Guest guest Posted December 17, 2003 Report Share Posted December 17, 2003 , You are talking to the queen of ramble,so don't apolagize and never apolagize for venting.That is what we are all here for and have done it many many times.'s rash was never textbook,except for the fact that it moved around.Have you ever circled one of Aundrea's spots and seen if it had moved around an hour later?That is the one key thing that differentiates systemic rash from others. Your ped like most needs a class in DMARD therapy 101.There is no such thing as a short trial of Methotrexate or Plaquenil.These are very slow acting drugs.The MTX can take 3 months or more to kick in and the Plaquenil up to 6 months.Thats were the pred comes in.It acts as a bridge until the other drugs take effect.Educate yourself(this list is a great place to start)then you can play a bigger role in treatment and it becomes much less confusing.A word on pred.Pred tapers will be one of the hardest things you ever go through.While it is a wonderous drugs it has it's unwanted side effects and the doc's will try and taper it as quickly as possible.Unfortunately many times your child just can't tolerate it and flares,but it's the only way to find out if the DMARDS are working. Ask away with any questions you may have. Hugs Becki and 5 systemic Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 Hello , They sure were messy lol. But then if u saw my room with all my computer equipment and my photography gear lol. After I post them to the album and u let me know which ones u want I will have one of my labs I do business with print me some copies up. If u want some posted to the album as well just let me know and we will get them up. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2004 Report Share Posted September 17, 2004 In a message dated 9/16/04 9:07:17 PM Eastern Daylight Time, snooksmama@... writes: > .. I > was waiting for the other shoe to drop.. > whoa, that sounded depressing...didn't mean to go off on that tangent! > Keep us posted on ok? I was thinking of him when I was cleaning my > car this morning...I am NOT a good detail man! > and Rob 15 Spondy > Please let us know how everything goes Michele. I found that learning to live while waiting for the other shoe to drop to be the hardest. Detailing, hhhhmmmm, does that mean you are going back to the dealer for the car? Take care. Patty Quote Link to comment Share on other sites More sharing options...
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