Re: Directory of our Current JRA List Members (current 1/2/04~~1:18pm est)

[Guest guest]

The following is a geographical listing of some members of the JRA

Mailing List. The information included for each entry may consist of the

adult's name, email address, home city and state, phone number, child's

name and date of birth, type of arthritis, diagnosis date, and the name

and location of the rheumatologist they see for treatment.

ALABAMA

Sharon 4nanny@...

Chatom, Alabama

Mom of Olivia (6/21/93) &

Ginger gbread2808@...

Alabama

Mom of (5/1/92)

Amy c.luker@...

Excel, Alabama

Mom to Buzz (9-19-92)

ALASKA

ARIZONA

sylvan_luvr@...

Phoenix, Arizona

Father of Skyler VanHook

Systemic Onset ~ Stills Disease

Dr. s

Diane & Ken dbornscheu@...

sdale, AZ

Parents of (4/5/99)

pauciarticular, dx 8/01, uveitis 11/02

Dr.

chrisujohnson@...

sdale, AZ

Mom of Cameron (8/10/89)

ARKANSAS

AUSTRALIA

Oonagh miglow@...

Bendigo, , Australia

Mom of Maddie (5/2/96)

e nachosj2002@...

Narara NSW, Australia

Mom of Analeise (8/7/92)

CALIFORNIA

BNCknwUrNumber@...

Belmont, CA

DOB: 12/17/84

Dx: 1991 first diagnosis, 1998 re-diagnosed Poly JRA, 9/2003 Spondyloarthropy

Dr. Christy Sanborge, Lucille Packard Childrens Hospital

Stanford

Ellie skyley8@...

Valley Glen, CA

Mom of Riley (8/13/97)

Kasey kasey@...

San Francisco, CA

Mom of (3/30/98)

Chellie chellieae@...

San Valley, CA

Mom of Tyler (4/7/96)

Sharon & rsgerfen@...

Corning, CA

Mom & Dad of Meghann (2/13/87)

mbvanert@...

Chico, CA

Mom of Halie (1/8/95)

Kim rav4kim@...

Oakley, Ca

Mom of (2/12/99)

Carolyn mom2dylan@..., dylansmommy42298@...

Santa Clarita Valley, CA

Mom to Dylan, (4-22-98)

Pauci JRA Dx: August 2001

Dr. Kerry Gallagher, UCLA

CANADA

claudia_eugenin@...

Montreal, Canada

Mom to (8/30/94)

Leonard lkroft@...

Vernon BC Canada

Dad of (4/4/93)

Bob btilk@...

Winnipeg MB Canada

Dad of (4/5/87)

Lynn llyoung@...

Kincardine, Ontario, Canada

mom to Mickey (Mickaela) (2/8/94)

COLORADO

CONNECTICUT

DELAWARE

DISTRICT OF COLUMBIA

ENGLAND

Oliver superzola@...

Kent - UK

Father of Damien (10/4/94)

Systemic JIA

Prof. Woo - Gt Ormond St Hospital, London

FLORIDA

KAMitchemalways@...

Pensacola, Florida

Mom to

Systemic

Dr. Jane El-Dahr in New Orleans (Tulane University)

BHB023@...

Jupiter & Orlando FL (5/23/82)

karen@...

Tequesta, Fl

Mom to Adam (1-26-93)

Psoriatic Arthritis Dx. 1996

Dr. Goodman

Linton Blvd, Delray Beach Fl

FRANCE

Anton anton.gruss@...

Grenoble France

Dad of Vivien (1/4/89)

Systemic

GEORGIA

Robbin Robbin40@...

Atlanta, GA

Mom to (4/11/87)

HAWAII

scandinavia_today@...

Maui, HI

Mom to Jackie (7/19/96)

Georgina gmckin@...

Kahului, Maui, HI

808-877-8716

Mom to (4/5/89)

Dr. Dave Kurahara & Dr. Kara Yamamoto

IDAHO

Jana janabecker@...

Boise, ID

Mom to Robbie (11/14/86)

ILLINOIS

Pat sdbpab@...

Mundelein, IL

Mom to (9/30/94)

Jeannie jvalera2@...

