We're BAAAAACK!!

[Guest guest]

Hello guys! I am terribly jet-lagged and sleep-deprived but had to drop a

note to everybody.

AJAO was an incredible, emotional, experience for Rob and I. We got so

much out of it! Not only did I receive so much information and talk with

so many parents of kids with spondylarthropathy and other forms of

arthritis, but Rob was so glad to be able to have fun and talk with other

kids who are having the same feelings that he is.

I have notes I took on many of the sessions and hopefully later this week

will be able to get them typed up and posted to the list.

It was also so great to meet so many on the list who attended! I am sure

the list will be bombarded as everybody starts arriving home and are

eager to share their experiences.

I wish you all could have been there. I thought of all of you so often

throughout the weekend! We thought in hindsight we should have made up a

handout about the JRA list to give out to parents interested in the

incredible on-line support offered here. I know we spread it by word of

mouth so don't be surprised, Georgina, if you get an onslaught of

members!!

It was so great to be with Becki and family, Uncle Rusty, Donna Fox,

Donna Exley, Tree Sap, , AJ, Holly and family, Val and Robbie,

and , Robbin and , Stacia and family, and getting to meet

Ellie and Riley...if I left anyone out I apologize, I had 2 hours sleep

last night and it took us 8 hours to get home.

You'll hear more from me later in the week!!

and Rob 15 Spondy

[Guest guest]

We are back tooo.

This was a EXPERIENCE and me will never forget.

Georgina is right about Having more people in the group. I myself

got to speak to many parents who don't know where info is at. I think Georgia

had the most people

in Attendance. I didn't know anyone from Georgia. Can you believe that? I

live right in Atlanta where the main office is.

Georgina be prepared for more people on the list. I have to hand it to This

group ^ 5 to each one of yall. Soon as I get this straight here lolol. I have

so much to read from the Conference.

Thanks everyone for making this a experience for and me .

Robbin

[Guest guest]

Welcome home!!!

I am so thrilled to hear about everybody's experiences at the AJAO

Conference. Remember, no detail is too small. I, for one, can't wait for

the updates to start coming in. I hope you all know that even though I

wasn't able to be there in person, my thoughts were with all of you each

and every day. As I told Robbin, one of these days , Kayla, and

myself will have the opportunity to attend and we'll finally be able to

meet with our extended JRA family. It's something I very much look

forward to. For now, I'm just so happy that so many in our group have

been able to share in such a wonderful event.

Aloha,

Georgina

snooksmama@... wrote:

> Hello guys! I am terribly jet-lagged and sleep-deprived but had to drop a

> note to everybody.

> AJAO was an incredible, emotional, experience for Rob and I. We got so

> much out of it! Not only did I receive so much information and talk with

> so many parents of kids with spondylarthropathy and other forms of

> arthritis, but Rob was so glad to be able to have fun and talk with other

> kids who are having the same feelings that he is.

> I have notes I took on many of the sessions and hopefully later this week

> will be able to get them typed up and posted to the list.

> It was also so great to meet so many on the list who attended! I am sure

> the list will be bombarded as everybody starts arriving home and are

> eager to share their experiences.

> I wish you all could have been there. I thought of all of you so often

> throughout the weekend! We thought in hindsight we should have made up a

> handout about the JRA list to give out to parents interested in the

> incredible on-line support offered here. I know we spread it by word of

> mouth so don't be surprised, Georgina, if you get an onslaught of

> members!!

> It was so great to be with Becki and family, Uncle Rusty, Donna Fox,

> Donna Exley, Tree Sap, , AJ, Holly and family, Val and Robbie,

> and , Robbin and , Stacia and family, and getting to meet

> Ellie and Riley...if I left anyone out I apologize, I had 2 hours sleep

> last night and it took us 8 hours to get home.

> You'll hear more from me later in the week!!

> and Rob 15 Spondy

[Guest guest]

I look forward to that day Gigi! and I WILL be ready for a Great BIG HUG!

from all...and a smooch from a beautiful lady as well.

I gave all who I met, that didn't know about the , info on how to

find this great group...I met a really nice family from Georgia, whos

son, 'Charlie' age 9 soon to be 10 has poly jra.

Dennis and Joan, I hope they find their way to this list....and I too

can't remember all the name's of all.

There most certainly a lot of wonderful people there and YES Robbin it

was so worth anything fear of flying to be there. I so hope to see ya all

there at the Rhode Island conference next year! I will be ready and

waiting for some hugs! I was so glad to finally get to meet Verrr...Val

and Robbie.

Stacia and Dan and their great family, Hunter and . and of

course! even though so briefly.....

Ellie and Riley!

For now cyber HUGS! to all.....much Love to all from Uncle Rusty Limbs