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e,

That's what we started out with. There's also time to get to class. If the

school has a Elevator which 's Middle School did request for a Elevator

pass. This will cut down on time as well as strain of the steps. Also add

this just in case. Help with lunch tray. This can be done also by talking with

the Cafe' Manager. Be sure to take pamplets with you enough for all teacher's

including the P.E teacher. Another to add is P.E. most school district's have a

Physical Therapist on staff. Since most of the JRA kids need PT during the

year this will come in handy. This part only takes a note from the doctor. If

you

want take a flyer about JRA and ask that it be displayed in the school in

different areas. Since theres a child in the school with it. Another thing is to

be informed of any testing done. This way it's good to make sure the child has

enough rest prior to testing day. Pencils and Pens lolol. You didn't think of

this one I bet. See if the school has big pencils and pens. This helped

with gripping and writing. If the school don't get a supply of these.

It's best to add more in a 504 plan than not enough. Try covering as much

as you can think of. This way if you need it it will already be in place. Now

if writing becomes a problem. > The school district has funds for adjustments

for writing. You request it. The federal goverment funds laptops for kids who

need them to help. This sure has helped with her school work. Gripping

a pencil is alot harder than typing. Typing will exercise the fingers also.

Last but not least in the 504 plan. Ask that a student be assigned to help your

child if needed.

ok lets go over it

1, Extra time for work

2. Break time during class to stand and move around.

3. Extra time for getting to class

4. Extra time for bathroom breaks

5. Medication to be carried on Person

6. Assigned Student helper

7. Extra time on ALL Test's

8. Laptop Computer if possible

9. Elevator Pass

10. Extra set of book's to be at home

11. Big Pencil's and Pen's

12. P.E. Accomadation's ( P.T if possible)

13. Tardiness acceptance due to Medical reason

14. Team work between ALL Teacher's and Parent in the best interest of the

child. Give out Email addresses and phone number's. You want to be informed of

everything concerning your child as well as you informing the Teacher's.

15. Help with Lunch tray ( Inform Cafe' Manager )

Ok, I am still thinking but Jackie is awake now so I have to go. lolol

Robbin

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Hi AJ. We are looking into getting a 504 right now also. You have already

gotten great advice, which we can use to, so thanks for asking this question. At

's junior high you get 15 passes per quarter. these are for being

tardy, needing to use the restroom during class, forgetting supplies,

essentially

these are used for everything. had to play with her meds this year

due to Vioxx being removed and then liver function problems. For 3 weeks she

tried Voltaren XR and this would give her sudden stomach pains and diarrhea.

She got permission to just leave the classroom if her med was making her sick,

without having to ask the teacher and get her book signed first. If Holly's

school gives limited number of passes, maybe she can have an unlimited number.

Another thing that we had to have in place was that she was not allowed to

be penalized for what she could not do in phy ed class. You would think that

would be a no brainer if you have a kid with JRA, but for her first phy ed

teacher in 7th grade it was not. He gave her a B first semester and told me

directly she would get a higher grade if she ran the mile faster, it was at

that

point we got her school involved. Sad to say, but you just never know what

kind of teachers you are going to have. Good luck putting together the 504, and

I hope Holly is feeling better. Kim

In a message dated 3/22/2005 9:23:47 PM Central Standard Time,

ajaomom@... writes:

Hi everyone,

I have a quick favor.........ask your kids, what they would like and also

what your thoughts are on suggestions to add to a 504, I work in a great

school, and I know there more then likely won't be much of any issue with

what I

ask for........my concern for getting this in place this year, is that

holly

moves on to middle school next year.......yikes, that scares me even to

say.........her nurse wont be there, we have been fortunate to have the

same

nurse for all her elementary years, and I won't be there either, I don't

get

promoted, I still have to teach 5th, lol. Her nurse has been invaluable

over

the years, I don't know how we would have made it without her. Thanks for

any

suggestions.

