Re: /Patty

[Guest guest]

In a message dated 2/26/2004 6:27:36 AM Eastern Standard Time, snooksmama@... writes:

So I am only allowed to ask on Mondays

..I love this technique and may apply it to my own and my childrens life! Thanks for the idea!! Donna

[Guest guest]

In a message dated 2/26/04 6:27:40 AM Eastern Standard Time,

snooksmama@... writes:

<< I am a pretty obsessive person

and I was driving him crazy! This way, he >>

Hi :

When I read this about you being an obsessive person I thought of myself.

With Caitlin's positive ASO, I have become obsessed and totally neurotic about

strep. If someone is near me that's hacking and coughing, I no longer want to

be there for fear of bringing something home to Caitlin. Talk about guilt

right. Well, I saw the TV show My Wife and Kids last night (Did anyone catch

it?) and it was all about his wife and kids getting the flu and how he was off

the deep end trying to prevent himself from getting it. I laughed and laughed

at how totally ridiculous he was being - I saw myself in him, though he was way

over the top compared to me. So I had a good laugh and it reminded me that

there is just no way to avoid germs. Yes, you can take precautions, which,

trust me, I do, but in the long run we just never know what we may pick up. I

hope all I ever pick up again is the cold bug:) Strep needs to stay FAR FAR

AWAY!!!!!!!!

I think that is a great idea of Rob having more control and picking Monday as

the day you can ask. I can imagine it must get pretty old for our children

to be constantly asked 'how are you feeling'.

<<With Caitlin's

being so terribly high, it was a good indicator, in her case, to watch. I

just pray it was reactive and not systemic. Time will tell. The waiting

is the hardest part, isn't it???>>

Thank you for your prayers for reactive and not systemic. Yes, time will

tell and yes, the waiting is the hardest part. It sucks! Not having a

definitive dx sucks too. Day by day. Spring is around the corner and I am (for

once)

anxious to put winter behind us. My horoscope for the year said the sadness I

have been feeling during the winter months will disappear like mist:) God, I

hope it's true.

Take care.

Patty

[Guest guest]

Patty:

Rob has had asthma since age 1. It has never been very well controlled,

at least until he was diagnosed with JAS. After going on all the meds for

the arthritis, he has had very few asthma symptoms. He is prone to get

asthma when he has an upper respiratory infection, but again, since the

arthritis meds he hasn't had too much trouble.

Rob picked mondays as the days I can talk to him about how he is. He does

not want to dwell on his symptoms. He wants to be able to ignore his

arthritis if he wants to. So I am only allowed to ask on Mondays. Of

course, many a time he is having a bad day and wants heat packs, the hot

tub, or tylenol, and then he'll tell me. Plus, I have learned to read his

body language. He came up with this when he went to counseling. I think

it has been a really good thing, because this way we don't dwell so much

on how he is doing, if that makes sense. I am a pretty obsessive person

and I was driving him crazy! This way, he has control over his situation

more and his body and makes the call about discussing it. I think it is a

good technique. I get my opportunity once a week,and he gets peace the

rest of the week!!

As far as if the sed rate dropped fast, I am not a good one to ask. Rob's

sed rate was only 18 at its worst, yet, he couldnt' walk. With Caitlin's

being so terribly high, it was a good indicator, in her case, to watch. I

just pray it was reactive and not systemic. Time will tell. The waiting

is the hardest part, isn't it???

Love,

and Rob 14 Spondy

On Wed, 25 Feb 2004 20:52:55 EST Emeraldsx3@... writes:

> HI :

>

> Thank you for your explanation of diffusion capacity. I know have a

> better

> understanding. Does this affect his breathing? How did Rob decide

> Mondays are

> the days you can ask how he feels?

>

> Thank you for sharing our excitement with Caitlin's recent labs:)

> We are

> thrilled, to say the least. Do you think her sed rate drop was

> fast? I hadn't

> even thought much about that, I have just been watching the numbers.

> Her 120

> was after Thanksgiving, her 11 was last Monday. He didn't mention

>

> specifically reactive arthritis at this visit, so I am not sure if

> that what he might now

> be looking more at. Sure would be better.

>

> Take care.

> Patty

>

>

>

>

[Guest guest]

Patty:

The rash sure sounds suspicious...is it a lot like last years'? I know

that you are so hoping it will just go away. When does the rheumy want to

see her again??

I will answer your question about infectious disease docs. Rob had to see

one when his TB test was positive. Don't worry, if his chest xray had

shown active TB he would have had to wear a mask in public. So you

shouldn't have anyone with active TB there without a mask. Rob was merely

exposed to TB and did not have active TB.

People see ID for a variety of other reasons. In the hospital, they are

called in with difficult infections, such as osteomyelitis, is a common

one. This is not contagious. Of course, diseases like AIDS require the

expertise of an ID doc. As you know, it is practically impossible to

catch AIDS just from being in the same room with someone who has it. You

have to have intimate sexual contact or blood contact.

It was interesting, Rob's pediatric ID doc's waiting room was so bare!

Plastic chairs, linoleum floor...no cloth anywhere! Made me wonder if it

was that way for easy cleanup should the need arise...

At any rate, what I am getting at is that an ID office should pose no

greater threat than any other doctor's office. So rest easy.

I hope that the blood work and visit with the ID give you some answers.

Keep us posted!

and Rob 15 Spondy

On Sun, 26 Sep 2004 15:53:01 EDT Emeraldsx3@... writes:

Hi Becki:

We are taking her in for labs Tuesday and she see an ID doctor on

Thursday.

