Guest guest Posted December 23, 2003 Report Share Posted December 23, 2003 Hello Group: We had Caitlin's two week follow-up appointment today and got quite a shock. While I was thinking she was actually getting a bit better, her labs don't reflect that. The rheumy is not sure what we are dealing with and her hemoglobin level has dropped since last blood draw. He wants to explore every avenue, thus we have a 8:30 bone marrow biopsy tomorrow. Caitlin is terrified of needles. Spiked her temp in the doctor's office today by getting so upset thinking that she was going to get a shot. I don't want to tell her until tomorrow, I don't want to tell her at all, but I know I have to give her some fair warning. I know this is a very painful procedure even with the meds they give people. I am beyond worried sick. I don't know what to do. Of course, with this test she will be in pain after and may have to be on bed rest for Christmas. She has been looking forward to this since she got sick. The doctor also stated she could just be presenting with JRA unusually or we could be looking at Still's Disease. I hate keeping this from her, but I want her to get some rest tonight (she doesn't sleep well lately as it is, with the fevers and pain, etc.). I thought strep-induced arthritis and/or Rheumatic Fever were bad, but now he is looking into Leukemia Lymphoma!!!!!!!!! Has anyone here had this experience/test during their diagnosis? Can your hemoglobin drop (from 11.something to 9) with JRA and the JRA family? Thank you all. Patty Quote Link to comment Share on other sites More sharing options...
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