Chicago, IL

Mom to (10/28/90)

N. Jakuch@...

Northbrook, IL

Mom to Grace (8/10/94)

tec1959@...

Lake in the Hills Illinois

Mom to (4-4-94)

dx May 2001 Pauciarticular with Uveitis

Dr. Klein-Gittleman-Childrens Memorial

Dr. Dana Kolton-Premier Eye Care in Barrington

Michele mtepper@...

Midlothian, IL

Mom to (5-9-87)

Pauci & spondyloarthropy - dx Oct,2000

Dr. Spencer

Hope Childrens Hospital

sonia1md@...

on, Illinois

mom to Aundrea age 8 (7/25/95)

Systemic

Dr. Gitelman, Chicago Childrens Hosp

Sue mudslid4952002@...

Heyworth, IL

Mom to Mackenzie (11/12/97)

Systemic JRA dx 11/00

INDIANA

sfrazer@...

Columbus, IN

Mom to Brittany (10-14-90)

Poly JRA - Diagnosed in March of 2003

Dr. Klausmeier

Riley Hospital for Children

Schulz snooksmama@...

Floyds Knobs, Indiana

Mom to Rob 4/26/1989

Juvenile Ankylosing Spondylitis (dx March 2002), possible IgA nephropathy

(diagnosis pending)

Dr. Murray Passo

Cincinnati Children's Hospital Department of Rheumatology

Cincinnati, Ohio

IOWA

Jana janajake@...

Sioux City, IA

712-266-9110

Mom to Jake (7/11/97)

Dr.Lawrence Jung

Omaha, NE

KANSAS

KENTUCKY

Donna faces1999@...

Kentucky

JRA vet of 34 yrs

Lynda Chassey, arhianrhod@...

Louisville, KY

JA Adult age 39 (poly JRA)

Dr. Stern

Theresa (Tree) (Treesap61@...)

Kentucky

JRA vet diagnosed 10/68 age 6

LOUISIANA

MAINE

MARYLAND

Carneyval@...

Severn MD

Mom to (10/2/97)

MASSACHUSETTS

n ajaomom@...

Westfield MA

Mom to Holly (12/22/93)

Dr. Rothman

Shriners Hospital

MICHIGAN

beegal68@...

Michigan

Mom to Jessie (11/20/93)

Dr. Hillary Haftel

University of Michigan/Mott's Children's Hospital

Ann Arbor

Vicky vdziubinski48108@...

Ann Arbor, MI

Mom to (4/12/1995)

Tina jramom2002@...

New Haven, MI

Mom to (12/6/94)

Sherry chiaowl@...

Lansing, MI

mom to Casey (5/23/91)

polyarticular

Dr. E. Dowd - Brighton, MI

MINNESOTA

Helen hburger64@...

Ham Lake, Minnesota

Mom to (8/17/97)

Systemic JRA, Dx 6/03

Dr Warshawsky

Childrens Hospital, Minneapolis.

MISSISSIPPI

MISSOURI

jwood_fire@...

Columbia, MO

Dad of (2/15/95)

MONTANA

aaron@...

MT

(5/3/74)

NEBRASKA

NEVADA

NEW HAMPSHIRE

NEW JERSEY

RPerre3314@...

Lakewood, NJ

Mom to Alecia (10/20/91)

Charlie ga208@...

NJ

Dad of Elliot (7/4/94)

and Rick cmjoconnor@...

Hopewell, NJ 609-466-4114

parents of Carrick, age 11

poly onset at 9 after parvo virus infection

Dr. Cron and team

Children's Hospital of Philadelphia

NEW MEXICO

NEW YORK

Deadra wolfdee@...

Champlain, NY

518-298-5147

Mom to Chase (2/23/98)

Pauciarticular jra

Dr. Barbara Edelheit

Albany Medical College

Teri thep115@...

Rome, NY

Mom of (7/9/97)

Karl kju_0601@...

Sparkill (Rockland County), NY

Dad to (4/28/02)

Dr. Immundo (NYC)

jt102493@...

Patchogue, Long Island, NY

Mom to Owen (7/11/99) and Liam (8/15/96)

Pauciarticular (Owen)

JAS (Liam)

Dr. J.A. Lehman, Manhattan

NORWAY

Soili soilimar@...

