Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 I had another call from the school today. Nick was back in the nurses office crying that his knees hurt. This is the 2nd time in two days. I went and brought him home. Gave tylenol and a hot bath. This poor kid has not felt good since getting strep the week before Christmas. Since then hes had to deal with the allergic racation to whatever it was that caused his eyes and lips to swell. His systemic rash has beeen coming and going and moving all over and his complaints of pain in his joints have increased. I decided it was finally time to put a call into his rhuemy. Too much starting to go on and it seems like Nick is getting less and less relief from the vioxx. It worked great for the 1st few weeks, but seems to be getting less effective. Wouldnt you know it, when i finally call shes gone out of town till next tuesday!! I really didnt want to deal with her partner ( i think hes just a reg ped) as he was so unhelpful when Nick had his flare last July. So we will have to tough it out till she gets back. Any idea what she might do when we finally get ahold of her??? im thinking we might be talking about putting him on MTX ( she had already told me this was her 1st choice for dmard) Or will she change to yet another nsaid??? If she does decide its time for MTX, what do they do to decide dose/pills/injection etc etc.. do they have to run any tests before starting the MTX???? NIcks labs have always good pretty good. Do they start MTX even when labs are looking ok..??? HUgs Helen and (6,systemic) P.s thanks for all the insight into everyones rashes, facial and body. I agree, it would be great if we could go somewhere and look at everyones rashes and locations. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Sorry is not feeling well. I was wondering if you could increase the amount of Vioxx he is taking? That is what the dr told to do if he felt the need for it. Just take his Celebrex again and when he was sick last year and still on it, they increased it until he felt better. Just a thought. When started the MTX there was no special test in advance, she just started him on the pills. He is older - the dr never mentioned injections. said that was a good thing too as he doesn't think he could get shots like that. Anyway, for Chris the MTX has been a wonderful thing. No major problems so far! Good luck, Michele (16,pauci & spondy) Poor . I had another call from the school today. Nick was back in the nurses office crying that his knees hurt. This is the 2nd time in two days. I went and brought him home. Gave tylenol and a hot bath. This poor kid has not felt good since getting strep the week before Christmas. Since then hes had to deal with the allergic racation to whatever it was that caused his eyes and lips to swell. His systemic rash has beeen coming and going and moving all over and his complaints of pain in his joints have increased. I decided it was finally time to put a call into his rhuemy. Too much starting to go on and it seems like Nick is getting less and less relief from the vioxx. It worked great for the 1st few weeks, but seems to be getting less effective. Wouldnt you know it, when i finally call shes gone out of town till next tuesday!! I really didnt want to deal with her partner ( i think hes just a reg ped) as he was so unhelpful when Nick had his flare last July. So we will have to tough it out till she gets back. Any idea what she might do when we finally get ahold of her??? im thinking we might be talking about putting him on MTX ( she had already told me this was her 1st choice for dmard) Or will she change to yet another nsaid??? If she does decide its time for MTX, what do they do to decide dose/pills/injection etc etc.. do they have to run any tests before starting the MTX???? NIcks labs have always good pretty good. Do they start MTX even when labs are looking ok..??? HUgs Helen and (6,systemic) P.s thanks for all the insight into everyones rashes, facial and body. I agree, it would be great if we could go somewhere and look at everyones rashes and locations. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 Poor . > > >I had another call from the school today. Nick was back in the nurses >office crying that his knees hurt. This is the 2nd time in two days. >I went and brought him home. Gave tylenol and a hot bath. This poor >kid has not felt good since getting strep the week before Christmas. >Since then hes had to deal with the allergic racation to whatever it >was that caused his eyes and lips to swell. His systemic rash has >beeen coming and going and moving all over and his complaints of pain >in his joints have increased. > >I decided it was finally time to put a call into his rhuemy. Too much >starting to go on and it seems like Nick is getting less and less >relief from the vioxx. It worked great for the 1st few weeks, but >seems to be getting less effective. > >Wouldnt you know it, when i finally call shes gone out of town till >next tuesday!! I really didnt want to deal with her partner ( i think >hes just a reg ped) as he was so unhelpful when Nick had his flare >last July. So we will have to tough it out till she gets back. > >Any idea what she might do when we finally get ahold of her??? im >thinking we might be talking about putting him on MTX ( she had >already told me this was her 1st choice for dmard) Or will she change >to yet another nsaid??? >If she does decide its time for MTX, what do they do to decide >dose/pills/injection etc etc.. do they have to run any tests before >starting the MTX???? NIcks labs have always good pretty good. Do they >start MTX even when labs are looking ok..??? > >HUgs Helen and (6,systemic) >P.s thanks for all the insight into everyones rashes, facial and >body. I agree, it would be great if we could go somewhere and look at >everyones rashes and locations. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2004 Report Share Posted January 9, 2004 Hi Helen, I'm posting some info I found about Methotrexate, separately, but I also just wanted to let you know that Nick will be in our thoughts. It seems like things are still not settling down as well as we had hoped for him. Maybe the time has come to be a bit more proactive and move on to something that might change the disease course. So many children are able to get into a medicated remission once the MTX starts kicking in. If you and the doctors do decide to go that route, I hope that's what will happen for your Nick. In the past, we used to use ice a lot on 's sore joints. Lately, though, it seems that he gets more relief from heat. He's had the heating pad out a couple times in the past week, himself. Using it on his wrists and his neck/shoulder area. Also, the paraffin wax dip. Several times a day! He missed one day of school this week, though. Tuesday night he was not feeling well. His stomache hurt and he said he felt nauseous. When he woke up the next morning he was still feeling sick and moving very slowly. He got dressed, came downstairs, and just as quickly said, " Mom. I don't think I can handle it today. I really don't feel good. I just want to sleep. " So, back to bed it was. But he's feeling better already. And I hope Nick will be feeling better soon, too. Take Care, Georgina Helen Burger wrote: > > > ... Nick is already maxed out for his weight on the vioxx, in > fact, hes a little bit over already. I dont think they will increase it. > > Im hoping hes doing better by the time his doc returns but i think im > still going to call and at least let her know whats going on. We are not > due for another visit until March. > > I've found a heating pad is helping him this afternoon, as well as > continued doses of tylenol. > > Glad is doing well ))) > > Hugs Helen and (6,systemic) >From: " Tepper, Michele " >Reply- >To: > >Subject: RE: Poor . >Date: Thu, 8 Jan 2004 14:06:53 > -0600 > >Sorry is not feeling well. I was wondering if you > could >increase the amount of Vioxx he is taking? That is what the dr > told >to do if he felt the need for it. Just take his Celebrex > again and >when he was sick last year and still on it, they increased it > until he >felt better. Just a thought. When started the MTX there > was no >special test in advance, she just started him on the pills. He > is older >- the dr never mentioned injections. said that was a > good thing >too as he doesn't think he could get shots like that. > Anyway, for >the MTX has been a wonderful thing. No major problems > so far! Good >luck, Michele (16,pauci & spondy) > >-----Original > Message----- >From: hburger64 [mailto:hburger64@...] >Sent: > Thursday, January 08, 2004 1:27 PM > > >Subject: Poor . > > >I had another call from the school > today. Nick was back in the nurses >office crying that his knees hurt. > This is the 2nd time in two days. >I went and brought him home. Gave > tylenol and a hot bath. This poor >kid has not felt good since getting > strep the week before Christmas. >Since then hes had to deal with the > allergic racation to whatever it >was that caused his eyes and lips to > swell. His systemic rash has >beeen coming and going and moving all over > and his complaints of pain >in his joints have increased. > >I decided > it was finally time to put a call into his rhuemy. Too much >starting to > go on and it seems like Nick is getting less and less >relief from the > vioxx. It worked great for the 1st few weeks, but >seems to be getting > less effective. > >Wouldnt you know it, when i finally call shes gone > out of town till >next tuesday!! I really didnt want to deal with her > partner ( i think >hes just a reg ped) as he was so unhelpful when Nick > had his flare >last July. So we will have to tough it out till she gets > back. > >Any idea what she might do when we finally get ahold of her??? > im >thinking we might be talking about putting him on MTX ( she had > >already told me this was her 1st choice for dmard) Or will she change > >to yet another nsaid??? >If she does decide its time for MTX, what do > they do to decide >dose/pills/injection etc etc.. do they have to run > any tests before >starting the MTX???? NIcks labs have always good > pretty good. Do they >start MTX even when labs are looking ok..??? > > >HUgs Helen and (6,systemic) >P.s thanks for all the insight > into everyones rashes, facial and >body. I agree, it would be great if > we could go somewhere and look at >everyones rashes and locations. > > > Quote Link to comment Share on other sites More sharing options...
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