Re: Ahleys Appt at Shriners...

[Guest guest]

Emilie,

I am so happy for you and .The best part being it looks like the

arthritis is calm.

Good luck with the pred taper and hoping no need to restart an apropriate

dose of Enbrel.

I pray this is all little needs to get her immune system stable again

and not catch so much crud.

It sounds like this was definately worth the drive.

Enjoy your chill time and keep smiling.

Hugs

Becki and 6 systemic

[Guest guest]

I know you are happy to get off enbrel, how long has she been on it?

my daughter has been taking it for a year now, and I also was wondering about RF

factor I thought if you have poly the RF is always positive!

---------------------------------

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[Guest guest]

That is great news that you have found a dr you and like and feel

comfortable with. I hope that things go well for . It sounds like

the dr is really checking things out well. Hugs, Michele (17,

pauci & spondy)

Ahleys Appt at Shriners...

Hi all,

s appt went great and she is now a pt of Dr. Rothman. We are

stopping the enbrel cold turkey (dr. could not believe she was on as

much as she was), are tapering the prednisone to try and get off it..

and staying with the methotrexate for now. She said looks like

she is in a remission, but she thinks it's because of all the meds. We

are going to start getting rid of some of them and see what happens. We

now have to go every six months to the eye doctor. It is so cool to have

a doc who seems to know what she needs.. Her sed rate is a little

elevated (33). We are doing a fecal blood test, she also drew blood to

redo the ANA and RF factor. When they were done in 2002 they were

negative, she wants to make sure that they haven't converted to positive

ANA and RF. It was a long ride, but definately well worth it. Things

definately seem to be moving in the right direction now. really

likes it there so that is a plus too.

Well I am off to chill out for a while...

Hugs to all,

Emilie ( 5 Poly)

[Guest guest]

Kay,

She has been on the enbrel for almost 2 now. I do not know about the RF factor

always being + with poly, she's been poly since the beginning...

Emilie

Re: Ahleys Appt at Shriners...

I know you are happy to get off enbrel, how long has she been on it?

my daughter has been taking it for a year now, and I also was wondering about

RF factor I thought if you have poly the RF is always positive!

---------------------------------

Messenger

Show us what our next emoticon should look like. Join the fun.

[Guest guest]

Great News! I can hear the relief in your voice! :-) It is

wonderful to have a doctor that you feel you can work with and a

treatment plan that you are both agreeable to.

Its good that was comfortable with the new doc and staff. That

always makes such a huge difference.

I will keep in my prayers that the pred taper will go well!

(Aundrea 9 systemic)--

- In , " HARRY SKIDMORE " <h.skidmore@w...>

wrote:

> Hi all,

>

> s appt went great and she is now a pt of Dr. Rothman. We are

stopping the enbrel cold turkey (dr. could not believe she was on as

much as she was), are tapering the prednisone to try and get off it..

and staying with the methotrexate for now. She said looks like

she is in a remission, but she thinks it's because of all the meds.

We are going to start getting rid of some of them and see what

happens. We now have to go every six months to the eye doctor. It is

so cool to have a doc who seems to know what she needs.. Her sed rate

is a little elevated (33). We are doing a fecal blood test, she also

drew blood to redo the ANA and RF factor. When they were done in 2002

they were negative, she wants to make sure that they haven't converted

to positive ANA and RF. It was a long ride, but definately well worth

it. Things definately seem to be moving in the right direction now.

really likes it there so that is a plus too.

> Well I am off to chill out for a while...

> Hugs to all,

> Emilie ( 5 Poly)

>

>

[Guest guest]

.. the relief is amazing.. I feel like this great weight has been removed..

Thanks for the well wishes..

Emilie

Re: Ahleys Appt at Shriners...

Great News! I can hear the relief in your voice! :-) It is

wonderful to have a doctor that you feel you can work with and a

treatment plan that you are both agreeable to.

Its good that was comfortable with the new doc and staff. That

always makes such a huge difference.

I will keep in my prayers that the pred taper will go well!

(Aundrea 9 systemic)--

- In , " HARRY SKIDMORE " <h.skidmore@w...>

wrote:

> Hi all,

>

> s appt went great and she is now a pt of Dr. Rothman. We are

stopping the enbrel cold turkey (dr. could not believe she was on as

much as she was), are tapering the prednisone to try and get off it..

and staying with the methotrexate for now. She said looks like

she is in a remission, but she thinks it's because of all the meds.

