Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Hi Helen, I was so excited to read the good news about . Makes me very happy for you. I know exactly what you mean about the mornings being hard and the fatigue being such a big part of this disease. It can be so awful at times. I used to worry that might be missing out on so much of his childhood, as he slept and rested so much compared to others his age! But when he slept he wasn't in pain ... so it was a good thing too. These days, he is so vibrant and full of energy. Making up for lost time, it seems! Friday he sees his rheumatologist and I'll ask about his last labs. There was some concern two months ago about his hemoglobin being low (again!) but in the past that made him very fatigued and we haven't been noticing that lately. I hope the busier schedule, with summer school classes, will be manageable and work out okay for Nick. I'm just so glad that he's enjoying the summer. One day at a time, right? Aloha, Georgina hburger64 wrote: > Nicks rheumy called yesterday to say that all Nicks labs came back > normal!! ))) YEAH.... she said looking at his labs you wouldnt even > consider he could have anything like vasculitis going on, but shes > seen the ulcers on him. She was going to up his MTX, but was on the > fence and finally decided to leave it for now. She wants us to call > her if anything changes. > > Nick is really doing good... its been a week now with NO > COMPLAINTS!!! nothing has hurt all week!!!.. the fatigue is still > there, i think it always will be at various levels. But hes learning > to pace himself and hes enjoying summer. Next week summer school > starts and this might be tough, its such an early start and mornings > are not his best time of the day. The rheumy did say she could order > home tutoring for him, but i really dont want do resort to that. > Summer school is just 4 days a week for 4 weeks, we will see how it > goes. > > So alls well here.. lets hope it continues...I hope everyone is > enjoying their summers!!! > > Hugs Helen and (6,systemic) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 25, 2004 Report Share Posted June 25, 2004 Hi Helen: Congrats on the great labs:) It's so nice not to see those nasty little asterisks next to so many eh:) Good luck on the summer school. I bet Nick is glad it's only four weeks. Hope he sails through it. Take care. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 Hi Helen, Sorry this is late but congradulations on Nicks lab results.It's a realy big day when they come back normal finaly.No pain for a whole week,mayby the MTX is working and starting to do it's thing.Hopefuly summer school will be ok on him and not tire him out to bad.What dose of pred is Nick on now?I'm so happy things are finaly looking up. Love and hugs Becki and 5systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 28, 2004 Report Share Posted June 28, 2004 --Becki, We tapered Nick down to 2.5mgs last Thursday and so far soo good!!! ))) No problems whats so ever. Summer school went great for the 1st day this AM...Its just 3 hours a day, so they are home for lunch and spent most of the afternoon enjoying the pool!! Life is good!! Hugs Helen and (6,systemic) - In , Arthurnator@w... wrote: > Hi Helen, > Sorry this is late but congradulations on Nicks lab results.It's a realy big > day when they come back normal finaly.No pain for a whole week,mayby the MTX > is working and starting to do it's thing.Hopefuly summer school will be ok on > him and not tire him out to bad.What dose of pred is Nick on now? I'm so happy > things are finaly looking up. > Love and hugs > Becki and 5systemic > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2004 Report Share Posted June 29, 2004 Hi Helen, Life realy is good!!! Congradulations on the taper and pain free,care free summer days in the pool. I'm so happy for you and Nick. Love and Hugs Becki and 5 systemic Quote Link to comment Share on other sites More sharing options...
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