Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 I am beyond happy that Enbrel seems to be helping Nick. He deserves to be feeling great!! Nick's success is a great thing, because for all who are struggling to find some relief it proves its out there. One day that right combination will be found for all of us with JRA, but for now its nice to hear those sucess stories! Lots of Love Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 Helen.. has been doing great on the enbrel to up until now. Her rheumy had stretched the doses out so we were going two weeks between them. It's a wonderful drug that really helps. You never have to hesitate to share good news with me.. I love the fact that Nick is doing so well.. hugs... Emilie I'm Loving Enbrel.... I hope you all dont mind, but i just have to share how wonderful Nick seems to be doing since starting the Enbrel. Hes now had 5 doses and is doing great, hes not complained of pain for a week, his eyes are bright, theres a spring to his step and a sparkle in his eye. Hes laughing more than ive seen in awhile. he wakes with a smile and seems to get out of bed much faster and easier. Of course they are off school, so we will see what happens when its time to get up on a schdeule and out the door by a certain time. I was a little hesitant to share this good news with so many of the dear children on the list flaring and feeling bad, but I think its aways good to have hope and see a light at the end of the tunnel. I sure hope enbrel turns out to be ' light!!!! Hugs Helen and (7,systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2004 Report Share Posted December 29, 2004 Huggs to you and Nick. It is wonderful to hear some happy news!!! We know how you feel when you first started to see some of the improvements. You start wondering if it is really there and then BAM you know they are real. It seems like Nick is responding the same way that Garrett did and to quote his rheumy, Enbrel can be Harry Potter's magic wand for many of our little angels. Garrett has only 1 joint that is still slightly compromised , but for us lay people you wouldn't even know it and then the real biggy, no systemic flares. I pray that this will be the same for Nick as well as the rest. You are in our thoughts and prayers!! Keep the good news coming! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Whoo Hoo, Congradulations Helen.I am so happy the Enbrel seems to be working.I hope things go well when school starts back up.When responded it was like it was makeing him wired up and full of energy. You have always said you thought Nick would always feel fatigued and tire easily no matter how well he was doing.Don't count on it.I think he may surprise you. Hugs Becki and 6 systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Helen - we are so happy for Nick's progress and for your entire family. What a joyous way to start the New Year. It did my heart good to read your post. There is HOPE. Sandi Ken Hunter (6 Systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Dear Helen and Nick, Thank you Lord!....some steps in the right direction for you both. Please keep the good news coming...it gives us all hope that these kids can get well. Hoping the " light " continues to shine into the new year. We love you, Marguerite and > > I hope you all dont mind, but i just have to share how wonderful > Nick seems to be doing since starting the Enbrel. > > Hes now had 5 doses and is doing great, hes not complained of pain > for a week, his eyes are bright, theres a spring to his step and a > sparkle in his eye. Hes laughing more than ive seen in awhile. he > wakes with a smile and seems to get out of bed much faster and > easier. > > Of course they are off school, so we will see what happens when its > time to get up on a schdeule and out the door by a certain time. > > I was a little hesitant to share this good news with so many of the > dear children on the list flaring and feeling bad, but I think its > aways good to have hope and see a light at the end of the tunnel. > > I sure hope enbrel turns out to be ' light!!!! > > Hugs Helen and (7,systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Helen, I am so happy that enbrel is doing the trick for Nick. It is so reassuring to hear some good news and to know that there is hope that a remission (even a medicated remission) can at times be achieved. Your heart must be so full watching your little boy return to his happy self. I always feel like the tightness in my chest just goes away when Aundrea's flare gets under control Aundrea has been doing really well with the mtx/plaquenil/steroid combo. She had some issues with tummy ache, loose stools and fatigue. We are going to split the dose this weekend so hopefully that will help out. She hasn't had any joint pain so maybe this will be the drug that will work for her. We will know more as we continue the taper of pred. So very happy that Nick is doing great and will pray that he continues to feel wonderful! (drea 9 systmic)--- In , " hburger64 " <hburger64@h...