coach Don Lucia certainly appreciates him." He is a great student and a great young man," Lucia said, "the kind of guy in the locker room that other players need to emulate."Allie already knew that. She will be there Sunday to watch Howe and the Gophers play."I always get there beforehand to watch warmups; it's fun watching [the Gophers] skate around," she said. "I stand against the boards so I don't get hit."Her good friend Mike might give her a little wave, too.Roman Augustoviz • raugustoviz@ startribune. com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 Hadley, I can't tell you the number of times I have cried because of this disease, but it really does make them stronger people. This young man has RA and has his dreams crushed of playing in the NHL but has found a great way to inspire our daughter. We cherish the inspiration he has given to Allie, and I believe his parents cherish the inspiration Allie has given to him. From: [mailto: ] On Behalf Of Hadley MessnerSent: Friday, November 02, 2007 12:39 PM Subject: Re: Good news story! That is an incredible story and I know you are too proud for words!!!! Your daughter gives me so much hope for our future ----- I see that NOTHING has stopped Allie from doing all she was meant to do in life . These are amazing people....-Hadley (Isabelle, 3 yrs.)lesliekray <leslieblueribbontravel> wrote: My daughter Allie was featured in an aritcle today in the Minneapolis Star and Tribune. For those of you that are not from the North Country, hockey is life up here! Lots of people play the game. The Gophers are the University of Minnesota team. I suppose it would be like Kentucy Basketball. The world sometimes stops when there is a game. There is a great picture of her and Mike if you go right to the web page. Otherwise the article is duplicated below. This article from StarTribune.com has been sent to you by leslie Ray.*Please note, the sender's identity has not been verified.The full article, with any associated images and links can be viewed here.Men's hockey: An affliction leads to support between Gopher, young fanRoman Augustoviz, Star TribuneMike Howe was halfway into his freshman season three years ago when his college hockey career reached a crossroads. The Gophers forward was diagnosed with rheumatoid arthritis, forcing him to miss almost two months.At first, Howe did not know why he was so fatigued, or why he needed to stretch for 20 to 30 minutes in the morning to loosen up. "My joints, my knees, my toes and my fingers were always so tight," he said.Blood tests provided an answer, and he resumed playing.Fast forward to last week. Howe, now an assistant Gophers captain, was the best player on the ice at times at Mariucci Arena. The senior had five shots on goal in the secon! d period and scored once as the Gophers beat Ohio State 3-1 on Thursday. He had an assist against the Buckeyes the next night.Howe is one of the Gophers' top penalty killers and leads the team in shorthanded shots with four going into a rare Friday-Sunday WCHA series with Denver starting at 7:07 tonight at Mariucci."I bounced back from it," Howe said of his struggle with rheumatoid arthritis. "I had very good doctors, and I had very good medication. And I have not even been able to notice it since I started treatment."Howe also has had the support of friends such as Allie Ray, a defenseman on the South St. under-12 girls' hockey B team.Allie, who has had juvenile rheumatoid arthritis for five years, wrote Howe a letter in the spring of 2005 after she read about his diagnosis.She advised him to keep working and skating hard so he would be able to play hockey as well as she could.After being diagnosed, Howe rece! ived numerous e-mails and calls. Allie did not hear back from ! him unti l the next holiday season, when he sent her a Christmas ornament, a Gophers men's hockey jersey signed by the players and a letter. He also asked Allie to stop by and meet him if she ever attended a Gophers game.Allie and her mother accepted the offer. They met Howe's parents, Dave and , at the same game."You are Mike's hero," Howe told Allie.Since then, Allie makes signs whenever she goes to Gophers games -- the Rays, a family of six, share two season tickets. "Go Mike #24" or "Go Gophers," Allie's signs read.Howe's parents have reciprocated, going to one of Allie's games. And Mike and Allie talk on the telephone, or at Gophers games."He asks me how my hockey team is doing," Allie said. "And he always asks how the arthritis is. I tell him if it's hurting a lot or I am OK."Allie, a former youth ambassador for the state's Arthritis Foundation, dreams of playing for the Gophers women's hockey team. Besides ! playing hockey, she also figure skates, plays soccer and dances.Pills and the drug injections she gives herself help her control the pain most of the time. "We have our moments," said Ray, her mother. "Fortunately she has a high pain tolerance."Howe gets motivation and inspiration from