Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 In a message dated 3/3/04 6:20:39 PM Eastern Standard Time, snooksmama@... writes: << I would have to agree with Becki. The MTX our kids receive is so small a dose, that the prescribing info you read really only applies to much higher doses. For me, my fear is that they will want to take Rob off the MTX too soon and we'll go back to him not functioning very well again. Just my 2 cents worth! and Rob 14 Spondy >> Hi : Thanks for your 'two cents'. I agree that as long as the meds are working, YEAH. Question: Why would they want to take Rob off the MTX? Because of the diffusion capacity? Were you able to get the chest CT done? Take care. Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 I would have to agree with Becki. The MTX our kids receive is so small a dose, that the prescribing info you read really only applies to much higher doses. For me, my fear is that they will want to take Rob off the MTX too soon and we'll go back to him not functioning very well again. Just my 2 cents worth! and Rob 14 Spondy On Wed, 3 Mar 2004 13:54:14 EST Arthurnator@... writes: Hi Patty, It's not just MTX.Its steroids and any of the other DMARDS that cause immunosupression.The thing with chicken pox is that enough kids died from it so they made a vaccine.Most kids that do get the chicken pox do just fine but our kids are the ones that could develop the fatal complications from it.If a child does develop it or is exposed to it the rheumy needs to be notified immediately so appropriate treatment can begin.Try not to worry so much about the" what ifs" and get scared of the drugs.The disease is much worse. Hugs Becki and 5 systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2004 Report Share Posted March 3, 2004 Patty: Yes, I am worried they will decide that the MTX is a partial culprit with the diffusion capacity. Although right now, his rheumy says no. I'll feel better when we see the pediatric pulmonologist. Rob can't have the CT done until 3/11, will see the allergist/immunologist on 3/18, and since the rheumy thought he needed to see ped. pulmonology, I called yesterday and they can see him 4/1. We could have cancelled our vacation to Florida the week of the 22nd, and they could have seen Rob then, but I am NOT about to cancell our trip. Also, Rob has shown much improvement with the MTX, but he is still not fully controlled. So I don't feel we are there yet, as far as a medicated remission. If he were in medicated remission, I would feel much better if we had to discontinue the MTX. Course, we won't know anything for another month, so I need to just chill. I say that a lot lately! I am just throwing myself into fundraising for the arthritis walk and it is such a good thing to focus on. I have already raised over $600! I am really excited about it. I'll be pushing it big time this weekend at some functions I will be attending. Also at work. Hope Caitlin and the girls are feeling well tonight. How is growing? Can you tell? and Rob 14 Spondy On Wed, 3 Mar 2004 18:33:06 EST Emeraldsx3@... writes: > In a message dated 3/3/04 6:20:39 PM Eastern Standard Time, > snooksmama@... writes: > > << > I would have to agree with Becki. The MTX our kids receive is so > small a > dose, that the prescribing info you read really only applies to > much > higher doses. For me, my fear is that they will want to take Rob > off the > MTX too soon and we'll go back to him not functioning very well > again. > Just my 2 cents worth! > and Rob 14 Spondy >> > Hi : > > Thanks for your 'two cents'. I agree that as long as the meds are > working, > YEAH. Question: Why would they want to take Rob off the MTX? > Because of the > diffusion capacity? Were you able to get the chest CT done? > > Take care. > Patty > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2004 Report Share Posted March 4, 2004 I have to agree . That's what happened to when we tried to reduce. He went back to stiffness and soreness. We kept him at the slightly reduced quantity for the 2 months between visits, and had to put him back to 10 mgs a week. The MTX has really helped alot. Michele (16,pauci & spondy) -----Original Message-----From: snooksmama@... [mailto:snooksmama@...] Sent: Wednesday, March 03, 2004 5:20 PM Subject: Re: MTX I would have to agree with Becki. The MTX our kids receive is so small a dose, that the prescribing info you read really only applies to much higher doses. For me, my fear is that they will want to take Rob off the MTX too soon and we'll go back to him not functioning very well again. Just my 2 cents worth! and Rob 14 Spondy On Wed, 3 Mar 2004 13:54:14 EST Arthurnator@... writes: Hi Patty, It's not just MTX.Its steroids and any of the other DMARDS that cause immunosupression.The thing with chicken pox is that enough kids died from it so they made a vaccine.Most kids that do get the chicken pox do just fine but our kids are the ones that could develop the fatal complications from it.If a child does develop it or is exposed to it the rheumy needs to be notified immediately so appropriate treatment can begin.Try not to worry so much about the" what ifs" and get scared of the drugs.The disease is much worse. Hugs Becki and 5 systemic Quote Link to comment Share on other sites More sharing options...
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