Re: Arthritis Ribbon.. FINALLY!!!!

[Guest guest]

-So where can we see it/get it... is it one of those that stick on

the back of the car??

Hugs Helen and (7,systemic)

-- In , bncknwurnumber@a... wrote:

> Hey did you all know that we finally got ourself a ribbon? It is

aqua and

> gray! So finally a ribbon to represent the fight that those of us

with

> Juvenile Arthritis have had to fight.

>

>

>

> Poly JRA and JSpA, 20

>

>

>

[Guest guest]

I actually found out about it on the spondy website. But I also found a

picture of it on the Kids Living with Arthritis Webring.

_http://d.webring.com/hub?ring=kidslivingwithar_

(http://d.webring.com/hub?ring=kidslivingwithar)

Poly JRA and JSpA

[Guest guest]

-YEA!!! Where can we get/seer these ribbons?? are they the kind that

stick on the back of vehicles???

HUgs Helen and (7,systemic)

-- In , bncknwurnumber@a... wrote:

> Hey did you all know that we finally got ourself a ribbon? It is

aqua and

> gray! So finally a ribbon to represent the fight that those of us

with

> Juvenile Arthritis have had to fight.

>

>

>

> Poly JRA and JSpA, 20

>

>

>

[Guest guest]

& All,

Hello! I wouldn't get too excited about the ribbon just yet. It's

mostly a grass roots effort right now. I found out about it on the

Arthritis Foundation's parenting message board. People there started

talking about wanting one and debating what color(s) it should be.

They came up with the gray/aqua combo because gray is already used

for children with disabilities and aqua was the avaliable color

everyone agreed on. Unfortunately there's been some talk about the

AF not wanting our kids recognized separately!?

At any rate, some of the parents have been buying ribbon and making

pins to pass out at different JA gatherings. There is also a father

that is doing car magnets so if anyone is interested in that I would

go check out the AF Parenting board. His name is , maybe if

he's on this list he'll chime in?

I just took the idea and ran with it by making ribbon graphics for

use on web pages and starting a WebRing. You can find the graphics

here:

http://www.ribbonomatic.com/matic/graphics/90700.html

and here:

http://www.ribbonomatic.com/matic/graphics/90701.html

and the WebRing here:

http://d.webring.com/hub?ring=kidslivingwithar

Just hoping to bring a little more awareness to these poor kids of

ours!

, mom to (10, poly)

(7) & Caity (3)