Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 : Sorry to hear that you haven't been feeling well. Hope you are doing better. and Rob 14 Spondy On Thu, 22 Jan 2004 09:52:58 -0600 " Tepper, Michele " <MTepper@...> writes: > Thanks for asking. I have meant to post an update, but I have been a > bit > under the weather and just haven't had the energy. Anyway, according > to > the rheumy his back has extra pigmentation in those spots I am > seeing > and his back looks fine to him. He is very tall and thin and that is > why > his spine sticks out like it does. He is now officially 6'2 " and > weighs > only 149 lbs. As for the tiredness, it is most likely the disease. > He > did give us labs with a mono test on it just to rule that out. > Unfortunately he included it on his regular labs which are not due > until > next month. So we will wait until then for that test. I don't > believe it > is mono. The therapist has seen thinks he could be depressed > which > of course, causes tiredness also. If it continues, she would like > Chris > to see his reg dr to see if he may need medicine for depression. > Truth > be told, I don't like the idea of another med. I know that meds do > help > depression very well, as my husband takes it and it has been a life > changer for him. The rheumy feels that Chris' knuckles on his hands > are > swollen, but as he is not having any pain there we should not be > too > concerned, it could be that is knuckles are prominent. He did say > that > he feels that carries a lot of emotional baggage with this > disease > and that will cause him to be tired. It sounds like the old " I'm > ok " > syndrome, where they just learn to live with a certain level of > discomfort. So as of right now, Chris' back seems good to the > rhuemy, he > is not having a lot of pain, we cannot reduce the MTX since trying > that > a few months ago did not work. I guess we will just keep on with > what we > are doing, I just feel like as a mom I am not doing enough. He is > such a > good kid, and was always such a happy little guy, that now that he > is > older, he seems different somehow. Part of all this is being a teen > I > guess. I wish everyone here on the list a good and pain free day! > Michele (16,pauci & spondy) > > > > > : > How did Chris' appointment with the rheumy go on Monday? > and Rob 14 Spondy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2006 Report Share Posted March 5, 2006 The Kids to Conference Campaign will be kicking off in Ky-ana this week and the goal of this is to provide scholarships to local families to the AJAO in Atlanta. I am thinking of adding an incentive that says the family who raises the most will automatically receive one of the 500.00 scholarships..... Donna Quote Link to comment Share on other sites More sharing options...
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