josh

[Guest guest]

Is that the young man who is on Ally McBeal? I think he is in his teens.

What did he say to reflect that dwarfism is not a disease? Or did Kathie Lee

say that? Kathie Lee seems ditsy anyway. She tries to be overly politically

correct.

Karin E Redston wrote:

> I really got a kick out of that young man today on Regis and Kathy (who

> still doesn't get that dwarfism is not a disease) Lee.

> Look for him on " The Grinch Who Stole Christmas " with Jim Carey later

> this year. At least I think I got that right. :-)

>

> Karin

> ________________________________________________________________

> YOU'RE PAYING TOO MUCH FOR THE INTERNET!

> Juno now offers FREE Internet Access!

> Try it today - there's no risk! For your FREE software, visit:

> http://dl.www.juno.com/get/tagj.

>

> ------------------------------------------------------------------------

> Accurate impartial advice on everything from laptops to table saws.

> 1/4634/11/_/77518/_/962039668/

> ------------------------------------------------------------------------

--

[Guest guest]

I don't want to turn this into a Kathie Lee bashing party,

but you talk about ditz....I watched the show once when

was on (one of my favourites). Kathie was

acting all knowing and chummy and asking how his siblings

were. All of them are in the music biz so others may have

heard of them. Anyway...There she was asking " How's your

sister Kate?...How's your brother Livingston? " Every

answer was " oh they are doing well " . Then she asked " how's

your brother ? answered that " he's not doing so

well, he died 2 years ago. " She just clammed up, but I am

sure her research assistant just got reamed later that day!

It has been one of my favourite moments of the show.

Obviously I do not watch it anymore.

Sue

--- <lswans@...> wrote:

> Is that the young man who is on Ally McBeal? I think he

> is in his teens.

> What did he say to reflect that dwarfism is not a

> disease? Or did Kathie Lee

> say that? Kathie Lee seems ditsy anyway. She tries to be

> overly politically

> correct.

>

__________________________________________________

[Guest guest]

In a message dated 12/29/2001 10:14:35 AM Pacific Standard Time,

poofoo_cutie@... writes:

>

> Does anyone know anything about Josh (Timmy from Passions)? I've

> been watching passions since it came on and I love his character!!! Is he

> on this list? Can ANYONE help me get into touch w/ him??

>

>

>

> He was also in the Grinch.

[Guest guest]

In a message dated 11/17/2003 6:19:46 AM Pacific Standard Time,

davidebrace3@... writes:

Over the years there has been a pocket of resistance within the deaf

community to the CI. Mostly it has been " old timers " who grew up in the

environment

and felt uncomfortahle being thrust into the hearing community,

I agree to some degree. In my class (class of 75ish), our " group " of deaf

grew up when sign language was illegal in classroom. Needless to say, we were

" forced " to learn to speak. Many of our generation deaf who never went to deaf

school are still very involved in hearing community. In fact, in my class of

6 kids (deaf program in public school), 2 are already implanted, two is

pending (that what i was told). That is a percentage, based on number of kids

in

one class. But then on another hand, those who went to deaf school where

signing was legal, it make sense to " belong " with the deaf community.

Back in the mid 70's...... we were mocked at soooooo badly for being " oral

deaf " , that is part to blame for never being able to " blend " into deaf

community. There was even a nasty sign for us. Sign Language became legal in

classroom in about 1972, I graduated in 75, see our problem?? Yet, the bond of

our

classmates are still very strong.

I agree that Josh may have found his " calling " , being 18, it is a rebellous

age for many young adults. I know because I have two stuborn daughters, one

will turn 19 in Jan, another will turn 20, also in Jan. One is a habital check

bouncer, another is....... err ,,,,, hmmmm,,,, still think she " don't " have to

get a job, yet she wants to move out. I know sooner or later, they will

snap out of it.

For the mom/dad, be blessed that Josh has a mind of his own. It is a good

sign, he thinking for himself. My older still " depend " on me for " her "

thinking......... uggggggghhhhhhhhhhhh.

Good luck Cassidy,

Lee

CI Candidate

[Guest guest]

Cassidy, I am so glad to hear from you. I will keep you and josh in my

prayers. We were 18 once, and we snap out of it sooner or later but I know josh

will too.

