Guest guest Posted July 28, 2004 Report Share Posted July 28, 2004 Hi, my daughter is going to do a quick steroid burst starting tomorrow for 5 days. She will be having 60 mg per day. This is our first time doing this and I am wondering if anyone could share their experience with me. I am wondering about side effects, which we were told she would experience, because the dose is so high. Also, how quickly do the side effects go away once you finish the burst? Thanks for any information. Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 Hi Kim, Our son went through MANY (60 or more) IV steroid treatments. He is seen at Texas ish Rite in Dallas. He would receive what they call PULSE STEROIDS. He never went on oral steroids...because they felt they could stunt growth long term and the pulsing would not (as much). Is this the type of steriods we are talking about for your daughter? He recieved much larger doses (200-300mg range)....3 treatments for three days....for three weeks....then three treatments for three days....every other week....then three treatments for three days every third week...etc..until the symptoms were controlled. If this sounds familiar...I can give you LOTS of information about this process. E-mail me directly at mwestfal " at " ktc.com....I will be out of town for a few days...but will check my e-mail today before leaving and when I get back on Tuesday. Best wishes, Marguerite and (systemic 4...diagnosed at 1) > Hi, my daughter is going to do a quick steroid burst starting tomorrow for 5 > days. She will be having 60 mg per day. This is our first time doing this and > I am wondering if anyone could share their experience with me. I am wondering > about side effects, which we were told she would experience, because the dose > is so high. Also, how quickly do the side effects go away once you finish the > burst? Thanks for any information. Kim > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 Dear Kim, There are many, many of us whose children have had to use prednisone. There is a long list of side effects with prednisone, but it comes with long time usage. If your daughter is to be on prednisone just for five days I wouldn't worry. What would concern me is the reason why she needs the steroids. It has been my experience that when n needs the steroids five days would not do the trick, and then if we suddenly just come off of them-then we are worse off than where we started from. I think this is true for most of the systemic kids. A five day usage of the medication you might see imsomnia problems and that would be it. Others may chime in to correct me if I am wrong. Her appetite will increase too, but I think everything would be back to normal in a few days. (n, 15, systemic) Let us know why she is doing the steroids. steroid burst > Hi, my daughter is going to do a quick steroid burst starting tomorrow for 5 > days. She will be having 60 mg per day. This is our first time doing this and > I am wondering if anyone could share their experience with me. I am wondering > about side effects, which we were told she would experience, because the dose > is so high. Also, how quickly do the side effects go away once you finish the > burst? Thanks for any information. Kim > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 , Do you see Dr. Helen Emery, by chance? I was with her for two days in late June when we went to Wash.DC to advocate for the arthritis bill. I thought whe was a wonderful person, but we didn't talk " patient shop " . Just curious. I'm in Boise, ID. So far, you're one of the geographically closest people to me on the list. I am just learning abou this " pulse " steroid treatment. I guess the jury is still out??? Best wished to your daughter and your family. Stacia and Hunter,8,systemic,iritis > Hello, > By no means am I an expert I " ll just tell you what my daughter experienced. She was diagnosed in May 04. She is 17. > She was admitted to Children's Hospital in Seattle Wa. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 Stacia, That's doctor. Yes I agree she is wonderful. Children's hospital was wonderful. Very through. was in our local hospital for three weeks ruling out all the infectious disease. All they could tell me was what she didn't have. Our PCP called up there and they had us come up. They admitted she saw 13 specialist ruling out what it could be. staciar101 <staciar@...> wrote: , Do you see Dr. Helen Emery, by chance? I was with her for two days in late June when we went to Wash.DC to advocate for the arthritis bill. I thought whe was a wonderful person, but we didn't talk " patient shop " . Just curious. I'm in Boise, ID. So far, you're one of the geographically closest people to me on the list. I am just learning abou this " pulse " steroid treatment. I guess the jury is still out??? Best wished to your daughter and your family. Stacia and Hunter,8,systemic,iritis > Hello, > By no means am I an expert I " ll just tell you what my daughter experienced. She was diagnosed in May 04. She is 17. > She was admitted to Children's Hospital in Seattle Wa. Quote Link to comment Share on other sites More sharing options...
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