Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 Don't be scared off by the amount of mail that is going around today. Everyone just got back from the American Juvenile Arthritis Organization annual meeting and we are getting new members. Usually it is a pretty slow list. (n, 15, systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 Hello all I have a new ISP and have teething troubles so hope this post actually SENDS as it is my sixth attempt. New, returning member on T3 and h/c. Have had ongoing problems with palps for over two years now and this has got in the way of increasing at all levels and different thyroid meds. I hope I am not speaking too soon but I have just drastically reduced my coffee consumption and the pulse is lowered and I just hope it will stay lowered. O have just attempted another increase of T3 yesterday and and watching and waiting with interest to see if I run into my usual palp problem or not this time. Also taking the regulation 400 mg magnesium citrate at bedtime. Mo To all new members I am posting here a message that should have been sent to you automatically when your registration for membership was approved. For some reason, there was a problem and the message has not been sent to you. Everything is now working OK, and any new member from today will automatically it. However, for those of you who have not seen this welcome message - here it is. Please read it carefully. Luv - Sheila ___________________ Dear New Member, I would like to extend a warm welcome to you. We hope that if you have come here looking for help and advice that you will find it by asking questions of the other members, or by searching our files. Please send an introductory message to us immediately (or at least, within the next 24 hours) so we can get to know you – and you can get to know us. Just send a few sentences (or a lot of sentences if you wish) telling us who you are and your thyroid/adrenal history, and/or your connection to thyroid problems. You may not wish to receive the large number of individual emails every day, so if you wish, you can opt to receive a ‘Daily Digest’. This means you will receive one Email with up to 25 messages in it. Alternatively, you may wish to use the option ‘No Email’ and just read direct from the website. thyroid treatment/ To change your previously selected option – go to the link for the Home Page above. You will see ‘edit membership’ right at the top. Click on that and scroll down to where it says ‘message delivery’ and you can change your previous option. Please be aware that due to the political sensitivity of the campaigning issues we are involved in, this group is moderated, which means that messages exchanged are sometimes monitored for inappropriate content. List moderators will screen messages individually before they reach the group. Any members posting messages found to violate list rules will be contacted by the moderator/owner and will be told the reason why their message was considered inappropriate. They will also be given an opportunity to rewrite it. This forum is mainly concerned with campaigning for better diagnosis and treatment of hypothyroidism within the NHS, and for an alternative treatment to be available within the NHS in the UK, therefore, all content, including the discussions, must NOT be copied to any person/group outside TPA-UK, since by their nature, any external discussion could jeopardise our aims. Any member found to be breaking this rule will be banned. We would ask that you take care in your posts not to offend others, and that disparaging remarks about third parties are avoided. Should the moderators feel that any post oversteps the mark, especially legally, the originator will be asked to delete it. This is a no-flaming area, so if you have strong feelings on an issue - it is best not to post. Anything posted on this list which you find upsetting, please contact the moderators -- our aim is to benefit people and not to stress them. If you have good sources of information you have found on the Internet that you would like to share with other members, please do supply URLs. We also hope that those of you who feel able to contribute in any way towards our campaigns will do so. We are sure that you will find this to be a happy,friendly and supportive place. Thank you for joining. Sheila and Lee List Owners Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 Thank you for your message and glad that I am now able to access this group. When initially looking at your website I was interested to read about Armour thryoid as I had never heard of it before and wondered if it might help with my problem detailed below. I am female and was diagnosed with an underactive Thyroid approx 7 years ago (at the age of 37) and prescribed 100 mg Thyroxine daily. I couldn't believe how much better I felt. However approx 10 months later I started to feel lethargic again and suffering from some weird headaches. I went back to my GP thinking that perhaps my thyroid levels were low again but after having a blood test was told that everything was normal. I paid for a private consultation with an endocronologist - but after a more detailed blood test I was told again that everything was normal. The only other issue is that I am taking progesterone tablets for a gynaecological condition and the endocronologist could only come up with the conclusion that there my be a conflict causing me these headaches. (I will post another message seperately to ask if anyone else has similar symptoms when taking thryoxine with other medication). I therefore decided that I would have to put up with these symptoms until I get my gynae problems sorted out. My last thyroid test revealed that I need an increase to 125 mg thyroxine a day which I have been taking since September. I still find that I am getting headaches and have extreme periods of lethargy - particularly after strenuous activity. However, I am currently seeing a consultant regarding my gynaecological condition.sheilaturner <sheilaturner@...