Good luck,

Lee

CI canidate

[Guest guest]

Georgina, It was sad for me to read about Josh. I feel close to him, as he is

the same age as n and with the same disease. Hopefully this is a bump in

the road that will disappear quickly. 10 mgs isn't all that much with his

increased size now, so you may find little side effects. I have found at 10

that n's side effects disappeared. I know that with n the only way

out of the systemic symptoms is thru prednisone. We always hate to do it, but

it is the only thing that stops it. You will be in our prayers. (n,

15, systemic)

[Guest guest]

I was wrapped too tight, proof for your doc. Best of luck to you!!!!

Sent via BlackBerry from T-Mobile

JOSH

HELLO EVERYONE WE HAD A VISIT WITH DR. KEITH NAUGHIEM MONDAY.THE

VISIT WENT WELL,DR. AND HIS FELLOW RESIDENT WERE WILLING TO TAKE THE

TIME TO ANSWER OUR QUESTIONS.DR. NAUGHIEM REPORTS HE HAS DONE MANY

MYOTOMIES,HE SAYS HE WOULD GIVE US THE NAME AND NUMBERS OF SOME OF

THE PEOPLE THAT HE HAS TREATED.(AFTER HE FIRST GETS THEIR PERMISSION

FOR US TO CONTACT THEM).DR. NAUGHIEM SAYS NO ON HAS EVER ASKED HIM

FOR REFERRELS BEFORE REGARDING THIS PARTICULAR SURGERY.HE ALSO

EXPLAINED TO US THAT THE ESHOPUGAS WILL NEVER FUNTION NORMAL

AGAIN ,THAT THE SURGERY WOULD ALLOW THE FOOD TO PASS THROUGH TO THE

STOMACH.HE ASLO SAID THAT HE HAS NOT HEARD OF ANYONE HAVING ANYONE

BEING WRAPPED TO TIGHT.WHICH MAKES ME QUESTION HIS JUDGEMENT BECAUSE

I,VE READ OTHER WISE.ONE THING FOR SURE HE SAID THAT JOSH IS ONE OF

THE BEST LOOKING PERSON WITH ACHALASIA.HE SAYS THE MOST PEOPLE ARE

REALLY THIN.BUT JOSH WAS MUCH HEALTIER THAN HE IS NOW.(6'3)HE ALSO

SAID THAT WE COULD NOT MOVE ANY FURTHER UNTIL WE ALSO HAD A MYONMYTRY

DONE TO CONFIRM DX..OH ALSO SPOKE WITH DR. RICE OFFICE, SAID THAT DR.

RICE WOULD SEE JOSH AND THAT I NEEDE TO MAKE APPOINTMENT.I HAVE BEEN

WORKING OVERTIME TO PURCHASE PLANE TICKET(WITH GAS $3.OO A GALLON AND

A 12 HOUR RIDE A GIRL GOTTA DO WHAT A GIRL GOTTA DO.AND LAST BUT NOT

LEAST MY GIRLFRIEND FROM WORK CAME BACK FROM VACATION TODAY TO FIND

OUT THAT HER BROTHER WAS BRAIN DEAD AND THERE WAS NOT ANYTHING ELSE

TO BE DONE FOR HIM. THE VENT WAS SHUT OFF AND HE PASSED AWAY 5:00

THIS MORNING. MAKES ME STOP A MOMENT TO COUNT MY BLESSING AND PRAISE

GOD FOR ALL HE IS DOING IN MY LIFE.SO TO YOU ALL BE STRONG,KEEP

HEALING,KEEP BELIEVING,; LISA JOSH WITH LOVE AND

ENCOURAGEMENT!!!!!!!!!

[Guest guest]

