my brother's quest

[Guest guest]

Hello everybody:

I just have to tell you about my brother's adventures recently.

Joe began running after our mother died, when he was 29 (I was 23). He

had never run before. He turned to running as a way to cope with our

mother's death, from cancer. Joe has been running ever since. He has met

many wonderful people and changed his life. Joe has had his own

challenges in life...he has dyslexia, and always struggled in school. I

remember when he went to work at Ford Motor company, on the line, at age

18. My mother cried that day, because she wanted 'more for him in life

than being a factory worker " . Well, if my mother were alive today, she

would be very proud of what he has accomplished. Joe retired almost a

year ago, after 30 years at Ford. He suffers from anxiety, and having put

in his time, decided it was time to move on. SInce then, he has gotten

even more into running. Recently, our cousin's daughter, who is 17 and

runs track, decided she wanted to run a marathon. She talked her 46 year

old mother, who had never done such a thing either, into participating.

They trained all last year for the Leukemia and Lymphoma marathon. Our

dear uncle died from leukemia in 2000 and was such a special man, that

they had decided to do this to honor Uncle Ed. Joe has run many races,

the most being a 13 mile mini-marathon. This year will be his 20th

Kentucky Derby Mini-Marathon.

Last Sunday, Joe ran and finished 3340 out of 13000 runners.

was in second place for her age group, and also finished and her

place was 8175. 26 miles! But the time and the order of finish was not

important to them. They had raised over $7000 for leukemia and lymphoma!

Each of them ran with a picture of a leukemia patient on their bib. My

brother was in tears last night describing it to me...his picture was of

a 12 year old boy. Joe will send him a picture of the finish line with

his picture on Joe's bib. Joe said that the experience was so incredible,

so many people with their purpose to help others.

Which brings me to why I am posting....

Joe wants to run a race for . I know that the Arthritis Foundation

has a walk in May, but was wondering if there are other avenues to

explore so he can raise money for arthritis research. It seems like we

had someone on the list a while back who was running a marathon for

this...anybody know who she was and the details??

Joe's experience really affected him. He said it was the most incredible

feeling in the world to help others in such a manner. And the people he

met had such a profound influence on him too...to know that there are

truly good people out there willing to help others.

Joe has been asked to become a team trainer for Team Leukemia! I think he

is going to accept!

If anybody has any information on running events to benefit arthritis

research, please let me know.

Thanks

and Rob 14 Spondy

[Guest guest]

I did the Leukemia Lymphoma light the night walk a few months back. Though not as incredible as the miles he tracked (or the money for that matter) I walked the mile and raised $532. I wore the names of all of my campers on my shirt (i work for a camp for kids who have cancer). Your brother seems amazing.

(poly jra and spondy, 19)

[Guest guest]

Hi, . I would check out the Arthritis Foundation website. They will

have info on the races they have. I know that you can register to train

for different races around the world and raise money for the

organization. The one time I was reading about it there was a race in

Hawaii (which if I remember right, Georgina posted info on) and one in

Ireland, among others. It has been awhile since I checked into this. I

think its great that he wants to do this. Michele

my brother's quest

Hello everybody:

I just have to tell you about my brother's adventures recently. Joe

began running after our mother died, when he was 29 (I was 23). He had

never run before. He turned to running as a way to cope with our

mother's death, from cancer. Joe has been running ever since. He has met

many wonderful people and changed his life. Joe has had his own

challenges in life...he has dyslexia, and always struggled in school. I

remember when he went to work at Ford Motor company, on the line, at age

18. My mother cried that day, because she wanted 'more for him in life

than being a factory worker " . Well, if my mother were alive today, she

would be very proud of what he has accomplished. Joe retired almost a

year ago, after 30 years at Ford. He suffers from anxiety, and having

put in his time, decided it was time to move on. SInce then, he has

gotten even more into running. Recently, our cousin's daughter, who is

17 and runs track, decided she wanted to run a marathon. She talked her

46 year old mother, who had never done such a thing either, into

participating. They trained all last year for the Leukemia and Lymphoma

marathon. Our dear uncle died from leukemia in 2000 and was such a

special man, that they had decided to do this to honor Uncle Ed. Joe has

run many races, the most being a 13 mile mini-marathon. This year will

be his 20th Kentucky Derby Mini-Marathon. Last Sunday, Joe ran and

finished 3340 out of 13000 runners. was in second place for

her age group, and also finished and her place was 8175. 26 miles!

