Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Nicks rhuemy called last night to tell me about his last labs (2/25) shes been out of town since. Her office did call and told me everything looked good. But when she called last night she told me his BUN levels were elevated and we have to push more water down him. I have always thought he was drinking enough. Does taking MTX make you need more water than usual?? I have sent a water bottle and a note to school, so hopefully they will let him keep it at his desk. I did have a nice chat with the rhuemy, shes so nice, she was very pleased to hear how well Nick is doing. Says we should let him wear the resting splints every night if he wants to ( the OT people said only when hes flaring) but he asks for them every bedtime. She said they must be helping him or he wouldnt ask for them. She was very annoyed our insurance will not cover the injectable MTX. I could tell shes dealt with a few insurances and doesnt take kindly to their policies. I told her it was not a big deal as the cost is close to our co-pay, but shes still not happy with that. I guess ill call them up and have them contact her office. perhaps a prior autorization from her will get it covered. She also said shes glad i didnt taper the pred the week of the strep. Told me i made a good call )) We see her next week for our monthly appt... im sure everything will look good!!! Hugs Helen, mom to www.caringbridge.org/mn/nicholasb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Helen. I am so glad you finally got to talk with your Rhuemy. Yeah! Isn't is such a nice relief. Our's gave us her pager number which is so nice to have - just in case. Not sure about the water and the MTX, Caroline just started this week. Hopefully Nick's school will be accomodating, but it sounds like they have so far. That is the pits about his meds not being covered. I wonder why. Alan has the most awesome insurance - we are really fortunate. It is through the teacher's union at his college so we luck out. Most of Caroline's prescriptions only cost us $5 and we have no co-pays for her doctors visits which is a huge blessing considering how many times we go in! LOL! Hope your appointment goes well next week. Ours is Wednesday and that seems SOO far away! Alia and Caroline, age 2, pauci and uveitis > Nicks rhuemy called last night to tell me about his last labs (2/25) > shes been out of town since. Her office did call and told me > everything looked good. But when she called last night she told me > his BUN levels were elevated and we have to push more water down him. > I have always thought he was drinking enough. > > Does taking MTX make you need more water than usual?? I have sent a > water bottle and a note to school, so hopefully they will let him > keep it at his desk. > > I did have a nice chat with the rhuemy, shes so nice, she was very > pleased to hear how well Nick is doing. Says we should let him wear > the resting splints every night if he wants to ( the OT people said > only when hes flaring) but he asks for them every bedtime. She said > they must be helping him or he wouldnt ask for them. She was very > annoyed our insurance will not cover the injectable MTX. I could tell > shes dealt with a few insurances and doesnt take kindly to their > policies. I told her it was not a big deal as the cost is close to > our co-pay, but shes still not happy with that. I guess ill call them > up and have them contact her office. perhaps a prior autorization > from her will get it covered. She also said shes glad i didnt taper > the pred the week of the strep. Told me i made a good call )) > > We see her next week for our monthly appt... im sure everything will > look good!!! > > Hugs Helen, mom to > www.caringbridge.org/mn/nicholasb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 -Hi Becki, Thanks for the advice of the diarrhea. its good to know. BUN is a kidney function test.. its part of the labs Nick has. Kinda like the liver function. I hope its just a dehydration issue. The way im forcing water into the kid, he will want to wear his water wings!! LOL Hugs Helen, mom to (6,systemic) -- In , Arthurnator@w... wrote: > Hi Helen, > I'm glad you decided not to taper the pred when Nick had strep.I wasn't sure > if you had or not.Anytime the body is under stress is not a good time to taper. > Not real sure what a BUN test is but dehydration can cause the MTX to become > more toxic.If Nick ever develops true diarrhea,more then 1 loose stool or > vomiting near MTX day hold off until the next week. > Hugs > Becki and 5systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 --Alia.. Wow.. sounds like amazing insurance you guys have.. I guess im thankful for ours as it could be worse... but they added a deductable this year $500 per person...or $1500 for a family. We pay $15 copay every time we see a doctor. Medications run between $10 and $35, The vioxx is $35 a month, although i can send off and get 3 months worth for one months copay. Nicks already had over $3,000 of bloodwork alone.. We reached his max deductable before Jan was over!! Nick sees the rhuemy on Thursday.. lets hope Nick and caroline both have great appts!!! Hugs Helen mom to (6,systemic) - In , " Alia Wegener-Pranke " <ajpranke@j...