Allie."When I think what I have been through is bad," Howe said, "I see her and know she is doing well. And there are a lot of people out there that are diagnosed with the disease that are doing good things."At the U, Howe has killed penalties for four seasons and filled in on power plays and on regular forward lines. So far his best season statistically was his sophomore year, when he had 13 goals and six assists."It's been a lot of fun," Howe said, "every day coming to the rink and playing for the University of Minnesota. It's an awesome feeling. And, although my numbers don't reflect it, I feel I have been a very successful player."Gophers coach Don Lucia certainly appreciates him." He is a great student and a great young man," Lucia said, "the kind of guy in the locker room that other players need to emulate."Allie already knew that. She will be there Sunday to watch Howe and the Gophers play."I always get there beforehand to watch warmups; it's fun watching [the Gophers] skate around," she said. "I stand against the boards so I don't get hit."Her good friend Mike might give her a little wave, too.Roman Augustoviz • raugustovizstartribune Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 Shat a great article!! Let me know if you want an actual copy of it we have one! Since we are fairly new to the Juvenile arthritis scene, I am unfamiliar with JAM but heard it was at the Mall of America. That may be something that we would be interested in. I think that it would be good for Grant to meet other kids that have what he has. If you have more info on it I would love to read it. & Grant, 10 PsA/Uveitis > > > > I need to tell you our fun and story! > > > > Last October I asked our daughter Allie to participate in the > > calendar contest for the Arthritis Walk Calendar. She was to > draw > > a picture to using the phrase of Communities coming together to > find > > a cure. She drew the olympic rings. Anyway last week I called > > Atlanta to find out the " results " of the contest and was told that > > she didn't win the cover, but her picture was published in the > month > > of November. We were thrilled and purchased 25 of them to > > distribute as gifts for Christmas. Well all the relatives got > one, > > her teachers, and her hand therapist...that cried when we gave it > to > > her,... and our last delivery was her hockey coach. (the only man > on > > the list) > > > > Her hockey coach was so touched by this calendar that he sent her > an > > e-mail thanking us for the calendar.... and how much it meant to > > him...and how he was going to spread the word about this disease. > > Well, by last night he had a team formed for the JAM walk in > March, > > with a goal of $500. " The Hockey Nuts " He said he would send it > to > > his friends and get some money raised towards this cause. (The > > unfortunate part is we are going to be on Vacation in Florida > during > > the walk.) He knew that and went ahead anyway with the effort. > He > > has raised 250.00 already... and it has been public for just a > > couple of hours. I am so touched by this man's enthusiasm, and > > generosity...and people we know...that I have cried more than once > > today. People that don't even know my daughter are helping this > > cause. Makes me feel good! > > > > and Allie (8 poly) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 , You must be in either Wisconsin or MN. JAM is held the 1st or 2nd Saturday in March. Unfortunately it is very early in the morning. But it attracts 1000+ people. Typically it is one walk around the MOA and then a small program. It just makes you feel so good because there is such support surrounding you in this area. You will know you aren't alone. also consider coming to our family networking group. I believe the next one is at the Shriner's hospital in Minneapolis, November 10. The new Dr. at the U is our guest speaker. Dr. B......sorry I don't know his last name. I met Alia and Helen there, and we are great friends. They have been VERY helpful with Allies success. They have been the rock that is there when I fall. Allie is a great kid. Mike Howe is a great kid. Unfortunately they both love hockey and have been afflicted with this terrible disease. Thanks for the nice note. Thanks for the offer of the newspaper. We have a few copies around our house. From: [mailto: ] On Behalf Of toivonen4Sent: Friday, November 02, 2007 2:35 PM Subject: Re: Good news story! Shat a great article!! Let me know if you want an actual copy of it we have one! Since we are fairly new to the Juvenile arthritis scene, I am unfamiliar with JAM but heard it was at the Mall of America. That may be something that we would be interested in. I think that it would be good for Grant to meet other kids that have what he has. If you have more info on it I would love to read it. & Grant, 10 PsA/Uveitis> > > > I need to tell you our fun and story!