Re: Still's/Systemic Rash Question

[Guest guest]

Hi Patty,

has had the rash but always with active arthritis and he has had active

arthritis without the rash.Everytime he would get a weird rash without any

arthritis symptoms I would call his rheumy and they always wanted to know if he

was waking up stiff in the morning.I guess thats a clue that something is on

it's way.

One way to know if it's Stills,but not always is that it is constantly moving

around,it never stays in the same place for long,but when had the

suposedly reaction to Enbrel those nasty hives jumped around also.

Hugs

Becki and 6systemic

[Guest guest]

Patty, Yes, you can get the rash with nothing else. Usually, it can come

with the fever, but n only had the fevers at onset five years ago.

n's disease first presented with the rash and nothing else. Don't

panic yet, wait to see what happens. You will drive yourself crazy with

worry otherwise. n's rash does itch, and sometimes she itches without

the rash. The doctors tell us that it isn't supposed to itch, but we have

five years of itching. We also have five years of headaches without an

answer, but that is another story.

n's rash is usually under the skin, but this year for the first time it

got more like hives. When n itches bad we start her on zyrtec for a

week or whatever is needed, and that helps. I will also add that n now

gets off and on chest pain. The doctors say it is not her heart, but it can

really hurt her. It is right at her sternum. They also say it isn't acid

reflux. Hang in there. (n, 15, systemic)

Still's/Systemic Rash Question

> Hi Everyone:

>

> I have a question for all the Still's/Systemic parents out there (and

anyone

> with any information on the subject).

>

> Has anyone's child had the Still's rash, but no other symptoms? If so,

what

> did you do about the rash? Did the rash indicate that the other nasty

stuff

> was not to far behind?

>

> Thanks all. Take care.

> Patty

>

>

>

[Guest guest]

Hi patty,

Back when my son was 5 yrs old, (he is 9 now) he did have the

systemic rash without any other symptoms, but at the time, we were

told it was most likely a contact dermatitis rash. The rash was all

over his body, especially on his torso, and it lasted for about a

week, and was gone, with no other symptoms at all. As a matter of

fact, he had several issues with rashes before that, and we never

knew exactly what they were, so again, nothing was done about them. I

do remember a few months after that supposed contact dermatitis rash,

he did complain about leg and arm pain, and he had developed a limp

that lasted about a week, and it began a monthly series of sinus

infections and on and off joint pain, but nothing that could ever be

pin pointed. I don't know how much this info helped you, but I

thought I would tell you my experience!

> Hi Everyone:

>

> I have a question for all the Still's/Systemic parents out there

(and anyone

> with any information on the subject).

>

> Has anyone's child had the Still's rash, but no other symptoms? If

so, what

> did you do about the rash? Did the rash indicate that the other

nasty stuff

> was not to far behind?

>

> Thanks all. Take care.

> Patty

>

>

>

[Guest guest]

Hi Patty,

In my experience with Robbie,he was always far into a flare before we saw any

signs of the rash - with each flare, the rash would be worse, and last longer.

Robbie's rashes are very migratory - and usually come and go quickly - depending

on the level of meds in his system at the time, I think - the flare in april was

the worse ever - covering most of his body, even his face. He was quite

miserable. So, he has never to my knowledge ever had the rash without already

having significant symptoms. I do, however remember a couple of times, over a

year before he was diagnosed, when he had an unexplained rash (that was gone

before the doc saw him) with fever - I have often wondered. They found no

physical symptoms that required any workup - so they would say it must be viral

(which it certainly could have been) and sent us home. I hope that Caitlin is

feeling better soon - and that you have answers - of course I am so far behind

in my email again - you may already have word.

Val

Rob's Mom (6, systemic)

In a message dated 9/12/2004 9:00:26 AM Eastern Daylight Time,

Emeraldsx3@... writes:

>Hi Everyone:

>

>I have a question for all the Still's/Systemic parents out there (and anyone

>with any information on the subject).

>

>Has anyone's child had the Still's rash, but no other symptoms?  If so, what

>did you do about the rash?  Did the rash indicate that the other nasty stuff

>was not to far behind?

>

>Thanks all.  Take care.

>Patty

>

>

>