> wrote: I am posting here a message that should have been sent to you automatically when your registration for membership was approved. For some reason, there was a problem and the message has not been sent to you. Everything is now working OK, and any new member from today will automatically it. However, for those of you who have not seen this welcome message - here it is. Please read it carefully. Luv - Sheila ___________________ Dear New Member, I would like to extend a warm welcome to you. We hope that if you have come here looking for help and advice that you will find it by asking questions of the other members, or by searching our files. Please send an introductory message to us immediately (or at least, within the next 24 hours) so we can get to know you – and you can get to know us. Just send a few sentences (or a lot of sentences if you wish) telling us who you are and your thyroid/adrenal history, and/or your connection to thyroid problems. You may not wish to receive the large number of individual emails every day, so if you wish, you can opt to receive a ‘Daily Digest’. This means you will receive one Email with up to 25 messages in it. Alternatively, you may wish to use the option ‘No Email’ and just read direct from the website. thyroid treatment/ To change your previously selected option – go to the link for the Home Page above. You will see ‘edit membership’ right at the top. Click on that and scroll down to where it says ‘message delivery’ and you can change your previous option. Please be aware that due to the political sensitivity of the campaigning issues we are involved in, this group is moderated, which means that messages exchanged are sometimes monitored for inappropriate content. List moderators will screen messages individually before they reach the group. Any members posting messages found to violate list rules will be contacted by the moderator/owner and will be told the reason why their message was considered inappropriate. They will also be given an opportunity to rewrite it. This forum is mainly concerned with campaigning for better diagnosis and treatment of hypothyroidism within the NHS, and for an alternative treatment to be available within the NHS in the UK, therefore, all content, including the discussions, must NOT be copied to any person/group outside TPA-UK, since by their nature, any external discussion could jeopardise our aims. Any member found to be breaking this rule will be banned. We would ask that you take care in your posts not to offend others, and that disparaging remarks about third parties are avoided. Should the moderators feel that any post oversteps the mark, especially legally, the originator will be asked to delete it. This is a no-flaming area, so if you have strong feelings on an issue - it is best not to post. Anything posted on this list which you find upsetting, please contact the moderators -- our aim is to benefit people and not to stress them. If you have good sources of information you have found on the Internet that you would like to share with other members, please do supply URLs. We also hope that those of you who feel able to contribute in any way towards our campaigns will do so. We are sure that you will find this to be a happy,friendly and supportive place. Thank you for joining. Sheila and LeeList Owners Sent from - a smarter inbox. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008  HI Mo Welcome back and I hope this forum will be able to give you all the help and support you need. Can I remind you to remove any messages or text you are not responding to as it makes it difficult for those members who have opted to receive a Daily Digest or read direct from the web. Just leave a little of what you are responding to. What medication are you taking now and have you any blood test results you could let us have (with reference ranges for each)? It is good to know that you have found reducing your coffee consumption appears to be helping in lowering your palpitations. Have you considered decaffeinated coffee? Luv - Sheila Hello allI have a new ISP and have teething troubles so hope this post actually SENDS as it is my sixth attempt.New, returning member on T3 and h/c.Have had ongoing problems with palps for over two years now and this has got in the way of increasing at all levels and different thyroid meds.I hope I am not speaking too soon but I have just drastically reduced my coffee consumption and the pulse is lowered and I just hope it will stay lowered. O have just attempted another increase of T3 yesterday and and watching and waiting with interest to see if I run into my usual palp problem or not this time.Also taking the regulation 400 mg magnesium citrate at bedtime.Mo To all new members I am posting here a message that should have been sent to you automatically when your registration for membership was approved. For some reason, there was a problem and the message has not been