Guest guest Posted April 29, 2001 Report Share Posted April 29, 2001 From: " Brad (by way of ilena rose) " <juanbrad@...> Sent: Sunday, April 29, 2001 1:35 AM Subject: Just been diagnosed with Lupus > Ilena, > > I just thought I would let you and the group know that I have just > recently been diagnosed with Lupus. > > I'm still trying to absorb all this so I don't think it has fully sunk in > yet. I can't say as I am terribly shocked by the news because I have had > atypical Lupus for many years (approximately 1987) and went on SSI > disability for several symptoms associated with Lupus. The scary part for > me is having to change my daily regimen of relying on alternative meds, > wholistic medicine and homepathic therapy to treat myself. > > I'm scared to death to take plaqenil and I'm not sure if I will start that > or not. Also, I have an ulcer which I already knew I had since it was > found in 1998 with the colonoscopy. I also had H. Pylori Bacteria at that > time. I haven't had the Schirmer Eye test done yet because I need to find > an eye doctor to do it. I also have to see if my attorney will pay for > it. > > I think more than anything, I am angry at this point because my family > doctor in my hometown always knew I had the rashes, swollen wrists, knees > and ankle joints, along with the mouth sores and she never once even > entertained the thought of Lupus. > > I told her over and over again that my kid had positive ANA and I had > always thought I had Lupus. Probably if I hadn't of gotten so sick > recently, I would have never been properly diagnosed. Who knows what else > I might have. Given all the years of my torment from physical pain from > silicone, I feel very Blessed and Know God is watching over me and my > children. > > I thank all the wonderful people who have emailed me to answer my > questions regarding medications and I thank you all for your prayers. > > What would I do without You all? > > Love to all my silicone sisters all over the world and May God Be With You > All and Your Families. Peace to You All. ita > > > ~~~ We love you ita ... Ilena ~~~ > > > > Quote Link to comment Share on other sites More sharing options...
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