Guest guest Posted November 29, 2003 Report Share Posted November 29, 2003 Hi everyone has been on enbrel for 3 weeks now.. I emailed after first injection and thought we had a wonderful reaction but I think i spoke too soon, the change is going very slowly with a little result actually. we are going to an orthopedic surgeon Dec 9... s mri of hip showed severe arthritis and our rheumy wants to get the surgeons opinion of what to do next. maybe either hip replacement, traction, or injection of cortisone in hip, has anyone else been through this ?? I will let you know how we make out. (RYan age 12 systemic ) Jane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2003 Report Share Posted November 29, 2003 Jane:My son (age 14, ankylosing spondylitis) has had hip problems since day 1. Mostly fluid. Pain has never gone away. He had a hip injection back in March. WOndeful pain relief...for about a month. Then the pain slowly returned. Rob goes to the orthopedist the same day as . He has a spondylolisthesis and pars defect of L5/S1. I wish that were getting good response from Enbrel. Anxious to hear what the ortho thinks. Keep us posted. and Rob 14 Spondy On Sat, 29 Nov 2003 17:40:06 EST Jitz45@... writes: Hi everyone has been on enbrel for 3 weeks now.. I emailed after first injection and thought we had a wonderful reaction but I think i spoke too soon, the change is going very slowly with a little result actually. we are going to an orthopedic surgeon Dec 9... s mri of hip showed severe arthritis and our rheumy wants to get the surgeons opinion of what to do next. maybe either hip replacement, traction, or injection of cortisone in hip, has anyone else been through this ?? I will let you know how we make out. (RYan age 12 systemic ) Jane To leave this mailing list, send request to: -unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 Helen, I understand completely.No matter how much Ibuprofin or MTX and Plaquenil we gave he just couldn't get below 9mg pred.I didn't think he would ever come off or even make it to 5mg or less.Twenty months from the first dose he was off,it was a long journey but he made it and Nick will too. Hugs Becki and 6 systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 3, 2004 Report Share Posted September 3, 2004 -Becki... I know i should'nt dwell on the pred increase, but its a little disheartening that just 2 weeks ago he was doing so well and for so long, I actually wanted to just stop the 2mg pred and be done with it.... I just feel like he will never get off it.. I was hoping the doc would not increase, but she feels it is for the best... Hugs Helen and (7,systemic) -- In , Arthurnator@w... wrote: > Helen, > I hope the increase in MTX does the trick and try not to dwell on that little > 3mg pred.Whats most important is stoping ole Arthur in his tracks before he > has a chance to move in again. > Hugs > Becki and 6 systemic > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 -Hi Alia.. Glad to hear you are up and moving.. now get that knee all better for the JAM next spring!!! Nick is doing so..so... hes not " right " but doing ok. He had a lot of knee pain last friday night and saturday, but none since. He is very stiff in the morning and needs a lot of wake up and get going time. The bus was late yesterday ( typical for the 1st day) and Nick sat on the ground at the end of the driveway... i know when he has to sit down instead of stand like everyone else, hes hurting although he wont say anything. He was pretty tired when he got home and those tell tell black cicles are back under his eyes ( he always gets those dark cicles when hes not doing good) no more fevers though so thats good. Im now having to " educate " a new teacher on Nicks condition... that goodness that teh AF put out those booklets " when your child has arthritis " they are a goodsend for a quick teacher read. I go though and highlight some key points as they pertain to . Hopefully it will help give her a breif overview and then she can call me with any further questions. Hugs Helen and (7,systemic) p.s hows Miss C doing with the decrease in all her meds??? -- In , " Pranke, Alia " <Alia.Pranke@t...> wrote: > Helen. I am sorry to hear about the prednisone increase. I know that it will > help Nick, even though it's no good. Hopefully he will only have to have the > increase for a short time and then he can go back to a quick taper again. > How is he feeling?? > > Alia and Caroline, age 2, poly and uveitis > > Update on .. > > > His rheumy just called and we are increasing his mtx to 17.5mg a > week and his prednisone is going back up to 3mg for a month and then > start the taper again.... > > Guess we wont be off the prednisone before christmas like we > thought (.. 2 steps forwards, one step back...... > > I just hope hes feeling better by the start of school next tuesday... > > Hugs Helen and (7,systemic) > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2004 Report Share Posted September 8, 2004 Helen: So sorry to hear that Nick is still not right... Its hard to start school in the middle of a flare. I hope that he feels better soon. and Rob 15 Spondy On Wed, 08 Sep 2004 16:22:24 -0000 " hburger64 " <hburger64@...> writes: -Hi Alia.. Glad to hear you are up and moving.. now get that knee all better for the JAM next spring!!! Nick is doing so..so... hes not " right " but doing ok. He had a lot of knee pain last friday night and saturday, but none since. He is very stiff in the morning and needs a lot of wake up and get going time. The bus was late yesterday ( typical for the 1st day) and Nick sat on the ground at the end of the driveway... i know when he has to sit down instead of stand like everyone else, hes hurting although he wont say anything. He was pretty tired when he got home and those tell tell black cicles are back under his eyes ( he always gets those dark cicles when hes not doing good) no more fevers though so thats good. Im now having to " educate " a new teacher on Nicks condition... that goodness that teh AF put out those booklets " when your child has arthritis " they are a goodsend for a quick teacher read. I go though and highlight some key points as they pertain to . Hopefully it will help give her a breif overview and then she can call me with any further questions. Hugs Helen and (7,systemic) p.s hows Miss C doing with the decrease in all her meds??? -- In , " Pranke, Alia " <Alia.Pranke@t...> wrote: > Helen. I am sorry to hear about the prednisone increase. I know that it will > help Nick, even though it's no good. Hopefully he will only have to have the > increase for a short time and then he can go back to a quick taper again. > How is he feeling?? > > Alia and Caroline, age 2, poly and uveitis > > Update on .. > > > His rheumy just called and we are increasing his mtx to 17.5mg a > week and his prednisone is going back up to 3mg for a month and then > start the taper again.... > > Guess we wont be off the prednisone before christmas like we > thought (.. 2 steps forwards, one step back...... > > I just hope hes feeling better by the start of school next tuesday... > > Hugs Helen and (7,systemic) > > > > > Quote Link to comment Share on other sites More sharing options...
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