-got the name you want - MICHELLE (Was...Re: Spondyloarthritis sessio

[Guest guest]

,

We spent all Thursday evening with and , Dylan and

Shaw who you are looking for. Dylan is systemic and off to

college in very recent remission, God bless him. has

spondy/poly and GI issues or I'm not sure if they were 100% of her

diagnosis. Lovely, lively and very fun people. They live in

Lincoln University, PA. They have been to two Philly ped. rheumies

and moved on to drive down to DE for their care. They raved about

their DE rheumy.

I got 's email address and he promised to forward anything

about JRA to and then you could get her's. 's email

is gshaw@.... I sure hope you all get in touch.

Stacia and Hunter,8,systemic,iritis PS) I didn't promote this list

to her but you might want to mention it.

> :

> I was thinking of specifically in the session when I jotted

down

> that line.

> Apparently we need to really keep a watch on our spondy kids not

only for

> IBD symptoms but psoriasis symptoms as well.

> I actually met a mom who has an 18 year old with systemic, now in

> remission. Her 14 year old daughter has IBD, and recently was

diagnosed

> with spondy. She is having a terrible time. I didn't get a chance

to get

> her name, I might be able to figure it out from the roster we were

given.

>