Re: Dreaded Feeling in My Gut

[Guest guest]

Hi Patty,

You didn't describe the rash so it's hard to guess.

has gotten a rash twice that looked just like the Stills rash.They were

red, raised welty and hivey covering most of his body.The first time his ped

almost cried because it looked just like it but he had a viral infection a few

days prior and while somewhat rare some viruses can produce a red,welty

rash.The second time looked like a severe case of Stills rash that had my hubby

and

me freaking out but just couldn't believe it was Arthur because he was doing

so great for so long.That happened the morning after Enbrel and after his

second shot of the week he developed hives all around his injection site.Thats

when Cincy became involved and Amgen,the makers of Enbrel.A very scarey week.We

had to stop Enbrel,dope up with adult doses off Benadryl for a month and

ship what vials we had to California to have them analyzed.

The deoderant would probably just cause a rash in her arm pits and the

antibiotic would be wide spread but wouldn't know what it should look like.If

it's

Stills Caitlin should not be feeling so good.She should be complaining of

something or wakeing up stiff.

Calm down,dont freak,see the ped and call the rheumy and let us know what

they say.Remember lots of things can produce a rash and if it is the Cefzil then

it's no biggie.You just stop it for a short amount of time and if it goes away

start a differant antibiotic and if it doesn't go away you can start it back

up.I'd be more worried if it was red,fine and felt like sandpaper,I won't say

it because you know exactly what I am talking about.

Love and hugs

Becki and 6 systemic

[Guest guest]

Patty:

You didn't describe the rash, but hoping that it is not Still's...does

she have any fever, aches, pains, etc??? As you said it could be the meds

or something else...don't have any experience with Still's, but I'll be

here rooting and praying that it isn't that....call the doc and see what

their take on it is...and do keep us posted...I'll keep her in my prayers

today

and Rob 15 Spondy

On Thu, 9 Sep 2004 08:38:13 EDT Emeraldsx3@... writes:

Hi Everyone:

Well, Caitlin has a rash! A couple of things I am calming myself with.

She

took a second dose of a medicine for a yeast infection or she may be

having a

reaction to deodorant. With the medicine for the infection, it's one of

those

one pill things and I believe (doctor's office isn't open yet) it's the

type

that works over several days, which is why you only take one pill. She

broke

out in the rash three days later. So possibly that could be it. God I

hope

and pray that's it. Of course, I am wondering now about the Cefzil

(prophylactic). She took two treatments to get the yeast infection under

control and we

all know what antibiotics can cause those so now I am wondering if it

could be

the Cefzil. Maybe she just can't tolerate it anymore. Yeast could be

the

first sign and now the rash. Ughhh I don't know! She had a reaction to

deodorant once and now with school, she is wearing it everyday. It could

be that.

The most dreaded reason would be the nasty, damn Still's Disease! She

has

done so great I just am hoping and praying it isn't the Dragon coming

back!

Anyone have any experience with allergic reactions vs. the Still's rash

or just

allergic reactions?

Thanks all. Going out to breakfast with a dear friend. She will keep me

positive for now:)

Take care.

Patty

[Guest guest]

Hi Becki:

Caitlin's rash is not like onset, although it took a few days for her first

rash to get severe. No raised welts or anything, just a smooth, spotted rash

over most of her body (arms, legs, torso, back and a bit on her face). When

she had the reaction to the deodorant it was worse under her arms than anywhere

else so it's probably not that. I am thinking and hoping it's the medication

from the infection. Waiting until she gets home to check it out from this

morning to see if it has gotten better, stayed the same or gotten worse then I

will call the doctor accordingly. She has complained of being a little more

tired than usual. I figured it was from school, but she insists she felt this

way before school started. Of course, during the summer, they all stayed up

pretty late.

Thanks Becki. Take care.

Patty

[Guest guest]

Hi :

No fever, aches or pains. Though she says she is more tired than usual. I

am starting to think about her thyroid. Alyssa has Hashimoto Disease,

has recently tested positive for thyroid antibodies and Caitlin has never

been tested. Her pediatrician wrote a script at her checkup for a thyroid test,

but were trying to put it off until next week (sisters' endo check ups) and

doing all three of them at once. I think I will just take her up to Quest and

get it done tonight (if they are open late) and rule out/in a thyroid issue.

That would be one explanation of being tired. Come to think of it she is

gaining weight like Alyssa did when her thyroid shut down. She also is

complaining

of being cold in the house. Interesting how sometimes you get an " ah ha'

moment! I just got one typing this out. See you always do good things for me

LOL:) Hope we have some Emla cream left!

Thank you for keeping her in your prayers today:)

Take care.

Patty

[Guest guest]

Hi Helen:

No news yet. Waiting until Caitlin gets home from school to check it again

(3:20ish). I hate to make her panic, etc. If it's an allergic reaction from

the one time pill, it should lessen. Hoping and praying when she gets home it

will be gone!

Thanks for the prayers and positive thoughts:) Take care.

Patty

[Guest guest]

Hi Patty,

By any chance does it look like a lace table cloth?Fifth disease causes a

rash and the child feels fine but can run a low grade fever.Most kids look like

they have been slaped on the face but not all.

Good luck at finding out what is causing it.

Hugs

Becki and 6ystemic

[Guest guest]

Hi Becki:

No, not a lace tablecloth. It really is a strange one. Rash has lightened a

bit, but she has splotches here and there on her face. Sort of like when you

have a reaction to something and your face gets blotchy. Well, my husband's

does when he takes aspirin. Will take her in tomorrow if it doesn't improve

tonight. There isn't much they can do for a rash that I don't have at home.

Rashes are so hard to distinguish too.

Thanks again. Take care.

Patty

[Guest guest]

Patty,

When Hunter was 5 or so, he was still not diagnosed with

JRA.....Anyway, he had sinus infection of something and was

prescribed Cefzil. We gave him one dose in the evening and in the

morning he was covered in rash. At the time, we always thought his

rashes were hives. So we thought he was now allergic to Cefzil.

Now that he's been diagnosed, thinking back, we have no idea if it

was an allergic reaction or the systemic JRA. He frequently

got " hives " and I was always searching for an answer as to why. I

know now...

I hope Caitlin is having an allergic reaction!!!

Stacia and Hunter 8 systemic, iritis

[Guest guest]

Hi Patty,

Have you taken Caitlin to the ped yet?Is her rash better?You mentioning that

her rash on her face was better but more predominant on her chest still

reminded me of Fifths disease also known as Parvo virus.The rash can be highly

variable ,some kids have minor rash symptoms and others like my Shelby were

classic

textbook and miserable with severe rash, an exrtreme case.Does it itch?Shelby

itched horribly as it moved from one area to another but many children

don't.Most likely it's just a strange viral thing and all the ped can do is say

it's

not this or that.Only time will tell if it was the antibiotic.I remember when

was in pre-k and we were at a field trip at the Nashville zoo and we

noticed he was covered in a nasty looking rash.All the ped could think of was

that he had a virus of some sort but the rash was nothing classified from any

certain infection.

I pray it continues to subside and is just a viral thing or an allergic

reaction to the antibiotic.We have had s labs scheduled labs done with his

strange rash and most of the time it showed nothing and other times things were

out of whack and nobody could figure it out.I am sure Caitlin will be fine but

it's natural to worry just the same.

Hugs

Becki and 6 systemic