> wrote: > > I hope you all dont mind, but i just have to share how wonderful > Nick seems to be doing since starting the Enbrel. > > Hes now had 5 doses and is doing great, hes not complained of pain > for a week, his eyes are bright, theres a spring to his step and a > sparkle in his eye. Hes laughing more than ive seen in awhile. he > wakes with a smile and seems to get out of bed much faster and > easier. > > Of course they are off school, so we will see what happens when its > time to get up on a schdeule and out the door by a certain time. > > I was a little hesitant to share this good news with so many of the > dear children on the list flaring and feeling bad, but I think its > aways good to have hope and see a light at the end of the tunnel. > > I sure hope enbrel turns out to be ' light!!!! > > Hugs Helen and (7,systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 That is wonderful news!! Congrats to . I hope he continues to feel good. Michele ( 17, pauci & spondy) I'm Loving Enbrel.... I hope you all dont mind, but i just have to share how wonderful Nick seems to be doing since starting the Enbrel. Hes now had 5 doses and is doing great, hes not complained of pain for a week, his eyes are bright, theres a spring to his step and a sparkle in his eye. Hes laughing more than ive seen in awhile. he wakes with a smile and seems to get out of bed much faster and easier. Of course they are off school, so we will see what happens when its time to get up on a schdeule and out the door by a certain time. I was a little hesitant to share this good news with so many of the dear children on the list flaring and feeling bad, but I think its aways good to have hope and see a light at the end of the tunnel. I sure hope enbrel turns out to be ' light!!!! Hugs Helen and (7,systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Helen, of course we don't mind - we rejoice in any of our wonderful kids getting a break and responding well to treatment! Nothing makes me happier! Hugs to you and Nick! Val Rob's Mom (7,systemic) In a message dated 12/29/2004 6:45:51 PM Eastern Standard Time, " hburger64 " <hburger64@...> writes: > > >I hope you all dont mind, but i just have to share how wonderful >Nick seems to be doing since starting the Enbrel. > >Hes now had 5 doses and is doing great, hes not complained of pain >for a week, his eyes are bright, theres a spring to his step and a >sparkle in his eye. Hes laughing more than ive seen in awhile. he >wakes with a smile and seems to get out of bed much faster and >easier. > >Of course they are off school, so we will see what happens when its >time to get up on a schdeule and out the door by a certain time. > >I was a little hesitant to share this good news with so many of the >dear children on the list flaring and feeling bad, but I think its >aways good to have hope and see a light at the end of the tunnel. > >I sure hope enbrel turns out to be ' light!!!! > >Hugs Helen and (7,systemic) > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 -.. Im glad to read Aundrea is responding well to her new " cocktail " I hope the tummy issues let up soon. I think splitting the dose is a GREAT idea. I didnt know about this. Its good to know incase we do run out of inj. MTX and have to revert back to the pills. This list is just amazing at helping out with smart ideas!!! Have a great new year and 2005!!! HUgs Helen and (7,systemic) -- In , " sonia1md " <sonia1md@y...> wrote: > > Helen, > > I am so happy that enbrel is doing the trick for Nick. It is so > reassuring to hear some good news and to know that there is hope > that a remission (even a medicated remission) can at times be > achieved. > > Your heart must be so full watching your little boy return to his > happy self. I always feel like the tightness in my chest just goes > away when Aundrea's flare gets under control > > Aundrea has been doing really well with the mtx/plaquenil/steroid > combo. She had some issues with tummy ache, loose stools and > fatigue. We are going to split the dose this weekend so hopefully > that will help out. She hasn't had any joint pain so maybe this > will be the drug that will work for her. We will know more as we > continue the taper of pred. > > So very happy that Nick is doing great and will pray that he > continues to feel wonderful! > > (drea 9 systmic)--- > > > In , " hburger64 " <hburger64@h...