Luv and hugs,

Aj and Holly (11 yrs old, systemic jra since 9/94)

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Guest guest

--I just wanted to reply and thank everyone who responded to this

post too, because I too am currently in the process of getting a 504

plan together for my son, and I am feeling really overwhelmed with

exactly what I need to do! I appreciate all the advice as well.

Jodi, Bronson, 10, systemic

- In , mnmomof1@a... wrote:

>

> Hi AJ. We are looking into getting a 504 right now also. You have

already

> gotten great advice, which we can use to, so thanks for asking

this question. At

> 's junior high you get 15 passes per quarter. these are for

being

> tardy, needing to use the restroom during class, forgetting

supplies, essentially

> these are used for everything. had to play with her meds

this year

> due to Vioxx being removed and then liver function problems. For

3 weeks she

> tried Voltaren XR and this would give her sudden stomach pains

and diarrhea.

> She got permission to just leave the classroom if her med was

making her sick,

> without having to ask the teacher and get her book signed first.

If Holly's

> school gives limited number of passes, maybe she can have an

unlimited number.

> Another thing that we had to have in place was that she was not

allowed to

> be penalized for what she could not do in phy ed class. You would

think that

> would be a no brainer if you have a kid with JRA, but for her

first phy ed

> teacher in 7th grade it was not. He gave her a B first semester

and told me

> directly she would get a higher grade if she ran the mile faster,

it was at that

> point we got her school involved. Sad to say, but you just never

know what

> kind of teachers you are going to have. Good luck putting

together the 504, and

> I hope Holly is feeling better. Kim

>

> In a message dated 3/22/2005 9:23:47 PM Central Standard Time,

> ajaomom@a... writes:

>

> Hi everyone,

> I have a quick favor.........ask your kids, what they would like

and also

> what your thoughts are on suggestions to add to a 504, I work in

a great

> school, and I know there more then likely won't be much of any

issue with

> what I

> ask for........my concern for getting this in place this year,

is that

> holly

> moves on to middle school next year.......yikes, that scares me

even to

> say.........her nurse wont be there, we have been fortunate to

have the

> same

> nurse for all her elementary years, and I won't be there either,

I don't

> get

> promoted, I still have to teach 5th, lol. Her nurse has been

invaluable

> over

> the years, I don't know how we would have made it without her.

Thanks for

> any

> suggestions.

>

>

> Luv and hugs,

> Aj and Holly (11 yrs old, systemic jra since 9/94)

>

>

>

>

>

>

>

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  • 3 years later...

Hey ..........you can have a copy of Hollys 504 if you

want............she is now in high school we started it in middle

school..............just let

me know..........n

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:

I would be very happy to share Hannah's 504 with you and the letter I give her

school every year.  Hannah's 504 includes all of her health issues, not just her

joint issues.   How soon do you need it.  I don't have a way to scan it to email

it to you, I would have to mail you a hard copy.  Let me know if you want to use

Hannah's plan.

 

Beth

 

Sending prayers & happy thoughts,

Beth :)

504 help

Hey all,

I need some help with 504's more specifically if someone would be willing to let

me borrow a copy of their 504. For my teaching practicum class we will be

discussing students with special needs and as a student who had a special need

(boo arthritis) I thought it would be pertinent to bring in information about

pediatric arthritis and the modifications children require. I think it's such a

cool thing to be able to show these future educators what they need to do in

order to help students who have arthritis in their class. I figured it would be

a great way to raise awareness and a chance for me to share my own experience of

being on the other end (because it definitely has impacted me as an educator).

Unfortunately I cannot find a copy of my 504 from elementary, middle or high

school. I will not use your child's name if you do allow me to use your 504,

more so I will discuss what the dx is and what modifications are placed because

of it. Of course if you

wanted me to use the name I'd be ok with that too. Please help if you can.

Thanks a bunch.

Love always,

(MCTD, 23)

____________ _________ _________ _________ _________ __

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