Hi , I wonder about the doctor you're seeing... Not all achalasians look sick and thin (I know that I don't look sick, even though I am skinny, but I know others who definitely are not skinny). Furthermore a wrap can be too tight, no doubt about it!!! His judgement on that one really makes me wonder!!! And for not wanting to give references... Please reconsider... I'm sorry you have to go through all this and that you are even having a hard time to provide in going to see dr. Rice. Wishing you the very best, Isabella <lisa2787@...> wrote: HELLO EVERYONE WE HAD A VISIT WITH DR. KEITH NAUGHIEM MONDAY.THE VISIT WENT WELL,DR. AND HIS FELLOW RESIDENT WERE WILLING TO TAKE THE TIME TO ANSWER OUR QUESTIONS.DR. NAUGHIEM REPORTS HE HAS DONE MANY MYOTOMIES,HE SAYS HE WOULD GIVE US THE NAME AND NUMBERS OF SOME OF THE PEOPLE THAT HE HAS TREATED.(AFTER HE FIRST GETS THEIR PERMISSION FOR US TO CONTACT THEM).DR. NAUGHIEM SAYS NO ON HAS EVER ASKED HIM FOR REFERRELS BEFORE REGARDING THIS PARTICULAR SURGERY.HE ALSO EXPLAINED TO US THAT THE ESHOPUGAS WILL NEVER FUNTION NORMAL AGAIN ,THAT THE SURGERY WOULD ALLOW THE FOOD TO PASS THROUGH TO THE STOMACH.HE ASLO SAID THAT HE HAS NOT HEARD OF ANYONE HAVING ANYONE BEING WRAPPED TO TIGHT.WHICH MAKES ME QUESTION HIS JUDGEMENT BECAUSE I,VE READ OTHER WISE.ONE THING FOR SURE HE SAID

THAT JOSH IS ONE OF THE BEST LOOKING PERSON WITH ACHALASIA.HE SAYS THE MOST PEOPLE ARE REALLY THIN.BUT JOSH WAS MUCH HEALTIER THAN HE IS NOW.(6'3)HE ALSO SAID THAT WE COULD NOT MOVE ANY FURTHER UNTIL WE ALSO HAD A MYONMYTRY DONE TO CONFIRM DX..OH ALSO SPOKE WITH DR. RICE OFFICE, SAID THAT DR. RICE WOULD SEE JOSH AND THAT I NEEDE TO MAKE APPOINTMENT.I HAVE BEEN WORKING OVERTIME TO PURCHASE PLANE TICKET(WITH GAS $3.OO A GALLON AND A 12 HOUR RIDE A GIRL GOTTA DO WHAT A GIRL GOTTA DO.AND LAST BUT NOT LEAST MY GIRLFRIEND FROM WORK CAME BACK FROM VACATION TODAY TO FIND OUT THAT HER BROTHER WAS BRAIN DEAD AND THERE WAS NOT ANYTHING ELSE TO BE DONE FOR HIM. THE VENT WAS SHUT OFF AND HE PASSED AWAY 5:00 THIS MORNING. MAKES ME STOP A MOMENT TO COUNT MY BLESSING AND PRAISE GOD FOR ALL HE IS DOING IN MY LIFE.SO TO YOU ALL BE STRONG,KEEP HEALING,KEEP BELIEVING,; LISA JOSH WITH LOVE AND

ENCOURAGEMENT!!!!!!!!!

Ahhh...imagining that irresistible "new car" smell? Check out

new cars at Autos.

[Guest guest]

Hi -

As you know when we talked by phone, 1st surgery was done too

tight,MORE PROOF FOR THAT DR,HAVE HIM CALL ME! I would run as fast

as you can-this tells me he doesnt have much experience if he doesnt

know about how they can be done too tight.

I really think going to DrRice will be well worth it! I really think

thats your best bet! I know its costly but do what you got to do to

get him to a qualified surgeon or you will be wasting more money and

time having to deal with a failed myotomy.There may even be another

specialit closer to you in New York-maybe do a post and see if there

is.

I am sorry for your friends loss of her brother.Gosh there has just

been so much tragedy lately.

Well let me know what you find out with Rice.Tell Josh were keeping

him in our prayers.Give me a call again anytime ok.