Maybe either can point us in the right direction. ID will discuss the

use of

prophylactic antibiotics. Should I be concerned about Caitlin 'catching'

something serious in an ID's office? I know it sounds silly, but I am

not to

familiar with this specialty, but the title infectious disease does not

sound

[Guest guest]

Hi :

The rash looked like an allergic reaction type rash at first, then developed

into (what I thought looked like) a Still's rash then back to an allergic

rash. Last year it did look like this, but it was much worse. So it could be

the

Still's rash, but not as bad as last year. She has been complaining of a

sore throat off and on too. Yes, I am so hoping it will go away.

We are to get blood work, see ID doc and then speak to rheumy and take it

from there. She doesn't have a set appointment. Depending on the blood, I

guess he will/won't see her. With her sore throat I am anxious to get the ASO

and

DNAse back.

Thanks for answering my question about the ID's office. I had thought about

mono, AIDs and a bunch of others, but forgot about TB. I hope the people are

responsible enough to mask if they have active TB. Although my father had TB

and wasn't wearing a mask at home and none of us, thankfully, got it. Heck,

I'd like to have Caitlin wear a mask in there! I know, I am going overboard.

Interesting about the easy clean surfaces in your doctor's office. I think

you hit the nail on the head with the easy clean idea. I do hate going

anywhere and looking down at the cloth seats that are stained and disgusting

looking.

Much rather have leather or vinyl to clean, like at labs.

Any more news on Alports and labs?

Thanks again . Take care.

Patty

[Guest guest]

Patty,

We've seen a ped. Infectious Disease doc. in CT and then in FL and

then in ID (Idaho, where we live now for those who don't recognize

the state postal code), all trying to figure out what was going on

with Hunter during his highly systemic phases but without immense

joint pain, as recommended by the idiot rheumatologists we were

seeing who didnt' know their butt from you know what in JRA). [just

a little vent that came out of nowhere...] I didn't find any fear

in the waiting rooms, but do what you are comfortable with.

Stacia and Hunter 8 systemic, irits

> Patty:

> The rash sure sounds suspicious...is it a lot like last years'? I

know

> that you are so hoping it will just go away. When does the rheumy

want to

> see her again??

> I will answer your question about infectious disease docs. Rob had

to see

> one when his TB test was positive. Don't worry, if his chest xray

had

> shown active TB he would have had to wear a mask in public. So you

> shouldn't have anyone with active TB there without a mask. Rob was

merely

> exposed to TB and did not have active TB.

> People see ID for a variety of other reasons. In the hospital,

they are

> called in with difficult infections, such as osteomyelitis, is a

common

> one. This is not contagious. Of course, diseases like AIDS require

the

> expertise of an ID doc. As you know, it is practically impossible

to

> catch AIDS just from being in the same room with someone who has

it. You

> have to have intimate sexual contact or blood contact.

> It was interesting, Rob's pediatric ID doc's waiting room was so

bare!

> Plastic chairs, linoleum floor...no cloth anywhere! Made me wonder

if it

> was that way for easy cleanup should the need arise...

> At any rate, what I am getting at is that an ID office should pose

no

> greater threat than any other doctor's office. So rest easy.

> I hope that the blood work and visit with the ID give you some

answers.

> Keep us posted!

> and Rob 15 Spondy

>

> On Sun, 26 Sep 2004 15:53:01 EDT Emeraldsx3@a... writes:

> Hi Becki:

> We are taking her in for labs Tuesday and she see an ID doctor on

> Thursday.

> Maybe either can point us in the right direction. ID will discuss

the

> use of

> prophylactic antibiotics. Should I be concerned about

Caitlin 'catching'

>

> something serious in an ID's office? I know it sounds silly, but

I am

> not to

> familiar with this specialty, but the title infectious disease

does not

> sound

>

>

[Guest guest]

In a message dated 9/28/04 1:02:44 AM Eastern Daylight Time,

staciar@... writes:

> idiot rheumatologists we were

> seeing who didnt' know their butt from you know what in JRA). [just

> a little vent that came out of nowhere

Hi Stacia:

Vent away:) Caitlin goes this Thursday so we'll see what it's like.

Take care.

Patty

[Guest guest]

Looking at your posted weights, it appears you are both just above or just below

your target goal weight. SO, my conclusion is that what you each have done thus

far has worked for each of you. Don't change now! Sometimes being a

loser is a GOOD thing! 5'11 " 306 / 226 / 180 PreOp / Now/ Goal Banded 09/14/06

@...: pathubia@...: Wed, 19 Mar

2008 13:44:03 +0000Subject:

,Sorry if I confused you. I only posted what I was told (and what has worked

for me).Patty02/28/05280/145/150-------------- Original message --------------

From: " " <jgonzy56@...> OK! I'm glad we are all being

respectful of each other. Now! Unconfuse me!!! I weigh 260 lbs. From your

calculating that we need 10 cals per lb to loose weight, I should be intaking

2600 cals per day. Am I correct? Now! The Bandster guidelines that we are all

given says we need to have 3 small meals a day plus a snack until we get to our

goal weight. Am I correct? These meals should be 6-8 oz of solid food of which

3-4 oz is protein and 3-4 oz are veggies, fruit and dairy. Approx 300 cals per

meal. The one snack should be approx 100 cals. This all averages out to 1000

calories. Can we see the difference here!! PLEASE, unconfuse me!!!! This is a

group for educating new and experienced Bandster. I want to learn how to be more

successful as a Bandster.God Bless! Dr.

Spiegel05/17/2006367/260/245[Non-text portions of this message have been

removed]

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