Norway

Mom of Juha (4/17/96) & Juho (1/9/95)

Helge feynman@...

Norway

Dad of (4/6/90)

NORTH CAROLINA

Kristi dkakheath@...

Salisbury,North Carolina

Mom of Ashton (10/4/86)

Duke Pediatric Rheumotology

Durham, NC

NORTH DAKOTA

OHIO

Carolyn cybersis40@...

Cleveland, OH

(2/17/60)

April amiksich@...

Columbus, Ohio

Mom to Evan (4/16/97)

Poly JRA since March 2003

Dr. Gloria Higgins at Children's Hospital in

Columbus Ohio

OKLAHOMA

OREGON

Price bc.price@...

Tigard, Oregon

Mom to n (1-19-89)

Systemic, Dx 11/99

Dr. Borzy

Oregon Health Sciences University

Amy foxpro@...

Springfield, OR

Mom of (7/18/96)

stutzman@...

Mom of Tori (7/23/95)

Systemic since 6/98 has never had a remission and stopped growing at onset

PENNSYLVANIA

Barb owits@...

Birdsboro, PA

Mom to Chase (4/30/93)

Dr. Brandt Groh

Hershey Medical Center

Tammy & Jim Fiffick nikki228@...

stown, PA

Parents of Gabby (2/6/98)

Systemic Onset JRA with polyarticular course

Dr. Frederick

Altoona Arthritis Clinic

Duncansville, PA

Tammy Zeigler rstlz@...

Mechanicsburg, PA

Mom to (9/22/97)

pauci-articular JRA (dx. 7/23/1999) with uveitis (dx. March 2001)

Dr. Brandt Groh

Hershey Medical Center

Christy gazelle34@...

Ephrata, PA

Mom of Abbie (7/6/89)

Dr. Brandt Groh

Hershey Medical Center

PUERTO RICO

RHODE ISLAND

Jane Jitz45@...

town, RI

Mom of (1/19/91)

SOUTH CAROLINA

Kathy akally@...

Clemson, SC

Mom of Tally (1/6/95)

Carol Car54ol@...

, SC

Mom of (4/20/87)

SOUTH DAKOTA

TENNESSEE

Becki Larson Arthurnator@...

Mom to (7-24-98)

(615)867-4983

Systemic, Dx 6-22-01

Lawton & Donna Hummal

Vanderbilt Childrens Hospital

TEXAS

Kim smithkim@...

Denton,Tx

940-380-1771

Mom of Logan (07-24-97)

o Salas robertosalas@...

Texas

father to It-xetl (8)

Dx: May 2003

Dr. Cole

San , TX

UTAH

VERMONT

VIRGINIA

Liz liz_smith@...

Burke, VA

Mom of (1/22/92)

Dr. Harry Gewanter

Richmond

Patty Emeraldsx3@...

Sterling, VA

Mom to Alyssa (5/7/90 Hashimoto Disease)

Caitlin (5/14/92 Still trying to diagnose. Possible: Rheumatic

Fever, Strep Induced Arthritis or JRA/Systemic/Stills)

(5/14/92 Growth Hormone Deficient, Chromosome disorder,

speech and hypotonic)

Rheumy (Pediatric and Adult): Dr. Phong Nguyen

Reston, VA

Helen Hollingsworth helenchollingsworth@...

Oakton, VA

703 255-9635

Mom to Teddy (9/9/91)

Dr. Ellen Goldmuntz

WASHINGTON

e boundforlondon@...

Federal Way

mom to joe (12/29/86)

poly 8/2001

Dr. Troy Torgerson

Seattle Childrens

WEST VIRGINIA

WISCONSIN

WYOMING

[Guest guest]

Hi AJ,

Everything looked good on my entry - just thought we could add that Robbie is

Systemic Onset, DX 08/01 and he is treated by the Pediatric Rheumatology Team,

Walter Army Medical Center, Washington DC (that may be a little wordy

Walter can be abbrev. WRAMC. Thanks for working on the update for

everyone!

Val

Rob's Mom (6, systemic)