Tonia

>

> HELLO EVERYONE WE HAD A VISIT WITH DR. KEITH NAUGHIEM MONDAY.THE

> VISIT WENT WELL,DR. AND HIS FELLOW RESIDENT WERE WILLING TO TAKE

THE

> TIME TO ANSWER OUR QUESTIONS.DR. NAUGHIEM REPORTS HE HAS DONE MANY

> MYOTOMIES,HE SAYS HE WOULD GIVE US THE NAME AND NUMBERS OF SOME OF

> THE PEOPLE THAT HE HAS TREATED.(AFTER HE FIRST GETS THEIR

PERMISSION

> FOR US TO CONTACT THEM).DR. NAUGHIEM SAYS NO ON HAS EVER ASKED HIM

> FOR REFERRELS BEFORE REGARDING THIS PARTICULAR SURGERY.HE ALSO

> EXPLAINED TO US THAT THE ESHOPUGAS WILL NEVER FUNTION NORMAL

> AGAIN ,THAT THE SURGERY WOULD ALLOW THE FOOD TO PASS THROUGH TO

THE

> STOMACH.HE ASLO SAID THAT HE HAS NOT HEARD OF ANYONE HAVING

ANYONE

> BEING WRAPPED TO TIGHT.WHICH MAKES ME QUESTION HIS JUDGEMENT

BECAUSE

> I,VE READ OTHER WISE.ONE THING FOR SURE HE SAID THAT JOSH IS ONE

OF

> THE BEST LOOKING PERSON WITH ACHALASIA.HE SAYS THE MOST PEOPLE ARE

> REALLY THIN.BUT JOSH WAS MUCH HEALTIER THAN HE IS NOW.(6'3)HE ALSO

> SAID THAT WE COULD NOT MOVE ANY FURTHER UNTIL WE ALSO HAD A

MYONMYTRY

> DONE TO CONFIRM DX..OH ALSO SPOKE WITH DR. RICE OFFICE, SAID THAT

DR.

> RICE WOULD SEE JOSH AND THAT I NEEDE TO MAKE APPOINTMENT.I HAVE

BEEN

> WORKING OVERTIME TO PURCHASE PLANE TICKET(WITH GAS $3.OO A GALLON

AND

> A 12 HOUR RIDE A GIRL GOTTA DO WHAT A GIRL GOTTA DO.AND LAST BUT

NOT

> LEAST MY GIRLFRIEND FROM WORK CAME BACK FROM VACATION TODAY TO

FIND

> OUT THAT HER BROTHER WAS BRAIN DEAD AND THERE WAS NOT ANYTHING

ELSE

> TO BE DONE FOR HIM. THE VENT WAS SHUT OFF AND HE PASSED AWAY 5:00

> THIS MORNING. MAKES ME STOP A MOMENT TO COUNT MY BLESSING AND

PRAISE

> GOD FOR ALL HE IS DOING IN MY LIFE.SO TO YOU ALL BE STRONG,KEEP

> HEALING,KEEP BELIEVING,; LISA JOSH WITH LOVE AND

> ENCOURAGEMENT!!!!!!!!!

>

[Guest guest]

I also plead you to go to the best, I suffered to almost extinction by going to

the local experts, no references, its worth every red cent, bankrupt but fixed,

I'm getting my life back.

Sent via BlackBerry from T-Mobile

Re: JOSH

Hi -

As you know when we talked by phone, 1st surgery was done too

tight,MORE PROOF FOR THAT DR,HAVE HIM CALL ME! I would run as fast

as you can-this tells me he doesnt have much experience if he doesnt

know about how they can be done too tight.

I really think going to DrRice will be well worth it! I really think

thats your best bet! I know its costly but do what you got to do to

get him to a qualified surgeon or you will be wasting more money and

time having to deal with a failed myotomy.There may even be another

specialit closer to you in New York-maybe do a post and see if there

is.

I am sorry for your friends loss of her brother.Gosh there has just

been so much tragedy lately.

Well let me know what you find out with Rice.Tell Josh were keeping

him in our prayers.Give me a call again anytime ok.

