Re: Hello Sue

[Guest guest]

Hi ,

You are correct about both Drs in Peoria being regular

rheumatologists, Mackenzie did see Dr. Couri on a couple of

occasions also. He is a real nice guy. Mackenzie is real hard on

the doctors though, or anyone she doesn't know for that matter. She

won't say two words to them most of the time. Dr. Getz used to say

he was coming to get his dose of being ignored when he had to see

her!! Right now I am waiting on a referral approval from my

insurance company to go out of network because there are no

pediatric rheumys available. So I guess we'll see what happens

there. I am glad to hear Aundra has been doing well these last

couple of weeks, especially for the holidays, I hope she continues

to do well. My husband has not returned home yet. He is not due

back until April. That has certainly made this past year a

difficult one. He did get to come home for 2 weeks in November, he

arrived right between my two girls' birthdays(one on the 12th, one

on the 14th). We thought he was going to make it in right on Kenz's

b-day, but he missed it by one day due to a big sandstorm. It was

real good timing all around though, because it was right after she

started feeling so badly and had to start back on the IV's, so

seeing Daddy was real good for her...until it was time to go

back... We live in Heyworth which is about 55-60 miles southeast

of Peoria. Looks like you are further away than I thought

originally, like about 150 miles.

Happy New Year

Take Care, Sue

>

> Hi Sue,

> Dr. Getz is partners with Dr. Joe Couri. Aundrea did see Dr. Getz

on 2

> occasions. I thought that they both were very nice doctors. Dr.

Couri

> even sent Aundrea a card and she really felt comfortable with

him. I had

> done so much reading on this board that stressed the importance of

a board

> certified pedeatric rheumatologist and to my knowledge both Dr.

Getz

> and Dr. Couri are regular rheumatologists. Given the complexity

and

> rareness of systemic JRA we felt it was best to pursue a second

opinion

> with a ped rheumy. I believe there is a dr. Feguson in Iowa City

that another

> mom said was very good. We are taking Aundrea to Dr. Klein-

Gitelman

> with Chicago Childrens Hospital. She seems good, but we have only

met

> her one time. She said Aundrea's rash was very unusual during a

flare and

> if she develops it again they want her hospitalized so that they

can have

> a team of doctors analyze her rash.

> Aundrea has been doing really well for past two weeks. We are

also taking

> her to a Dr. Barone in Shaumburg, Illinois. He is a nucca doctor

and specializes

> in removing intereference away from the brain stem. Its a special

chiropractic

> technique with the goal of allowing the body to heal itself. Its

certainly a whole

> lot more complicated than that but the technique is very gentle

and so far we

> have seen improvement with Aundrea.

> You mentioned that your husband was called away to serve in

February. Has he returned home yet? That certainly must have been

a stuggle for your family. My sister's

> husband serves in the airforce and he was gone for 6 months this

year. She was so

> grateful for his return. Like you they worked opposite shifts and

the kids were pretty lonely without him.

> I hope Kenz is having a good week. Where at in Illinois do you

live? I live in on which is an hour north of the Quad Cities

very close to Clinton Ia.

> Take Care,

>