We are going to start getting rid of some of them and see what

happens. We now have to go every six months to the eye doctor. It is

so cool to have a doc who seems to know what she needs.. Her sed rate

is a little elevated (33). We are doing a fecal blood test, she also

drew blood to redo the ANA and RF factor. When they were done in 2002

they were negative, she wants to make sure that they haven't converted

to positive ANA and RF. It was a long ride, but definately well worth

it. Things definately seem to be moving in the right direction now.

really likes it there so that is a plus too.

> Well I am off to chill out for a while...

> Hugs to all,

> Emilie ( 5 Poly)

>

>

[Guest guest]

Thank you Michele..

Ahleys Appt at Shriners...

Hi all,

s appt went great and she is now a pt of Dr. Rothman. We are

stopping the enbrel cold turkey (dr. could not believe she was on as

much as she was), are tapering the prednisone to try and get off it..

and staying with the methotrexate for now. She said looks like

she is in a remission, but she thinks it's because of all the meds. We

are going to start getting rid of some of them and see what happens. We

now have to go every six months to the eye doctor. It is so cool to have

a doc who seems to know what she needs.. Her sed rate is a little

elevated (33). We are doing a fecal blood test, she also drew blood to

redo the ANA and RF factor. When they were done in 2002 they were

negative, she wants to make sure that they haven't converted to positive

ANA and RF. It was a long ride, but definately well worth it. Things

definately seem to be moving in the right direction now. really

likes it there so that is a plus too.

Well I am off to chill out for a while...

Hugs to all,

Emilie ( 5 Poly)

[Guest guest]

-Emilie,

Im so glad you feel better after your appt. I bet you had a sigh of

relief. it sounds like this doctor is being through and has s

best interests at heart. I really hope will reap the benefits

of this new doctor soon.

Hugs Helen and (7,systemic)

-- In , " HARRY SKIDMORE " <h.skidmore@w...>

wrote:

> Hi all,

>

> s appt went great and she is now a pt of Dr. Rothman. We

are stopping the enbrel cold turkey (dr. could not believe she was

on as much as she was), are tapering the prednisone to try and get

off it.. and staying with the methotrexate for now. She said

looks like she is in a remission, but she thinks it's because of all

the meds. We are going to start getting rid of some of them and see

what happens. We now have to go every six months to the eye doctor.

It is so cool to have a doc who seems to know what she needs.. Her

sed rate is a little elevated (33). We are doing a fecal blood

test, she also drew blood to redo the ANA and RF factor. When they

were done in 2002 they were negative, she wants to make sure that

they haven't converted to positive ANA and RF. It was a long ride,

but definately well worth it. Things definately seem to be moving in

the right direction now. really likes it there so that is a

plus too.

> Well I am off to chill out for a while...

> Hugs to all,

> Emilie ( 5 Poly)

>

>

[Guest guest]

Helen,

I think that she will... the first step was stopping the Overdosing of the

Enbrel.. The new doc could also not believe that the old one was giving

joint injections in office without putting her to sleep for them. She promised

today that it would never happen again...

hugs,

Emilie

Re: Ahleys Appt at Shriners...

-Emilie,

Im so glad you feel better after your appt. I bet you had a sigh of

relief. it sounds like this doctor is being through and has s

best interests at heart. I really hope will reap the benefits

of this new doctor soon.

Hugs Helen and (7,systemic)

-- In , " HARRY SKIDMORE " <h.skidmore@w...>

wrote:

> Hi all,

>

> s appt went great and she is now a pt of Dr. Rothman. We

are stopping the enbrel cold turkey (dr. could not believe she was

on as much as she was), are tapering the prednisone to try and get

off it.. and staying with the methotrexate for now. She said

looks like she is in a remission, but she thinks it's because of all

the meds. We are going to start getting rid of some of them and see

what happens. We now have to go every six months to the eye doctor.

It is so cool to have a doc who seems to know what she needs.. Her

sed rate is a little elevated (33). We are doing a fecal blood

test, she also drew blood to redo the ANA and RF factor. When they

were done in 2002 they were negative, she wants to make sure that

they haven't converted to positive ANA and RF. It was a long ride,

but definately well worth it. Things definately seem to be moving in

the right direction now. really likes it there so that is a

plus too.

> Well I am off to chill out for a while...

> Hugs to all,

> Emilie ( 5 Poly)

>

>