But the time and the order of finish was not important to them. They had

raised over $7000 for leukemia and lymphoma! Each of them ran with a

picture of a leukemia patient on their bib. My brother was in tears last

night describing it to me...his picture was of a 12 year old boy. Joe

will send him a picture of the finish line with his picture on Joe's

bib. Joe said that the experience was so incredible, so many people with

their purpose to help others. Which brings me to why I am posting....

Joe wants to run a race for . I know that the Arthritis Foundation

has a walk in May, but was wondering if there are other avenues to

explore so he can raise money for arthritis research. It seems like we

had someone on the list a while back who was running a marathon for

this...anybody know who she was and the details?? Joe's experience

really affected him. He said it was the most incredible feeling in the

world to help others in such a manner. And the people he met had such a

profound influence on him too...to know that there are truly good people

out there willing to help others. Joe has been asked to become a team

trainer for Team Leukemia! I think he is going to accept! If anybody has

any information on running events to benefit arthritis research, please

let me know. Thanks and Rob 14 Spondy

[Guest guest]

, It is called Joints in Motion thru the Arthritis Foundation. I ran a half marathon(they have both) in Vancouver, B.C. in 2001. My honoree was my daughter n. I ran with a sign on my back saying I was doing it for my 12 year old daughter with jra. It was very moving. As I ran, everyone that passed me(and about everybody passed me) would pat me on the back or touch me , or just encourage me. At first, it brought me to tears whenever they did it, but after many miles I took it more in stride. People would ask me where they could donate, and other people asked her name so they could pray for her while they ran. I had never ran before. The arthritis foundation has a 20 week program of training for the Joints in Motion. Each destination has a different amount of money you need to earn, and then they pay your way there and for accomodations. It was a very moving experience for n and I, and it helped me relieve some of the stress of the disease. n was at the finish line for me. Neither one of us will ever forget it. I would love to do another, but it won't be so easy for the foundation went out of business in Oregon. (n, 15 in five days, systemic)

my brother's quest

Hello everybody:I just have to tell you about my brother's adventures recently.Joe began running after our mother died, when he was 29 (I was 23). Hehad never run before. He turned to running as a way to cope with ourmother's death, from cancer. Joe has been running ever since. He has metmany wonderful people and changed his life. Joe has had his ownchallenges in life...he has dyslexia, and always struggled in school. Iremember when he went to work at Ford Motor company, on the line, at age18. My mother cried that day, because she wanted 'more for him in lifethan being a factory worker". Well, if my mother were alive today, shewould be very proud of what he has accomplished. Joe retired almost ayear ago, after 30 years at Ford. He suffers from anxiety, and having putin his time, decided it was time to move on. SInce then, he has gotteneven more into running. Recently, our cousin's daughter, who is 17 andruns track, decided she wanted to run a marathon. She talked her 46 yearold mother, who had never done such a thing either, into participating.They trained all last year for the Leukemia and Lymphoma marathon. Ourdear uncle died from leukemia in 2000 and was such a special man, thatthey had decided to do this to honor Uncle Ed. Joe has run many races,the most being a 13 mile mini-marathon. This year will be his 20thKentucky Derby Mini-Marathon.Last Sunday, Joe ran and finished 3340 out of 13000 runners. was in second place for her age group, and also finished and herplace was 8175. 26 miles! But the time and the order of finish was notimportant to them. They had raised over $7000 for leukemia and lymphoma!Each of them ran with a picture of a leukemia patient on their bib. Mybrother was in tears last night describing it to me...his picture was ofa 12 year old boy. Joe will send him a picture of the finish line withhis picture on Joe's bib. Joe said that the experience was so incredible,so many people with their purpose to help others.Which brings me to why I am posting....Joe wants to run a race for . I know that the Arthritis Foundationhas a walk in May, but was wondering if there are other avenues toexplore so he can raise money for arthritis research. It seems like wehad someone on the list a while back who was running a marathon forthis...anybody know who she was and the details??Joe's experience really affected him. He said it was the most incrediblefeeling in the world to help others in such a manner. And the people hemet had such a profound influence on him too...to know that there aretruly good people out there willing to help others.Joe has been asked to become a team trainer for Team Leukemia! I think heis going to accept!If anybody has any information on running events to benefit arthritisresearch, please let me know.Thanks and Rob 14 Spondy

[Guest guest]

Thanks , I'll check that out. How is n today? Did she get to school? and Rob 14 Spondy

On Wed, 14 Jan 2004 07:52:53 -0800 "WILLIAM PRICE" <bc.price@...> writes:

, It is called Joints in Motion thru the Arthritis Foundation. I ran a half marathon(they have both) in Vancouver, B.C. in 2001. My honoree was my daughter n. I ran with a sign on my back saying I was doing it for my 12 year old daughter with jra. It was very moving. As I ran, everyone that passed me(and about everybody passed me) would pat me on the back or touch me , or just encourage me. At first, it brought me to tears whenever they did it, but after many miles I took it more in stride. People would ask me where they could donate, and other people asked her name so they could pray for her while they ran. I had never ran before. The arthritis foundation has a 20 week program of training for the Joints in Motion. Each destination has a different amount of money you need to earn, and then they pay your way there and for accomodations. It was a very moving experience for n and I, and it helped me relieve some of the stress of the disease. n was at the finish line for me. Neither one of us will ever forget it. I would love to do another, but it won't be so easy for the foundation went out of business in Oregon. (n, 15 in five days, systemic)

my brother's quest

Hello everybody:I just have to tell you about my brother's adventures recently.Joe began running after our mother died, when he was 29 (I was 23). Hehad never run before. He turned to running as a way to cope with ourmother's death, from cancer. Joe has been running ever since. He has metmany wonderful people and changed his life. Joe has had his ownchallenges in life...he has dyslexia, and always struggled in school. Iremember when he went to work at Ford Motor company, on the line, at age18. My mother cried that day, because she wanted 'more for him in lifethan being a factory worker". Well, if my mother were alive today, shewould be very proud of what he has accomplished. Joe retired almost ayear ago, after 30 years at Ford. He suffers from anxiety, and having putin his time, decided it was time to move on. SInce then, he has gotteneven more into running. Recently, our cousin's daughter, who is 17 andruns track, decided she wanted to run a marathon. She talked her 46 yearold mother, who had never done such a thing either, into participating.They trained all last year for the Leukemia and Lymphoma marathon. Ourdear uncle died from leukemia in 2000 and was such a special man, thatthey had decided to do this to honor Uncle Ed. Joe has run many races,the most being a 13 mile mini-marathon. This year will be his 20thKentucky Derby Mini-Marathon.Last Sunday, Joe ran and finished 3340 out of 13000 runners. was in second place for her age group, and also finished and herplace was 8175. 26 miles! But the time and the order of finish was notimportant to them. They had raised over $7000 for leukemia and lymphoma!Each of them ran with a picture of a leukemia patient on their bib. Mybrother was in tears last night describing it to me...his picture was ofa 12 year old boy. Joe will send him a picture of the finish line withhis picture on Joe's bib. Joe said that the experience was so incredible,so many people with their purpose to help others.Which brings me to why I am posting....Joe wants to run a race for . I know that the Arthritis Foundationhas a walk in May, but was wondering if there are other avenues toexplore so he can raise money for arthritis research. It seems like wehad someone on the list a while back who was running a marathon forthis...anybody know who she was and the details??Joe's experience really affected him. He said it was the most incrediblefeeling in the world to help others in such a manner. And the people hemet had such a profound influence on him too...to know that there aretruly good people out there willing to help others.Joe has been asked to become a team trainer for Team Leukemia! I think heis going to accept!If anybody has any information on running events to benefit arthritisresearch, please let me know.Thanks and Rob 14 Spondy

[Guest guest]

The rash is disappearing as fast as it came on. No rash this morning, and last night was much improved. Her arthritis is still bothering her, but we are out of panic mode for the time being. cindy (n, systemic)

my brother's quest

Hello everybody:I just have to tell you about my brother's adventures recently.Joe began running after our mother died, when he was 29 (I was 23). Hehad never run before. He turned to running as a way to cope with ourmother's death, from cancer. Joe has been running ever since. He has metmany wonderful people and changed his life. Joe has had his ownchallenges in life...he has dyslexia, and always struggled in school. Iremember when he went to work at Ford Motor company, on the line, at age18. My mother cried that day, because she wanted 'more for him in lifethan being a factory worker". Well, if my mother were alive today, shewould be very proud of what he has accomplished. Joe retired almost ayear ago, after 30 years at Ford. He suffers from anxiety, and having putin his time, decided it was time to move on. SInce then, he has gotteneven more into running. Recently, our cousin's daughter, who is 17 andruns track, decided she wanted to run a marathon. She talked her 46 yearold mother, who had never done such a thing either, into participating.They trained all last year for the Leukemia and Lymphoma marathon. Ourdear uncle died from leukemia in 2000 and was such a special man, thatthey had decided to do this to honor Uncle Ed. Joe has run many races,the most being a 13 mile mini-marathon. This year will be his 20thKentucky Derby Mini-Marathon.Last Sunday, Joe ran and finished 3340 out of 13000 runners. was in second place for her age group, and also finished and herplace was 8175. 26 miles! But the time and the order of finish was notimportant to them. They had raised over $7000 for leukemia and lymphoma!Each of them ran with a picture of a leukemia patient on their bib. Mybrother was in tears last night describing it to me...his picture was ofa 12 year old boy. Joe will send him a picture of the finish line withhis picture on Joe's bib. Joe said that the experience was so incredible,so many people with their purpose to help others.Which brings me to why I am posting....Joe wants to run a race for . I know that the Arthritis Foundationhas a walk in May, but was wondering if there are other avenues toexplore so he can raise money for arthritis research. It seems like wehad someone on the list a while back who was running a marathon forthis...anybody know who she was and the details??Joe's experience really affected him. He said it was the most incrediblefeeling in the world to help others in such a manner. And the people hemet had such a profound influence on him too...to know that there aretruly good people out there willing to help others.Joe has been asked to become a team trainer for Team Leukemia! I think heis going to accept!If anybody has any information on running events to benefit arthritisresearch, please let me know.Thanks and Rob 14 Spondy

[Guest guest]

In a message dated 1/14/04 6:56:17 AM Eastern Standard Time,

snooksmama@... writes:

<< good people out there willing to help others.

Joe has been asked to become a team trainer for Team Leukemia! I think he

is going to accept!

If anybody has any information on running events to benefit arthritis

research, please let me know.

Thanks

and Rob 14 Spondy

>>

Wow, . It certainly sounds like Joe has found himself his 'perfect

nitch'. What a wonderful compassionate man. We need more like him!

Take care.

Patty

[Guest guest]

In a message dated 1/14/04 3:09:16 PM Eastern Standard Time,

bc.price@... writes:

<<

The rash is disappearing as fast as it came on. No rash this morning, and

last night was much improved. Her arthritis is still bothering her, but we are

out of panic mode for the time being. cindy (n, systemic)

----- Original Message -----

From: snooksm >>

Great news . Glad to hear the rash is gone! I hope tomorrow her

arthritis settles down too.

Take care.

Patty

[Guest guest]

Great News !!!! lets hope she continues to improve..

Hugs Helen, mom to (6,systemic)

p.s its awesome that you did that run.. good for you!! I bet Mirian was so proud of you!

Hugs..Helen DH Dan DS's (20)(14)(11)Zachary(9)(6) And DD Yuping Burger, adopted May 9th 2000 DuChang, JiangXi, China DOB 3/29/99 ACR 0-9 mths (11 mths at referral) DTC 7/22/99 DOR 2/25/00 (219 days of waiting) DOT 5/5-5/20/00>From: "WILLIAM PRICE" >Reply- >>Subject: Re: my brother's quest >Date: Wed, 14 Jan 2004 10:41:10 -0800 > >The rash is disappearing as fast as it came on. No rash this morning, and last night was much improved. Her arthritis is still bothering her, but we are out of panic mode for the time being. cindy (n, systemic) > my brother's quest > > > Hello everybody: > I just have to tell you about my brother's adventures recently. > Joe began running after our mother died, when he was 29 (I was 23). He > had never run before. He turned to running as a way to cope with our > mother's death, from cancer. Joe has been running ever since. He has met > many wonderful people and changed his life. Joe has had his own > challenges in life...he has dyslexia, and always struggled in school. I > remember when he went to work at Ford Motor company, on the line, at age > 18. My mother cried that day, because she wanted 'more for him in life > than being a factory worker". Well, if my mother were alive today, she > would be very proud of what he has accomplished. Joe retired almost a > year ago, after 30 years at Ford. He suffers from anxiety, and having put > in his time, decided it was time to move on. SInce then, he has gotten > even more into running. Recently, our cousin's daughter, who is 17 and > runs track, decided she wanted to run a marathon. She talked her 46 year > old mother, who had never done such a thing either, into participating. > They trained all last year for the Leukemia and Lymphoma marathon. Our > dear uncle died from leukemia in 2000 and was such a special man, that > they had decided to do this to honor Uncle Ed. Joe has run many races, > the most being a 13 mile mini-marathon. This year will be his 20th > Kentucky Derby Mini-Marathon. > Last Sunday, Joe ran and finished 3340 out of 13000 runners. > was in second place for her age group, and also finished and her > place was 8175. 26 miles! But the time and the order of finish was not > important to them. They had raised over $7000 for leukemia and lymphoma! > Each of them ran with a picture of a leukemia patient on their bib. My > brother was in tears last night describing it to me...his picture was of > a 12 year old boy. Joe will send him a picture of the finish line with > his picture on Joe's bib. Joe said that the experience was so incredible, > so many people with their purpose to help others. > Which brings me to why I am posting.... > Joe wants to run a race for . I know that the Arthritis Foundation > has a walk in May, but was wondering if there are other avenues to > explore so he can raise money for arthritis research. It seems like we > had someone on the list a while back who was running a marathon for > this...anybody know who she was and the details?? > Joe's experience really affected him. He said it was the most incredible > feeling in the world to help others in such a manner. And the people he > met had such a profound influence on him too...to know that there are > truly good people out there willing to help others. > Joe has been asked to become a team trainer for Team Leukemia! I think he > is going to accept! > If anybody has any information on running events to benefit arthritis > research, please let me know. > Thanks > and Rob 14 Spondy > > >-------------------------------------------------------------------------- >

[Guest guest]

In a message dated 1/15/04 11:37:49 AM Eastern Standard Time,

sylvan_luvr@... writes:

<<

The rash can come and go very frequently cycling at

certain times of the day. We could set the clock by

Skylers rash at one point. It would start every

evening around 4:30 pm, followed by a fever around

5:30, then be gone by morning.

>>

Hi :

Interesting. Caitlin seems to get a rash (if she is going to on that day)

now on her hands, usually stopping at her wrists in the evening. Well, actually

she gets spots now on her hands. Usually shortly following some of her

fingers will swell and then the pain starts. Does this happen to your son

during a

flare or all the time? Caitlin still is not officially dx'd and I am curious

how long this lasts or typically during flares.

Take care.

Patty