Tonia

>

> HELLO EVERYONE WE HAD A VISIT WITH DR. KEITH NAUGHIEM MONDAY.THE

> VISIT WENT WELL,DR. AND HIS FELLOW RESIDENT WERE WILLING TO TAKE

THE

> TIME TO ANSWER OUR QUESTIONS.DR. NAUGHIEM REPORTS HE HAS DONE MANY

> MYOTOMIES,HE SAYS HE WOULD GIVE US THE NAME AND NUMBERS OF SOME OF

> THE PEOPLE THAT HE HAS TREATED.(AFTER HE FIRST GETS THEIR

PERMISSION

> FOR US TO CONTACT THEM).DR. NAUGHIEM SAYS NO ON HAS EVER ASKED HIM

> FOR REFERRELS BEFORE REGARDING THIS PARTICULAR SURGERY.HE ALSO

> EXPLAINED TO US THAT THE ESHOPUGAS WILL NEVER FUNTION NORMAL

> AGAIN ,THAT THE SURGERY WOULD ALLOW THE FOOD TO PASS THROUGH TO

THE

> STOMACH.HE ASLO SAID THAT HE HAS NOT HEARD OF ANYONE HAVING

ANYONE

> BEING WRAPPED TO TIGHT.WHICH MAKES ME QUESTION HIS JUDGEMENT

BECAUSE

> I,VE READ OTHER WISE.ONE THING FOR SURE HE SAID THAT JOSH IS ONE

OF

> THE BEST LOOKING PERSON WITH ACHALASIA.HE SAYS THE MOST PEOPLE ARE

> REALLY THIN.BUT JOSH WAS MUCH HEALTIER THAN HE IS NOW.(6'3)HE ALSO

> SAID THAT WE COULD NOT MOVE ANY FURTHER UNTIL WE ALSO HAD A

MYONMYTRY

> DONE TO CONFIRM DX..OH ALSO SPOKE WITH DR. RICE OFFICE, SAID THAT

DR.

> RICE WOULD SEE JOSH AND THAT I NEEDE TO MAKE APPOINTMENT.I HAVE

BEEN

> WORKING OVERTIME TO PURCHASE PLANE TICKET(WITH GAS $3.OO A GALLON

AND

> A 12 HOUR RIDE A GIRL GOTTA DO WHAT A GIRL GOTTA DO.AND LAST BUT

NOT

> LEAST MY GIRLFRIEND FROM WORK CAME BACK FROM VACATION TODAY TO

FIND

> OUT THAT HER BROTHER WAS BRAIN DEAD AND THERE WAS NOT ANYTHING

ELSE

> TO BE DONE FOR HIM. THE VENT WAS SHUT OFF AND HE PASSED AWAY 5:00

> THIS MORNING. MAKES ME STOP A MOMENT TO COUNT MY BLESSING AND

PRAISE

> GOD FOR ALL HE IS DOING IN MY LIFE.SO TO YOU ALL BE STRONG,KEEP

> HEALING,KEEP BELIEVING,; LISA JOSH WITH LOVE AND

> ENCOURAGEMENT!!!!!!!!!

>

[Guest guest]

My son Josh has cerebral palsy and he's 14 years old. He's very small

- maybe 60lbs - and has scoliosis. He uses a power wheelchair for

mobility and doesn't walk independently at all. He's a typical kid

Since my son, , just had the surgery, I thought I would try to offer a

little help to you in your decision. My son is 20 but he's a very tiny guy,

only 53 lbs and approximately 4 ft. 4. He doesn't have CP but he is in a

wheel chair as he suffered a brain damage incident when he was 1 1/2 years old

and his condition left him like having CP and he can't walk or talk, etc.. So

there are some similarities but not entirely.

How much curvature does your son have? The pediatric surgeon commented to

me after the surgery that my son presented a " challenge " during the surgery

since he was " older " . I took that to mean that he was older to a pediatric

surgeon. In other words, perhaps the younger, the better for this type of

surgery as the bones are probably more pliable.

My son had a 94 degree curvature and I'm telling you, you can not tell now

that he ever had that. His surgery took over 12 hours but it's miraculous

and was so worth it. I don't know where you live but I would HIGHLY recommend

the pediatric surgeon at Children's Memorial Hospital in Chicago, Dr.

Sarwark. He's a real gentleman and very considerate. (I hope it's okay to

mention specific doctors. This is not an advertisement.)

We will be going afterwards to the Rehabilitation Institute of Chicago and

I'm hopeful we'll get a new wheel chair, etc. as well as more physical therapy.

Just wanted and I wish you and Josh good luck with whatever you decide to do.

Michele and

**************It's only a deal if it's where you want to go. Find your travel

deal here.

(http://information.travel.aol.com/deals?ncid=aoltrv00050000000047)

[Guest guest]

Hi Josh,

I'm glad you found this group, but I'm sorry you had to find it. You seem to

suffer like the rest of us. I just can't understand why the medical profession

can not get it right when it comes to our backs; which in turn affects our

legs/feet. For me, If I'm having a good lower back day, my upper back is in

spasm (my scs is lower back/legs/feet), and if it's not that it's my knees, and

not that something else. The sacral joint dysfunction is a killer, I have that

also. I just get so weary sometimes. I dread getting out of bed because I

realize then where my " daily " problem is located. I seem to flip-flop between

good days and bad....including my emotional days. Some days I'm just so tired

of feeling like this, and others I handle it better. I like having this group

because you can vent and people understand.