> wrote: > Helen. I am so glad you finally got to talk with your Rhuemy. Yeah! > Isn't is such a nice relief. Our's gave us her pager number which is > so nice to have - just in case. Not sure about the water and the MTX, > Caroline just started this week. Hopefully Nick's school will be > accomodating, but it sounds like they have so far. > > That is the pits about his meds not being covered. I wonder why. Alan > has the most awesome insurance - we are really fortunate. It is > through the teacher's union at his college so we luck out. Most of > Caroline's prescriptions only cost us $5 and we have no co-pays for > her doctors visits which is a huge blessing considering how many > times we go in! LOL! > > Hope your appointment goes well next week. Ours is Wednesday and that > seems SOO far away! > > Alia and Caroline, age 2, pauci and uveitis > > > Nicks rhuemy called last night to tell me about his last labs > (2/25) > > shes been out of town since. Her office did call and told me > > everything looked good. But when she called last night she told me > > his BUN levels were elevated and we have to push more water down > him. > > I have always thought he was drinking enough. > > > > Does taking MTX make you need more water than usual?? I have sent a > > water bottle and a note to school, so hopefully they will let him > > keep it at his desk. > > > > I did have a nice chat with the rhuemy, shes so nice, she was very > > pleased to hear how well Nick is doing. Says we should let him wear > > the resting splints every night if he wants to ( the OT people said > > only when hes flaring) but he asks for them every bedtime. She said > > they must be helping him or he wouldnt ask for them. She was very > > annoyed our insurance will not cover the injectable MTX. I could > tell > > shes dealt with a few insurances and doesnt take kindly to their > > policies. I told her it was not a big deal as the cost is close to > > our co-pay, but shes still not happy with that. I guess ill call > them > > up and have them contact her office. perhaps a prior autorization > > from her will get it covered. She also said shes glad i didnt taper > > the pred the week of the strep. Told me i made a good call )) > > > > We see her next week for our monthly appt... im sure everything > will > > look good!!! > > > > Hugs Helen, mom to > > www.caringbridge.org/mn/nicholasb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 --Alia.. Wow.. sounds like amazing insurance you guys have.. I guess im thankful for ours as it could be worse... but they added a deductable this year $500 per person...or $1500 for a family. We pay $15 copay every time we see a doctor. Medications run between $10 and $35, The vioxx is $35 a month, although i can send off and get 3 months worth for one months copay. Nicks already had over $3,000 of bloodwork alone.. We reached his max deductable before Jan was over!! Nick sees the rhuemy on Thursday.. lets hope Nick and caroline both have great appts!!! Hugs Helen mom to (6,systemic) - In , " Alia Wegener-Pranke " <ajpranke@j...> wrote: > Helen. I am so glad you finally got to talk with your Rhuemy. Yeah! > Isn't is such a nice relief. Our's gave us her pager number which is > so nice to have - just in case. Not sure about the water and the MTX, > Caroline just started this week. Hopefully Nick's school will be > accomodating, but it sounds like they have so far. > > That is the pits about his meds not being covered. I wonder why. Alan > has the most awesome insurance - we are really fortunate. It is > through the teacher's union at his college so we luck out. Most of > Caroline's prescriptions only cost us $5 and we have no co-pays for > her doctors visits which is a huge blessing considering how many > times we go in! LOL! > > Hope your appointment goes well next week. Ours is Wednesday and that > seems SOO far away! > > Alia and Caroline, age 2, pauci and uveitis > > > Nicks rhuemy called last night to tell me about his last labs > (2/25) > > shes been out of town since. Her office did call and told me > > everything looked good. But when she called last night she told me > > his BUN levels were elevated and we have to push more water down > him. > > I have always thought he was drinking enough. > > > > Does taking MTX make you need more water than usual?? I have sent a > > water bottle and a note to school, so hopefully they will let him > > keep it at his desk. > > > > I did have a nice chat with the rhuemy, shes so nice, she was very > > pleased to