sent to you. Everything is now working OK, and any new member from today will automatically it. However, for those of you who have not seen this welcome message - here it is. Please read it carefully. Luv - Sheila ___________________ Dear New Member, I would like to extend a warm welcome to you. We hope that if you have come here looking for help and advice that you will find it by asking questions of the other members, or by searching our files. Please send an introductory message to us immediately (or at least, within the next 24 hours) so we can get to know you – and you can get to know us. Just send a few sentences (or a lot of sentences if you wish) telling us who you are and your thyroid/adrenal history, and/or your connection to thyroid problems. You may not wish to receive the large number of individual emails every day, so if you wish, you can opt to receive a ‘Daily Digest’. This means you will receive one Email with up to 25 messages in it. Alternatively, you may wish to use the option ‘No Email’ and just read direct from the website. thyroid treatment/ To change your previously selected option – go to the link for the Home Page above. You will see ‘edit membership’ right at the top. Click on that and scroll down to where it says ‘message delivery’ and you can change your previous option. Please be aware that due to the political sensitivity of the campaigning issues we are involved in, this group is moderated, which means that messages exchanged are sometimes monitored for inappropriate content. List moderators will screen messages individually before they reach the group. Any members posting messages found to violate list rules will be contacted by the moderator/owner and will be told the reason why their message was considered inappropriate. They will also be given an opportunity to rewrite it. This forum is mainly concerned with campaigning for better diagnosis and treatment of hypothyroidism within the NHS, and for an alternative treatment to be available within the NHS in the UK, therefore, all content, including the discussions, must NOT be copied to any person/group outside TPA-UK, since by their nature, any external discussion could jeopardise our aims. Any member found to be breaking this rule will be banned. We would ask that you take care in your posts not to offend others, and that disparaging remarks about third parties are avoided. Should the moderators feel that any post oversteps the mark, especially legally, the originator will be asked to delete it. This is a no-flaming area, so if you have strong feelings on an issue - it is best not to post. Anything posted on this list which you find upsetting, please contact the moderators -- our aim is to benefit people and not to stress them. If you have good sources of information you have found on the Internet that you would like to share with other members, please do supply URLs. We also hope that those of you who feel able to contribute in any way towards our campaigns will do so. We are sure that you will find this to be a happy,friendly and supportive place. Thank you for joining. Sheila and LeeList Owners No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.6/1230 - Release Date: 17/01/2008 16:59 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008 Hi First, when you next respond to this message, or any other messages, will you check before clicking "Send" that you have removed previous messages and you only leave a small portion so we know what you are responding to. Members can choose, when they register, to receive individual emails (and as this forum has a lot of traffic, some people may wish change this option to receive a Daily Digest, which means you get up to 25 messages in one email) or you can opt to receive no emails, and read direct from the web. People who do receive Digests or read from the web get very frustrated when they have to scroll through so much that they have already read, so please check you are not leaving unnecessary 'stuff' when you send anything to the forum. There - that's out of the way *grin*. Welcome to the forum and I hope you get all the help and support you need. Armour thyroid is a medication that has been used for the treatment of hypothyroidism for over 100 years. It is natural desiccated pigs thyroid extract. It fell out of favour when the synthetic thyroxine was manufactured but most doctors used nothing else to treat this disease up to the 1980's. There were never any problems with Armour and it was considered a very safe and effective drug. It is not licensed, it was 'grandfathered in as it has never required a license. However, doctors have got hold of all sorts of wrong information, fed by people who profit from the sale of thyroxine and from drug reps. We are trying to rectify their information. Armour contains all the natural hormones a normal thyroid would make. Blood tests alone are not sufficient to tell a doctor what is happening to his patient. the majority believe if your thyroid blood tests are within the so called 'normal' range, this means you are normal. This is far from the truth. The headaches you are probably suffering could be caused through myxoedema. Myx is a thick mucus substance and causes hypothyroid sufferers to look very puffy under their skin, especially around the face and eyes. The 'myx' forms little 'pads' and you can actually see these under the skin and look a bit like cellulite. Anyway, myxo collects in tissue in your body and is found also in the lining of the brain - this causes pressure - and thus headaches - but not many doctors know that. Even Professor Weetman at a recent doctors fitness to practice hearing with the GMC (acting as expert witness) told the Panel that he had never heard of any hypothyroid patient suffering from a headache, in all his 20 years of practice. It was Dr Hertoghe who had to inform the Panel that Professor Weetman was wrong, and produced plenty of evidence to prove his point. 