Questions on diaries was Re: Introduction

[Guest guest]

Deb, Put anything you want in the diary. There may be months that go by

where I have no entries. Other times I write daily, usually when n is

having problems. I may say what joints are involved, fevers, what she did

that day, etc. I put down when we start new medication or when we are

tapering. The diary is for you, so you can have a record what is going on.

n has had this disease for five years, so our diary is getting a bit

ragged. I just use a notebook, nothing formal, and sometimes I have writing

all over it. I write my questions down for the doctor, and then I put the

answers down right there. The disease can be overwhelming and things

sometimes just run together, so it is good to keep a record. We went to a

doctor last month, an orthopod, and it was the rudest, most stupid doctor I

had ever met in my life. So as the doctor was talking, I was writing

" idiot " in the notebook. Obviously, we don't show the doctors our notebook.

Good luck. (n, systemic,15) -

Original Message -----

From: " Gramma Lala " <gramma_lala@...>

< >

Sent: Tuesday, September 14, 2004 9:21 PM

Subject: Questions on diaries was Re: Introduction

>

> Helen,

>

> What things do you put in the diary? Do you track food intake, pain,

medication, activity, (all of the above)???? Do you have a specific

organization for this?

>

> Gramma LaLa

> Deb

> Re: Introduction

>

>

> -Deb,

>

> I just wanted to say hi, everyone else has given great advice so i

> wont repeat it, but i do think that keeping a diary is GREAT advice.

> I print mine out each time we visit the rhuemy and give her a copy (

> of whats been going on since the last visit) its a great way for her

> to see whats going on on a daily basis and help her see any patterns

> etc. She wil sit and read it while we are there and ask questions

> depending on whats shes read. She loves this and looks for it each

> visit. We didnt have one last visit as Nicks been doing FANTASTIC (

> at that time) and didnt have anything written.

>

> Again welcome and ask away with the questions... you will get lots

> of helpful advice here and a ton of support.

>

> Hugs Helen and (7,systemic)

>

>

>

>

[Guest guest]

n - I just love that - " idiot " !! LOL You had me laughing here at my

desk. Isn't it amazing how condescending some drs can be? Thanks for

the chuckle, Michele

Questions on diaries was Re: Introduction

>

> Helen,

>

> What things do you put in the diary? Do you track food intake, pain,

medication, activity, (all of the above)???? Do you have a specific

organization for this?

>

> Gramma LaLa

> Deb

> Re: Introduction

>

>

> -Deb,

>

> I just wanted to say hi, everyone else has given great advice so i

> wont repeat it, but i do think that keeping a diary is GREAT advice.

> I print mine out each time we visit the rhuemy and give her a copy (

> of whats been going on since the last visit) its a great way for her

> to see whats going on on a daily basis and help her see any patterns

> etc. She wil sit and read it while we are there and ask questions

> depending on whats shes read. She loves this and looks for it each

> visit. We didnt have one last visit as Nicks been doing FANTASTIC (

> at that time) and didnt have anything written.

>

> Again welcome and ask away with the questions... you will get lots

> of helpful advice here and a ton of support.

>

> Hugs Helen and (7,systemic)

>

>

>

>

[Guest guest]

,

BWHAHAHAHA -- idiot doctors -- I know a few. The last 11 months have been as

" interesting " as a rousing game of Mouse Trap as we have fought our way to this

point. My next major milestone is knowing what Sami's diagnosis really is or

isn't... Then we go forward from there. Limbo is worse than knowing, in my

mind.

Gramma LaLa

Deb

California

Re: Questions on diaries was Re: Introduction

Deb, Put anything you want in the diary. There may be months that go by

where I have no entries. Other times I write daily, usually when n is

having problems. I may say what joints are involved, fevers, what she did

that day, etc. I put down when we start new medication or when we are

tapering. The diary is for you, so you can have a record what is going on.

n has had this disease for five years, so our diary is getting a bit

ragged. I just use a notebook, nothing formal, and sometimes I have writing

all over it. I write my questions down for the doctor, and then I put the

answers down right there. The disease can be overwhelming and things

sometimes just run together, so it is good to keep a record. We went to a

doctor last month, an orthopod, and it was the rudest, most stupid doctor I

had ever met in my life. So as the doctor was talking, I was writing

" idiot " in the notebook. Obviously, we don't show the doctors our notebook.

Good luck. (n, systemic,15) -

[Guest guest]

-TOO funny ... not sure ill be able to do that as I give a copy

to Nicks rheumy, alhtough she might have a chuckle over it, as long

as its not her im calling an idiot!!!! LOL

Hugs Helen and (7,systemic)

p.s How are ns wrists doing, is she seeing any relief from them

shot???

-- In , " Tepper, Michele " <MTepper@f...>

wrote:

> n - I just love that - " idiot " !! LOL You had me laughing here

at my

> desk. Isn't it amazing how condescending some drs can be? Thanks

for

> the chuckle, Michele

>

>

> Questions on diaries was Re: Introduction

>

>

> >

> > Helen,

> >

> > What things do you put in the diary? Do you track food intake,

pain,

> medication, activity, (all of the above)???? Do you have a

specific

> organization for this?

> >

> > Gramma LaLa

> > Deb

> > Re: Introduction

> >

> >

> > -Deb,

> >

> > I just wanted to say hi, everyone else has given great advice

so i

> > wont repeat it, but i do think that keeping a diary is GREAT

advice.

> > I print mine out each time we visit the rhuemy and give her a

copy (

> > of whats been going on since the last visit) its a great way

for her

> > to see whats going on on a daily basis and help her see any

patterns

> > etc. She wil sit and read it while we are there and ask

questions

> > depending on whats shes read. She loves this and looks for it

each

> > visit. We didnt have one last visit as Nicks been doing

FANTASTIC (

> > at that time) and didnt have anything written.

> >

> > Again welcome and ask away with the questions... you will get

lots

> > of helpful advice here and a ton of support.

> >

> > Hugs Helen and (7,systemic)

> >

> >

> >

> >