> > > > Last October I asked our daughter Allie to participate in the > > calendar contest for the Arthritis Walk Calendar. She was to > draw > > a picture to using the phrase of Communities coming together to > find > > a cure. She drew the olympic rings. Anyway last week I called > > Atlanta to find out the "results" of the contest and was told that > > she didn't win the cover, but her picture was published in the > month > > of November. We were thrilled and purchased 25 of them to > > distribute as gifts for Christmas. Well all the relatives got > one, > > her teachers, and her hand therapist...that cried when we gave it > to > > her,... and our last delivery was her hockey coach. (the only man > on > > the list) > > > > Her hockey coach was so touched by this calendar that he sent her > an > > e-mail thanking us for the calendar.... and how much it meant to > > him...and how he was going to spread the word about this disease. > > Well, by last night he had a team formed for the JAM walk in > March, > > with a goal of $500. "The Hockey Nuts" He said he would send it > to > > his friends and get some money raised towards this cause. (The > > unfortunate part is we are going to be on Vacation in Florida > during > > the walk.) He knew that and went ahead anyway with the effort. > He > > has raised 250.00 already... and it has been public for just a > > couple of hours. I am so touched by this man's enthusiasm, and > > generosity...and people we know...that I have cried more than once > > today. People that don't even know my daughter are helping this > > cause. Makes me feel good!> > > > and Allie (8 poly)> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 - I live in andria. 2 hours NW of Mpls. JAM sounds like a fun day. We will have to talk about that. I will also consider the networking meeting. I haven't heard anything about those before. If I don't make it next week, will you keep me updated on the next one please? Go Gophers!! & Grant, 10, PsA/Uveitis - In , " Ray " <leslie@...> wrote: > > , > > You must be in either Wisconsin or MN. JAM is held the 1st or 2nd > Saturday in March. Unfortunately it is very early in the morning. But > it attracts 1000+ people. Typically it is one walk around the MOA and > then a small program. It just makes you feel so good because there is > such support surrounding you in this area. You will know you aren't > alone. also consider coming to our family networking group. I > believe the next one is at the Shriner's hospital in Minneapolis, > November 10. The new Dr. at the U is our guest speaker. Dr. > B......sorry I don't know his last name. I met Alia and Helen there, > and we are great friends. They have been VERY helpful with Allies > success. They have been the rock that is there when I fall. > > Allie is a great kid. Mike Howe is a great kid. Unfortunately they > both love hockey and have been afflicted with this terrible disease. > Thanks for the nice note. Thanks for the offer of the newspaper. We > have a few copies around our house. > > > > > > > > ________________________________ > > From: [mailto: ] On > Behalf Of toivonen4 > Sent: Friday, November 02, 2007 2:35 PM > > Subject: Re: Good news story! > > > > Shat a great article!! Let me know if you want an actual copy of it > we have one! Since we are fairly new to the Juvenile arthritis > scene, I am unfamiliar with JAM but heard it was at the Mall of > America. That may be something that we would be interested in. I > think that it would be good for Grant to meet other kids that have > what he has. If you have more info on it I would love to read it. > > & Grant, 10 PsA/Uveitis > > > > > > > > I need to tell you our fun and story! > > > > > > Last October I asked our daughter Allie to participate in the > > > calendar contest for the Arthritis Walk Calendar. She was to > > draw > > > a picture to using the phrase of Communities coming together to > > find > > > a cure. She drew the olympic rings. Anyway last week I called > > > Atlanta to find out the " results " of the contest and was told > that > > > she didn't win the cover, but her picture was published in the > > month > > > of November. We were thrilled and purchased 25 of them to > > > distribute as gifts for Christmas. Well all the relatives got > > one, > > > her teachers, and her hand therapist...that cried when we gave > it > > to > > > her,... and our last delivery was her hockey coach. (the only > man > > on > > > the list) > > > > > > Her hockey coach was so touched by this calendar that he sent > her > > an > > > e-mail thanking us for the calendar.... and how much it meant to > > > him...and how he was going to spread the word about this > disease. > > > Well, by last night he had a team formed for the JAM walk in > > March, > > > with a goal of $500. " The Hockey Nuts " He said he would send it > > to > > > his friends and get some money raised towards this cause. (The > > > unfortunate part is we are going to be on Vacation in Florida > > during > > > the walk.) He knew that and went ahead anyway