Guest guest Posted March 29, 2004 Report Share Posted March 29, 2004 Hi, has been 100% symptom free for now 16 months.I had explicit instructions how to taper him completely off MTX,leaving just 12.5mg Enbrel.Sat at our AJAAW conferance his rheumy is considering NOT tapering him completely off but tapering the Enbrel some.s MTX dose is now just 5mg SQ. It took 900mg Ibuprofin,nothing less then 9mg prelone,25mg MTX,200mg Plaquenil,and finaly 12.5mg Enbrel to achieve remission.All before age 4 except Enbrel,due to the stinking waiting list. Enbrel is great but much better,twice as good with another drug.Please think about it but remember it can take 2-3 months.For 4 and only after switching to injections Love and Hugs Becki and 5 systemic PS)I also found out at our AJAAW conferance that Poly falls under systemic or non systemic disease.In other words all systemic kids have multiple joint problems that consist of 5 or more joints.There may be exceptions.I grabbed s ped files out of the door to read and sure enough he was also refered as Poly due to the abcence of fever,rash at that point in time. I hope you can get Gabby out of her flare quickly and without pred,but it might take that until something else is done and kicks in. Becki and 5 systemic? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 15, 2006 Report Share Posted March 15, 2006 Just type in or copy & paste this url www.tayloredconcepts.com Re: some good info Cool whats the linkFor Tailored Concepts? Gabby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 16, 2006 Report Share Posted March 16, 2006 LMAO@self TY for posting the link. I reallize all I had to do was try and put the name together after I had posted my comment. lol Gabby > > Just type in or copy & paste this url www.tayloredconcepts.com > > > > > > > Re: some good info > > > Cool whats the linkFor Tailored Concepts? > Gabby > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 That's a scent I've never heard of before (frangpani) Re: sandalwood rose maybe its Sandlewood and Frangpani??! Just an Idea... Gabby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2006 Report Share Posted March 21, 2006 Oh its a nice sent, and hard to describe... Floral, rosey, and more but not too perfumey!! I love it. Gabby > > > That's a scent I've never heard of before (frangpani) > > > > > Re: sandalwood rose > > > maybe its Sandlewood and Frangpani??! > Just an Idea... > Gabby > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2006 Report Share Posted April 19, 2006 I've never heard of Mozilla. What is it and how do you get it? trouble with DPC > > > > > DPC, well you take a guess what that means . > I am on my dd's computer just to let you all know that I am having big > trouble with my computer, so if you have emailed me last nite or this > morning, I did not get it. This morning we took it in to be diagnosed > or whatever. I can check the site here from time to time if anybody > has something to say to me but otherwize it will likely be a few days > before I get my computer back. At that time I will be taking names > for the gathering and being more focused on getting things organized. > > > Thanks! > Shaye > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2006 Report Share Posted April 19, 2006 It's a free download. Don't know how my daughter did it. She uses it on her computer all the time. Jeanine Jeanine's Hummingbird Soap Works > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 ; Here yeah go a link to Mozilla site: http://www.mozilla.com/ It is a downloadable browser used instead of IE (internet Explorer; do not un-install IE though because it runs all your other programs) and you uses this to access anything online, and supposedly better when working with webpages too. You can run all your messengers through one area stead of having different messengers opened up too. Gabby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2006 Report Share Posted April 20, 2006 Well... You can't actually use your messengers through it... But you can use all of your messengers at once through trillian. (I have issues with and trillian though - they don't play well) As far a mozilla... What was the beginning of this conversation?? Sam Re: Gabby ; Here yeah go a link to Mozilla site: http://www.mozilla.com/ It is a downloadable browser used instead of IE (internet Explorer; do not un-install IE though because it runs all your other programs) and you uses this to access anything online, and supposedly better when working with webpages too. You can run all your messengers through one area stead of having different messengers opened up too. Gabby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 Hi Sam, Beginning of the thread - Shaye, and I are having computer problems. and I are having IE specific issues. Keep getting 'not responding' messages. I was on the phone with both Verizon (not their problem) and with Dell (charge for tech support but will refund my money if they don't find the problem - how nice is that?) My son feels he will have to uninstall IE and reinstall. And that's the rest of the story. Jeanine Jeanine's Hummingbird Soap Works Re: Gabby ; Here yeah go a link to Mozilla site: http://www.mozilla.com/ It is a downloadable browser used instead of IE (internet Explorer; do not un-install IE though because it runs all your other programs) and you uses this to access anything online, and supposedly better when working with webpages too. You can run all your messengers through one area stead of having different messengers opened up too. Gabby Quote Link to comment Share on other sites More sharing options...
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