MRA trial and thalidamide - Colleen

[Guest guest]

Hi Coleen,

Its Becki again.Sounds like your rheumy could get the Thaladomide if needed.

How did you like Dr.Lovell with your phone conversation?We are still thinking

about swithching the 45 minute drive to Vanderbilt in Nashville to the 5-6

hour drive to Cincy,to see Lovell.The website says he does clinic but every time

we go for the 3yr Enbrel safety study s his only patient for the day.We

just love him and the whole falculty.It's cool,if you go to their rheumatoligy

home paige s photo is on the rt and the link takes you to their first

rheumatoligy " change the outcome " story.You can now actualy Google Larson

and he pops up around #6-7.

I hope Caitlen has a good Christmas and can enjoy it pain free.

Hugs

Becki and 6 systemic

[Guest guest]

Hi Colleen and all,

We were with our rheumy today and at the end we were having general

chat and he mentioned that he just got contacted by the MRA study

folks. Of course I started asking questions and he didn't have any

of the answers because he had just gotten the message. But it looks

like his practice will be gearing up for the pediatric part of the

study. I asked him what the ideal candidate would look like and I

was thinking it would be kids who have failed everything else, and

his response off the cuff was that he would be thinking more of his

mtx. kids (and gave me " the look " like he had us in mind, but I

didn't bite at his look). He also has a quirky sense of humor and

could have been kidding. Anyway, I thought you might find it

interesting that doctors are preparing for the study. You probably

already knew that.

Also, of course when he mentioned the MRA study, I immediately

thought of you. I mentioned that Caitlin had tried " everything " and

each treatment seemed to work a little initially, but then went

downhill rather quickly. (that may be overstating things for you,

but it was casual talk). He asked if Caitlin had ever done

thalidamide, and referenced the recent article just published by Dr.

Tom Lehman, in NYC. Just in case you hadn't tried it, I wanted to

make sure you had the info. on thalidamide.

Then I see that Georgina just posted the excerpt of the article. I

haven't read many posts since last Wed., but that one did catch my

eye.

Let me know if you've already given thalidamide a good try.

Stacia and Hunter 8 systemic iritis