Hi everyone....a little update on Allie

April 27, 2004

We've been gone for a while. I've been in training for a month for

my new J-O-B!!! I am now a son County Social Worker. I'm really

excited about working now....so forgive my enthusiasm..LOL

Anyway, Allie has started on the Remicade at Duke University. She's

taken two treatments so far and has done really well. She is now

down to 1.5 mg of Prednisone, which we are very excited about. She

loves her doctor at Duke. Dr. Rabinovich is absolutely wonderful

with her. She has found that Allie has been " favoring " her right

knee b/c of the arthritis in it and that the left leg is about 1 cm

longer b/c of it. She is going to need a lift in her shoe, but it

will be relatively unnoticable (sp?).

Her eyes are absolutely the clearest they've been in a year. We are

going for our third treatment on May 10, I think, and she will need

to be monitored closely for this one for a possible reaction to the

drug. The facility is very equipped if something went wrong so I am

not TOO worried. Of course, the worry is there...but, not as bad.

Anyway, I'll try to be around more now that I'm coming out of

training and able to access the internet more. Hope you are all

doing well and that your babies are well also! Hi Helen...hope Nick

is fine!!!

Take care all!

Angie

Mom to Allie (7/24/97)

Pauciarticular Arthritis-Diagnosed 18 months

April 27, 2004

-Hi Angie.,,

Good to hear from you, its been awhile. Good luck with the new job!!

Im glad to read that Allie is doing well on the Remicade treatments

and on the clear eyes!! )) thats great news.

Nick is doing ok... he had a flare in Jan and ended up on prednisone,

MTX, folic acid and iron. Hes been doing well, he didnt tolerate the

MTX pills too well so we moved upto the injections and so far so

good. In fact Nick can now do his own shots!! We are trying to taper

the pred and hit a bit of a roadblock the other week. His MTX has

been increased and we have slowed down on the taper. But on the whole

Nicks doing well.

Check out his website..www.caringbridge.org/mn/nicholasb

Hugs Helen and (6,systemic)

-- In , " Angie Silver " <jaadsilver@t...>

wrote:

> We've been gone for a while. I've been in training for a month for

> my new J-O-B!!! I am now a son County Social Worker. I'm

really

> excited about working now....so forgive my enthusiasm..LOL

>

> Anyway, Allie has started on the Remicade at Duke University. She's

> taken two treatments so far and has done really well. She is now

> down to 1.5 mg of Prednisone, which we are very excited about. She

> loves her doctor at Duke. Dr. Rabinovich is absolutely wonderful

> with her. She has found that Allie has been " favoring " her right

> knee b/c of the arthritis in it and that the left leg is about 1 cm

> longer b/c of it. She is going to need a lift in her shoe, but it

> will be relatively unnoticable (sp?).

>

> Her eyes are absolutely the clearest they've been in a year. We are

> going for our third treatment on May 10, I think, and she will need

> to be monitored closely for this one for a possible reaction to the

> drug. The facility is very equipped if something went wrong so I am

> not TOO worried. Of course, the worry is there...but, not as bad.

>

> Anyway, I'll try to be around more now that I'm coming out of

> training and able to access the internet more. Hope you are all

> doing well and that your babies are well also! Hi Helen...hope Nick

> is fine!!!

>

> Take care all!

>

> Angie

>

> Mom to Allie (7/24/97)

> Pauciarticular Arthritis-Diagnosed 18 months

April 28, 2004

Hi Angie-

Congrats on your new job! I hope everything continues to go well for Allie.

Diane (, 5, pauci, iritis)

April 28, 2004

Hi Angie. Congrats on the new job! That sounds very exciting. Glad to

hear Allie is doing rather well, especially her eyes. It's always nice

to see an update on Dr. Rabinovich, as we really liked her when she was

up here treating Chris. Good luck at the job. Michele (16, pauci &

spondy)