> wrote: > > > > I hope you all dont mind, but i just have to share how wonderful > > Nick seems to be doing since starting the Enbrel. > > > > Hes now had 5 doses and is doing great, hes not complained of pain > > for a week, his eyes are bright, theres a spring to his step and a > > sparkle in his eye. Hes laughing more than ive seen in awhile. he > > wakes with a smile and seems to get out of bed much faster and > > easier. > > > > Of course they are off school, so we will see what happens when its > > time to get up on a schdeule and out the door by a certain time. > > > > I was a little hesitant to share this good news with so many of the > > dear children on the list flaring and feeling bad, but I think its > > aways good to have hope and see a light at the end of the tunnel. > > > > I sure hope enbrel turns out to be ' light!!!! > > > > Hugs Helen and (7,systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 -Becki... I sure hope you are right....)))))) We moved Nick onto the main level of the house, before he was upstairs in a loft bed. This is hard on his knees, so hes now in a single bed on the main level and doesnt have stairs to do so often. His xmas pressents were all kinds of quiet sitting down stuff, new games for his beloved gamecube, a portable DVD player for doctors appts ( we are usually in there for 90 mins and he gets so bored as the doc and I talk) legos etc. But im loving seeing him come running out of his room with a huge smile on his face chattering about mario this and that.. not that I understand him, but hes pretty excited. BTW, Nick wants to be a kindergarten teacher when he grows up.. he asked the other day of they get paid for teaching, once I said yes, that was it, thats doing to be his job!! LOL. I thought it was pretty cute!!! Hugs Helen and (7,systemic) -- In , Arthurnator@w... wrote: > Whoo Hoo, > Congradulations Helen.I am so happy the Enbrel seems to be working.I hope > things go well when school starts back up.When responded it was like it was > makeing him wired up and full of energy. > You have always said you thought Nick would always feel fatigued and tire > easily no matter how well he was doing.Don't count on it.I think he may surprise > you. > Hugs > Becki and 6 systemic > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Helen, This is wonderful news! I, too, hope that enbrel will be ' miracle drug! Don't ever hesitate to share good news. Support includes rejoicing together when things are going well. Liz I'm Loving Enbrel.... I hope you all dont mind, but i just have to share how wonderful Nick seems to be doing since starting the Enbrel. Hes now had 5 doses and is doing great, hes not complained of pain for a week, his eyes are bright, theres a spring to his step and a sparkle in his eye. Hes laughing more than ive seen in awhile. he wakes with a smile and seems to get out of bed much faster and easier. Of course they are off school, so we will see what happens when its time to get up on a schdeule and out the door by a certain time. I was a little hesitant to share this good news with so many of the dear children on the list flaring and feeling bad, but I think its aways good to have hope and see a light at the end of the tunnel. I sure hope enbrel turns out to be ' light!!!! Hugs Helen and (7,systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2004 Report Share Posted December 31, 2004 Helen - Yeah!! I am soo hoping that this is 's answer! I know it has helped out Caroline soo much! I'll keep praying for good results! Alia and Caroline, ae 2, poly and uveitis > > I hope you all dont mind, but i just have to share how wonderful > Nick seems to be doing since starting the Enbrel. > > Hes now had 5 doses and is doing great, hes not complained of pain > for a week, his eyes are bright, theres a spring to his step and a > sparkle in his eye. Hes laughing more than ive seen in awhile. he > wakes with a smile and seems to get out of bed much faster and > easier. > > Of course they are off school, so we will see what happens when its > time to get up on a schdeule and out the door by a certain time. > > I was a little hesitant to share this good news with so many of the > dear children on the list flaring and feeling bad, but I think its > aways good to have hope and see a light at the end of the tunnel. > > I sure hope enbrel turns out to be ' light!!!! > > Hugs Helen and (7,systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2005 Report Share Posted January 1, 2005 Helen: Wow, that was a great holiday gift for us all, hearing that Nick is doing so much better! Thanks so much for sharing the good news! We LOVE hearing it!! and Rob 15 Spondy On Wed, 29 Dec 2004 23:45:51 -0000 " hburger64 " <hburger64@...> writes: I hope you all dont mind, but i just have to share how wonderful Nick seems to be doing since starting the Enbrel. Hes now had 5 doses and is doing great, hes not complained of pain for a week, his eyes are bright, theres a spring to his step and a sparkle in his eye. Hes laughing more than ive seen in awhile. he wakes with a smile and seems to get out of bed much faster and easier. Of course they are off school, so we will see what happens when its time to get up on a schdeule and out the door by a certain time. I was a little hesitant to share this good news with so many of the dear children on the list flaring and feeling bad, but I think its aways good to have hope and see a light at the end of the tunnel. I sure hope enbrel turns out to be ' light!!!! Hugs Helen and (7,systemic) Quote Link to comment Share on other sites More sharing options...
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