with the effort. > > He > > > has raised 250.00 already... and it has been public for just a > > > couple of hours. I am so touched by this man's enthusiasm, and > > > generosity...and people we know...that I have cried more than > once > > > today. People that don't even know my daughter are helping this > > > cause. Makes me feel good! > > > > > > and Allie (8 poly) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 , I know andria. We had some friends that were on Lake Osakis. I haven't been there in many years but it a very nice area. The networking meetings are held every 2nd Saturday of the month. They change in topic. Are you on the email list with the arthritis office. They will keep you well informed of the information. When and if you come for JAM the Arthritis office has negotiated rates at MOA area hotels, and people have gotten good deals. WE live 10 minutes away so we don't stay overnight. I am glad to know we have another Minnesotan on the board. Are you doctoring in the cities? Allie's sees Dr. Vehe. From: [mailto: ] On Behalf Of toivonen4Sent: Friday, November 02, 2007 3:22 PM Subject: Re: Good news story! - I live in andria. 2 hours NW of Mpls. JAM sounds like a fun day. We will have to talk about that. I will also consider the networking meeting. I haven't heard anything about those before. If I don't make it next week, will you keep me updated on the next one please?Go Gophers!! & Grant, 10, PsA/Uveitis- In , " Ray" <leslie@...> wrote:>> ,> > You must be in either Wisconsin or MN. JAM is held the 1st or 2nd> Saturday in March. Unfortunately it is very early in the morning. But> it attracts 1000+ people. Typically it is one walk around the MOA and> then a small program. It just makes you feel so good because there is> such support surrounding you in this area. You will know you aren't> alone. also consider coming to our family networking group. I> believe the next one is at the Shriner's hospital in Minneapolis,> November 10. The new Dr. at the U is our guest speaker. Dr.> B......sorry I don't know his last name. I met Alia and Helen there,> and we are great friends. They have been VERY helpful with Allies> success. They have been the rock that is there when I fall. > > Allie is a great kid. Mike Howe is a great kid. Unfortunately they> both love hockey and have been afflicted with this terrible disease.> Thanks for the nice note. Thanks for the offer of the newspaper. We> have a few copies around our house. > > > > > > > > ________________________________> > From: [mailto: ] On> Behalf Of toivonen4> Sent: Friday, November 02, 2007 2:35 PM> > Subject: Re: Good news story!> > > > Shat a great article!! Let me know if you want an actual copy of it > we have one! Since we are fairly new to the Juvenile arthritis > scene, I am unfamiliar with JAM but heard it was at the Mall of > America. That may be something that we would be interested in. I > think that it would be good for Grant to meet other kids that have > what he has. If you have more info on it I would love to read it.> > & Grant, 10 PsA/Uveitis> > > > > > > > I need to tell you our fun and story!> > > > > > Last October I asked our daughter Allie to participate in the > > > calendar contest for the Arthritis Walk Calendar. She was to > > draw > > > a picture to using the phrase of Communities coming together to > > find > > > a cure. She drew the olympic rings. Anyway last week I called > > > Atlanta to find out the "results" of the contest and was told > that > > > she didn't win the cover, but her picture was published in the > > month > > > of November. We were thrilled and purchased 25 of them to > > > distribute as gifts for Christmas. Well all the relatives got > > one, > > > her teachers, and her hand therapist...that cried when we gave > it > > to > > > her,... and our last delivery was her hockey coach. (the only > man > > on > > > the list) > > > > > > Her hockey coach was so touched by this calendar that he sent > her > > an > > > e-mail thanking us for the calendar.... and how much it meant to > > > him...and how he was going to spread the word about this > disease. > > > Well, by last night he had a team formed for the JAM walk in > > March, > > > with a goal of $500. "The Hockey Nuts" He said he would send it > > to > > > his friends and get some money raised towards this cause. (The > > > unfortunate part is we are going to be on Vacation in Florida > > during > > > the walk.) He knew that and went ahead anyway with the effort. > > He > > > has raised 250.00 already... and it has been public for just a > > > couple of hours. I am so touched by this man's enthusiasm, and > > > generosity...and people we know...that I have cried more than > once > > > today. People that don't even know my daughter are helping this > > > cause. Makes me feel good!