Re: Sulfasalazine / Rash

[Guest guest]

Well first of all Happy Birthday ne welcome to the world of double digits.. As for the Sulfasalazine I was on that for two months and became allergic to it. Not to deter you but watch out for an allergic reaction as of Sulfa the main component of sulfasalazine has a tendency to cause problems in people.. Strange thing is it was really helpful to my joints but it caused me to throw up everyday. I hope they figure out the problem with the hives.. Good luck'

(poly JRA and Spondy, 19)

[Guest guest]

Hi Kim,

The rash dissapearing is a good sighn I would think.s is gone too.I don't know what we would have done if he had become allergic to his miricle drug.

Threre is always something.Even though has been perfect for over a year he is still on some pretty heavy immune altering drugs.Every infection could turn out to be a whopper.Every little normal childhood ache or pain requires 20 questions.You treasure every pain free moment but wonder when it will all end.

Hugs

Becki and 5 systemic

[Guest guest]

Thanks for the info. I'm going to pass this info onto the

Rheumy. We can't do allergy testing until ne gets off the

predisone but this info will help. n is in our prayers .

Kim (ne 10 poly)

> Kim, n's systemic rash has always itched. With this last

flare she got the rash so bad that it looked like someone had

whipped her back. It was covered by welts. At our last rheumy

appt. we also met with a ped. dermatologist. He said that she had

something called dermagraphia, which is a type of hives. It may come

and go, it may stay a few months or forever. So he put her on 10mg

zyrtec to be taken twice a day for three months. I can't tell if it

is working for she went on prednisone at the same time, so the rash

and itching are gone. It kind of makes sense to me for three years

ago I started getting hives wherever my skin was exposed to the

cold. I still get it today. Anyway, he said this dermagraphia is

common in teenage girls. (n, 15, systemic)

> Sulfasalazine / Rash

>

>

> Hi everyone: First of all I would like to thank and Becky

for responding to my last email about ne's cough. We have

since got that to stop after finally going through the Rhemy and not

the Ped. I've been kind of frustrated with the Ped because she just

doesn't know anything about JRA and I just don't feel like she is

listening. At the same time she is the one who diagnosed ne

so fast, I hate to say anything bad about her

>

> We had another rough two weeks here and had to take ne

back to her Rhemy. Her knees still are hurting badly and now she is

getting a rash which comes and goes but itches really bad. The

Rhemy finally had put her on a Disaese Modifer so I wanted to ask if

anyone could give me some information about it. She is taking 500

mg of Sulfasalazine and soon will be taking 1000 then 1500. We were

at the appoint for almost two hours so I didn't really get to ask

much about the medication, only heard about the side effects. If

this doesn't work then we are on to the Methotrexate so I am really

hoping this will do the trick.

>

> The rash the Rhemy thinks is a type of hive that ne is

getting. Has anyone else experienced this? She has never had

anything like this until now with the JRA. We are going to do

allergy testing once she gets weaned off the predisone but until

then we are just giving her benedryal.

>

> Any input would be greatly appreciated regarding the rash and

Sulfasalazine. Thanks so much for sharing all of your " stories " and

lives. It really helps us frustrated parents who don't have anyone

to talk to that really understands.

>

> Kim & ne (Just turned 10 yesterday) (poly jra)

>

>

[Guest guest]

Thanks for your info. Actually ne has had great results

with the sulfasalazine. I'm keeping my fingers crossed that she

doesn't get a bad reaction and that we can continue her on this. I

finally got to see my daughter run for the first time since

October. We went to the YMCA where we ususally just swim but she

wanted to go to the kids club and play. She played basketball,

volleyball and even got on the scooters. I watched from upstairs

and actually cried. It was just overwhelming to finally see her

do some " normal " things for a change. This disease just really does

suck !

I hope your tests went well. I know I read that you were having

them done. If not yet than good luck. Your are in my thoughts and

prayers.

Kim (adrianne 10 poly)

> Well first of all Happy Birthday ne welcome to the world of

double

> digits.. As for the Sulfasalazine I was on that for two months and

became allergic

> to it. Not to deter you but watch out for an allergic reaction as

of Sulfa

> the main component of sulfasalazine has a tendency to cause

problems in people..

> Strange thing is it was really helpful to my joints but it caused

me to throw

> up everyday. I hope they figure out the problem with the hives..

Good luck'

>

> (poly JRA and Spondy, 19)

[Guest guest]

Becky: Thanks for your support. The rash has gone for now.

ne has only had it one other time and that was when she was

first diagnosed. It has just been really weird but what isn't with

JRA? I'm keeping my fingers crossed that she can stay on the

Sulfasalazine and that the rash dissappears for good. She seems to

be really good for now Good luck with . I know from

reading everything in the past that you have had many obstacles to

hurdle over. Doesn't it seem like we just get over one and than

another one jumps out in front of us? I used to think that I had a

nice normal life, actually kind of boring and than one thing after

another hit. I have been on a rollercoaster for almost two years

now with ne being diagnosed with JRA the last. JRA has to be

the biggest rollercoaster I think any of us can ever experience.

I'm just really glad to have found all of you for nobody seems to

understand as well, including close friends and family. Thanks for

being there.

Kim (ne 10 poly)

> Hi Kim,

> A very tricky situation.The Sulfasalazine could be causing the

hives.Any new

> medication can cause them. is on Benadryl too.He received his

Enbrel shot

> last Friday night and woke up Saterday covered in huge hives.He

had been on

> Enbrel for so long they realy didn't think that was the culprit.He

is getting

> much better now.Acute hives is very common but can be very tricky

to find the

> culprit.Alot of people are allergic to sulfa drugs so I hope it's

not the new

> med but if it is you will know what kinds of things to stay away

from.

> I hope the hives dissapear as quickly as they came.

> Hugs

> Becki and 5 systemic