Guest guest Posted November 21, 2004 Report Share Posted November 21, 2004 I'm so excited guys! We gave nne her first dose of MTX on Friday night (thanks for your responses everyone, it was really helpful and reassuring) and 2 mornings later (Sunday morning) she did NOT limp when she got up!!! First time in 2 months that's happened. I think her ankle is less swollen, not back to normal, but better. And tonight as I tucked her in bed I kissed her ankle and it was not hot!!! That dang ankle has felt hot for weeks, and tonight it's the same temperature as the rest of her!!! Happy dance, happy dance!!! How could it work so fast? The rhumy told me it may take weeks before we saw any difference, or he said it could be right away too, but that was pretty rare. Dang, maybe we lucked out on this one!!! May all your children do as well too, here, I send you all my good vibes!!! Annie & nne (6, pauci, diagnosed in September 04) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 Annie, Never heard of MTX working that quick but take what you can get.My son has surprised me.He restarted MTX and got his 3rd dose over the weekend but I swear he responded to the second dose and we weren't expecting anything until around week 6. Whatever the reason I am very happy for you and nne that the swelling is going down.If it is indeed the MTX working the benefits will continue to increase for around 8 weeks then level off. Hugs Becki and 6 systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 Maybe I rejoiced too soon. Her ankle was burning hot again this morning and she limped around a bit, not for long, but still... Well, at least it means the MTX is having an effect, not a miraculous effect, but I'll take something over nothing. You know last night I had this hope that she might be able to take a ski class like she's been wanting to. I didn't let her do it last winter because I thought she was too young, and this winter she may not be able too because putting her ankle in a ski boot would hurt too much. We live 1/2 hour away from the Sundance Ski Resort so it's pretty cheap for us. Isn't that a shame? Oh, what I am complaining about, she's fine all things considered...! Take care everyone! Annie & nne (6, pauci) > Annie, > Never heard of MTX working that quick but take what you can get.My son has > surprised me.He restarted MTX and got his 3rd dose over the weekend but I swear > he responded to the second dose and we weren't expecting anything until around > week 6. > Whatever the reason I am very happy for you and nne that the swelling is > going down.If it is indeed the MTX working the benefits will continue to > increase for around 8 weeks then level off. > Hugs > Becki and 6 systemic > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 Anne - I hope that it is working that quick for your daughter. Be watchful of other joints becoming inflamed. With our daughter the inflammation seemed to travel. One week it was her ankles and the her wrist the next week. Hope this is not the case for your daughter. I was glad to read how happy you were. I have learned to cherish those moment. Sandi Ken Hunter 6 Systemic. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 22, 2004 Report Share Posted November 22, 2004 Annie, Your topic of skiing peaked my interest... Hunter was at his worst and just starting mtx in late Aug. '03. As he was scraming in pain every morning and night for two months before the mtx. kicked in some, all he ever asked for was to have JRA gone by the beginning of ski season. In fact, that is really the only tangible thing he talked about relating to JRA. We too live extremely close to skiing and it would have killed him (and the whole family, of course) to sit out a season. Well, by late Oct., the mtx started working at about 50-75%, depending on the day. He was able to ski all season. In the beginning, he may have had to start some days with heating pads for a couple hours, but by mid- morning, he was fine and able to ski the rest of the day. (By the way, his JRA was in his ankles, knees, hips, wrists and elbows). I hope nne gets the mtx to kick the JRA quickly, and certainly in time for ski season. We'd love to see her on the slopes here in Idaho!!! Stacia and Hunter 8 systemic, iritis Quote Link to comment Share on other sites More sharing options...
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