To give you an idea of how depressing this can be to me. I just reconnected via

Facebook with about 30 of the 97 members of my HS graduating class (class of

'73). Which is pretty remarkable considering I went to HS in Germany. I live

between Dallas and Fort Worth and the reunion this year is in San (about

5 - 5 1/2 hrs away). They are all begging me to come. I am the only one who is

disabled. Everyone else is still in good health and I know this because we've

emailed/chatted/talked on the phone extensively since reconnecting. I'm 53 and

have to use a cane. And I know I shouldn't be embarrassed but after seeing

pictures of my old friends I could never walk in to a room like I am. I can

only stand or sit for about 15 minutes at a time. I can not drive the 5 hrs,

someone would have to drive me and I don't have anyone to do that. One of them

even offerred to get me a plane ticket. But of course I wouldn't accept that.

I'm already worried

because a few live within 4 hours of me (after 34 years we didn't even know

it!!!!) and they said they plan to come visit.; I just hate for anyone to see

me like this. But none of them understand, they are all saying I'll be fine

once I get there, I'll have a drink or two and it'll be great!!!! I can't drink

because of my meds. I'll get off my soapbox. We all live with our demons. At

least here, everyone understands. And I am so, so thankful for this group.

I hope you are able to get things straightened out. I don't know why your scs

isn't working. Hopefully they can get it fixed; there has to be a problem, but

I'm sure it can be fixed.

Take Care,

B. in TEXAS

________________________________

From: jmeeze12 <jmorrell12@...>

Stimulator

Sent: Tuesday, April 7, 2009 12:46:49 PM

Subject: Introduction, my stimulator & meds

First things first. I'm Josh, 34, from Indianapolis. I've been a

passive member of this group since mid-december (if memory serves me

correct). I have been truly inspired by the stories of pain, sorrow,

survival, compassion and commitment that I have read in hundreds of

posts since I joined.

A little about me. I'm dealing with Aggressive Lumbar DDD, Sciatica,

sacral joint dysfunction & of course arthritis. Over the last 3.5

years, I've had every kind of poke, prod, test, injection, wrap/brace,

tens, PT, massage, chiropractor, balm/gel/paste/ cream, etc... (just like

most of you). I've been told by 4 different docs that surgery was not a

good option as the success rate w/ what I had going would be around

10-17%. So in August last year it was determined that we'd try the SCS.

It took until December 12th before I actually had the procedure. (I'll

save the story of my trial procedure for another time...funny story

though).

Since having the SCS put in, I have only be able to make it to work 5

days. Luckily, I can do some work from home...but that's not going to

cut it. I've had a couple of appts. w/ my stimulator Rep., but we can

never get the intensity right were my lower back is getting the right

amount vs. my legs w/o really feeling it in my ribs, stomach, bladder,

or worse.

My lifestyle & personality has completely changed over the last few

years. My " condition " led to my divorce. I'm also tired all the time.

I've always had trouble sleeping at night and the back/leg pain hasn't

made it any easier. I think it's due to the meds, so I'm working w/ my

doc to wheen off my main narco med - Kadian. I've been on 80mg 2x

daily. So, we went down to 60mg x2 for 2 weeks, and next week we'll drop

to 30mg x2. I already feel like I have a little more energy, but wierdly

I have less back pain and I can feel my stim in my lower back better.

Well, I just wanted to come out of " the shadows " . -Josh

[Guest guest]

Hi Josh!

   I'm new in the stimulator game.  Just had my trial removed today and am

waiting for the date for the permanent one.

   I'm not working at this time but hope that it will change soon. I have worked

very little after the initial incident which triggered this. (Luckily, hubby has

good insurance and a pretty good job.  Also, I haven't been able to shop, gamble

or drink so it saves alot of money.  Just wish I knew where I could get free

smokes!!)

   Wouldn't it be so much easier if you knew what made it worse at times than

others.  You can do one thing today and maybe it won't be so bad then do the

same thing a week later and suffer for 4 days. You really don't  know what to

avoid. 

   Well - take care and keep your chin up.  ..............sheryl