100 mcgs of thyroxine is not a lot, and it does sound as if an increase might help you, though some people have other problems that stop the thyroxine being absorbed properly, such as low adrenal reserve, candida albicans or low ferritin. Go and have a look in our FILES (you can find this in the Menu on the Home Page of this forum. Scroll down and read the information on these conditions, and you will learn to understand the connection. Often, when these conditions are treated, you find your thyroxine will work better. I'm not sure about the progesterone tablets causing your headaches - somebody may be able to help you with this question. There are so many causes of headaches it is difficult to find the cause, but if you are 'puffy' as explained above, it could be that you are not taking enough thyroxine or you need to change to Armour. It might be an idea if you could post the results of your last thyroid function tests, together with the reference for each test. Your GP will let you have these. Read everything you can in our files and our links. Luv - Sheila I am female and was diagnosed with an underactive Thyroid approx 7 years ago (at the age of 37) and prescribed 100 mg Thyroxine daily. I couldn't believe how much better I felt. However approx 10 months later I started to feel lethargic again and suffering from some weird headaches. I went back to my GP thinking that perhaps my thyroid levels were low again but after having a blood test was told that everything was normal. I paid for a private consultation with an endocronologist - but after a more detailed blood test I was told again that everything was normal. The only other issue is that I am taking progesterone tablets for a gynaecological condition and the endocronologist could only come up with the conclusion that there my be a conflict causing me these headaches. (I will post another message seperately to ask if anyone else has similar symptoms when taking thryoxine with other medication). I therefore decided that I would have to put up with these symptoms until I get my gynae problems sorted out. My last thyroid test revealed that I need an increase to 125 mg thyroxine a day which I have been taking since September. I still find that I am getting headaches and have extreme periods of lethargy - particularly after strenuous activity. However, I am currently seeing a consultant regarding my gynaecological condition. .. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.516 / Virus Database: 269.19.6/1230 - Release Date: 17/01/2008 16:59 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2008 Report Share Posted January 19, 2008  Hi Mo, Glad to see you back and to see your health has improved a bit since we last communicated. Lilian I hope I am not speaking too soon but I have just drastically reduced my coffee consumption and the pulse is lowered and I just hope it will stay lowered. O have just attempted another increase of T3 yesterday and and watching and waiting with interest to see if I run into my usual palp problem or not this time.Also taking the regulation 400 mg magnesium citrate at bedtime. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2008 Report Share Posted January 20, 2008 Hi , We already have a Val so is this alright? Your story sounds much like mine. The whole endocrine system is linked so what affects one, thyroid, can affect the other , gynae, and vice versa. Now progesterone assists with the transport of thyroid hormones and oestrogen takes them out of use. We can convert progesterone to oestrogen at need . So you begin to see how complicated it all is. You are doing better with progesterone rather than oestrogen. Thyroxine ( T4) has to be converted to T3 ( available as liothyronine sodium) to be used by the body, most of this conversion takes place in the liver. It is not unusual for the T4 to stop working properly due to a failure in the conversion process- hence the deterioration after the irst year of medication- I did a bit better I lasted about 2 years. Again TSH was low to suppressed, but still no improvement. One of the problems is that only TSH ( which isn’t much use once one is medicated) and free T4 tests are done so how can they tell what the vital T3 is doing? It is not unusual to need 150mcg T4 so it might be worth asking for an increase to see if it helps., but you will probably need Armour or to replace some of your T4 with T3 to get any real benefit. I also suggest that you look at the adrenal questionnaire on the website as this can also be a problem, though many docs deny this. Can you post the test results that you had- this might shed a little light on you problems/ PS please snip posts so that it doesn’t cause problems for those who use the daily version. I still find that I am getting headaches and have extreme periods of lethargy - particularly after strenuous activity. However, I am currently seeing a consultant regarding my gynaecological condition. Sent from - a smarter inbox. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.