> > > > > > and Allie (8 poly)> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 Do you have a contact # or email address for the arthritis office? I know they don't have my email info and I should get it to them. I actually grew up in Edina (I was a big hockey fan) and I have family that lives down there so having a place to stay is no problem. I just sent you a different message about Dr. Vehe. That is who we see too! We think he is great. > > > > > > > > I need to tell you our fun and story! > > > > > > > > Last October I asked our daughter Allie to participate in the > > > > calendar contest for the Arthritis Walk Calendar. She was to > > > draw > > > > a picture to using the phrase of Communities coming together > to > > > find > > > > a cure. She drew the olympic rings. Anyway last week I called > > > > Atlanta to find out the " results " of the contest and was told > > that > > > > she didn't win the cover, but her picture was published in the > > > month > > > > of November. We were thrilled and purchased 25 of them to > > > > distribute as gifts for Christmas. Well all the relatives got > > > one, > > > > her teachers, and her hand therapist...that cried when we gave > > it > > > to > > > > her,... and our last delivery was her hockey coach. (the only > > man > > > on > > > > the list) > > > > > > > > Her hockey coach was so touched by this calendar that he sent > > her > > > an > > > > e-mail thanking us for the calendar.... and how much it meant > to > > > > him...and how he was going to spread the word about this > > disease. > > > > Well, by last night he had a team formed for the JAM walk in > > > March, > > > > with a goal of $500. " The Hockey Nuts " He said he would send > it > > > to > > > > his friends and get some money raised towards this cause. (The > > > > unfortunate part is we are going to be on Vacation in Florida > > > during > > > > the walk.) He knew that and went ahead anyway with the effort. > > > He > > > > has raised 250.00 already... and it has been public for just a > > > > couple of hours. I am so touched by this man's enthusiasm, and > > > > generosity...and people we know...that I have cried more than > > once > > > > today. People that don't even know my daughter are helping > this > > > > cause. Makes me feel good! > > > > > > > > and Allie (8 poly) > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 2, 2007 Report Share Posted November 2, 2007 - You can contact Amy Batchelder @ abatchelder@.... She is great and can help you with whatever you need! Also - I am the chair for JAM this year so if you have any questions please feel free to ask.. Alia and Caroline, age 5, poly and uveitis Re: Good news story! Do you have a contact # or email address for the arthritis office? I know they don't have my email info and I should get it to them. I actually grew up in Edina (I was a big hockey fan) and I have family that lives down there so having a place to stay is no problem. I just sent you a different message about Dr. Vehe. That is who we see too! We think he is great. > > > > > > > > I need to tell you our fun and story! > > > > > > > > Last October I asked our daughter Allie to participate in the > > > > calendar contest for the Arthritis Walk Calendar. She was to > > > draw > > > > a picture to using the phrase of Communities coming together > to > > > find > > > > a cure. She drew the olympic rings. Anyway last week I called > > > > Atlanta to find out the "results" of the contest and was told > > that > > > > she didn't win the cover, but her picture was published in the > > > month > > > > of November. We were thrilled and purchased 25 of them to > > > > distribute as gifts for Christmas. Well all the relatives got > > > one, > > > > her teachers, and her hand therapist...that cried when we gave > > it > > > to > > > > her,... and our last delivery was her hockey coach. (the only > > man > > > on > > > > the list) > > > > > > > > Her hockey coach was so touched by this calendar that he sent > > her > > > an > > > > e-mail thanking us for the calendar.... and how much it meant > to > > > > him...and how he was going to spread the word about this > > disease. > > > > Well, by last night he had a team formed for the JAM walk in > > > March, > > > > with a goal of $500. "The Hockey Nuts" He said he would send > it > > > to > > > > his friends and get some money raised towards this cause. (The > > > > unfortunate part is we are going to be on Vacation in Florida > > > during > > > > the walk.) He knew that and went ahead anyway with the effort. > > > He > > > > has raised 250.00 already... and it has been public for just a > > > > couple of hours. I am so touched by this man's enthusiasm, and > > > > generosity...and people we know...that I have cried more than > > once > > > > today. People that don't even know my daughter are helping > this > > > > cause. Makes me feel good! > > > > > > > > and Allie (8 poly) > > > > > > Email and AIM finally together. You've gotta check out free AOL Mail! Quote Link to comment Share on other sites More sharing options...
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