Re: ... NSAID's

[Guest guest]

Hi ,

I hope Aundrea was feeling well enough to really enjoy the Valentines

Day party at her.

Aloha,

Georgina

sonia dykhuizen wrote:

> Hi Tammy,

>

> Thanks for the info on the NSAIDS. The nurse called

> back and suggested I start Aundrea on Ibuprofin now.

> 200-400mg 4 times daily.

>

> She woke up feeling a little better today. She was

> excited about going to school for the valentines party

> today. The party isn't until afternoon so I sure hope

> that she can make it that long. I suggested to her

> that it would be a good idea to lay down for a little

> while in the morning on her cot and perhaps that would

> help her to be able to stay long enough to go to the

> party.

>

> At least there was a little improvement this morning

> and that always helps if she can have a little break

> from the pain.

>

> P.S. I requested the Vioxx but I think that she is

> hesitant to give me anything than over the counter

> meds since Aundrea has never been to this clinic yet.

>

> Maybe when I meet with the dr. on the 9th of March I

> could request the vioxx if the Ibuprofen isn't

> helping.

>

> Take Care,

>

[Guest guest]

Hi ,

I'm glad Aundrea had a nice time. That's great that she's been able to

get all caught up already, on her missed assignments. Josh, too.

Sorry to hear that the ibuprofen hasn't been able to stop the joint pain

completely. Sometimes NSAIDs alone are strong enough to fight the

symptoms of this disease. Unfortunately, sometimes they're not. Have you

noticed that the heat from a bath can make the rash worse? We saw that

with Josh. We would never even consider, before, using a heating pad on

his sore joints ... like we are sometimes able to do now. You could

actually feel the heat coming from his sore areas. His fevers were

really bad back then, so we mostly used wrapped ice packs and focussed

on keeping him cool.

I love your idea about using the paper link chain for counting down.

Good to choose something that helps the children be able to visualize it

more easily than a calendar.

Have a great rest of the weekend,

Georgina

sonia dykhuizen wrote:

> Hi Georgina,

>

> Aundrea did enjoy her valentines party and since it was a laid back day

> she was able to get caught up on all her homework that she had from

> when she missed school.

>

> She had pretty good days fri and sat. Some achey joints but the pain was

> more manageable. I have been giving her the ibuprofen and so far no side

> effects. This evening she is once again having joint pain in wrists, knees,

> and ankles. The rash is back on her face and she looks very fatigued.

>

> I just gave her another ibuprofen and planning to try a hot bath next so

> maybe that will give her some relief.

>

> We have this paper chain of links and we pull one off the beginning of each

> month to indicate how many months left my husband has of school. He is

> down to almost 16. Anyway, now I am more focused on the count down

> to the rheumy appointment on March 9th. At least Aundrea has had some

> days with less pain and getting a little break, really seems to help

> both of

> us.

>

> Thanks for asking about Aundreas day. Hope all is going well for you and

> Josh!

>

> Take Care,

> (mom to Aundrea age 8 systemic jra)

[Guest guest]

Hi ,

I am so sorry to hear about those folks at your job complaining about

the arrangements you've got in place for Aundrea. Like you really needed

something else to have to worry about, right now! I feel so badly, that

she's still having symptoms daily. A child in pain has got to be one of

the hardest things we as parents face.

We're counting down the days with you, until your daughter gets seen by

the rheumatologist. I hope everything will fall into place better, once

she has a doctor to work with.

I'm glad you found the article on psoriatic arthritis helpful. At least

as far as maybe having something else to ask about, for further

clarification.

Josh is doing good right now. Thanks for asking about him. It used to be

so different, with so many bad days one after the other that I never

really thought we could expect such an improvement. His JRA symptoms

were so persistent in the beginning, long after the first 6 months. I

understand how comforting it will be for you and your husband, when your

is better. Hopefully it's just a matter of time so keep positive,

okay?

Aloha,

Georgina

sonia dykhuizen wrote:

> Hi Georgina,

>

> Well, the ibuprofen isn't stopping the pain but I do

> think its offering a little relief and more

> importantly Aundrea is willingly taking it and hasn't

> developed any side effects. She likes that it is

> coated and doesn't melt on her tongue. I guess all

> these little things become important as far as patient

> compliance goes.

>

> Aundrea has called me twice from school today

> complaining of her eye burning. I went this morning

> and gave her some Patanol drops and then she called

> again this afternoon to say that they are still

> burning and she was having knee pain.

>

> I was reading your article on Psoriacis arthritis and

> I wondered how they ruled this out as a possiblity for

> Aundrea. It mentioned that a frequent symptom is

> burning/itch eyes. I was looking back thru Aundrea's

> health journal and this has been a problem since her

> flare last September. I wrote it down as a question

> for her rheumy visit in March. It just doesn't seem

> like many other systemics have this problem with

> bloodshot, itcyt, burning eyes. (and everything

> checked out with the opthamologist as far as uveitis

> was concerned)

>

> You are right about the heat bringing out Aundreas

> rash, but it also brings comfort to her joints. The

> rash only occasionally itches and otherwise she

> doesn't notice it, so we contiue with heat and ice

> therapy.

>

> Hope that Josh is having a healthy week.

>

> (mom to Aundrea age 8 systemic jra)