New to the Group but learning alot

[Guest guest]

I am new to the list and have spent the last few days reading the

posts and learning alot. It is amazing how much research you do and

how many questions you ask that there is still so much to learn from

experience even after a year. It appears that most in this group are

older than Garrett, but the information and experiences will help us

plan for the future.

You are all in my thoughts and prayers. We thought we had trouble

with doctors and getting people to understand that while he looks

like any other 2 year old, he was sick. Reading the posts, I can see

that our story isn't unique and that we are blessed.

I am not the parent, but the grandmother. Garrett has

polyarticulate/borderline systemic JRA. He will be 3 in September

11th. He was diagnoised last September as pauci. He is currently on

Enbrel with Motrin and we have seen marked improvement but also know

that it is still a long uphill battle.

Kris and Garrett (3)

[Guest guest]

Kris,

Welcome aboard. I am Robbin with a daughter 17 years old. You will find this

is the right place to be. I know I had a few years ago. When I didn't know

what to do or which way to turn with my daughter. This is a great group. Ask

anything one of us will have a answer or know something. What state are you in?

Robbin

[Guest guest]

Kris. Welcome to the group. I am really glad that you found it. We do have a

quite a few younger kids on this list also, so keep on checking back.

Please feel free to post and joys and or concerns you may have. Nothing is

too small for this group! My daughter is 2 1/2 now and also started off with

Pauci in January of this year. She has since been reclassified to Poly and

she also has Uveitis. My daughter also recently started Enbrel and so far it

has been working fabulously...

Once again - Welcome...

Alia and Caroline, age 2, poly and uveitis

New to the Group but learning alot

I am new to the list and have spent the last few days reading the

posts and learning alot. It is amazing how much research you do and

how many questions you ask that there is still so much to learn from

experience even after a year. It appears that most in this group are

older than Garrett, but the information and experiences will help us

plan for the future.

You are all in my thoughts and prayers. We thought we had trouble

with doctors and getting people to understand that while he looks

like any other 2 year old, he was sick. Reading the posts, I can see

that our story isn't unique and that we are blessed.

I am not the parent, but the grandmother. Garrett has

polyarticulate/borderline systemic JRA. He will be 3 in September

11th. He was diagnoised last September as pauci. He is currently on

Enbrel with Motrin and we have seen marked improvement but also know

that it is still a long uphill battle.

Kris and Garrett (3)

[Guest guest]

Kris-

My daughter is also 2, she will not be 3 until May of 2005. I am glad there

are other parents like you out there for me and others to network with. We are

a great support system for each other. is on Naproxen, Methotrexate,

folic acid and enbrel. She may have to come off of the Enbrel since it has made

her test positive for Lupus when she was negative before it. So, this is my new

challenge, hoping the blood test is a one off and she will have a negative test

this month! She was only diagnosed 2 months ago, but I too have gathered

invaluable info and support from this group! Welcome!

Tara and 2 (poly)

New to the Group but learning alot

I am new to the list and have spent the last few days reading the

posts and learning alot. It is amazing how much research you do and

how many questions you ask that there is still so much to learn from

experience even after a year. It appears that most in this group are

older than Garrett, but the information and experiences will help us

plan for the future.

You are all in my thoughts and prayers. We thought we had trouble

with doctors and getting people to understand that while he looks

like any other 2 year old, he was sick. Reading the posts, I can see

that our story isn't unique and that we are blessed.

I am not the parent, but the grandmother. Garrett has

polyarticulate/borderline systemic JRA. He will be 3 in September

11th. He was diagnoised last September as pauci. He is currently on

Enbrel with Motrin and we have seen marked improvement but also know

that it is still a long uphill battle.

Kris and Garrett (3)

[Guest guest]

Hi Kris,

There are definitely other " little ones " on this list. My son was 3

when this all started.

There are still things that I learn almost every time I sit down for

an hour and go through the posts.

Welcome to the list and never hesitate to ask away.

Stacia and Hunter 8 systemic, iritis