Chase

October 24, 2004

Patty,

The surgery went well. Dr. was very impressed with the way his eye

looked at his post-op visit the next day. We go back again this Thursday, so I

hope things are still great. Take care.

Deadra

Emeraldsx3@... wrote:

Hi Deadra:

I am way behind in email (once again) so I may be repeating others.

Glad to hear your daughter is okay from totaling her car. Scary for all of

you I am sure.

How did Chase's surgery go at I am thinking Mass Eye and Ear? I hope it went

as smooth as possible and it is a success. Six months, I hope they fly by.

Great news about his joints. Good luck with the tapering of Cyclosporine.

Take care.

Patty

November 9, 2004

Deadra,

0 No cells

1/2+ 1-5 cells

1+ 6-15 cells

2+ 16-25 cells

3+ 26-60 cells

4+ 60 and above cells

The " cells " are actually groups of white blood cells collected

together that can be seen under the slit lamp. They are floating in

the aqueous solution. The grading numbers reflect the relative

level of inflammation of the iris.

With our last flare of iritis last spring, Hunter had a couple/few

dozen cells visible and he was put on pred forte 3xdaily.

I can't imagine what you and Chase are going through, and my heart

and prayers go out to you, Deadra. I can only pray for quick

improvements for you guys.

Stacia and Hunter 8 systemic, iritis

November 13, 2004

Hi Deadra,

Did they tell you, beforehand, that this was a possibility - that

Chase's sight might deteriorate so rapidly afterwards? Were they able to

explain why? I know you said the odds were only 50/50 that the procedure

Dr. did would help his eyesight but I had no idea the loss could

happen so quickly! Chase is being as brave as could be. This must be

such a nerve-wracking time for you and the rest of the family, though.

My thoughts are with you ... and I hope that something good will come

out of this. I hope there will be some improvements and that it's just a

matter of time and healing. What about the patch therapy you mentioned?

Is that still an option to try?

Aloha,

Georgina

Deadra Dunbar wrote:

> Chase went back to the eye doctor this morning. His eyesight is now 20/80 and

it was 20/70 last Friday. My husband was very upfront to the doctor. He is new

to our case. Our original local doctor is no longer practicing so we have to

bring this new doctor up to date on Chase. It seems we take one step forward and

two steps back. Chase is taking this so well. He has more strength and courage

than I ever would have. He never complains about bloodwork, the infusions, his

eyesight or anything. He just says that his eyes are foggy. We go back next

Thursday. Hopefully I will have some good news then.

> Deadra and Chase 6- pauci and uveitis

November 13, 2004

Dr. just said that with the surgery on the left eye, it was the last hope

of regaining any eyesight. He had said that it would take up to six months till

we would know if it is a success. As far as the patch therapy, I don't know if

or when we can begin it. He will definately need cataract surgery sooner than

later now. We go back to Boston December 9th, so we should know more then. The

rheumy called Friday and apologized for Chase's flare up. She didn't think

anything would happen because he was on such a low dose of cyclosporine. It was

the combination of stopping this and the one drop of pred forte that we think

did it. He had an infusion on Thursday, so she was surprised that he had the

flare-up. She is going to talk to Dr. about stopping the cyclosporine

again because he is on such high potent meds, and upping the dosage of the

Remicade. Well, I'll stop rambling. Take care.

Deadra and Chase 6 pauci and again uveitis

Georgina <gmckin@...> wrote: