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RE: Major Pains

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Hi ,

Until the meantime switch to Ibuprofin,Advil or Motrin.Tylenol is an antipyretic and pain reducer but NOT a antiinflamitory but don't do if your child already takes an NSAID. didn't have much luck with them.The first ankle injection lasted about a month or until the steroids were droped 6 mg.We immediately scheduled another and he was put in a hard cast for 2 weeks followed by a 6 week taper of an orthotic boot.He started Enbrel as soon as the cast came off and had a miraculous responce.Never will know how the results would have been if not for the Enbrel.

had Depo Medrol but have heard wonderful things about Aristopan.One mom posted a month or so ago that it was back on the market but just recently a mom claimed it wasn't.I believe that the key to sucess is limited amount of motion to the injected joint for atleast 2 weeks.Most say 48hrs but it can take as long as 2 weeks for the injection to work.Our ortho at Vanderbilt is top notch and not just pediatric.He works on severe spine trauma patients and is awesome.Good Luck!

Becki and 5 systemic

PS)The ortho claimed had Pauci JRA with a refractory lft ankle.So while a great ortho he is far from perfect.

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Alia, have you tried heating pads on it... other than that and tylenol I cant think of anything. Sorry. I hope shes doing better this evening...

Did I read you are in Eagan???? if so, we are neighbors, we are up in Ham Lake, north of the cities near Forest lake. We use to live in Rosemount until 4 years ago when we moved up here. Im very familiar with your neck of the woods. Which Ped Rhuemy is Caroline seeing??

Hugs Helen, mom to (6,systemic)

Hugs..Helen DH Dan DS's (20)(14)(11)Zachary(9)(6) And DD Yuping Burger, adopted May 9th 2000 DuChang, JiangXi, China DOB 3/29/99 ACR 0-9 mths (11 mths at referral) DTC 7/22/99 DOR 2/25/00 (219 days of waiting) DOT 5/5-5/20/00>From: "Alia Wegener-Pranke" >Reply- > >Subject: Major Pains >Date: Sat, 31 Jan 2004 12:21:45 -0000 > >Caroline's knee has been increasing worse since we took her off her >meds. We have been giving her Tylenol non-stop but it doesn't seem to >be helping. I swear it is growing by the minute. She keeps pointing >to her hip and saying that it hurts. Our rhuemmy wasn't going to put >her on anything new until next week when she has her knee injections, >but I am fearful that is too long. Any suggestions? > Find high-speed ‘net deals — comparison-shop your local providers here.

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Helen - Yes, I tried that, but she won't let us put that on her.

Right now we take lots and lots of baths! I can't wait for Thursday

to come.

Yes, we live in Eagan. That's is funny that you lived down here. Ham

Lake is up north right? Near Forest Lake or am I way off? We see Dr.

Akin at Gillette Children's in St. . How about you? We are snow

bound today. I didn't go to work because I couldn't get out of my

street! Ugh! Oh well.

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Alia, You are correct.... we are close to Forest Lake. Plenty of snow up here too. I did make it to my 14yr old's ortho appt and i did get Nick to the clinic for her 24hr post MTX labs. But i didnt get to school for the boys conferences. The school cancelled them..

Now the cold is back... we never get a break!!

Hugs Helen, mom to (6,systemic)

Hugs..Helen DH Dan DS's (20)(14)(11)Zachary(9)(6) And DD Yuping Burger, adopted May 9th 2000 DuChang, JiangXi, China DOB 3/29/99 ACR 0-9 mths (11 mths at referral) DTC 7/22/99 DOR 2/25/00 (219 days of waiting) DOT 5/5-5/20/00>From: "Alia Wegener-Pranke" >Reply- > >Subject: Re: Major Pains >Date: Mon, 02 Feb 2004 21:41:00 -0000 > >Helen - Yes, I tried that, but she won't let us put that on her. >Right now we take lots and lots of baths! I can't wait for Thursday >to come. > >Yes, we live in Eagan. That's is funny that you lived down here. Ham >Lake is up north right? Near Forest Lake or am I way off? We see Dr. >Akin at Gillette Children's in St. . How about you? We are snow >bound today. I didn't go to work because I couldn't get out of my >street! Ugh! Oh well. > Find high-speed ‘net deals — comparison-shop your local providers here.

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