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Re: is starting mtx now

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I didn't hear about the gloves when handling it, that's enough to

creep one out...! But why aren't all the doctors giving the same

instructions?

I wish great results, I believe in this stuff as it's working

well for us with no noticeable side effects. Touching wood! I'm sure

they'll keep close eye on his kidney functions, those kids are

troopers.

Thanks for the tip on the stroller and I send my good Methotrexate

wibes to you!

Annie & nne (6, pauci)

>

> had a dr appointment yesterday and they now gave him a

> prescription for mtx. I'm really hoping he will have good results

> with it. He just hasn't seemed to have been helped much by the

> prednisone and naprosyn. My husband is a little nervous about it

> because of all the warnings. We were even told we should wear

gloves

> when handling it. I'm a little nervous too about it's potential

> affects on kidney functions, as he only has the one. He does need

> something more than he's getting, though.

>

> Misty & (6, systemic)

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I too haven't heard about wearing gloves. I have been giving it for

months without gloves. The only thing I can say is, I just found out I am

pregnant (YEAH!, and my Gyno says I should now where gloves when making her mtx

for her! So, who knows.

Tara and 2.5 (poly)

Re: is starting mtx now

I didn't hear about the gloves when handling it, that's enough to

creep one out...! But why aren't all the doctors giving the same

instructions?

I wish great results, I believe in this stuff as it's working

well for us with no noticeable side effects. Touching wood! I'm sure

they'll keep close eye on his kidney functions, those kids are

troopers.

Thanks for the tip on the stroller and I send my good Methotrexate

wibes to you!

Annie & nne (6, pauci)

>

> had a dr appointment yesterday and they now gave him a

> prescription for mtx. I'm really hoping he will have good results

> with it. He just hasn't seemed to have been helped much by the

> prednisone and naprosyn. My husband is a little nervous about it

> because of all the warnings. We were even told we should wear

gloves

> when handling it. I'm a little nervous too about it's potential

> affects on kidney functions, as he only has the one. He does need

> something more than he's getting, though.

>

> Misty & (6, systemic)

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I only had one pharmacist suggest wearing gloves. The others all said it was

no big deal. Now, if I were pregnant I think I'd err on the side of caution.

But started mtx shortly after the birth of our last child, so I never

did wear gloves.

Liz

Re: Re: is starting mtx now

I too haven't heard about wearing gloves. I have been giving it for

months without gloves. The only thing I can say is, I just found out I am

pregnant (YEAH!, and my Gyno says I should now where gloves when making her

mtx for her! So, who knows.

Tara and 2.5 (poly)

Re: is starting mtx now

I didn't hear about the gloves when handling it, that's enough to

creep one out...! But why aren't all the doctors giving the same

instructions?

I wish great results, I believe in this stuff as it's working

well for us with no noticeable side effects. Touching wood! I'm sure

they'll keep close eye on his kidney functions, those kids are

troopers.

Thanks for the tip on the stroller and I send my good Methotrexate

wibes to you!

Annie & nne (6, pauci)

>

> had a dr appointment yesterday and they now gave him a

> prescription for mtx. I'm really hoping he will have good results

> with it. He just hasn't seemed to have been helped much by the

> prednisone and naprosyn. My husband is a little nervous about it

> because of all the warnings. We were even told we should wear

gloves

> when handling it. I'm a little nervous too about it's potential

> affects on kidney functions, as he only has the one. He does need

> something more than he's getting, though.

>

> Misty & (6, systemic)

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Misty - We had the same reservations when we had to add MTX to Caroline. At

the time she was on 30 mg daily of Prednisone and 600 mg of Ibuprofen and it

just wasn't getting it down. We started with Oral (20mg weekly) for about 2

months before we realized that it still wasn't enough for her. We eventually

went to 15mg SQ and that did help a lot more.

The concentration for SQ is the same, but from what I remember it gets

absorbed better than the oral which is why there is usually less prescribed.

Our rheumy told us the body can only absorb about 15 mg orally. If they want

more than that they will prescribe more in hopes that the body will get

some. When we pushed her up to 17mg, our rheumy prescribed 20mg and we had

to hope that 17mg would get absorbed.

Good luck!

Alia and Caroline, age 2, poly and uveitis

is starting mtx now

had a dr appointment yesterday and they now gave him a

prescription for mtx. I'm really hoping he will have good results

with it. He just hasn't seemed to have been helped much by the

prednisone and naprosyn. My husband is a little nervous about it

because of all the warnings. We were even told we should wear gloves

when handling it. I'm a little nervous too about it's potential

affects on kidney functions, as he only has the one. He does need

something more than he's getting, though.

Misty & (6, systemic)

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Thanks. I really hope the oral will have the needed effect, as

is phobic about getting shots. He cries if someone even

mentions shots around him. In avoiding the subject, he has learned

how to spell blood and what lab work means. Hemoglobin has him

fooled for now lol We do tell him when he is going to get a shot,

but sometimes we are simply talking about it around him and try to

keep from upsetting him.

