Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 Hi Everyone, My son, Dylan, has pauci JRA. He's 6 and has had it for 3 years in his left knee. Someone recommended that I look into a non-pharmaceutical product called Mannitech or Mannatech. I'm not sure how to spell it. I checked their website, but it doesn't mention arthritis in particular. I was just wondering if anyone has heard of this, and if so, what are your thoughts? Thanks, Carolyn - Mom to Dylan (6, pauci) wrote: There are 25 messages in this issue. Topics in this digest: 1. Re: Re: Newbie From: faces1999@... 2. i need some help on sending messages.. From: " angelsbabysis " 3. Re: cellulitis From: " bsb31999 " 4. Re: folic acid supplements From: Arthurnator@... 5. Re: methotrexate.. oral vs injection.. opinions? From: Arthurnator@... 6. Re: Question for all that can help? From: o Salas 7. Thanks for the info on MTX and folic acid!! From: " sahm2jordan " 8. Update on us and all the hollering to all the drs.. From: " sahm2jordan " 9. Moducare.. a daily immune support supplement.. anyone else use this? From: " sahm2jordan " 10. RE: Thanks for the info on MTX and folic acid!! From: " Pranke, Alia " 11. Disability Rag: Harry Potter and Sepratism From: A Morse 12. Re: Question for all that can help? From: A Morse 13. cutting out phosphate additives has reduced mine and my dd's stiffness From: " sahm2jordan " 14. RE: Alia../Caroline Update From: " Pranke, Alia " 15. RE: Question for all that can help? From: " Pranke, Alia " 16. List of high salicylate foods for anyone interested From: " sahm2jordan " 17. RE: no scholarship money From: " Pranke, Alia " 18. RE: List of high salicylate foods for anyone interested From: " Pranke, Alia " 19. RE: Nicks Ankle From: " Pranke, Alia " 20. RE: Alia../Caroline Update From: " Pranke, Alia " 21. RE: Alia../Caroline Update From: " Pranke, Alia " 22. RE: folic acid supplements From: " Pranke, Alia " 23. Re: Alia From: snooksmama@... 24. Sharpes Containers From: " Alia Pranke " 25. Re: Alia From: " Alia Pranke " ________________________________________________________________________ ________________________________________________________________________ Message: 1 Date: Wed, 9 Jun 2004 09:02:12 EDT From: faces1999@... Subject: Re: Re: Newbie Hi Spirit! Its Donna again. I wanted to speak to the issue of children. I have had 2 children (now ages 13 and 9, both boys) and neither have JRA. My youngest does have asthma. I personally believe children are worth the risks involved and mine have proven to me over and over that I am so glad to have been blessed by having them in my lives. Yes, even at 13 and 9 when I spend most days refereeing or counseling my love stricken 13 yr old. There are several women I know with JRA who have succesfully given birth and are tremendous moms and their children are also JRA free. If you ever wish to chat just drop me a line...Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2004 Report Share Posted June 9, 2004 I have not given this to my daugther but I can share a personal experience. When my youngest was born I had all kinds of complications and one of them was chronic kidney infections where I had raging fevers, bleeding etc. I was taking multiple antibiotics without much success. My nephrologist (sp?) recommended the Mannitech (sp?) products as a supplement. He told me they were not covered by prescription because they were supplements but he recommended them. At first I was quite reluctant and was totally into mainstream medicine. But after repeated tests, therapies I was just getting sicker and sicker by the day. I finally decided to give it a try. I can't remember all that I took but I figured I would buy a months worth and see what happened. he also recommended a special diet (I can't remember the name) but could not stick with it. It just wasn't me. So anyways I took the supplements for a month, perhaps two and I have never had one kidney or bladder infection since. It was a life saver for me. I have mentioned it to my daughter but at this time she isn't interested in one more pill or supplement drink. e, mom to joe 17 poly Carolyn Goedike <dylansmommy42298@...> wrote: Hi Everyone, My son, Dylan, has pauci JRA. He's 6 and has had it for 3 years in his left knee. Someone recommended that I look into a non-pharmaceutical product called Mannitech or Mannatech. I'm not sure how to spell it. I checked their website, but it doesn't mention arthritis in particular. I was just wondering if anyone has heard of this, and if so, what are your thoughts? Thanks, Carolyn - Mom to Dylan (6, pauci) wrote: There are 25 messages in this issue. Topics in this digest: 1. Re: Re: Newbie From: faces1999@... 2. i need some help on sending messages.. From: " angelsbabysis " 3. Re: cellulitis From: " bsb31999 " 4. Re: folic acid supplements From: Arthurnator@... 5. Re: methotrexate.. oral vs injection.. opinions? From: Arthurnator@... 6. Re: Question for all that can help? From: o Salas 7. Thanks for the info on MTX and folic acid!! From: " sahm2jordan " 8. Update on us and all the hollering to all the drs.. From: " sahm2jordan " 9. Moducare.. a daily immune support supplement.. anyone else use this? From: " sahm2jordan " 10. RE: Thanks for the info on MTX and folic acid!! From: " Pranke, Alia " 11. Disability Rag: Harry Potter and Sepratism From: A Morse 12. Re: Question for all that can help? From: A Morse 13. cutting out phosphate additives has reduced mine and my dd's stiffness From: " sahm2jordan " 14. RE: Alia../Caroline Update From: " Pranke, Alia " 15. RE: Question for all that can help? From: " Pranke, Alia " 16. List of high salicylate foods for anyone interested From: " sahm2jordan " 17. RE: no scholarship money From: " Pranke, Alia " 18. RE: List of high salicylate foods for anyone interested From: " Pranke, Alia " 19. RE: Nicks Ankle From: " Pranke, Alia " 20. RE: Alia../Caroline Update From: " Pranke, Alia " 21. RE: Alia../Caroline Update From: " Pranke, Alia " 22. RE: folic acid supplements From: " Pranke, Alia " 23. Re: Alia From: snooksmama@... 24. Sharpes Containers From: " Alia Pranke " 25. Re: Alia From: " Alia Pranke " ________________________________________________________________________ ________________________________________________________________________ Message: 1 Date: Wed, 9 Jun 2004 09:02:12 EDT From: faces1999@... Subject: Re: Re: Newbie Hi Spirit! Its Donna again. I wanted to speak to the issue of children. I have had 2 children (now ages 13 and 9, both boys) and neither have JRA. My youngest does have asthma. I personally believe children are worth the risks involved and mine have proven to me over and over that I am so glad to have been blessed by having them in my lives. Yes, even at 13 and 9 when I spend most days refereeing or counseling my love stricken 13 yr old. There are several women I know with JRA who have succesfully given birth and are tremendous moms and their children are also JRA free. If you ever wish to chat just drop me a line...Donna Quote Link to comment Share on other sites More sharing options...
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