Guest guest Posted March 28, 2005 Report Share Posted March 28, 2005 My 2 yr old daughter was diagnosed with JRA in January of this year. It started out in her left knee, but is now in her right knee and ankle. They have diagnosed her for the time being with pauciauticular. She had steroid injections done on Feb 6 and thought that would make a dramatic difference, it did for about 4 days and since then it has gone into her ankle. she takes advil 4 times a day, the most she can have in a 24 hr period. Her rheumatologist is hard to get anything out of and had not scheduled any physical therapy and when i kept reading about how important that was i phoned him and had to speak with his nurse. she told me well that can be set up with her pediatrician. she also said she was under the impression that she was seeing the physical therapist when she goes to Chapel Hill. I am very upset about all this happening to my once happy, healthy little girl. I am confused about where to turn and what to do. I am fixing to have them refer her to Duke for a second opinion and to see if i can see someone who is more helpful in educating me on this. i have tried to do research and have found some helpful things, but i have lots of questions that should have been answered already. Her present rheumatologist seems to have no interest and acts like it is no big deal. well it is a very big deal to me especially with her being so young and her sight can be affected as well. I would appreciate any help and information any one can provide for me. I am also trying to find a support group in our area.I know have been long winded in writing this, but i need all the help i can get! Thanks to all who can help Quote Link to comment Share on other sites More sharing options...
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