Misty & (6, systemic)

> Misty - We had the same reservations when we had to add MTX to

Caroline. At

> the time she was on 30 mg daily of Prednisone and 600 mg of

Ibuprofen and it

> just wasn't getting it down. We started with Oral (20mg weekly)

for about 2

> months before we realized that it still wasn't enough for her. We

eventually

> went to 15mg SQ and that did help a lot more.

>

> The concentration for SQ is the same, but from what I remember it

gets

> absorbed better than the oral which is why there is usually less

prescribed.

> Our rheumy told us the body can only absorb about 15 mg orally. If

they want

> more than that they will prescribe more in hopes that the body

will get

> some. When we pushed her up to 17mg, our rheumy prescribed 20mg

and we had

> to hope that 17mg would get absorbed.

>

> Good luck!

>

> Alia and Caroline, age 2, poly and uveitis

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Tara - Congratulations! That is great news!! I's sure is going to be

a great big sister! By the way - when is 's birthday? Caroline is

going to be 3 on January 31st so she and the baby will be exactly 3 1/2

years apart.

Alia and Caroline, age 2, poly and uveitis

Re: Re: is starting mtx now

I too haven't heard about wearing gloves. I have been giving it for

months without gloves. The only thing I can say is, I just found out I am

pregnant (YEAH!, and my Gyno says I should now where gloves when making her

mtx for her! So, who knows.

Tara and 2.5 (poly)

Re: is starting mtx now

I didn't hear about the gloves when handling it, that's enough to

creep one out...! But why aren't all the doctors giving the same

instructions?

I wish great results, I believe in this stuff as it's working

well for us with no noticeable side effects. Touching wood! I'm sure

they'll keep close eye on his kidney functions, those kids are

troopers.

Thanks for the tip on the stroller and I send my good Methotrexate

wibes to you!

Annie & nne (6, pauci)

>

> had a dr appointment yesterday and they now gave him a

> prescription for mtx. I'm really hoping he will have good results

> with it. He just hasn't seemed to have been helped much by the

> prednisone and naprosyn. My husband is a little nervous about it

> because of all the warnings. We were even told we should wear

gloves

> when handling it. I'm a little nervous too about it's potential

> affects on kidney functions, as he only has the one. He does need

> something more than he's getting, though.

>

> Misty & (6, systemic)

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Alia-

Thanks so much! is going to be 3 on May 18th so she and the new baby

will be 3 years 3 months apart. When are you due?? How far along are you?? I

am not telling until she can feel new baby, she is not going to be to

happy. She always says just mommy, daddy and ! UGH!

Tara and 2.5 years (poly)

Re: is starting mtx now

I didn't hear about the gloves when handling it, that's enough to

creep one out...! But why aren't all the doctors giving the same

instructions?

I wish great results, I believe in this stuff as it's working

well for us with no noticeable side effects. Touching wood! I'm sure

they'll keep close eye on his kidney functions, those kids are

troopers.

Thanks for the tip on the stroller and I send my good Methotrexate

wibes to you!

Annie & nne (6, pauci)

>

> had a dr appointment yesterday and they now gave him a

> prescription for mtx. I'm really hoping he will have good results

> with it. He just hasn't seemed to have been helped much by the

> prednisone and naprosyn. My husband is a little nervous about it

> because of all the warnings. We were even told we should wear

gloves

> when handling it. I'm a little nervous too about it's potential

> affects on kidney functions, as he only has the one. He does need

> something more than he's getting, though.

>

> Misty & (6, systemic)

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Hi Misty,

That sure is one smart little guy you've got! Don't these children just

amaze you sometimes? My son was six when he first got sick. He, too, had

a serious needle phobia. Needless to say, after a few years of living

with the demands of having a stubborn case of systemic JRA, he overcame

his fears. I know it's hard to deal with but it'll get easier. You'll

see.

For us, the greatest improvement my son experienced came about a

few weeks after we finally switched from oral to injectable MTX. Which

we did, despite my son's pleas, by compromising and explaining that we'd

at least try it - for three months- to see if it made a big difference.

It did! Since then, he's come so far. Every evening he gives himself his

own injection (of growth hormone) and doesn't flinch when he needs labs

drawn.

Aloha,

Georgina

misty_o_c wrote:

>

> Thanks. I really hope the oral will have the needed effect, as

> is phobic about getting shots. He cries if someone even

> mentions shots around him. In avoiding the subject, he has learned

> how to spell blood and what lab work means. Hemoglobin has him

> fooled for now lol We do tell him when he is going to get a shot,

> but sometimes we are simply talking about it around him and try to

> keep from upsetting him.

>

> Misty & (6, systemic)

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