hear how well Nick is doing. Says we should let him wear > > the resting splints every night if he wants to ( the OT people said > > only when hes flaring) but he asks for them every bedtime. She said > > they must be helping him or he wouldnt ask for them. She was very > > annoyed our insurance will not cover the injectable MTX. I could > tell > > shes dealt with a few insurances and doesnt take kindly to their > > policies. I told her it was not a big deal as the cost is close to > > our co-pay, but shes still not happy with that. I guess ill call > them > > up and have them contact her office. perhaps a prior autorization > > from her will get it covered. She also said shes glad i didnt taper > > the pred the week of the strep. Told me i made a good call )) > > > > We see her next week for our monthly appt... im sure everything > will > > look good!!! > > > > Hugs Helen, mom to > > www.caringbridge.org/mn/nicholasb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 Helen:Are they planning on rechecking Nick's BUN? The reason I ask, is with the recent strep you want to make sure it isn't affecting his kidneys. Did they do a urinalysis? and Rob 14 Spondy On Thu, 18 Mar 2004 11:09:47 EST Arthurnator@... writes: Hi Helen, I'm glad you decided not to taper the pred when Nick had strep.I wasn't sure if you had or not.Anytime the body is under stress is not a good time to taper. Not real sure what a BUN test is but dehydration can cause the MTX to become more toxic.If Nick ever develops true diarrhea,more then 1 loose stool or vomiting near MTX day hold off until the next week. Hugs Becki and 5systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 18, 2004 Report Share Posted March 18, 2004 -... Im sure the rheumy will recheck next week when we do our reg labs. Nick didnt do the UA last visit as he " could'nt go " . Thank you for letting me know about strep possibly affecting the kidneys. Thats good to know. Although the strep came AFTER the elevated BUN results. I did let the rheumy know when she called last night that Nick had had a 2nd bout of strep. Im sure we will be discussing it at the next visit. Thanks again.. I learn something new every day Hug Helen, mom to (6,systemic) -- In , snooksmama@j... wrote: > Helen: > Are they planning on rechecking Nick's BUN? The reason I ask, is with the > recent strep you want to make sure it isn't affecting his kidneys. Did > they do a urinalysis? > and Rob 14 Spondy > > > On Thu, 18 Mar 2004 11:09:47 EST Arthurnator@w... writes: > Hi Helen, > I'm glad you decided not to taper the pred when Nick had strep.I wasn't > sure if you had or not.Anytime the body is under stress is not a good > time to taper. > Not real sure what a BUN test is but dehydration can cause the MTX to > become more toxic.If Nick ever develops true diarrhea,more then 1 loose > stool or vomiting near MTX day hold off until the next week. > Hugs > Becki and 5systemic > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2004 Report Share Posted March 19, 2004 Nick sees the rhuemy on Thursday.. lets hope Nick and caroline both > have great appts!!! Amen to that Helen! Alia and Caroline, age 2,pauci and uveitis > > > Nicks rhuemy called last night to tell me about his last labs > > (2/25) > > > shes been out of town since. Her office did call and told me > > > everything looked good. But when she called last night she told > me > > > his BUN levels were elevated and we have to push more water down > > him. > > > I have always thought he was drinking enough. > > > > > > Does taking MTX make you need more water than usual?? I have sent > a > > > water bottle and a note to school, so hopefully they will let him > > > keep it at his desk. > > > > > > I did have a nice chat with the rhuemy, shes so nice, she was > very > > > pleased to hear how well Nick is doing. Says we should let him > wear > > > the resting splints every night if he wants to ( the OT people > said > > > only when hes flaring) but he asks for them every bedtime. She > said > > > they must be helping him or he wouldnt ask for them. She was very > > > annoyed our insurance will not cover the injectable MTX. I could > > tell > > > shes dealt with a few insurances and doesnt take kindly to their > > > policies. I told her it was not a big deal as the cost is close > to > > > our co-pay, but shes still not happy with that. I guess ill call > > them > > > up and have them contact her office. perhaps a prior autorization > > > from her will get it covered. She also said shes glad i didnt > taper > > > the pred the week of the strep. Told me i made a good call )) > > > > > > We see her next week for our monthly appt... im sure everything > > will > > > look good!!! > > > > > > Hugs Helen, mom to > > > www.caringbridge.org/mn/nicholasb Quote Link to comment Share on other sites More sharing options...
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